DS awareness

[Guest guest]

· .Remember when I posted about this

and said that the girls in the picture didn’t look like they had ds,,,and

no one (well, except Carol) could find the picture when they looked?? Well,

imagine my surprise when it popped up tonight when I was on my groups home

page.

· Down Syndrome

October is awareness month.

And here is the link for the groups Ds support

listservs.

http://health.dir./dir/1600395835

kathy

[Guest guest]

sorry Kathy, I tried to copy and paste the link but it still didn't work. So, I can't see the picture. But, I would imagine if the children are said to have Down syndrome and they do not have the physical characteristics of Down syndrome, then they more than likely have mosaic Down syndrome. Most people with mosaic Down syndrome do not have all the physical characteristics of Down syndrome because of the mixture of cells. And, often the individuals are misdiagnosed and told they have trisomy 21 instead of MDS, so the parents believe their child has trisomy 21. Do you know who the children are? Or, is the picture just something that crossed your path? Kristy

[Guest guest]

If it was the picture I saw in the message Kathy sent it looked like a stock

photo of three girls.

=====================

From: Kristy Colvin <imdsapresident@...>

Date: 2006/11/07 Tue PM 08:13:42 CST

Down Syndrome Treatment

Subject: Re: groups DS awareness

sorry Kathy, I tried to copy and paste the link but it still didn't work. So, I

can't see the picture. But, I would imagine if the children are said to have

Down syndrome and they do not have the physical characteristics of Down

syndrome, then they more than likely have mosaic Down syndrome. Most people with

mosaic Down syndrome do not have all the physical characteristics of Down

syndrome because of the mixture of cells. And, often the individuals are

misdiagnosed and told they have trisomy 21 instead of MDS, so the parents

believe their child has trisomy 21.   Do you know who the children are? Or, is

the picture just something that crossed your path?   Kristy

[Guest guest]

No, Kristy, these were typical kids…which is what I thought was

so funny. Kids/people w/Mosaic Ds still have some features of Ds,,,these kids

had none at all. Cute kids, sure…but they are not kids w/Ds.

From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Kristy Colvin

Sent: Tuesday, November 07, 2006

9:14 PM

Down Syndrome Treatment

Subject:

Re: groups DS awareness

sorry Kathy, I tried to copy and paste the link but it still didn't

work. So, I can't see the picture. But, I would imagine if the children are

said to have Down syndrome and they do not have the physical characteristics of

Down syndrome, then they more than likely have mosaic Down syndrome. Most

people with mosaic Down syndrome do not have all the physical characteristics

of Down syndrome because of the mixture of cells. And, often the individuals

are misdiagnosed and told they have trisomy 21 instead of MDS, so the parents

believe their child has trisomy 21.

Do you know who the children are? Or, is the picture just something

that crossed your path?

Kristy