Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 Your a wonderful group !!! Thank you all for sharing your experiences about the progress of your babies. I have not decided about PT. At what age did your babies begin PT ? This is all new to me so I am full of questions. AND I full of questions I tend to like answered by parents rather than drs. Thanks again in Advance Leann and family in Oh Mom to Noah. 9 weeks old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 started PT about 1 month old and did PT until he was about 6. He is now 9 yrs old. ===================== From: ChiLuvCali@... Date: 2006/09/21 Thu PM 08:02:58 CDT Down Syndrome Treatment Subject: Re: Re:PT/ babies with DS Your a wonderful group !!!Thank you all for sharing your experiences about the progress of your babies. I have not decided about PT.At what age did your babies begin PT ? This is all new to me so I am full of questions.AND I full of questions I tend to like answered by parents rather than drs. Thanks again in AdvanceLeann and family in OhMom to Noah. 9 weeks old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 Regan was somewhere between 8 and 10 weeks when we started PT and OT. I give them all the credit for Regan Sitting at 8 months crawling at 10months and walking at 18 months. They have been a blessing to us.ChiLuvCali@... wrote: Your a wonderful group !!! Thank you all for sharing your experiences about the progress of your babies. I have not decided about PT. At what age did your babies begin PT ? This is all new to me so I am full of questions. AND I full of questions I tend to like answered by parents rather than drs. Thanks again in Advance Leann and family in Oh Mom to Noah. 9 weeks old <a href="http://lilypie.com"><img src=" " alt="Lilypie 2nd Birthday Ticker" border="0" width="400" height="80" /></a> Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 We started PT at 8 months. Before that it was me and the home teacher going through the stuff in the Gross Motor Skills for Children with Ds book. It was a timetable that worked for us. Now Eliza is 16 months and does PT once a week on land and once a week on water and loves both. Do you have a home teacher? Ask them about their specialty areas - ours here vary so some are PT, SPeech or OT specialities and you can put off other specialists depending on your home teacher. Good luck!ChiLuvCali@... wrote: Your a wonderful group !!! Thank you all for sharing your experiences about the progress of your babies. I have not decided about PT. At what age did your babies begin PT ? This is all new to me so I am full of questions. AND I full of questions I tend to like answered by parents rather than drs. Thanks again in Advance Leann and family in Oh Mom to Noah. 9 weeks old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Gwyn, I am assuming that you are using ECI. We started ECI at 2 months. My daughter is 3 ½ months old and they have her working on stuff like using hip helpers, mouth exercises, and a bunch of belly time. Are you guys doing anything different. Our lady comes 2 times a week, they suggested 1 x a month and I and my husband both said we would like to see them 2x a week. Please let me know. Yesterday I consulted with a private PT and she rated Emma at a 1 month old development but when I see ECI they said she is right on track, so I am a little confused and a little taken by the evaluation. Anyways any help you can give me would be appreciated. Thank you Hartman Mom of Emma – DS 3 ½ Houston, TX Re:PT/ babies with DS Leann, My son will be 4 mos old next Tuesday and I started PT at 2 1/2 mos. I didn't think that he really needed it at the time and he is still meeting the " typical milestones " but I wanted to make sure that I did not miss anything with him. They initially wanted to come only every other month but I insisted on every month. Do what you think is best for your son! gwyn mommy to Mark - MDS - almost 4 mos Austin, TX Your a wonderful group !!! > Thank you all for sharing your experiences about the progress of your babies. > > I have not decided about PT. > At what age did your babies begin PT ? > > This is all new to me so I am full of questions. > AND I full of questions I tend to like answered by parents rather than drs. > > Thanks again in Advance > Leann and family in Oh > Mom to Noah. 9 weeks old > > > > > > > > <a href= " http://lilypie.com " ><img src= " http://b2.lilypie.com/2fmdm5.png " alt= " Lilypie 2nd Birthday Ticker " border= " 0 " width= " 400 " height= " 80 " /></a> > > > --------------------------------- > Get your email and more, right on the new .com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 We started our PT pretty late, but only because had very severe heart defects and we were just happy she wasn't blue. :-) Her PT began full swing after her repear at 10 months. We had PT before that, but it was very limited as to what we could do with her. I was very grateful for all her therapists. Those first few years are so important and so many stages to get through. I found therapists whom we really liked and knew what they were doing. I had to fire a couple of them too. If you don't like who you get, look around for different ones. Ask other parents who they like in your area. A nice advantage to having therapists is they often can avert a problem before it starts and the kids do grow fast! Even if it sometimes feels slow ;-) It also made life easier and gave me more time to just enjoy the kids. You still have to do the therapies yourself during the week, but having someone help you with ideas and plans, was very helpful.ChiLuvCali@... wrote: Your a wonderful group !!! Thank you all for sharing your experiences about the progress of your babies. I have not decided about PT. At what age did your babies begin PT ? This is all new to me so I am full of questions. AND I full of questions I tend to like answered by parents rather than drs. Thanks again in Advance Leann and family in Oh Mom to Noah. 9 weeks old Carol in IL Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, chronic constipation ( cured now ) and DS. My problem is not how I look. It's how you see me. Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Hi , Yes, I’m using ECI. I am going to switch programs next month as we are moving to a different area of town, so it will be interesting to see if they have anything different to say. I have only had 1 appt so far and our next one is next week and the last with the current OT. Did they use the HELP scale to assess Emma? I had them send me a copy so I can evaluate Mark on an ongoing basis. That way, I know if he is meeting the milestones and he is spot on at this point. Did your insurance pay for the private PT? I don’t know what to think about the different evals? Is this your 1st child? Mark is my 1st child so it’s hard for me to look at him and say “oh, he’s not doing x so we should work with him on that” – that’s why the HELP scale is very useful! I’m also going to move Mark into a place called Sammy’s House starting in the spring. They are a day care facility that specializes in kids with disabilities and they work with the kids to meet goals based on the HELP scale. I can’t wait to get him here as the daycare facility where he is now is not familiar with working with kids with DS. Gwyn Mommy to mark MDS almost 4 mos Austin, TX From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Hartman Sent: Friday, September 22, 2006 11:48 AM Down Syndrome Treatment Subject: RE: Re:PT/ babies with DS Gwyn, I am assuming that you are using ECI. We started ECI at 2 months. My daughter is 3 ½ months old and they have her working on stuff like using hip helpers, mouth exercises, and a bunch of belly time. Are you guys doing anything different. Our lady comes 2 times a week, they suggested 1 x a month and I and my husband both said we would like to see them 2x a week. Please let me know. Yesterday I consulted with a private PT and she rated Emma at a 1 month old development but when I see ECI they said she is right on track, so I am a little confused and a little taken by the evaluation. Anyways any help you can give me would be appreciated. Thank you Hartman Mom of Emma – DS 3 ½ Houston, TX -----Original Message----- From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of gapakenham Sent: Friday, September 22, 2006 11:33 AM Down Syndrome Treatment Subject: Re:PT/ babies with DS Leann, My son will be 4 mos old next Tuesday and I started PT at 2 1/2 mos. I didn't think that he really needed it at the time and he is still meeting the " typical milestones " but I wanted to make sure that I did not miss anything with him. They initially wanted to come only every other month but I insisted on every month. Do what you think is best for your son! gwyn mommy to Mark - MDS - almost 4 mos Austin, TX Your a wonderful group !!! > Thank you all for sharing your experiences about the progress of your babies. > > I have not decided about PT. > At what age did your babies begin PT ? > > This is all new to me so I am full of questions. > AND I full of questions I tend to like answered by parents rather than drs. > > Thanks again in Advance > Leann and family in Oh > Mom to Noah. 9 weeks old > > > > > > > > <a href= " http://lilypie.com " ><img src= " http://b2.lilypie.com/2fmdm5.png " alt= " Lilypie 2nd Birthday Ticker " border= " 0 " width= " 400 " height= " 80 " /></a> > > > --------------------------------- > Get your email and more, right on the new .com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Would like to chime in as well:-) Our daughther is 8 1/2 months old, and services began when she was 5 months old. First the Early Interventionist(EI) started visiting once a week and then I had to request PT. She was having head lag, and for some reason,the EI did not not bring up the idea of bringing in a PT. I told the EI, she is still having head lag, then she put in the request. The PT started coming out in August, when my daughter was 7 months old. Now, we are having the same problem with speech therapy. However, the case manager told our EI that they don't start ST until the child is around 1-2. So, go figure, right? I told our EI that we were having some difficulties with feeding, this is the only way we can get a consulation with the feeding specialist who happens to be a Speech Therapist. The paperwork is in, lets see if they will permit the feeding specialist to do an evaluation. Anyone know when OT usually begins? I don't see the point of the EI if, they can't even realize the type of service the child needs. or maybe we just have a bad Interventionist. Any suggestions??? It seems as though they don't want to provide services. I think that each child should be evaluated by PT, OT, ST from the begining and every so often to check where the child is at and if any services are required. But, things don't always work as you want it to. Sorry, had to vent. ~Seher Mom to Zeyneb 8 1/2 months From: " Hartman " <lvhartman@...> Reply-Down Syndrome Treatment <Down Syndrome Treatment > Subject: RE: Re:PT/ babies with DS Date: Fri, 22 Sep 2006 11:47:46 -0500 Gwyn, I am assuming that you are using ECI. We started ECI at 2 months. My daughter is 3 ½ months old and they have her working on stuff like using hip helpers, mouth exercises, and a bunch of belly time. Are you guys doing anything different. Our lady comes 2 times a week, they suggested 1 x a month and I and my husband both said we would like to see them 2x a week. Please let me know. Yesterday I consulted with a private PT and she rated Emma at a 1 month old development but when I see ECI they said she is right on track, so I am a little confused and a little taken by the evaluation. Anyways any help you can give me would be appreciated. Thank you Hartman Mom of Emma – DS 3 ½ Houston, TX Re:PT/ babies with DS Leann, My son will be 4 mos old next Tuesday and I started PT at 2 1/2 mos. I didn't think that he really needed it at the time and he is still meeting the " typical milestones " but I wanted to make sure that I did not miss anything with him. They initially wanted to come only every other month but I insisted on every month. Do what you think is best for your son! gwyn mommy to Mark - MDS - almost 4 mos Austin, TX Your a wonderful group !!! > Thank you all for sharing your experiences about the progress of your babies. > > I have not decided about PT. > At what age did your babies begin PT ? > > This is all new to me so I am full of questions. > AND I full of questions I tend to like answered by parents rather than drs. > > Thanks again in Advance > Leann and family in Oh > Mom to Noah. 9 weeks old > > > > > > > > <a href= " http://lilypie. <http://lilypie.com> com " ><img src= " http://b2.lilypie. <http://b2.lilypie.com/2fmdm5.png> com/2fmdm5.png " alt= " Lilypie 2nd Birthday Ticker " border= " 0 " width= " 400 " height= " 80 " /></a> > > > --------------------------------- > Get your email and more, right on the new .com > _________________________________________________________________ Get today's hot entertainment gossip http://movies.msn.com/movies/hotgossip Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 The whole topic can get me really worked up when i am in a bad mood, but i'm in a pretty good mood so you all are lucky! Anyway it varies so much state to state and county to county. In my state they told me EI teacher right away once a week. PT after a year. Speech at 2 years. OT when they are out of EI (so around 3). Then i started talking to parents and every parent who went with their said program said I wished started sooner. Most parents (myselft included) will either pay for a consult earlier or go through private insurance. I think I said I started my daughter in PT at 10 months - it was actually 8 months and speech at 10months. Both through my own insurance. EI started picking up PT at 15 months and i am working on getting speech picked up by them (my daughter is 16 months). And i plan on getting a private OT consult soon. This is my program here in Northern California. Many states have it far better - NY and Minnesota seem really good, and many states have it far worse. I found the best way to figure it out is through other parents in your area (many have regional ) or a local parent advocacy group. Another important thing is to NEVER beat yourself up by thinking "Oh i should of started something sooner." We are all trying the best we can and have our little ones best interest at heart. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Actually, we were asking about PT, and the OT said that when they are this age (mine is 10 mos), that the PT and OT do basically the same thing. She works with his gross motor skills, etc. Does this sound reasonable? Eagle Acres Ranch Craig Weaver and 308 Twin Lakes Rd. Winthrop, WA 98862 (509) 996-7807 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 We started ST & OT immediately. I guess it depends on the state??? I’m not sure what the difference b/w OT and PT is – can someone explain? From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of ELIZABETH BROWN Sent: Friday, September 22, 2006 5:49 PM Down Syndrome Treatment Subject: RE: Re:PT/ babies with DS The whole topic can get me really worked up when i am in a bad mood, but i'm in a pretty good mood so you all are lucky! Anyway it varies so much state to state and county to county. In my state they told me EI teacher right away once a week. PT after a year. Speech at 2 years. OT when they are out of EI (so around 3). Then i started talking to parents and every parent who went with their said program said I wished started sooner. Most parents (myselft included) will either pay for a consult earlier or go through private insurance. I think I said I started my daughter in PT at 10 months - it was actually 8 months and speech at 10months. Both through my own insurance. EI started picking up PT at 15 months and i am working on getting speech picked up by them (my daughter is 16 months). And i plan on getting a private OT consult soon. This is my program here in Northern California. Many states have it far better - NY and Minnesota seem really good, and many states have it far worse. I found the best way to figure it out is through other parents in your area (many have regional ) or a local parent advocacy group. Another important thing is to NEVER beat yourself up by thinking " Oh i should of started something sooner. " We are all trying the best we can and have our little ones best interest at heart. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Thank You Everyone for sharing PT experiences. Leann and family in Ohio Mom to Noah, 9weeks old (DS) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 In a message dated 23/09/2006 04:07:37 GMT Standard Time, gwyn.theodore@... writes: We started ST & OT immediately. I guess it depends on the state??? I’m not sure what the difference b/w OT and PT is – can someone explain? wot is ot pt so on so on ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 I don't know what a home teacher is ? Blessings to all, Leann and family in Ohio Mom to Noah In a message dated 9/23/2006 8:39:41 A.M. Eastern Daylight Time, archiepug@... writes: We started PT at 8 months. Before that it was me and the home teacher going through the stuff in the Gross Motor Skills for Children with Ds book. It was a timetable that worked for us. Now Eliza is 16 months and does PT once a week on land and once a week on water and loves both. Do you have a home teacher? Ask them about their specialty areas - ours here vary so some are PT, SPeech or OT specialities and you can put off other specialists depending on your home teacher. Good luck!ChiLuvCaliaol wrote: Your a wonderful group !!! Thank you all for sharing your experiences about the progress of your babies. I have not decided about PT. At what age did your babies begin PT ? This is all new to me so I am full of questions. AND I full of questions I tend to like answered by parents rather than drs. Thanks again in Advance Leann and family in Oh Mom to Noah. 9 weeks old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 ST – speech therapy OT – occupational therapy PT – physical therapy From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of sylviabrtpck@... Sent: Saturday, September 23, 2006 4:13 PM Down Syndrome Treatment Subject: Re: Re:PT/ babies with DS In a message dated 23/09/2006 04:07:37 GMT Standard Time, gwyn.theodoregmail writes: We started ST & OT immediately. I guess it depends on the state??? I’m not sure what the difference b/w OT and PT is – can someone explain? wot is ot pt so on so on ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Hi Gwyn, I was wondering if you know where I could get a copy of the HELP scale. I have never heard of it. The EI teacher we have has a scale that she goes by, but there are big age ranges for each milestone even for regular kids. thanks, ~Seher Mom to Zeyneb 8 1/2 months and Tarik 2 yrs. From: " Gwyn Theodore " <gwyn.theodore@...> Reply-Down Syndrome Treatment <Down Syndrome Treatment > Subject: RE: Re:PT/ babies with DS Date: Fri, 22 Sep 2006 15:12:41 -0500 Hi , Yes, I’m using ECI. I am going to switch programs next month as we are moving to a different area of town, so it will be interesting to see if they have anything different to say. I have only had 1 appt so far and our next one is next week and the last with the current OT. Did they use the HELP scale to assess Emma? I had them send me a copy so I can evaluate Mark on an ongoing basis. That way, I know if he is meeting the milestones and he is spot on at this point. Did your insurance pay for the private PT? I don’t know what to think about the different evals? Is this your 1st child? Mark is my 1st child so it’s hard for me to look at him and say “oh, he’s not doing x so we should work with him on that” – that’s why the HELP scale is very useful! I’m also going to move Mark into a place called Sammy’s House starting in the spring. They are a day care facility that specializes in kids with disabilities and they work with the kids to meet goals based on the HELP scale. I can’t wait to get him here as the daycare facility where he is now is not familiar with working with kids with DS. Gwyn Mommy to mark MDS almost 4 mos Austin, TX _____ From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Hartman Sent: Friday, September 22, 2006 11:48 AM Down Syndrome Treatment Subject: RE: Re:PT/ babies with DS Gwyn, I am assuming that you are using ECI. We started ECI at 2 months. My daughter is 3 ½ months old and they have her working on stuff like using hip helpers, mouth exercises, and a bunch of belly time. Are you guys doing anything different. Our lady comes 2 times a week, they suggested 1 x a month and I and my husband both said we would like to see them 2x a week. Please let me know. Yesterday I consulted with a private PT and she rated Emma at a 1 month old development but when I see ECI they said she is right on track, so I am a little confused and a little taken by the evaluation. Anyways any help you can give me would be appreciated. Thank you Hartman Mom of Emma – DS 3 ½ Houston, TX Re:PT/ babies with DS Leann, My son will be 4 mos old next Tuesday and I started PT at 2 1/2 mos. I didn't think that he really needed it at the time and he is still meeting the " typical milestones " but I wanted to make sure that I did not miss anything with him. They initially wanted to come only every other month but I insisted on every month. Do what you think is best for your son! gwyn mommy to Mark - MDS - almost 4 mos Austin, TX Your a wonderful group !!! > Thank you all for sharing your experiences about the progress of your babies. > > I have not decided about PT. > At what age did your babies begin PT ? > > This is all new to me so I am full of questions. > AND I full of questions I tend to like answered by parents rather than drs. > > Thanks again in Advance > Leann and family in Oh > Mom to Noah. 9 weeks old > > > > > > > > <a href= " http://lilypie. <http://lilypie.com> com " ><img src= " http://b2.lilypie. <http://b2.lilypie.com/2fmdm5.png> com/2fmdm5.png " alt= " Lilypie 2nd Birthday Ticker " border= " 0 " width= " 400 " height= " 80 " /></a> > > > --------------------------------- > Get your email and more, right on the new .com > _________________________________________________________________ Try the new Live Search today! http://imagine-windowslive.com/minisites/searchlaunch/?locale=en-us & FORM=WLMTAG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 In a message dated 24/09/2006 03:16:12 GMT Standard Time, gwyn.theodore@... writes: ST – speech therapy got that rest ????????? alex was in hospital more than out so got passed over Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 In our county our regional center sources out to Easter Seals for some of the services. One of the things they provide is a weekly home teacher. Sometimes they are called a EI coordinator. They are trained generally in PT, Speech and OT, as well as being a sounding board for any thoughts and ideas you have about your childs progress. Here they do detailed 6 month evals and meet with us when we meet with our case worker for our six month IFSP. Some counties have them and some don't. We love ours, she has helped us so much coming up with a therapy plan for Eliza.ChiLuvCali@... wrote: I don't know what a home teacher is ? Blessings to all, Leann and family in Ohio Mom to Noah In a message dated 9/23/2006 8:39:41 A.M. Eastern Daylight Time, archiepugprodigy (DOT) net writes: We started PT at 8 months. Before that it was me and the home teacher going through the stuff in the Gross Motor Skills for Children with Ds book. It was a timetable that worked for us. Now Eliza is 16 months and does PT once a week on land and once a week on water and loves both. Do you have a home teacher? Ask them about their specialty areas - ours here vary so some are PT, SPeech or OT specialities and you can put off other specialists depending on your home teacher. Good luck!ChiLuvCaliaol wrote: Your a wonderful group !!! Thank you all for sharing your experiences about the progress of your babies. I have not decided about PT. At what age did your babies begin PT ? This is all new to me so I am full of questions. AND I full of questions I tend to like answered by parents rather than drs. Thanks again in Advance Leann and family in Oh Mom to Noah. 9 weeks old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Hi Seher, You can order a copy from http://www.vort.com/products/158.html It's the HELP Strand Assessment. A friend of mine is a social worker and she tells me it's an excellent tool. Gwyn Mom to Mark MDS 4 months Austin, TX Re:PT/ babies with DS Leann, My son will be 4 mos old next Tuesday and I started PT at 2 1/2 mos. I didn't think that he really needed it at the time and he is still meeting the " typical milestones " but I wanted to make sure that I did not miss anything with him. They initially wanted to come only every other month but I insisted on every month. Do what you think is best for your son! gwyn mommy to Mark - MDS - almost 4 mos Austin, TX Your a wonderful group !!! > Thank you all for sharing your experiences about the progress of your babies. > > I have not decided about PT. > At what age did your babies begin PT ? > > This is all new to me so I am full of questions. > AND I full of questions I tend to like answered by parents rather than drs. > > Thanks again in Advance > Leann and family in Oh > Mom to Noah. 9 weeks old > > > > > > > > <a href= " http://lilypie. <http://lilypie.com> com " ><img src= " http://b2.lilypie. <http://b2.lilypie.com/2fmdm5.png> com/2fmdm5.png " alt= " Lilypie 2nd Birthday Ticker " border= " 0 " width= " 400 " height= " 80 " /></a> > > > --------------------------------- > Get your email and more, right on the new .com > _________________________________________________________________ Try the new Live Search today! http://imagine-windowslive.com/minisites/searchlaunch/?locale=en-us & FORM=WLM TAG 1. Anything suggested on this site or opinions offered are not intended to be medical or pharmaceutical advice or otherwise take the place of your physicians orders, nor to diagnose or treat your specific health problems. Please discuss all methods of treatment with your practitioner. 2 *****WARNING: Flames and inappropriate treatment of other members on this list will NOT be tolerated. 3. Our HOME page is Down Syndrome Treatment where all archived posts as well as photos,links, files, articles etc. are found. You " MUST " have a ID and pass word to enter it. To contact Carol, owner & moderator doihavtasay@... To contact Kathy, owner & moderator kathy_r@... To contact , owner & moderator jules@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Hello Gwyn, I to this date have had 3 (next one this Wed). They did use the HELP evaluation and she was on target with everything, now I am just worried she is not progressing based off the assessment of this new private pt. I am going to continue to use ECI since I have learned a lot more than the private PT even shared with me. That is a wonderful Idea I am going to ask ECI to send me the copy of the evaluation so that I to can keep up with her meeting the milestones. My insurance did pay for the PT, and is also paying for ECI. Emma is my first child just like you, my husband and I are constantly saying the same we do not know what to except because EVERY child is different. We have looked at a private school that is in Houston it is called The Rise School and she is on the wait list for next year. We will just wait to see how she progresses and hope for the best with much hard work. I wish you all the best with Mark J Mom to Emma – DS 3 ½ Houston, TX Re:PT/ babies with DS Leann, My son will be 4 mos old next Tuesday and I started PT at 2 1/2 mos. I didn't think that he really needed it at the time and he is still meeting the " typical milestones " but I wanted to make sure that I did not miss anything with him. They initially wanted to come only every other month but I insisted on every month. Do what you think is best for your son! gwyn mommy to Mark - MDS - almost 4 mos Austin, TX Your a wonderful group !!! > Thank you all for sharing your experiences about the progress of your babies. > > I have not decided about PT. > At what age did your babies begin PT ? > > This is all new to me so I am full of questions. > AND I full of questions I tend to like answered by parents rather than drs. > > Thanks again in Advance > Leann and family in Oh > Mom to Noah. 9 weeks old > > > > > > > > <a href= " http://lilypie.com " ><img src= " http://b2.lilypie.com/2fmdm5.png " alt= " Lilypie 2nd Birthday Ticker " border= " 0 " width= " 400 " height= " 80 " /></a> > > > --------------------------------- > Get your email and more, right on the new .com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 The RISE school is excellent! They have a school in Austin also and have just added a 1 year old class. I’m thinking about putting Mark there also. Gwyn Mom to Mark 4 months MDS Austin, TX From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Hartman Sent: Sunday, September 24, 2006 9:55 PM Down Syndrome Treatment Subject: RE: Re:PT/ babies with DS Hello Gwyn, I to this date have had 3 (next one this Wed). They did use the HELP evaluation and she was on target with everything, now I am just worried she is not progressing based off the assessment of this new private pt. I am going to continue to use ECI since I have learned a lot more than the private PT even shared with me. That is a wonderful Idea I am going to ask ECI to send me the copy of the evaluation so that I to can keep up with her meeting the milestones. My insurance did pay for the PT, and is also paying for ECI. Emma is my first child just like you, my husband and I are constantly saying the same we do not know what to except because EVERY child is different. We have looked at a private school that is in Houston it is called The Rise School and she is on the wait list for next year. We will just wait to see how she progresses and hope for the best with much hard work. I wish you all the best with Mark J Mom to Emma – DS 3 ½ Houston, TX -----Original Message----- From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Gwyn Theodore Sent: Friday, September 22, 2006 3:13 PM Down Syndrome Treatment Subject: RE: Re:PT/ babies with DS Hi , Yes, I’m using ECI. I am going to switch programs next month as we are moving to a different area of town, so it will be interesting to see if they have anything different to say. I have only had 1 appt so far and our next one is next week and the last with the current OT. Did they use the HELP scale to assess Emma? I had them send me a copy so I can evaluate Mark on an ongoing basis. That way, I know if he is meeting the milestones and he is spot on at this point. Did your insurance pay for the private PT? I don’t know what to think about the different evals? Is this your 1st child? Mark is my 1st child so it’s hard for me to look at him and say “oh, he’s not doing x so we should work with him on that” – that’s why the HELP scale is very useful! I’m also going to move Mark into a place called Sammy’s House starting in the spring. They are a day care facility that specializes in kids with disabilities and they work with the kids to meet goals based on the HELP scale. I can’t wait to get him here as the daycare facility where he is now is not familiar with working with kids with DS. Gwyn Mommy to mark MDS almost 4 mos Austin, TX From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Hartman Sent: Friday, September 22, 2006 11:48 AM Down Syndrome Treatment Subject: RE: Re:PT/ babies with DS Gwyn, I am assuming that you are using ECI. We started ECI at 2 months. My daughter is 3 ½ months old and they have her working on stuff like using hip helpers, mouth exercises, and a bunch of belly time. Are you guys doing anything different. Our lady comes 2 times a week, they suggested 1 x a month and I and my husband both said we would like to see them 2x a week. Please let me know. Yesterday I consulted with a private PT and she rated Emma at a 1 month old development but when I see ECI they said she is right on track, so I am a little confused and a little taken by the evaluation. Anyways any help you can give me would be appreciated. Thank you Hartman Mom of Emma – DS 3 ½ Houston, TX -----Original Message----- From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of gapakenham Sent: Friday, September 22, 2006 11:33 AM Down Syndrome Treatment Subject: Re:PT/ babies with DS Leann, My son will be 4 mos old next Tuesday and I started PT at 2 1/2 mos. I didn't think that he really needed it at the time and he is still meeting the " typical milestones " but I wanted to make sure that I did not miss anything with him. They initially wanted to come only every other month but I insisted on every month. Do what you think is best for your son! gwyn mommy to Mark - MDS - almost 4 mos Austin, TX Your a wonderful group !!! > Thank you all for sharing your experiences about the progress of your babies. > > I have not decided about PT. > At what age did your babies begin PT ? > > This is all new to me so I am full of questions. > AND I full of questions I tend to like answered by parents rather than drs. > > Thanks again in Advance > Leann and family in Oh > Mom to Noah. 9 weeks old > > > > > > > > <a href= " http://lilypie.com " ><img src= " http://b2.lilypie.com/2fmdm5.png " alt= " Lilypie 2nd Birthday Ticker " border= " 0 " width= " 400 " height= " 80 " /></a> > > > --------------------------------- > Get your email and more, right on the new .com > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.