Re: Anyone out there with an adult child my Andy's age? He is 34 /see his Album

[Guest guest]

Hi Trish

All your experience is surely welcome here! However, my daughter is 8 and I live in Florida! I have wondered how to keep my daughter socially active once school ends, that could certainly be challanging.

On one of the other DS lists there is a father who writes in and has a 30-something daughter with DS, I think they are in CA. That list is: DOWN-SYN@...

ette

-------------- Original message from "andy2trish" <andy2trish@...>: --------------

I think I am in the wrong spot here since everyone appears to have infants to young children on this sight. I am hoping to connect wth someone with adult children who live at home my son's age. He is so active, and it would be nice for him to have someone else in his age group to get aquainted with. I have been on this sight for a little while and I don't see any interest in anyone communicating with someone like my husband and I who have a DS son Andy's age. We live in Granger, IN so we are looking in this area and surrounding nearby areas of Niles, Mishawaka, South Bend. If anyone is interested in knowing what we now know about all your child can be, just write me. God Bless and never give up helping your child to become all they can be! Trish

[Guest guest]

<<I think I am in the wrong spot here since everyone appears to have infants to young children on this sight. I am hoping to connect wth someone with adult children who live at home my son's age. He is so active, and it would be nice for him to have someone else in his age group to get aquainted with. I have been on this sight for a little while and I don't see any interest in anyone communicating with someone like my husband and I who have a DS son Andy's age. We live in Granger, IN so we are looking in this area and surrounding nearby areas of Niles, Mishawaka, South Bend. If anyone is interested in knowing what we now know about all your child can be, just write me. God Bless and never give up helping your child to become all they can be! Trish>>

Hi Trish, I think there are older kids on the list too...is that still even running?

anyone know? On our Down Sybdrome Autism list we have a 75 yo mom with a 43 yo son who is a constant source of inspiration for us. I would love to hear your input as my child is 17 and older than most of the young kids on alot of lists but because we are dealing with the Autism also I doubt that you would be interested in hearing from us :-) Believe me you're not the only one feeling isolated.

Sherry in Florida

[Guest guest]

Alot of people on this site seem to only talk about nutrivene and all kinds of supplements...what about other things in general for our DS babies...That is why I am never interested in this blog. Does anyone agree?

-------------- Original message -------------- From: "gldcst" <gldcst@...>

<<I think I am in the wrong spot here since everyone appears to have infants to young children on this sight. I am hoping to connect wth someone with adult children who live at home my son's age. He is so active, and it would be nice for him to have someone else in his age group to get aquainted with. I have been on this sight for a little while and I don't see any interest in anyone communicating with someone like my husband and I who have a DS son Andy's age. We live in Granger, IN so we are looking in this area and surrounding nearby areas of Niles, Mishawaka, South Bend. If anyone is interested in knowing what we now know about all your child can be, just write me. God Bless and never give up helping your child to become all they can be! Trish>>

Hi Trish, I think there are older kids on the list too...is that still even running?

anyone know? On our Down Sybdrome Autism list we have a 75 yo mom with a 43 yo son who is a constant source of inspiration for us. I would love to hear your input as my child is 17 and older than most of the young kids on alot of lists but because we are dealing with the Autism also I doubt that you would be interested in hearing from us :-) Believe me you're not the only one feeling isolated.

Sherry in Florida

[Guest guest]

We have people on this listserv who identified themselves when they

joined as being parents of adults w/Ds. The parents of the younger kids just

seem to be the ones posting at the moment, but anyone is welcome to jump in at

any time.

kathyR

From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of gldcst

Sent: Thursday, June 29, 2006 4:59

PM

Down Syndrome Treatment

Subject: Re:

Anyone out there with an adult child my Andy's age?

He is 34 /see his Album

<<I think I am in the wrong spot here since everyone

appears to have

infants to young children on this sight. I am hoping to connect wth

someone with adult children who live at home my son's age. He is so

active, and it would be nice for him to have someone else in his age

group to get aquainted with. I have been on this sight for a little

while and I don't see any interest in anyone communicating with

someone like my husband and I who have a DS son Andy's age. We live in

Granger, IN so we are looking in this area and surrounding nearby

areas of Niles, Mishawaka,

South Bend. If

anyone is interested in

knowing what we now know about all your child can be, just write me.

God Bless and never give up helping your child to become all they can

be! Trish>>

Hi Trish, I think there are older kids on the list

too...is that still even running?

anyone know? On our Down Sybdrome Autism list we have a 75

yo mom with a 43 yo son who is a constant source of inspiration for us. I would

love to hear your input as my child is 17 and older than most of the young kids

on alot of lists but because we are dealing with the Autism also I doubt that

you would be interested in hearing from us :-) Believe me you're not the

only one feeling isolated.

Sherry in Florida

[Guest guest]

<<Alot of people on this site seem to only talk about nutrivene and all kinds of supplements...what about other things in general for our DS babies...That is why I am never interested in this blog. Does anyone agree?>>

Just my humble opinion but this list has just barely started and I haven't noticed an excess of discussion in any one particular direction yet. I know alot of folks on this list- many use supplements and nutrivene and many don't. Many have had negative experiences with it for their child and many swear by it. We tried it because we tried everything but my dtr wasn't able to tolerate it. What sort of "other" things in general are of interest to you? I'm sure you have only to throw a question out there to begin a discussion.

Sherry (not a listowner or moderator -just a mom)

[Guest guest]

I'm here! We have a 17-y.o.at home. He's not as energetic as your son -- wish he was. Looking into maybe some vitamins or something. I wish we were near you, but we're in Tennessee. Good to know you're here. I think people with DS babies are more active, seeking out everything they can. We did that too. Betty in TN

Re: Anyone out there with an adult child my Andy's age? He is 34 /see his Album

<<I think I am in the wrong spot here since everyone appears to have infants to young children on this sight. I am hoping to connect wth someone with adult children who live at home my son's age. He is so active, and it would be nice for him to have someone else in his age group to get aquainted with. I have been on this sight for a little while and I don't see any interest in anyone communicating with someone like my husband and I who have a DS son Andy's age. We live in Granger, IN so we are looking in this area and surrounding nearby areas of Niles, Mishawaka, South Bend. If anyone is interested in knowing what we now know about all your child can be, just write me. God Bless and never give up helping your child to become all they can be! Trish>>

Hi Trish, I think there are older kids on the list too...is that still even running?

anyone know? On our Down Sybdrome Autism list we have a 75 yo mom with a 43 yo son who is a constant source of inspiration for us. I would love to hear your input as my child is 17 and older than most of the young kids on alot of lists but because we are dealing with the Autism also I doubt that you would be interested in hearing from us :-) Believe me you're not the only one feeling isolated.

Sherry in Florida

[Guest guest]

Hi Trish :-)

I for one am *very* interested in hearing about about and talking with parents of the older kids. :-) I know you are not the only parent here and I was truly hoping you all would stike up some conversations. Not sure where everyone lives though.

Feel free to chime in on anything the parents of the younger kids say. I am sure you have very useful insight to share!

Has it been it difficult to find and maintain close relationships for your son all his life, or has it just become more difficult as he got older? What does he do for socialzing? You said he is active, I would be curious to know all about that.

Another mom here in the area and myself have been trying to get a solid play group established for the kids and it's been an up hill battle all the way. It seems almost impossible to get people together with any regularity. We are finding that building real friendships between the kids takes one commodity many of us are sorely lacking- TIME!

She is much more dedicated to calling people etc then I am.... I tend to go with the flow which is really not a good thing in this regard ;-)

The other issue we are finding is that the kids need to be taught how to be friends, play together, care about each other's feelings etc etc etc .....so when we do get together, it's not a social time for the MOMs, but instead we have to put some real hard work into the kids. It's been paying off for our two girls who are very best friends and play together independently for the most part now. But those skills don't seem to extend to the 'new' kid entering. Even harder if the newer child has fewer social skills for the girls to 'work off of'. They don't have the ability to help them be absorbed into the group with out a lot of help.

Having said all that, would love to know how things are going for your son, what has seemed to work and what didn't. Things you might change or have done differently. Things you just wouldn't have wasted time worrying about.

--Carol in IL

-------------- Original message -------------- From: "andy2trish" <andy2trish@...>

I think I am in the wrong spot here since everyone appears to have infants to young children on this sight. I am hoping to connect wth someone with adult children who live at home my son's age. He is so active, and it would be nice for him to have someone else in his age group to get aquainted with. I have been on this sight for a little while and I don't see any interest in anyone communicating with someone like my husband and I who have a DS son Andy's age. We live in Granger, IN so we are looking in this area and surrounding nearby areas of Niles, Mishawaka, South Bend. If anyone is interested in knowing what we now know about all your child can be, just write me. God Bless and never give up helping your child to become all they can be! Trish

[Guest guest]

What other things would you like to discuss about babies with DS? Got a question or a suggestion?

My daughter, Faith is 8 years old and I have lots of opinions ;-)

ette

-------------- Original message from jasiguenza@...: --------------

Alot of people on this site seem to only talk about nutrivene and all kinds of supplements...what about other things in general for our DS babies...That is why I am never interested in this blog. Does anyone agree?

-------------- Original message -------------- From: "gldcst" <gldcst@...>

<<I think I am in the wrong spot here since everyone appears to have infants to young children on this sight. I am hoping to connect wth someone with adult children who live at home my son's age. He is so active, and it would be nice for him to have someone else in his age group to get aquainted with. I have been on this sight for a little while and I don't see any interest in anyone communicating with someone like my husband and I who have a DS son Andy's age. We live in Granger, IN so we are looking in this area and surrounding nearby areas of Niles, Mishawaka, South Bend. If anyone is interested in knowing what we now know about all your child can be, just write me. God Bless and never give up helping your child to become all they can be! Trish>>

Hi Trish, I think there are older kids on the list too...is that still even running?

anyone know? On our Down Sybdrome Autism list we have a 75 yo mom with a 43 yo son who is a constant source of inspiration for us. I would love to hear your input as my child is 17 and older than most of the young kids on alot of lists but because we are dealing with the Autism also I doubt that you would be interested in hearing from us :-) Believe me you're not the only one feeling isolated.

Sherry in Florida

[Guest guest]

hi, trish,

yes, please stay with us, smile!! we welcome ya on the board!! i hope you feel benefitable from us, too.

thanks, kk

-- Re: Anyone out there with an adult child my Andy's age? He is 34 /see his Album

Hi Trish :-)

I for one am *very* interested in hearing about about and talking with parents of the older kids. :-) I know you are not the only parent here and I was truly hoping you all would stike up some conversations. Not sure where everyone lives though.

Feel free to chime in on anything the parents of the younger kids say. I am sure you have very useful insight to share!

Has it been it difficult to find and maintain close relationships for your son all his life, or has it just become more difficult as he got older? What does he do for socialzing? You said he is active, I would be curious to know all about that.

Another mom here in the area and myself have been trying to get a solid play group established for the kids and it's been an up hill battle all the way. It seems almost impossible to get people together with any regularity. We are finding that building real friendships between the kids takes one commodity many of us are sorely lacking- TIME!

She is much more dedicated to calling people etc then I am.... I tend to go with the flow which is really not a good thing in this regard ;-)

The other issue we are finding is that the kids need to be taught how to be friends, play together, care about each other's feelings etc etc etc .....so when we do get together, it's not a social time for the MOMs, but instead we have to put some real hard work into the kids. It's been paying off for our two girls who are very best friends and play together independently for the most part now. But those skills don't seem to extend to the 'new' kid entering. Even harder if the newer child has fewer social skills for the girls to 'work off of'. They don't have the ability to help them be absorbed into the group with out a lot of help.

Having said all that, would love to know how things are going for your son, what has seemed to work and what didn't. Things you might change or have done differently. Things you just wouldn't have wasted time worrying about.

--Carol in IL

-------------- Original message -------------- From: "andy2trish" <andy2trish@...>

I think I am in the wrong spot here since everyone appears to have infants to young children on this sight. I am hoping to connect wth someone with adult children who live at home my son's age. He is so active, and it would be nice for him to have someone else in his age group to get aquainted with. I have been on this sight for a little while and I don't see any interest in anyone communicating with someone like my husband and I who have a DS son Andy's age. We live in Granger, IN so we are looking in this area and surrounding nearby areas of Niles, Mishawaka, South Bend. If anyone is interested in knowing what we now know about all your child can be, just write me. God Bless and never give up helping your child to become all they can be! Trish

[Guest guest]

Looks like we will talk about anything that

is posted;-) Just off the top of my head, I remember reading about sippy cups

(To Use or Not to Use, that is the question….;-) household cleaning

agents (babies are real Mess Agents) pill swallowing cups (for when the baby

gets a little older),,,a caution not to swaddle babies or keep them in

positions that hold their legs together for long periods of time because that

may lead to hip problems,,,special diets for kids who need them, articles about

people w/Ds getting married, group therapy vs individual speech therapy for

young children w/Ds….

Many of us here DO use supplements for our

kids, but we do have a file w/links for information both for and against the

use of supplements, as well as a ton of information in the files that would

be useful for parents of babies/young kids as well as young adults..

If you are interested in something, post a

message about it to get a conversation goingJ. My son is almost 8, but I like to hear

about people w/Ds of all ages.

KathyR

------------- Original message from jasiguenza@...:

--------------

Alot of people on this site seem to only talk about nutrivene and all

kinds of supplements...what about other things in general for our DS

babies...That is why I am never interested in this blog. Does anyone agree?

[Guest guest]

Hi Sherry. Thanks for responding and I have read your e-mails. I have just been busy with my son, my husband and things going on with our family. I promise, I will write more later. God Bless!gldcst <gldcst@...> wrote: <<I'm here! We have a 17-y.o.at home. He's not as energetic as your son -- wish he was.>> Oh goody is he interested in a beautiful 17 year old

girl who is addicted to videos? LOL Sherry

[Guest guest]

Oh, would he fall in love with her! somebody to watch videos with, that's his idea of a perfect 10! Which ones does she watch? One of the girls at camp this past couple weeks nabbed Jeff as her "boyfriend," but sadly she is from South Carolina, and I don't know if a long-distance relationship would work. B in TN

Re: Anyone out there with an adult child my Andy's age? He is 34 /see his Album

<<I'm here! We have a 17-y.o.at home. He's not as energetic as your son -- wish he was.>>

Oh goody is he interested in a beautiful 17 year old girl who is addicted to videos?

LOL Sherry

[Guest guest]

No. I'm interested in about anything that might help my son with DS

--from educational to food to supplements to therapy to social stuff

to medical to . . . . well you get the pic. What " other things in

general " are you talking about?

Priscilla K

--- jasiguenza@... wrote:

> Alot of people on this site seem to only talk about nutrivene and

> all kinds of supplements...what about other things in general for

> our DS babies...That is why I am never interested in this blog.

> Does anyone agree?

>

> -------------- Original message --------------

> From: " gldcst " <gldcst@...>

>

> <<I think I am in the wrong spot here since everyone appears to

> have

> infants to young children on this sight. I am hoping to connect wth

>

> someone with adult children who live at home my son's age. He is so

>

> active, and it would be nice for him to have someone else in his

> age

> group to get aquainted with. I have been on this sight for a little

>

> while and I don't see any interest in anyone communicating with

> someone like my husband and I who have a DS son Andy's age. We live

> in

> Granger, IN so we are looking in this area and surrounding nearby

> areas of Niles, Mishawaka, South Bend. If anyone is interested in

> knowing what we now know about all your child can be, just write

> me.

> God Bless and never give up helping your child to become all they

> can

> be! Trish>>

>

> Hi Trish, I think there are older kids on the list

> too...is that still even running?

> anyone know? On our Down Sybdrome Autism list we have a 75 yo mom

> with a 43 yo son who is a constant source of inspiration for us. I

> would love to hear your input as my child is 17 and older than most

> of the young kids on alot of lists but because we are dealing with

> the Autism also I doubt that you would be interested in hearing

> from us :-) Believe me you're not the only one feeling isolated.

> Sherry in Florida

>

>

Priscilla Kendrick, married 28 years to Darrel and parents of 9 kids including

Evan, 10, born with Down Syndrome and Spina Bifida

" My strength is made perfect in weakness. "

" My grace is sufficient. " II Corinthians 12:9 KJV

__________________________________________________