Canadian Forum

[Guest guest]

Cheryl,

Thanks for posting the link to the Canadian Forum. I took a look at it and

want to take time to watch more. Very Interesting.

I want to clear something up. I do not know anything about MSKCC's lab and

any possible disorganization of it. I'm still pretty new at all of this. My

only disappointment was with a secretary who didn't send me results I

requested. I think that was only an office procedure type of thing. I am

certainly not qualified to question any results from their lab. I am extremely

grateful that they are very thorough and rely on all tests--bma, FISH, and

qpcr.

I am very pleased with my treatment at MSKCC. I have extreme confidence in

my dr. and feel fortunate to be treated at a major cancer center. I like my

dr. very much and travel two hours each way to see her every six weeks.

I'm sorry to hear that your qpcr is costing you so much money. However,

it's important to be seen at a major center, so I'm sure it is worth it for

you.

Also, when they compare test results isn't it important to be comparing the

same lab year to year?

Thanks again for the link.

in N.Y.

dx. 1/04

Zero Club #756

[Guest guest]

Hi ,

I am glad you got a chance to see the webcast. Dr. Laneuville used

some very nice graphics to help us all understand more about CML and

how Gleevec works.

Thank you for sharing your feelings about MSKCC. I like Dr. Nimer,

his nurse and the staff there too. I really like everyone at the

Royal Vic as well. I guess you can say I am a bit torn as I do feel

I get very good care in both places. Since I have paid into the

Canadian Helathcare system for so many years it is good for me to get

treated there as my treatment costs are fully covered.

The point about the QPCR is that it just shows us that no matter

where we go, there are bound to be some glitches in the system.

Regarding your question about comparing results, yes you are right it

is best to only compare results with the same lab, and that is

exactly what I do. I have been having QPCRs at Sloan since February

2003 and I compare the Sloan results with the history I am collecting

from Sloan as time goes on. I track my Royal Vic results

separately. I have created an excel spreadsheet for both centers so

blood test and QPCRS are tracked.

Although I do not compare the Sloan results to the Royal Vic results,

for curiosity sake, you and others might wnat to know that there

isn't much difference in the results, both have been PCR negative

since August 2003.

The extra money is worth it for me. My Aunt and a very close friend

were treated at Sloan and my family who still live in the States find

comfort in knowing that I also go there once every six months.

However, I have very good confidence in Dr. Laneuville and the very

good staff at the Royal Vic. In fact, I think I am very blessed to

be treated by two very top notch doctors.

We only get once chance at this life and I find tremendous comfort in

being well looked after. The bonus for me is that I get a chance to

visit friends when I go to Sloan and I get to visit major places in

NYC that have very special memories for me from my childhood.

Cheers,

Cheryl-Anne

> Cheryl,

>

> Thanks for posting the link to the Canadian Forum. I took a look

at it and

> want to take time to watch more. Very Interesting.

>

> I want to clear something up. I do not know anything about

MSKCC's lab and

> any possible disorganization of it. I'm still pretty new at all

of this. My

> only disappointment was with a secretary who didn't send me

results I

> requested. I think that was only an office procedure type of

thing. I am

> certainly not qualified to question any results from their lab. I

am extremely

> grateful that they are very thorough and rely on all tests--bma,

FISH, and qpcr.

>

> I am very pleased with my treatment at MSKCC. I have extreme

confidence in

> my dr. and feel fortunate to be treated at a major cancer center.

I like my

> dr. very much and travel two hours each way to see her every six

weeks.

>

> I'm sorry to hear that your qpcr is costing you so much money.

However,

> it's important to be seen at a major center, so I'm sure it is

worth it for you.

> Also, when they compare test results isn't it important to be

comparing the

> same lab year to year?

>

> Thanks again for the link.

> in N.Y.

> dx. 1/04

> Zero Club #756

>

>

>