Gleevec Free (cross posted)

[Guest guest]

I do not post much and I only read when I can, but I thought I would

share some information because it could be helpful to others.

For those of you that don't know me here is a very brief discription

Dx'd 11/98

INF 12/98 stopped 4/99

MUD BMT 7/99

Relapsed 7/00

INF 9/00 stopped 1/01

PR-1 trial 1/01 stopped 3/01

DLI 4/01 (Donor Lymphocyte Infusion - white blood cells from my

donor)

4/01 INF stopped 6/01

8/01 Gleevec stopped 10/01

Major infection haspitalized 9 days 10/01

300 mg Gleevec 12/01

DLI 5/02

PCRU 2/03

12/03 lower dosage of Gleevec to 200mg

2/05 NO MORE GLEEVEC

That's right I have been PCRU for over 2 years and 100% donor for

over two years. I am one of few that will be able to get off

Gleevec and will be able to use the " CURED " word. I am so excited

that I am having a hard time containing myself.

Of course Dr. Talpaz is watching me closely, I will get a PCR test

monthly and we will go from there, since I relapsed after

transplant and have been there done that I am not conserned at

all of a relapse, as I said I am 100% donor.

I just wanted to share information in case there is anyone out there

in my position (relapsed BMT on Gleeevc) and wanted to know what

next.

Ginger