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Charity Begins at Home

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Hi!

What a nice idea! Where would you find the hippos and what's the

expected effect? Wouldn't a cute/cuddly dog be more therapeutic and less

expensive to keep? :-) :-) :-)

It seems to me like respite is desperately needed for many families.

Therapeutic horseback riding is cool and there are reported therapeutic

effects but, it seems to me like it a bit more of an extravagance and less

of a necessity.

Whatever you decide, a very nice idea!

Take Care,

Kent

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Kent Moreno wrote:

> What a nice idea! Where would you find the hippos and what's the

> expected effect? Wouldn't a cute/cuddly dog be more therapeutic and less

> expensive to keep? :-) :-) :-)

Kent:

You gave me a much needed chuckle! I had been thinking the same

thing--how do hippos help?

I agree...respite for me right now would be a God-send.

Sue mom to Kate 11 and Karrie 4 w/ds

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The Hippos will be home grown! lol Actually, Tatyanna wants to be hippo

therapist an is volunteering this summer at a stable. Right now she is

taking riding lessons.

The respite care I think would be invaluable as I know that there have been a

few times when I wish I could have afforded it.

Thanks for the smile Kent... and glad to see that you have survived the

semester.

Drat these new nails!

Connie

In a message dated 12/16/2000 6:30:01 PM Eastern Standard Time,

Kent_Moreno@... writes:

> Hi!

>

> What a nice idea! Where would you find the hippos and what's the

> expected effect? Wouldn't a cute/cuddly dog be more therapeutic and less

> expensive to keep? :-) :-) :-)

>

> It seems to me like respite is desperately needed for many families.

> Therapeutic horseback riding is cool and there are reported therapeutic

> effects but, it seems to me like it a bit more of an extravagance and less

> of a necessity.

>

> Whatever you decide, a very nice idea!

>

> Take Care,

>

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Hi Connie, Wanted to wish you luck on your new venture

to help our kids . YOu have a great idea there and i

hope it all works out.

--- kindafunny@... wrote:

> Hi folks...

> I've been working 70 hours a week for a few

> months now and have

> decided that I want to put that time into something

> better, so I am beginning

> a charity.

> I know that this charity will serve children

> with disabilities. What

> I don't know is in what capacity. It will be

> another 6 months or so before I

> have the money to fund this completely, so I have

> time to form this better...

> What kinds of services do you think that we,

> as parents, need? I was

> thinking of funding some sort of respite care,

> supplimental therapy (like

> hippotherapy... in my state it's not funded except

> thru outside sources

> because age three is the cut off for most of these

> services but a child can't

> start until they are five.)

> At this point I am open to all suggestions.

> The end result, I will be

> opening a thrift store in my area, hopefully in June

> to support the charity.

> I am looking at this as my new career....

> Any input?

>

> Connie

> mom to two disabled children, and three others who

> just don't have good

> labels... lol

>

>

> [Non-text portions of this message have been

> removed]

>

>

=====

Carole,wife to rich, mom to angela and shawn .m-i-l to cindy and george and

grandmom to jared 8 d s and asd , ashley 6 adhd and possible asd logan 2

all boy and seth 6month charmer.

Psalm#37 verse39 But the salvation of the righteous is of the LORD:he is their

strength in the time of trouble.

__________________________________________________

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She'd probably have to go to Disney and get the mechanical kind, Kent. LOL.

On the serious side, I like those ideas!!!

Elaine

Charity Begins at Home

> Hi!

>

> What a nice idea! Where would you find the hippos and what's the

> expected effect? Wouldn't a cute/cuddly dog be more therapeutic and less

> expensive to keep? :-) :-) :-)

>

> It seems to me like respite is desperately needed for many families.

> Therapeutic horseback riding is cool and there are reported therapeutic

> effects but, it seems to me like it a bit more of an extravagance and less

> of a necessity.

>

> Whatever you decide, a very nice idea!

>

> Take Care,

>

>

> Kent

>

>

>

>

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I have been increasingly concerned lately about the future for my son. The

waiting lists for independent living arrangements and supported group homes

is approximately 7-10 years. This just seems to me to be a very great need.

All our hard work getting them independent all their lives my be for naught?

Just my $.02 worth.

Dawn

Charity Begins at Home

Hi folks...

I've been working 70 hours a week for a few months now and have

decided that I want to put that time into something better, so I am

beginning

a charity.

I know that this charity will serve children with disabilities. What

I don't know is in what capacity. It will be another 6 months or so before

I

have the money to fund this completely, so I have time to form this

better...

What kinds of services do you think that we, as parents, need? I was

thinking of funding some sort of respite care, supplimental therapy (like

hippotherapy... in my state it's not funded except thru outside sources

because age three is the cut off for most of these services but a child

can't

start until they are five.)

At this point I am open to all suggestions. The end result, I will

be

opening a thrift store in my area, hopefully in June to support the charity.

I am looking at this as my new career....

Any input?

Connie

mom to two disabled children, and three others who just don't have good

labels... lol

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Check with your local ARC Gail. Here they have a drop off respite the

second and fourth Saturdays of each month. This is great when you are able

to schedule your shopping or appointments to coincide. Plus enjoys

getting together with the other kids. I do this, not really for my but for

him. He needs something on the weekends besides cleaning and laundry with

mom. I am a working mom so it is difficult for me to " entertain " him all

day on the weekends. He also doesn't seem ready for something like karate

or an organized sport yet either so this helps for him. Respite is in very

limited availability so it would be nice to increase this service anywhere.

Dawn

Re: Charity Begins at Home

Kent said,

<<It seems to me like respite is desperately needed for many families.

Therapeutic horseback riding is cool and there are reported therapeutic

effects but, it seems to me like it a bit more of an extravagance and

less

of a necessity.>>

Hi Connie and Kent,

Along the lines of respite...I'd like to suggest a type of " drop-in "

respite. I have in mind a place where kids could do things such as

things involving a gym or social fun. I could desperately use some

respite and did request it for a time of day or day of the week that

it is hard to get any one. Rather than having a stranger come to

my home I would be more comfortable with dropping Ted off at

a club type of place where I knew he could have access to a whole

array of cool stuff! Hey, maybe I could get a grant (anyone know how?)

and do this in my area if there was a need for it. On Kent's 2nd point,

I agree, we did horseback riding therapy for 2 years and I felt it

was rather a luxury (for Ted) than a necessity. Now, we are back to

music therapy and I feel it is really more like therapy.

Gail

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I agree!! My son, Mac, is only 2 1/2 and I have the same fear that when he

is 18, 20, 25 there will be no place for him to live. I am a teacher of

students with special needs--I've worked with many families on finding

appropriate residential settings for their children--the problem is there

usually is no appropriate residential setting--there are no settings period

for 5, 8, 10 years or more!! It is very scary. I know here in Ohio there

have been rallies at the statehouse and different " key " locations around the

state regarding the lack of housing for individuals with disabilities. Now

the " people " (families, clients, etc...) are considering suing the state for

appropriate funding to fund housing issues. We'll see if anything good

happens.

Jill son

Mac's Mom

Marblehead, OH

Charity Begins at Home

>

>

> Hi folks...

> I've been working 70 hours a week for a few months now and have

> decided that I want to put that time into something better, so I am

> beginning

> a charity.

> I know that this charity will serve children with disabilities.

What

>

> I don't know is in what capacity. It will be another 6 months or so

before

> I

> have the money to fund this completely, so I have time to form this

> better...

> What kinds of services do you think that we, as parents, need? I

was

>

> thinking of funding some sort of respite care, supplimental therapy (like

> hippotherapy... in my state it's not funded except thru outside sources

> because age three is the cut off for most of these services but a child

> can't

> start until they are five.)

> At this point I am open to all suggestions. The end result, I will

> be

> opening a thrift store in my area, hopefully in June to support the

charity.

>

> I am looking at this as my new career....

> Any input?

>

> Connie

> mom to two disabled children, and three others who just don't have good

> labels... lol

>

>

>

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In a message dated 12/19/00 8:54:32 PM Eastern Standard Time, thrill@...

writes:

<< I agree!! My son, Mac, is only 2 1/2 and I have the same fear that when he

is 18, 20, 25 there will be no place for him to live. I am a teacher of

students with special needs--I've worked with many families on finding

appropriate residential settings for their children--the problem is there

usually is no appropriate residential setting--there are no settings period

for 5, 8, 10 years or more!! It is very scary. >>

Here in Rochester NY, there is an increasing trend for parents to get

together and buy a home for their children with disabilities (usually about 4

people) and then contract with an appropriate agency (there are several here)

to provide the support needed for the kids to live there. The kids pay the

mortgage through their SSI, most have jobs - services are provided for

through DDSO (I think). Services include transportation, supervision and

assistance with housekeeping and such, recreational planning, etc. So

basically the parents come up with the down payment, the kids do the rest. I

think the house is co-owned by the families, or sometimes one or two families

own it and they rent to the others.

I saw a presentation on this many years ago, when Jimmy was only about 5 - it

sounded like a good idea if you can swing it financially. Not sure if it's

an option in other states (like Ohio).

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That's a good idea! I'll have to see if anyone has heard of that happening

in Ohio.

Jill

Re: Charity Begins at Home

> In a message dated 12/19/00 8:54:32 PM Eastern Standard Time,

thrill@...

> writes:

>

> << I agree!! My son, Mac, is only 2 1/2 and I have the same fear that

when he

> is 18, 20, 25 there will be no place for him to live. I am a teacher of

> students with special needs--I've worked with many families on finding

> appropriate residential settings for their children--the problem is there

> usually is no appropriate residential setting--there are no settings

period

> for 5, 8, 10 years or more!! It is very scary. >>

>

> Here in Rochester NY, there is an increasing trend for parents to get

> together and buy a home for their children with disabilities (usually

about 4

> people) and then contract with an appropriate agency (there are several

here)

> to provide the support needed for the kids to live there. The kids pay

the

> mortgage through their SSI, most have jobs - services are provided for

> through DDSO (I think). Services include transportation, supervision and

> assistance with housekeeping and such, recreational planning, etc. So

> basically the parents come up with the down payment, the kids do the rest.

I

> think the house is co-owned by the families, or sometimes one or two

families

> own it and they rent to the others.

>

> I saw a presentation on this many years ago, when Jimmy was only about 5 -

it

> sounded like a good idea if you can swing it financially. Not sure if

it's

> an option in other states (like Ohio).

>

>

>

>

>

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