Re: tonsils and adnoid surgery

[Guest guest]

In a message dated 12/13/00 12:57:43 PM Central Standard Time,

J9963@... writes:

> I made an appointment with an ENT and they warned me that my insurance may

> require a sleep study first before they would pay for the surgery. Has

> anyone else had any experience in this area and can tell me how it went?

>

Do you mean experience with a sleep study? :-)

had one a couple of years ago. they glue these electrodes all over the

head and afew on the body.. they also keep track of oxygen levels and pulse

that kind of stuff. all this is recorded on videotape to. a little mic is

taped to them to pick up breathing noise to. hmm, that's about all i can

remember. but she slept like a log. hadn't slept that well for ages. hehe

maybe it was the queen sized bed.

so she didn't need a T & A.

Joy

[Guest guest]

My (3 yrs) has had two sleep studies. One before the T & A surgery

and one a few months after. They require a stay overnight in the hospital

and although frustrating for the child (leads are attached to the head, neck,

chest and under the nose) it is totally non-invasive and does not hurt!

The sleep study will indicate whether he has Obstructive Sleep Apnea which is

a pretty serious condition and quite common in children w/ DS. Most children

show complete resolution of the apnea after the tonsils and adenoids are

removed. You should definitely check out Dr. Len's site on OSA the link is:

http://www.ds-health.com/apnea.htm. Also, a visit with an ENT would be the

best course of action right now. We are going tomorrow to a new ENT. Some

children who have this surgery around the 2 year old level or younger

sometimes have issues 8-12 months post-op with adenoid tissue growing back.

My little guy is starting with the continual runny nose and heavy breathing

again. It is just 10 months post-op.

Bonnie from Long Island

Mom to -10, twins and (ds)-3

[Guest guest]

I recently had a sleep study done on myself, Joanie. It was no big deal.

They wired me up and I slept. Medicare paid for it. I have " restless leg

syndrome " of all things. Never heard of it before. It may be caused by iron

deficiency. Blood work shows I'm iron deficient and I'm taking ferrous

sulfate for it. It is suspected I have an internal bleeder somewhere and GI

series is scheduled. Not looking forward to that! I'm to have another sleep

study after I've been on the ferrous sulfate for awhile to see if the legs

have settled down. Oh, and I'm to eschew caffeine totally. No chocolate!

AAUUGGHH!!!

Anyway, the sleep study itself was a snap, in spite of all the wires.

granny

---

" Nobody can make you feel inferior without your permission. "

- Eleanor Roosevelt -

http://home.earthlink.net/~bspyle

tonsils and adnoid surgery

> Hi everyone!

> I made an appointment with an ENT and they warned me that my insurance may

> require a sleep study first before they would pay for the surgery. Has

> anyone else had any experience in this area and can tell me how it went?

> sounds like a fog horn when he is sleeping and I would like to make

> him as comfortable as possible.

[Guest guest]

Hi,

When my daughter was young she had frequent problems with strep (which I was

told was unusual for a baby), pneumonia, sinus and ear infections. We put in

tubes first. Then we had her adenoids removed. Then another set of tubes

and then after a sleep study which showed she stopped breathing while

sleeping, we had her tonsils out. She has done remarkably well since. I

wish we had removed the tonsils when we initially did the adenoids

but.....She gets sinus infections still but seldom ear infections and hasn't

had pneumonia in over 7 years. Good luck. The surgery wasn't bad either. I

had it done at Children's Memorial in Chicago.

Kathy

[Guest guest]

Hi granny, I have to have a sleep study done also and

i have another question for you.How wired up are you

and what about going to the bathroom during the night

? Do they have to come unhook everthingand i am a

restless sleeper ,can the stuff come offf and mess up

the results?It is dumb but i am really worried about

having it done!

--- " B. S. Pyle " <bspyle@...> wrote:

> I recently had a sleep study done on myself, Joanie.

> It was no big deal.

> They wired me up and I slept. Medicare paid for it.

> I have " restless leg

> syndrome " of all things. Never heard of it before.

> It may be caused by iron

> deficiency. Blood work shows I'm iron deficient and

> I'm taking ferrous

> sulfate for it. It is suspected I have an internal

> bleeder somewhere and GI

> series is scheduled. Not looking forward to that!

> I'm to have another sleep

> study after I've been on the ferrous sulfate for

> awhile to see if the legs

> have settled down. Oh, and I'm to eschew caffeine

> totally. No chocolate!

> AAUUGGHH!!!

>

> Anyway, the sleep study itself was a snap, in spite

> of all the wires.

>

> granny

> ---

> " Nobody can make you feel inferior without your

> permission. "

> - Eleanor Roosevelt -

> http://home.earthlink.net/~bspyle

>

> tonsils and adnoid surgery

>

>

> > Hi everyone!

> > I made an appointment with an ENT and they warned

> me that my insurance may

> > require a sleep study first before they would pay

> for the surgery. Has

> > anyone else had any experience in this area and

> can tell me how it went?

> > sounds like a fog horn when he is sleeping

> and I would like to make

> > him as comfortable as possible.

>

>

>

__________________________________________________

[Guest guest]

Hello, I just wanted to tell you a way I keep s

nose unclogged because he has trouble with nose

congestion also. He does not have the other problems

so he can mouth breath if needed. I have always used

saline sprays with my older children but this was a no

go with . I found a product that is made for

babies called Little Noses. It comes in a gel form

that you put in the opening of the nose. It is just

saline solution in a gel form. It clears the nose very

well if used regularly. The more stuffed the more

often i would use it. It makes the kids sneeze out the

thick gunk by watering it down. hated it at first

till he understood how it made him feel better.I

believe he was about 5 when he started useing this to

keep his nose clear. I use far less over the counter

meds.now. Pam

--- J9963@... wrote:

> having trouble breathing. > Hi everyone!

>

> My son is four years old and constantly has a

> runny nose and is

> congested. He is on his second set of ear tubes and

> they seem to be working

> although he still gets an ear infection from time to

> time. We usually treat

> the runny nose/congestion symptoms with Dallergy

> Syrup, which seems to help.

>

> However, the past few weeks we have noticed a real

> problem with him sleeping

> at night. He sounds so congested and seems to be

> We are running a humidifer and the doctor has

> checked his lungs, they are

> fine, all the congestion and gunk is in his nose.

>

> Anyway, his pediatrician recommended we have him

> evaluated by an ENT to see

> about getting his tonsils and adnoids removed. He

> says his tonsils are huge

> and when he tries to breathe through his mouth, he

> doesn't have alot of room

> :-)

>

> I made an appointment with an ENT and they warned me

> that my insurance may

> require a sleep study first before they would pay

> for the surgery. Has

> anyone else had any experience in this area and can

> tell me how it went?

> sounds like a fog horn when he is sleeping

> and I would like to make

> him as comfortable as possible.

>

> Thanks in advance for any advice you can offer.

>

> Joanie

> 's mommy (age 4) DS

>

__________________________________________________