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Valarie,

Does EE ring a bell?? Email me off list, k?

Meg

>

> Heres a question:

> when you are swallowing a food or drink, and it feels like it gets

> stuck(even if it is just water), you cant swallow, and in order to be

> able to swallow/breathe again, you have to throw up(and the food that

> comes up--so sorry, I know this is gross--is pretty much still

intact,

> and shooting straight out from your throat, not your

> stomach).....would you think that is really nasty reflux, or

something

> else?

>

>

> Valarie

> mom to three with CVID

>

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You are describing what they call a shotzky ring, which often gets re-dx-ed as

eosinophilic esophagitis if the GI is smart enough to do biopsies on the scope.

-

osdbmom <osdbmom@...> wrote:

Heres a question:

when you are swallowing a food or drink, and it feels like it gets

stuck(even if it is just water), you cant swallow, and in order to be

able to swallow/breathe again, you have to throw up(and the food that

comes up--so sorry, I know this is gross--is pretty much still intact,

and shooting straight out from your throat, not your

stomach).....would you think that is really nasty reflux, or something

else?

Valarie

mom to three with CVID

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

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Hi Valarie!!

Sounds like what Blake's dad had....Hiatal Hernia.

Blake also had this. His pushed his esophagus over & caused everthing to be

refluxed!!(Blake that is)

(Blake's Dad) also had it last yr. & it HAD to be repaired. It got to the

point he could eat nothing without what you described!!!!

You can google Hiatal Hernia & get what it is & how best to treat before it

gets too unbearable. But also in the same note, make sure it is NOT an Ulcer.

Hope this helps some!!!

mom to Blake 16, Severe Combined Immunodeficiency with Complete T-Cell

Dysfunction, Sub-Q 2x's weekly doing LOTS better since being on Gammagard S/D

for sub-q!!!!

http://www3.caringbridge.org/sc/blakester

The Greatest Adventure of MY Lifetime!!!!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

osdbmom <osdbmom@...> wrote:

Heres a question:

when you are swallowing a food or drink, and it feels like it gets

stuck(even if it is just water), you cant swallow, and in order to be

able to swallow/breathe again, you have to throw up(and the food that

comes up--so sorry, I know this is gross--is pretty much still intact,

and shooting straight out from your throat, not your

stomach).....would you think that is really nasty reflux, or something

else?

Valarie

mom to three with CVID

---------------------------------

Never miss a thing. Make your homepage.

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Guest guest

---ok........honestly, what Im afraid of is that my dr will tell me

its anxiety(again).

This has been off and on for....oh, two months maybe? and for a couple

weeks, maybe, things are fine, then suddenly, this is really bad for a

while.

I had an endoscopy about a 1 1/2 yrs. ago, and the dr said I had a

hiatal hernia, but nothing was to be done about it. I also have

reflux, but I dont take the meds like I should.

Thanks for the feedback.

*sigh* With four kids, three with CVID, all with asthma and other

issues, plus me......Im just so sick of going to the dr. I feel like

Im showing up every week with a new *problem*. Its getting to be

ridiculous.

thanks again,

valarie

In , s

<momtoboywholoveshisgoats@...> wrote:

>

> Hi Valarie!!

>

> Sounds like what Blake's dad had....Hiatal Hernia.

> Blake also had this. His pushed his esophagus over & caused

everthing to be refluxed!!(Blake that is)

> (Blake's Dad) also had it last yr. & it HAD to be repaired. It

got to the point he could eat nothing without what you described!!!!

> You can google Hiatal Hernia & get what it is & how best to treat

before it gets too unbearable. But also in the same note, make sure

it is NOT an Ulcer.

> Hope this helps some!!!

>

> mom to Blake 16, Severe Combined Immunodeficiency with Complete

T-Cell Dysfunction, Sub-Q 2x's weekly doing LOTS better since being on

Gammagard S/D for sub-q!!!!

> http://www3.caringbridge.org/sc/blakester

> The Greatest Adventure of MY Lifetime!!!!

>

>

>

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> osdbmom <osdbmom@...> wrote:

> Heres a question:

> when you are swallowing a food or drink, and it feels like it gets

> stuck(even if it is just water), you cant swallow, and in order to be

> able to swallow/breathe again, you have to throw up(and the food that

> comes up--so sorry, I know this is gross--is pretty much still intact,

> and shooting straight out from your throat, not your

> stomach).....would you think that is really nasty reflux, or something

> else?

>

> Valarie

> mom to three with CVID

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

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Guest guest

They can't dx EE unless they do an endoscopy (with biopsies). It's also less

likely to be dx-ed correctly if you are an adult. My husband and his sister's

EE both include the hiatal hernia, but that is not what causes the stuck food.

In their case It was initially called a shotzky ring, then ffinally dx-ed

properly as EE when my daughter got the dx herself (her condition looked like

GERD from the scope, but the biopsies proved otherwise). That made it more

difficult for their own GIs to argue (both originally said biopsies were not

necessary).

See below...

-

Local Health

>

> Food allergies among children new epidemic in state

> BY JUANA M. GYEK, SUN STAFF WRITER

> --See Image(s) Below--

>

> Published on: October 1, 2006

>

> Is your child vomiting, having chest pain or is unable to swallow

food?

>

> He or she may have acid reflux, or a more complicated condition in

which food allergies are causing swelling in the esophagus.

>

> Food allergies in the gastrointestinal tract have become " a new

epidemic in the state " among children, said Dr. Fayez Ghishan,

director of the University of Arizona Steele Children's Research

Center.

>

> Eosinophilic esophagitis (EE), swelling and inflammation in the

esophagus caused by a food allergy, and Eosinophilic

gastroenteropathy, inflammation and swelling of a larger area

extending from the esophagus to the entire gastrointestinal tract,

are conditions that are becoming more common among youths, he said.

>

> Allergens in the air mixing with food and causing allergic

reactions can be a contributing cause for the increase in EE, Ghishan

said.

>

> EE displays a delayed reaction at two to three weeks, unlike better-

known food allergies that cause more immediate reactions — like

swelling of the tongue and the throat, difficulty breathing and

hives — soon after the food is eaten, Ghishan said.

>

> This is why parents and doctors may not immediately think this is

an allergic reaction but a different problem.

>

> EE is sometimes confused with Gastroesophaheal reflux disease

(GERD), a condition in which acid and pepsin produced in the stomach

come up the esophagus and possibly causing inflammation and damage to

the lining.

>

> GERD and EE display similar symptoms, so if medication is given for

GERD and the condition does not improve, doctors and parents should

consider EE as the possible cause of the child's inability to pass

food, Ghishan said.

>

> Ghishan said one theory holds that mothers can prevent food

allergies in their children by taking probiotics, a healthy bacteria,

during pregnancy and while breast feeding, which they should do until

their child is a year old.

>

> Starting next year, doctors will offer the patch test at the Steele

Children's Research Center to help determine exactly what food

allergy a patient has, Ghishan said. This test is currently only

available in two hospitals across the country.

>

> " I am delighted that all the patients from the Southwest (will not)

have to travel to Cincinnati or Philadelphia to get this test done,

so we will be doing it at the University of Arizona. That is a major

advance for people not to travel and spend all this money, " Ghishan

said. " It's going to be a major advance in taking care of kids in the

state of Arizona. "

>

> a M. Gyek can be reached at jgyek@... or 539-6872.

>

> TOP-7 ALLERGEN FOODS

>

> Top 7 foods that can cause allergies in the esophagus or

gastrointestinal tract

>

> • Cow's milk

> • Soy

> • Eggs

> • Fish

> • Wheat

> • Tree nuts

> • Peanuts

>

> WHAT TO LOOK FOR

>

> Symptoms of food allergies in the esophagus or gastrointestinal

tract

> IN BABIES:

> • Vomiting.

> • Refusal to eat.

> • Irritability.

> • Spitting up.

> • Stretching motion to stretch out esophagus to let food pass.

> OLDER CHILDREN:

> • Chest pain.

> • Inability to swallow food.

> IN TEEN AND ADULTS:

> • Chest pain.

> • Difficulty in swallowing.

>

> THE PATCH TEST:

>

> • Foods are chosen based on the patient's diet.

> • Small amounts of pure food are placed in tiny cups.

> • Cups are taped to the skin of the patient.

> • The patches are removed after 48 hours.

> • Doctor views any reactions at 72 hours.

> Available starting Jan. 1 at University Medical Center, University

of Arizona

osdbmom <osdbmom@...> wrote:

---ok........honestly, what Im afraid of is that my dr will tell me

its anxiety(again).

This has been off and on for....oh, two months maybe? and for a couple

weeks, maybe, things are fine, then suddenly, this is really bad for a

while.

I had an endoscopy about a 1 1/2 yrs. ago, and the dr said I had a

hiatal hernia, but nothing was to be done about it. I also have

reflux, but I dont take the meds like I should.

Thanks for the feedback.

*sigh* With four kids, three with CVID, all with asthma and other

issues, plus me......Im just so sick of going to the dr. I feel like

Im showing up every week with a new *problem*. Its getting to be

ridiculous.

thanks again,

valarie

In , s

<momtoboywholoveshisgoats@...> wrote:

>

> Hi Valarie!!

>

> Sounds like what Blake's dad had....Hiatal Hernia.

> Blake also had this. His pushed his esophagus over & caused

everthing to be refluxed!!(Blake that is)

> (Blake's Dad) also had it last yr. & it HAD to be repaired. It

got to the point he could eat nothing without what you described!!!!

> You can google Hiatal Hernia & get what it is & how best to treat

before it gets too unbearable. But also in the same note, make sure

it is NOT an Ulcer.

> Hope this helps some!!!

>

> mom to Blake 16, Severe Combined Immunodeficiency with Complete

T-Cell Dysfunction, Sub-Q 2x's weekly doing LOTS better since being on

Gammagard S/D for sub-q!!!!

> http://www3.caringbridge.org/sc/blakester

> The Greatest Adventure of MY Lifetime!!!!

>

>

>

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> osdbmom <osdbmom@...> wrote:

> Heres a question:

> when you are swallowing a food or drink, and it feels like it gets

> stuck(even if it is just water), you cant swallow, and in order to be

> able to swallow/breathe again, you have to throw up(and the food that

> comes up--so sorry, I know this is gross--is pretty much still intact,

> and shooting straight out from your throat, not your

> stomach).....would you think that is really nasty reflux, or something

> else?

>

> Valarie

> mom to three with CVID

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

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Guest guest

,

You are correct! My son has EE, as well as EC. The only way to dx

is scoping and biopies. It took 9 years of having doctors look at

me like I was nuts before one finally took me seriously that there

really was a problem. The symptoms Valarie described are very

familiar to me. Please do not think I was being flip with her. She

has sent me loads of recipes ( safe). I apologized to her.

And if I offended anyone here, please accept my apologies.

Meg

> > Heres a question:

> > when you are swallowing a food or drink, and it feels like it

gets

> > stuck(even if it is just water), you cant swallow, and in order

to be

> > able to swallow/breathe again, you have to throw up(and the food

that

> > comes up--so sorry, I know this is gross--is pretty much still

intact,

> > and shooting straight out from your throat, not your

> > stomach).....would you think that is really nasty reflux, or

something

> > else?

> >

> > Valarie

> > mom to three with CVID

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

> >

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Guest guest

---

Meg.......you didnt say/do anything wrong or offensive, so dont think

that at all. I asked.....it was answered. Its something I should know

better than to wait on.......but you know me. Once its over, I dont

want to deal with it anymore, so I dont do anything about it. Until it

happens again. Whats aggravating, is that its not ever the same

foods/drinks, and has no pattern. I might be fine for two weeks, then

have this trouble daily for a while.

If you had said anything rude, I would force you to apologize(grin),

but you didnt, so dont feel like you did.

valarie

In , " megoonie99 " <megoonie99@...> wrote:

>

> ,

>

> You are correct! My son has EE, as well as EC. The only way to dx

> is scoping and biopies. It took 9 years of having doctors look at

> me like I was nuts before one finally took me seriously that there

> really was a problem. The symptoms Valarie described are very

> familiar to me. Please do not think I was being flip with her. She

> has sent me loads of recipes ( safe). I apologized to her.

>

> And if I offended anyone here, please accept my apologies.

> Meg

>

>

>

>

> > > Heres a question:

> > > when you are swallowing a food or drink, and it feels like it

> gets

> > > stuck(even if it is just water), you cant swallow, and in order

> to be

> > > able to swallow/breathe again, you have to throw up(and the food

> that

> > > comes up--so sorry, I know this is gross--is pretty much still

> intact,

> > > and shooting straight out from your throat, not your

> > > stomach).....would you think that is really nasty reflux, or

> something

> > > else?

> > >

> > > Valarie

> > > mom to three with CVID

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Never miss a thing. Make your homepage.

> > >

> > >

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  • 2 years later...
Guest guest

Since Babkin Palmomental is responsible for chewing, sucking & swallowing, would it be helpful to work this reflex with clients who have reflux issues?  If not, are there others?-- Donna Bateman

Neurodevelopmental Specialistwww.parentswithpurpose.comCheck out my blog: www.parentswithpurpose.blog.comNatural Moms Talk Radio Interview Podcast:  http://is.gd/4Wwib

Mom to 25, Katy Kartchner 23 (just married) , Preston 21 (serving a full-time mission in Mendoza, Argentina), Annie 19, Kent 17, Callie 14 (cured from dyslexia), Carson 12, Dawson 10 (brain injured--was severe now mild!)

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