RE: address- Sharman

[Guest guest]

Sharman,

I am sorry you have to go through so much for so long you really have been a

warrior and I think sometimes we forget that it's ok to get sick and tired

sometimes.

If I remember correctly we did just recently sign the petition to get

Bristol Myers Squib to address the criteria of allowing people who need to

be in BMS trial in the trial as well as expanding it.

I would hope that qualifies you. If not I suggest that you let us know. That

would be our follow up opportunity!

I could not locate Talpaz's e-mail address on line but I did find the

criteria's for the BMS trial listed under find a trial by Doctor and then

looked under Talpaz's name where there are links to the BMS trial

criteria's.

Let us know how things go.

M

Message: 14

Date: Thu, 16 Jun 2005 08:33:10 -0600

From: " Sharman Denison " <nofences@...>

Subject: address

Hi...I have been a patient of M. Talpaz in the past and have just recently

tried to email him at the address I have. The mail was sent back to me! Does

anyone have his current address? I would appreciate it. I am one of those

folks who, " fell through the cracks " , of the BMS trial. I waited, and waited

for the trial to come to Denver so it would be closer, and lo and behold

after a BMB shoed I have 12,000 blast cells and not 15,000 blast cells, I

did not meet the criteria. I am trying to email M. Talpaz to see what he or

his research nurse suggest. I am so frustrated...and tired of being sick and

tired! My WBC is 70,000, my Hemoglobin is at 9.4 and I feel horrible each

day , mostly from the Gleevec. Talpaz understood how much I hated to

Gleevec, but, my other doctors say I should up my dose? What, and become

comatose? This CML was discovered in my back in '93...I am truly a miracle!

That's what they say! Having lived through 3 " blast " crisis. But, I will

tell you this, " miracle " is getting tired. Tired of the system, and of

conventional medicine.

Sorry...I rarely write and I didn't want to just complain! I guess I am

pretty lucky.

Well, does anyone have M. Talpaz email address?

Thanks,

Sharman Denison

[Guest guest]

...I am finally getting to answer your email. Thank you.

I waited for the BMS trial to begin in Denver. I went to see a Dr. Matous.

He seemed very considerate.

But, I sent him the email that I found on this site where BMS in effect

answered to the petition, and he said BMS would not take me on a

" compassionate " basis.

Now, if that was the doctor, or, BMS talking, I don't know.

I am trying to get in touch w/Dr. Talpaz, as I have seen him before , and ,

his research nurse is so informative.

I believe Talpaz would take me in a heartbeat to the trial there in

Houston...but, I went to Houston last fall. I have BC/BS federal. For 1 day

of consultation, labs, a BMB, and an exray, and the next day a visit w/Dr.

Talpaz my ins. was charged over $16,000.00 ! And I had a $1,000.00 co-pay! I

can't afford that! I mean, all the time in motels, and even though I can

take Angel flight, it it expensive! Plus I have to find a place for my two

kids!

I just need to see if I can get on the trial in Denver in the future, now, I

guess...aren't they closing the trial soon?

Thanks,

Sharman Denison

address

>

> Hi...I have been a patient of M. Talpaz in the past and have just recently

> tried to email him at the address I have. The mail was sent back to me!

Does

> anyone have his current address? I would appreciate it. I am one of those

> folks who, " fell through the cracks " , of the BMS trial. I waited, and

waited

> for the trial to come to Denver so it would be closer, and lo and behold

> after a BMB shoed I have 12,000 blast cells and not 15,000 blast cells, I

> did not meet the criteria. I am trying to email M. Talpaz to see what he

or

> his research nurse suggest. I am so frustrated...and tired of being sick

and

> tired! My WBC is 70,000, my Hemoglobin is at 9.4 and I feel horrible each

> day , mostly from the Gleevec. Talpaz understood how much I hated to

> Gleevec, but, my other doctors say I should up my dose? What, and become

> comatose? This CML was discovered in my back in '93...I am truly a

miracle!

> That's what they say! Having lived through 3 " blast " crisis. But, I will

> tell you this, " miracle " is getting tired. Tired of the system, and of

> conventional medicine.

> Sorry...I rarely write and I didn't want to just complain! I guess I am

> pretty lucky.

> Well, does anyone have M. Talpaz email address?

> Thanks,

> Sharman Denison

>

>

>