Guest guest Posted June 18, 2005 Report Share Posted June 18, 2005 Today I had the opportunity to be examined by Goldman, formerly of Hammersmith Hospital in London, a physician very well regarded there for his knowledge of CML, and now a Researcher at NIH in Bethesda for a year. A friend in the UK recommended I meet with him for a second opinion and told me how to get in touch with him. I'm very glad I did. I had lots of blood drawn and one draw was for a qpcr or PCR-RT as some of you know it. My numbers cam e back respectably and I'll find out about the pcr in a couple of weeks. Dr. Goldman and a fello working with him were very thorough about my history and I learned several things I want to pass along to you. First, there's a new German paper (sorry, no names) that reports that people who take a long time to reach CCR have as good a survivability rate as people who reach it quickly. Secondly, part of his mission here is to meet with heme/oncs around the country and really push the necessity for PCR-RTs instead of FISH which so many doctors depend upon. He said they're 10 years behind Europe in this. It was Dr. Goldman who strategized an enormously complicated case of a friend of mine ( Rees) who is now recovering quite nicely from a BMT from her mother's marrow. This is after having gone through a year of hell when her counts dropped to literally zero and no one could figure out what was going on with her. It turns out that CML was just masking MDS and AML and those were the diseases that she needed to be fighting. Lots of chemo almost did her in but she made it through and I give Dr. Goldman and his fellow physicians at Hammersmith loads of credit. Of course, is as tough as they come, too! I'm seeeing Dr. Goldman again in 8 weeks and happy to be doing so. Having the team at NIH Research is not a bad deal! All for now. L Quote Link to comment Share on other sites More sharing options...
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