Guest guest Posted November 18, 2010 Report Share Posted November 18, 2010 Hi!My name's Ali, and I'm a Navy wife, psychology student, and stay-at-home mommy to three; adjusting to our new home in Norfolk, Virginia. My youngest was diagnosed at birth nearly 2 1/2 years ago with a rare neurological condition called hydranencephaly. Although his prognosis is very, very grim... he has defied all odds against him and is doing amazing things. I'm also a semi-avid blogger, I'd love to have more time to devote... but life gets in the way But I do TONS of research and am always eager to network with other optimistic families, who are always the best sources of information and guidance for helping my own little man live the best quality of life possible. Looking forward to being in touch with you all Below you can find links to both my personal blog and my son's CaringBridge page.~AliRead, Follow & Share:Brayden's JourneyHydranencephaly Information & Inspiration Blog“You can become blind by seeing each day as a similar one. Each day is a different one, each day brings a miracle of its own. It's just a matter of paying attention to this miracle.†~o Coelho Quote Link to comment Share on other sites More sharing options...
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