RE: Llweyn

[Guest guest]

Thanks Dianne,

Since my brother's friend had terminal cancer. It was expected and my

brother is taking the situation very well, though I believe he knows he

needs some professional help to help him understand things and cope even

better. My brother has a personal support network, which this friend was an

important member so the friend will be dearly missed. We are viewing it as a

celebration of the friend's life, going to his next stage. This view is

helping my brother a lot, thus not as scary but still will be missed.

Llweyn

Llweyn

Llweyn,

I'm so sorry to hear about the loss of your brother's friend. Please

know that my thoughts are with you and your brother.

All my best, Dianne

> Thanks Dianne,

> I've had a bit of a set-back myself as my brother's long time

friend just

> passed away from cancer this morning. My cerebral palsy brother is

taking it

> quite well but I had to make sure that the support was set up

since he lives

> on his own. It's been quite draining. I hope to get something off

to Carole

> in the next day or two. Thank you for keeping me informed.

>

> Llweyn

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

[Guest guest]

Llweyn,

I come from a very Irish family and that's how we always try to deal witih a

death...we celebrate the loved one's life. It's not uncommon to have many toasts

and lots of laughs at an Irish wake. It's not considered rude to tell funny

stories about the person who has passed and for friends and family to share

stories that others may not know.

All the best,

Beth

--------- Llweyn

>

>

> Llweyn,

>

> I'm so sorry to hear about the loss of your brother's friend. Please

> know that my thoughts are with you and your brother.

>

> All my best, Dianne

>

>

>

> > Thanks Dianne,

> > I've had a bit of a set-back myself as my brother's long time

> friend just

> > passed away from cancer this morning. My cerebral palsy brother is

> taking it

> > quite well but I had to make sure that the support was set up

> since he lives

> > on his own. It's been quite draining. I hope to get something off

> to Carole

> > in the next day or two. Thank you for keeping me informed.

> >

> > Llweyn

>

>

>

>

>

>

> Support for scoliosis-surgery veterans with Harrington Rod Malalignment

> Syndrome. Not medical advice. Group does not control ads or endorse any

> advertised products.

>

[Guest guest]

Llweyn,

I think it varies from state to state and even doctor to doctor on

their willingness to give you one. I have applied for SSI recently. I

probably won't get it, they love to turn people down. I don't qualify

for SSD because I didn't work enough years for my age. I made the

fatal mistake of staying home with my kids for too long (my daughter

caused us all kinds of problems and she needed me). If my husband

gets a job, I will no longer qualify for SSI.

It is very hard emotionally to apply for this, but the only reason I

am doing it is I would have the chance of at least limited medical

care. Right now I have none.

I think part of the problem is I start out walking FINE. Well,

usually. But by the time I walk from my apartment door to the car my

lower back is already starting to go into spasms. I haven't driven in

months because I don't feel I can turn well enough to see. Traffic is

brutal here! But if I did have to drive myself, I could never park

and walk into a store and pick something out and stand in line and

pay for it and walk back to the car without help.

Example: we went to Wal-mart with my daughter and granddaughter. We

were there about an hour. I had to use the cart to walk with and lean

on. I couldn't even walk from the cart to the door without limping so

severely I could barely stay upright. I looked downright spastic. And

my daughter looks at me like what the heck is wrong with YOU. Well I

had been on my feet way too long and even my cart/walker wasn't

enough.

Example 2: You go into the grocery story and just want one or two

items. If I don't get a cart to lean on/walk with I won't make it

even if the one thing I need is at the front of the store! And these

are good days with Bextra.

But I still consider myself MUCH more fortunate than most of you on

this board because I can still sit and it eases the pain. I am

forever grateful for that.

Txbluebelle

> The regulations may be different from Canada, but I got the

handicap parking

> pass because I needed to have the door wide open to get in and out

and now I

> have to use a walker if I go into the store. I was limping, even

with the

> cane but the walker seems to even my gait more. If I have even a

greater

> distance to go or I'm too sore or tired, than I use the scooter to

get

> around.

>

>

[Guest guest]

It is hard when you can't do the things you used to do and others want you

to be " normal " . What keeps me going at the moment is that I'm

caregiving/advocating for my mother, who has mild-moderate dementia, and

cerebral palsy brother (87 & 60 years old). Most of it I can do sitting down

by using the phone or computer, looking after their finances. Sometimes I

have to go with them to their various medical appointments. Thankfully, my

two daughters are in their mid-20's and help me out quite a bit. Because of

the caregiving, I have learned a lot about the disability & caregiving

resources, which I have shared with my family so that they can help me as my

abilities deteriorate.

My walking ability varies from day to day and how much stress I've been

under. I'm the type that will push themselves to get what needs to be done,

then afterwards I really suffer and I'm basically bed-ridden for a few days

or more. Since I make most of the gifts that we give, I do them as I recover

from the added stress. It's my therapy. I just take things one day at the

time and focus on what I still am able to do.

I hope that you find the answers to your situation and that you find some

joy in your life.

Llweyn

Re: Llweyn

Llweyn,

I think it varies from state to state and even doctor to doctor on

their willingness to give you one. I have applied for SSI recently. I

probably won't get it, they love to turn people down. I don't qualify

for SSD because I didn't work enough years for my age. I made the

fatal mistake of staying home with my kids for too long (my daughter

caused us all kinds of problems and she needed me). If my husband

gets a job, I will no longer qualify for SSI.

It is very hard emotionally to apply for this, but the only reason I

am doing it is I would have the chance of at least limited medical

care. Right now I have none.

I think part of the problem is I start out walking FINE. Well,

usually. But by the time I walk from my apartment door to the car my

lower back is already starting to go into spasms. I haven't driven in

months because I don't feel I can turn well enough to see. Traffic is

brutal here! But if I did have to drive myself, I could never park

and walk into a store and pick something out and stand in line and

pay for it and walk back to the car without help.

Example: we went to Wal-mart with my daughter and granddaughter. We

were there about an hour. I had to use the cart to walk with and lean

on. I couldn't even walk from the cart to the door without limping so

severely I could barely stay upright. I looked downright spastic. And

my daughter looks at me like what the heck is wrong with YOU. Well I

had been on my feet way too long and even my cart/walker wasn't

enough.

Example 2: You go into the grocery story and just want one or two

items. If I don't get a cart to lean on/walk with I won't make it

even if the one thing I need is at the front of the store! And these

are good days with Bextra.

But I still consider myself MUCH more fortunate than most of you on

this board because I can still sit and it eases the pain. I am

forever grateful for that.

Txbluebelle