Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 Dear Bob, Contact Dr. Sam at RegNDoc@... directly and he will be able to help but needs all medical background info of your mom's records etc, also diet intake, and all med. prescription drugs that she is on. Will have to get off radiation and build immune system back up. Won't cost that much, either. Dr. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 Can anyone help this person? mom > Im at a loss.Dont really know what to do.mom diagnosed with lung cancer small > cell.doctors say 3 to 5 months to live with no treatment.currently > radiation.anybody i can hire to consult our famiy, money no objectl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2000 Report Share Posted May 15, 2000 Contact Cliff Beckwith....at spinner@... Good luck with MOM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Hi , I'm so glad that you're mom's doing better. Did they figure out why she has blood in her stools? Are you taking care of yourself? Are you breathing at all? How's your newest grand baby doing? Are you able to see her much? Hug your mom and friends for me. Tell them that I'm praying for them. Love ya!!!! Liz --- On Mon, 20 Jan 2003 16:02:26 -0800 " Clem " <rdc@...> writes: > I just wanted to thank you all for the prayers and give you an > update. My two friends with breast cancer are still fighting and > one has decided to shave her head and wear a wig since she was > losing it so fast. The other one is still trying valliantly to hang > on to hers. Both are feeling pretty good considering. > We have had a real ordeal with mom and without writing a book on the > subject I will just tell you that if we had not insisted she be put > in the hospital on Saturday we would probably be making funeral > arrangements today. However, we did get her in and after 2 days in > intensive care, 2 units of blood and several bags of glucose along > with potasium and magnesium, she is now back home and we hope on > the mend. she at least is not so weak and is able to walk and care > for herself again. We are still not out of the woods yet but things > look much brighter today. > Thank you again, I love you all and pray for you each day. > Good Bless, > Love, > > Click here: > http://www.lifelift.net/cgi-bin/affiliates/clickthru.cgi?id=rdclem > To learn how Lifelift has helped me to lose weight and gain good > health > > ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Liz, Hi my sweet friend. The drs were 90% sure the blood was coming from a bleeding ulcer. Early Sunday morning they attempted to do the test where they put the tube down your throat and take a picture of your stomach. But it just couldn't be done. Her throat has closed up so much due to the dystropy that he it made it just impossible to do. He told us that if it was his mother or any other member of his family that he would just build up her energy, treat her for a peptic ulcer and let her go home. She has been on the ulcer medicine for 7 days and the pain has gone away and her stools are still bloody but they look like old blood. He thinks her ulcer started with a bacteria in her stomach and has just gradually gotten worse. We are convinced that the whole mess was caused from medication. She was taking Actonel for her bones and that was when she started getting bad. After 8 weeks of being on it we began to search information on it and the side effects are disphysia , esophegal problems and ulcers. She already had disphysia and esopegal probelems due to the muscular dystrophy and this medication made everything worse. When I told the dr. that tried to do the tube this, he said " I don't go to drs, they'll try to kill you!!! If you go to a Dr. they'll find something wrong with you and start filling you full of medicine that you probably don't need in the first place and will probably do you more harm than good which is what we truly think happend. At any rate she is home and feeling much better. we are going to have blood tests today to make sure there is no more anemia. I confess that my breathing has been shallow to say the least. Grabbing one here and there but I did get up this morning and did my 40 breaths and now I am off to check on mom. My little Lillie is doing great! I told mom as soon as she is feeling up to it that we will go to Lubbock to see Lilli one week and then the next we'll go to Midland to see Olivia and . That really seemed to perk her up. Thanks so much for your prayers and concerns. At 84 and so many health problems I truly believe that prayer got her through this and although I know there is more to come in the future, as for now she is feeling pretty good. Thanks again, Love, Click here: http://www.lifelift.net/cgi-bin/affiliates/clickthru.cgi?id=rdclem To learn how Lifelift has helped me to lose weight and gain good health Re: mom > Hi , > > I'm so glad that you're mom's doing better. Did they figure out why she > has blood in her stools? > > Are you taking care of yourself? Are you breathing at all? > > How's your newest grand baby doing? Are you able to see her much? > > Hug your mom and friends for me. Tell them that I'm praying for them. > > Love ya!!!! > Liz > --- > On Mon, 20 Jan 2003 16:02:26 -0800 " Clem " <rdc@...> writes: > > I just wanted to thank you all for the prayers and give you an > > update. My two friends with breast cancer are still fighting and > > one has decided to shave her head and wear a wig since she was > > losing it so fast. The other one is still trying valliantly to hang > > on to hers. Both are feeling pretty good considering. > > We have had a real ordeal with mom and without writing a book on the > > subject I will just tell you that if we had not insisted she be put > > in the hospital on Saturday we would probably be making funeral > > arrangements today. However, we did get her in and after 2 days in > > intensive care, 2 units of blood and several bags of glucose along > > with potasium and magnesium, she is now back home and we hope on > > the mend. she at least is not so weak and is able to walk and care > > for herself again. We are still not out of the woods yet but things > > look much brighter today. > > Thank you again, I love you all and pray for you each day. > > Good Bless, > > Love, > > > > Click here: > > http://www.lifelift.net/cgi-bin/affiliates/clickthru.cgi?id=rdclem > > To learn how Lifelift has helped me to lose weight and gain good > > health > > > > > > ________________________________________________________________ > Sign Up for Juno Platinum Internet Access Today > Only $9.95 per month! > Visit www.juno.com > > What can changing the way you breathe do for you? Everything! > See why tens of thousands agree, Life Lift is the best! http://www.oxygenzoo.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 Hi , I know how weak you can feel with anemia. I went almost year feeling like I was half dead, but the iron and progesterone turned me around. Thank God!!!! What are they treating your mom's ulcer with? Are they giving her iron? Great job on your 40 LL breaths today!!!!! Be kind to yourself as Sweet Rashelle likes to say. You need your strength. I'm so glad that you and your mom will get to see Lilli, Olivia and soon. That will do both of you good!!!!! Love ya!!! Liz --- On Tue, 21 Jan 2003 08:39:18 -0800 " Clem " <rdc@...> writes: > Liz, > Hi my sweet friend. The drs were 90% sure the blood was coming from > a > bleeding ulcer. Early Sunday morning they attempted to do the test > where > they put the tube down your throat and take a picture of your > stomach. But > it just couldn't be done. Her throat has closed up so much due to > the > dystropy that he it made it just impossible to do. He told us that > if it > was his mother or any other member of his family that he would just > build > up her energy, treat her for a peptic ulcer and let her go home. > She has > been on the ulcer medicine for 7 days and the pain has gone away and > her > stools are still bloody but they look like old blood. He thinks her > ulcer > started with a bacteria in her stomach and has just gradually gotten > worse. > We are convinced that the whole mess was caused from medication. > She was > taking Actonel for her bones and that was when she started getting > bad. > After 8 weeks of being on it we began to search information on it > and the > side effects are disphysia , esophegal problems and ulcers. She > already had > disphysia and esopegal probelems due to the muscular dystrophy and > this > medication made everything worse. When I told the dr. that tried to > do the > tube this, he said " I don't go to drs, they'll try to kill you!!! > If you go > to a Dr. they'll find something wrong with you and start filling > you full > of medicine that you probably don't need in the first place and > will > probably do you more harm than good which is what we truly think > happend. > At any rate she is home and feeling much better. we are going to > have blood > tests today to make sure there is no more anemia. > I confess that my breathing has been shallow to say the least. > Grabbing one > here and there but I did get up this morning and did my 40 breaths > and now > I am off to check on mom. > My little Lillie is doing great! I told mom as soon as she is > feeling up to > it that we will go to Lubbock to see Lilli one week and then the > next we'll > go to Midland to see Olivia and . That really seemed to perk > her up. > Thanks so much for your prayers and concerns. At 84 and so many > health > problems I truly believe that prayer got her through this and > although I > know there is more to come in the future, as for now she is feeling > pretty > good. > > Thanks again, > Love, > > Click here: > http://www.lifelift.net/cgi-bin/affiliates/clickthru.cgi?id=rdclem > To learn how Lifelift has helped me to lose weight and gain good > health > > > ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 Hi Liz, They are treating her ulcer with Biaxin and there's another one but I can't remember the name. I spent most of the day with her and though she is still a little weak she is doing so much better it is almost unreal! I know it is attributed to all the prayers on her behalf and I give all the credit of her healing to the Lord. Thanks so much for your concern and friendship. They mean alot to me. Love , Click here: http://www.lifelift.net/cgi-bin/affiliates/clickthru.cgi?id=rdclem To learn how Lifelift has helped me to lose weight and gain good health Re: mom > Hi , > > I know how weak you can feel with anemia. I went almost year feeling like > I was half dead, but the iron and progesterone turned me around. Thank > God!!!! > > What are they treating your mom's ulcer with? Are they giving her iron? > > Great job on your 40 LL breaths today!!!!! Be kind to yourself as Sweet > Rashelle likes to say. You need your strength. > > I'm so glad that you and your mom will get to see Lilli, Olivia and > soon. That will do both of you good!!!!! > > Love ya!!! > Liz > --- > On Tue, 21 Jan 2003 08:39:18 -0800 " Clem " <rdc@...> writes: > > Liz, > > Hi my sweet friend. The drs were 90% sure the blood was coming from > > a > > bleeding ulcer. Early Sunday morning they attempted to do the test > > where > > they put the tube down your throat and take a picture of your > > stomach. But > > it just couldn't be done. Her throat has closed up so much due to > > the > > dystropy that he it made it just impossible to do. He told us that > > if it > > was his mother or any other member of his family that he would just > > build > > up her energy, treat her for a peptic ulcer and let her go home. > > She has > > been on the ulcer medicine for 7 days and the pain has gone away and > > her > > stools are still bloody but they look like old blood. He thinks her > > ulcer > > started with a bacteria in her stomach and has just gradually gotten > > worse. > > We are convinced that the whole mess was caused from medication. > > She was > > taking Actonel for her bones and that was when she started getting > > bad. > > After 8 weeks of being on it we began to search information on it > > and the > > side effects are disphysia , esophegal problems and ulcers. She > > already had > > disphysia and esopegal probelems due to the muscular dystrophy and > > this > > medication made everything worse. When I told the dr. that tried to > > do the > > tube this, he said " I don't go to drs, they'll try to kill you!!! > > If you go > > to a Dr. they'll find something wrong with you and start filling > > you full > > of medicine that you probably don't need in the first place and > > will > > probably do you more harm than good which is what we truly think > > happend. > > At any rate she is home and feeling much better. we are going to > > have blood > > tests today to make sure there is no more anemia. > > I confess that my breathing has been shallow to say the least. > > Grabbing one > > here and there but I did get up this morning and did my 40 breaths > > and now > > I am off to check on mom. > > My little Lillie is doing great! I told mom as soon as she is > > feeling up to > > it that we will go to Lubbock to see Lilli one week and then the > > next we'll > > go to Midland to see Olivia and . That really seemed to perk > > her up. > > Thanks so much for your prayers and concerns. At 84 and so many > > health > > problems I truly believe that prayer got her through this and > > although I > > know there is more to come in the future, as for now she is feeling > > pretty > > good. > > > > Thanks again, > > Love, > > > > Click here: > > http://www.lifelift.net/cgi-bin/affiliates/clickthru.cgi?id=rdclem > > To learn how Lifelift has helped me to lose weight and gain good > > health > > > > > > > > ________________________________________________________________ > Sign Up for Juno Platinum Internet Access Today > Only $9.95 per month! > Visit www.juno.com > > What can changing the way you breathe do for you? Everything! > See why tens of thousands agree, Life Lift is the best! http://www.oxygenzoo.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Oh my God, a ~ you know that my thoughts and prayers are definitely with your mom, you, and the rest of your family! Keep us posted, and if you need anything, let us know ... ~nne http://bathtubjunkie.star-shaped.org/ -------------------------------------------------------------------- mail2web - Check your email from the web at http://mail2web.com/ . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 a- So very sorry to hear about your mom. I will be sending good thoughts your way. Colleen Country Meadow Creations http://www.countrymeadowcreations.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 a, My prayers are with you and your family. Candle has been lit, too. Take care of yourself. mom Hey everyone. I have to go special notice for a while. I just found out that My mom is horribly ill and in surgery. They found inoperable tumors. Please any prayers/candles would be a blessing. Her name is Helen . Thankyou. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Hello Anya, I'm glad you had recourse to the list in your situation with your Mother which I just read about. I related to it all, e.g., her dreams, your relationship, on several levels, as I'm sure many of us did. There's a time for personal sharing on these lists and this was one. Thanks for sharing your crisis and glad to hear of the happy outcome. e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi All, I'm new here and trying to help my mother. She has Scoliosis, stenosis and osteoarthritis in her spine. She is going to see a scoliosis specialist in a few weeks here in Kansas City regarding possible surgery. From what I understand from the back doc, her whole spine is a mess, and he's not sure surgery will help. She also has a bum knee and needs a replacement. We live together as she just can't function some days. Sometimes she won't take her pain meds and I find this very frustrating. She always ends up in bed with worse pain, but continually fights taking the pain meds. Do you have any suggestions regarding this? Do you have any recommendations if the doc recommends rod surgery? I don't even know what to ask the doc at this point. We are also working on getting a consult at Mayo in MN. Your suggestions are welcome. Thanks, cooky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Hi Cooky, Being a caregiver, as well as a receiver, I understand your frustrations with your mother. I would suggest seeing if there is a Family Caregiver Support group in your area. I have found that type of group very helpful, as you not only get support for yourself but you learn more of what resources are available in your area. Number 1 rule, is to take care of yourself by taking time out for yourself so you can enjoy life, too and have the rest and patiences needed in caring for others. Number 2 rule, is to set boundaries. Let the person know what you are willing to put up with and what you are not. In your mother's case, if the doctor says she must take the pain medication and she refuses, then let her know that you won't run after her as much since she won't take care of herself and what she is able to do. This may sound cruel, but I believe she figures that by not taking her medication, she has control over her life and yours. If she continues to fight her medication, then you might need to enlist the help of others or even alternate living arrangements. Be sure to let her doctor know what the home situation is, ask questions (like what the results would be if she doesn't take her medication) especially in front of her and ask what the options are. If the doctor recommends rod surgery, ask about the various outcomes for people that have an attitude like your mother's. It sounds like you are in the process of role-reversal and it is not an easy process to go through. I live in Canada and I have a wonderful caregiving support group that I go to. If you don't have one in your area, let me know and I will send you some of the survival techniques that I have learned and the type of resources that I have available in your area that you might have something similar to rely on. You're not alone. Llweyn -----Original Message-----From: [mailto: ]On Behalf Of cookySent: January 8, 2006 9:01 AM Subject: MomHi All,I'm new here and trying to help my mother. She has Scoliosis, stenosis and osteoarthritis in her spine. She is going to see a scoliosis specialist in a few weeks here in Kansas City regarding possible surgery. From what I understand from the back doc, her whole spine is a mess, and he's not sure surgery will help. She also has a bum knee and needs a replacement.We live together as she just can't function some days. Sometimes she won't take her pain meds and I find this very frustrating. She always ends up in bed with worse pain, but continually fights taking the pain meds. Do you have any suggestions regarding this?Do you have any recommendations if the doc recommends rod surgery? I don't even know what to ask the doc at this point. We are also working on getting a consult at Mayo in MN.Your suggestions are welcome.Thanks,cooky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Thanks Llweyn! I knew there was something I could do to help the situation. Although I am a social worker, it's particularly hard at times to think clearly because I have chronic lyme disease. This adds to the whole mess but mom and i generally get along quite well as long as she takes her meds. I have a huge support network, but I guess I should investigate a formal group for caregivers. Great suggestions. Since I originally posted she has decided through trial and error that she sees the value of pain meds and is taking them regularly. She just needs to understand/accept now that fatigue is part of the deal as well. She is dealing with the cycles of grief with her condition and is learning the hardcore reality of it. It's quite a psychological roller coaster ride around here with the two of us learning to live with chronic conditions...LOL. She is also starting to look online and read more about her conditions. Bottom line is, I'm very thankful for her extending her home to me in my time of crisis and honored to be in a position to help her in her time of need. Thank you for your suggestions. Wishing you health and wellness, cooky Llweyn Friars <mad.monk@...> wrote: Hi Cooky, Being a caregiver, as well as a receiver, I understand your frustrations with your mother. I would suggest seeing if there is a Family Caregiver Support group in your area. I have found that type of group very helpful, as you not only get support for yourself but you learn more of what resources are available in your area. Number 1 rule, is to take care of yourself by taking time out for yourself so you can enjoy life, too and have the rest and patiences needed in caring for others. Number 2 rule, is to set boundaries. Let the person know what you are willing to put up with and what you are not. In your mother's case, if the doctor says she must take the pain medication and she refuses, then let her know that you won't run after her as much since she won't take care of herself and what she is able to do. This may sound cruel, but I believe she figures that by not taking her medication, she has control over her life and yours. If she continues to fight her medication, then you might need to enlist the help of others or even alternate living arrangements. Be sure to let her doctor know what the home situation is, ask questions (like what the results would be if she doesn't take her medication) especially in front of her and ask what the options are. If the doctor recommends rod surgery, ask about the various outcomes for people that have an attitude like your mother's. It sounds like you are in the process of role-reversal and it is not an easy process to go through. I live in Canada and I have a wonderful caregiving support group that I go to. If you don't have one in your area, let me know and I will send you some of the survival techniques that I have learned and the type of resources that I have available in your area that you might have something similar to rely on. You're not alone. Llweyn -----Original Message-----From: [mailto: ]On Behalf Of cookySent: January 8, 2006 9:01 AM Subject: MomHi All,I'm new here and trying to help my mother. She has Scoliosis, stenosis and osteoarthritis in her spine. She is going to see a scoliosis specialist in a few weeks here in Kansas City regarding possible surgery. From what I understand from the back doc, her whole spine is a mess, and he's not sure surgery will help. She also has a bum knee and needs a replacement.We live together as she just can't function some days. Sometimes she won't take her pain meds and I find this very frustrating. She always ends up in bed with worse pain, but continually fights taking the pain meds. Do you have any suggestions regarding this?Do you have any recommendations if the doc recommends rod surgery? I don't even know what to ask the doc at this point. We are also working on getting a consult at Mayo in MN.Your suggestions are welcome.Thanks,cooky Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
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