Re: For Sharon, re steroids

[Guest guest]

Thanks, . Now you tell me. :^)

Apparently there is some variability in practice among those treating MS with

steroids. Some neuros are opting to omit the oral weaning-off period, because

the long-term cumulative effect of steroid therapy can be so damaging, the most

terrifying possibility being " aseptic necrosis of the femoral heads " , which

means your hips spontaneously degenerate. (!) Then again, if I lost my hips,

the crippling effect of flatback would be moot. (Sorry, can't resist the wry

humor.) At least I got to taper off the IV, by halving the last two doses.

I started an interesting discussion of the topic on MSWorld, if anyone is

interested:

http://www.msworldboards.org/vbulletin/showthread.php?t=26188

I am doing a little better each day. Thanks.

Sharon

For Sharon, re steroids

Sharon, I frankly was worried when you mentioned how fast you were

coming off steroids. They withdrew me from prednisone v-e-e-e-e-r-r-

r-y slowly. At a high enough dose, a coricosteroid shuts down your

adrenals completely, so it can be quite dangerous to withdraw

abruptly. As you wrote, the possible emotional effects are also well

known.

I hope you are all right now. I am so sorry to hear what you had to

go through.

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

[Guest guest]

Ugh, Sharon, the risk versus benefit thing is a real bear, isn't it??

Hang in there, woman, and I'm glad you are doing better.

loriann

> Thanks, . Now you tell me. :^)

>

> Apparently there is some variability in practice among those

treating MS with steroids. Some neuros are opting to omit the oral

weaning-off period, because the long-term cumulative effect of

steroid therapy can be so damaging, the most terrifying possibility

being " aseptic necrosis of the femoral heads " , which means your hips

spontaneously degenerate. (!) Then again, if I lost my hips, the

crippling effect of flatback would be moot. (Sorry, can't resist the

wry humor.) At least I got to taper off the IV, by halving the last

two doses.

>

> I started an interesting discussion of the topic on MSWorld, if

anyone is interested:

>

> http://www.msworldboards.org/vbulletin/showthread.php?t=26188

>

> I am doing a little better each day. Thanks.

[Guest guest]

One more thing, Sharon --

You probably know this, but I'll post it anyways. Not that I would

want anyone, including you, to have to join me in the " club " of

people who have had to have hip replacements, but from what I've

read, hip replacement can be a very successful remedy for those who

have lost their femoral heads due to necrosis.

Thinking positively for you that you have no more negative side

effects from the treatment,

loriann

P.S. Hope the MS support group is very helpful to you.

> Thanks, . Now you tell me. :^)

>

> Apparently there is some variability in practice among those

treating MS with steroids. Some neuros are opting to omit the oral

weaning-off period, because the long-term cumulative effect of

steroid therapy can be so damaging, the most terrifying possibility

being " aseptic necrosis of the femoral heads " , which means your hips

spontaneously degenerate. (!) Then again, if I lost my hips, the

crippling effect of flatback would be moot. (Sorry, can't resist the

wry humor.) At least I got to taper off the IV, by halving the last

two doses.

>

> I started an interesting discussion of the topic on MSWorld, if

anyone is interested:

>

> http://www.msworldboards.org/vbulletin/showthread.php?t=26188

>

> I am doing a little better each day. Thanks.

[Guest guest]

Thanks, Loriann. Believe it or not, I was wondering if femoral necrosis could

be helped by hip replacement. Shudder. As if the present concerns weren't

enough.

Re: For Sharon, re steroids

One more thing, Sharon --

You probably know this, but I'll post it anyways. Not that I would

want anyone, including you, to have to join me in the " club " of

people who have had to have hip replacements, but from what I've

read, hip replacement can be a very successful remedy for those who

have lost their femoral heads due to necrosis.

Thinking positively for you that you have no more negative side

effects from the treatment,

loriann

P.S. Hope the MS support group is very helpful to you.

> Thanks, . Now you tell me. :^)

>

> Apparently there is some variability in practice among those

treating MS with steroids. Some neuros are opting to omit the oral

weaning-off period, because the long-term cumulative effect of

steroid therapy can be so damaging, the most terrifying possibility

being " aseptic necrosis of the femoral heads " , which means your hips

spontaneously degenerate. (!) Then again, if I lost my hips, the

crippling effect of flatback would be moot. (Sorry, can't resist the

wry humor.) At least I got to taper off the IV, by halving the last

two doses.

>

> I started an interesting discussion of the topic on MSWorld, if

anyone is interested:

>

> http://www.msworldboards.org/vbulletin/showthread.php?t=26188

>

> I am doing a little better each day. Thanks.

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.