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In a message dated 8/26/03 2:13:28 PM Eastern Daylight Time,

tkellogg@... writes:

> The Principal here doubles as the special education director and near as I

> can tell his secretary is the only one who even knows anything about how to

> get started and she has been " too busy. " I am going to have my husband watch

> the boys tomorrow so I can personally go to the school and start demanding

> action -- not sure what else to do. I am definitely open to suggestions. I

> hate to get off on the wrong foot with a new school but I ma thinking that if

> I don't demand the team to be assembled by a set time I will still be waiting

> on their schedule come the start of his school year.

> Glad to be back and I look forward to getting to know all of you again.

>

>

Welcome back, . Ouch - sounds like you left heaven! Well, I would

suggest you put things in writing. THis way nobody can misunderstand anything.

They do have timelines for things whether they are too busy or not. I do

imagine if these two people are doing *everything* that they are probably maxed

out! Feel for them but push for your ds's stuff to get going regardless. You

can request things and insist that things happen and do so with a smile. I

would do that. Also, bring donuts or snacks to meetings and such as they might

feel under appreciated having to do it all like that. Let us know how it goes

at the school!

Roxanna ôô

What doesn't kill us

Makes us really mean.

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Thanks, I think you are right I'll try to do whatever I can with a smile.

Kellogg

Phone: (877)341-3721 (toll free)

Email: tkellogg@...

Website: http://tkellogg.themomteam.com

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Re: ( ) Re-Introduction

In a message dated 8/26/03 2:13:28 PM Eastern Daylight Time,

tkellogg@... writes:

> The Principal here doubles as the special education director and near as I

> can tell his secretary is the only one who even knows anything about how to

> get started and she has been " too busy. " I am going to have my husband

watch

> the boys tomorrow so I can personally go to the school and start demanding

> action -- not sure what else to do. I am definitely open to suggestions.

I

> hate to get off on the wrong foot with a new school but I ma thinking that

if

> I don't demand the team to be assembled by a set time I will still be

waiting

> on their schedule come the start of his school year.

> Glad to be back and I look forward to getting to know all of you again.

>

>

Welcome back, . Ouch - sounds like you left heaven! Well, I would

suggest you put things in writing. THis way nobody can misunderstand

anything.

They do have timelines for things whether they are too busy or not. I do

imagine if these two people are doing *everything* that they are probably

maxed

out! Feel for them but push for your ds's stuff to get going regardless. You

can request things and insist that things happen and do so with a smile. I

would do that. Also, bring donuts or snacks to meetings and such as they

might

feel under appreciated having to do it all like that. Let us know how it goes

at the school!

Roxanna ôô

What doesn't kill us

Makes us really mean.

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  • 1 year later...
Guest guest

Hi Everyone,

Sometimes I take forgranted that everyone knows me since I've been

around for a while. For those who may have forgotten or those who

never knew, here is my brief history.

I was diagnosed in Jan 2002 at the age of 31. I was finishing up my

degree in Psychology and raising 2 daughters at the time. My WBC

got up to 114 and my platelets as high as 1.6 million. I had night

sweats so bad that I was sleeping with a bath towel and my bed

sheets were so soaked that they wouldn't even dry for the next

night's sleep. That's when I clued in that something might be

wrong :) I started 400mg of Gleevec a month later.

I only had electives left to do for my degree so I decided to do

them all in biology and chemistry which gave me a better

understanding of this disease. I also spent months reading medical

journals and abstracts which also expanded my knowledge. I managed

to graduate in the summer of 2003 and have tried to share what I've

learned over the years with anyone who wanted to hear it.

I'm glad to be here and hope to contribute whatever I can.

Tracey

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Guest guest

Hey Tracey:

No . . .I didn't know anything about you except that you live in

Canada and are very knowledgeable about our bug. I thought the night

sweats were the result of me becoming menopausal for years. It

wasn't until diagnosis that I realized 'all' the side effects were

gold related. I applaud you for completing your degree, a lot of

young people would have abandoned their education and used our bug

as the excuse. 3 cheers 'RAH, RAH, RAH' for being persistent;

especially with children, I knew that you are 'special'.

" K "

" IAIN'TFINISHEDYET " .

> Hi Everyone,

>

> Sometimes I take forgranted that everyone knows me since I've been

> around for a while. For those who may have forgotten or those who

> never knew, here is my brief history.

>

> I was diagnosed in Jan 2002 at the age of 31. I was finishing up

my

> degree in Psychology and raising 2 daughters at the time. My WBC

> got up to 114 and my platelets as high as 1.6 million. I had

night

> sweats so bad that I was sleeping with a bath towel and my bed

> sheets were so soaked that they wouldn't even dry for the next

> night's sleep. That's when I clued in that something might be

> wrong :) I started 400mg of Gleevec a month later.

>

> I only had electives left to do for my degree so I decided to do

> them all in biology and chemistry which gave me a better

> understanding of this disease. I also spent months reading

medical

> journals and abstracts which also expanded my knowledge. I

managed

> to graduate in the summer of 2003 and have tried to share what

I've

> learned over the years with anyone who wanted to hear it.

>

> I'm glad to be here and hope to contribute whatever I can.

>

> Tracey

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