Guest guest Posted March 17, 2005 Report Share Posted March 17, 2005 Hello, time to reintroduce myself. Debra here, following the crowd from Rob's group. Dx Feb.'03 with CML. Luckily found it in the very earliest of possible stages. 3 mos of 400 Gleevec, then 3 mos of 600. Reached pcru. Stayed there for 6mos, had 1 yr anniversary BMB which showed still PCRU. 2 weeks later end up in hospital for 9 days with liver enzymes dangerously elevated. . Of course they yanked the Gleevec and liver enzyme numbers proceeded to come back down. I go to Siteman Cancer Center in ST Louis. The onc there said absolutely no more Gleevec. And that my choices are maybe to get on the BMS study. Which will start mid april in St Louis. Or have a BMT which they are presently testing my siblings for a match. The Onc was unsure if i would qualify for the study because of a history of Breast Cancer 3 yrs ago. (lumpectomy only, no chemo or radiation).I am presently taking NOTHING . Which makes me nervous. But Onc seems to think i'll hold remission on my own, for awhile. I am sceduled for a Fish test April 1st. And go back to StLouis to see Onc April 15th. He said we would decide our plan of action then. Based on the numbers. I have studied and prayed for the correct decision. Any suggestions, thoughts or prayers would be appreciated. Thanks Debra Quote Link to comment Share on other sites More sharing options...
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