Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 There were so many good posts in today's digest I thought I would address the topic of scoliosis groups. The first group I came across when I started searching for scoli information around 2000 was " Salvaged Sisters of Scoliosis " . I believe it was run by a woman from the UK known as Titch. It was difficult just to get to the group and all everyone seemed to do was complain; sometimes I thought there were flamers. I then found Mina's site and just came across her " Scoliosis Overcompensation Syndrome " that I printed out in 2001. Very interesting. I googled her name and it seems she is involved in something called neuromuscular programming. I then came across Scoliosis Medical and later the Feisty site and have been a member of each one since 2002. I really feel I have found a home on the Feisty site. We all have stories to tell, but there are very few people who want to listen. Everyone listens on this site. , I also found a six page paper that I printed out in 2003 that you wrote one year after your surgery with Dr. Rand, detailing your struggle to find the right doctor, and getting insurance to pay for it. Wow, what a journey! There is a new site started by Titch in the UK called All New Scoliosis Support. I joined but haven't figured out how to navigate the site. It also looks like all the members are from the UK. Just some thoughts on scoliosis info that is on the web. I am sticking with Scoli Med and Feisty. I was surprised at all the sites that promised a cure so I have learned to be selective in what I read on the web. Just my thoughts. Barbara Quote Link to comment Share on other sites More sharing options...
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