Cross post: Hoping to get some help..Please

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Dear members,

My sincere apologies in posting this email in different groups.. it might be

off topic for many of you, but I hoping to get some help from someone in the

group for my son.

It will be very helpful to me if you can email me offline your replies to my

email id nkmeena@... (nkmeena at dot com ) since I am posting this

email in different groups and that way,I will not miss your reply

Thanks in advance,

Ok.This is regarding Sleep apnea, Oral device etc.

__________________________________

Looks like my 9 year old son, Athish needs an oral device(Rapid maxillary

extension Device) ,eventually to increase the passage way in his trachea. This

is another option given to us instead of CPAP machine for his sleep apnea. His

sleep apnea is quite severe and which is one of the reasons to cause his

frequent seizures and for his current heart problems(both Syncope and

Tachydardia,which is very uncommon in Kids) . Our regular pediatric ENT who

recommended this for Athish is not aware of any Local Oral surgeon who could do

this procedure for Pediatrics .. There is research for this device which can

help sleep apnea but he is not aware who can and who does this procedure.

Does anyone know of an Oral surgeon in the bay area,california or anywhere in

the world?.I am willing to take my son anywhere in the world to fix this

problem. Any help is highly appreciated..

This is actually very important for my son, because it's is life and death

situation. Please do give me any input you have related to this.

His sleep apnea is no way obstructing his sleep pattern (so medication or

supplements are not going to help in his case)

He can sleep very well, but he wakes quite frequently in his sleep cycles(for

eg. a sleep apnea patient would normally wake up 1 in a hour or a cycel,whereas

Athish does 12 in 1 cycle, which is quite significant). So it's actually the air

,he breathes in is the problem. His lungs are functioning well, but he is not

getting enough oxygen,since there is obstruction closer to his trachea.With lack

of Oxygen, you can imagine the consequences.

Hoping to receive some help from someone in the group. For the device for any

other alternatives.

Thanks a lot for taking your time in reading my lengthy email. and I am hoping

to get some help

Mom to Athish( 9 yr old with Brain damage at birth, Spastic Cerebral palsy,

Developmental delayed,non verbal)

regards,

Meena Kalyanasundaram

India Developmental Disabilities

Bay Area Special Needs Kids

Bay Area Pediatric Specialists