Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 I also have the numbness mostly in arms,legs and behind. I have myoclonic jerks which make my arms legs and sometimes entire body jerk for no reason. It is a sensation like when you get a sudden chill and your body just shivers all over. The old timers used to say that the feeling was caused by someone walking over your future grave. My doctor put me on clonipine which has stopped the myoclonic jerking. The only drawback is that it causes extreme drowsiness. I take meds for inflamation, pain and the myoclonic jerks. I am presently awaiting my FMLA leave to roll over to another year so that I can have surgery for spinal stenosis. We'll work on the herniated discs in the neck at a later time. Hope your doctor finds an answer for you. You might want to look into Restless Leg Syndrome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 What an interesting post, Kathleen. You very aptly describe something I myself have experienced many times -- the shivery jerking phenomenon. Truly an excellent description of an experience I had not personally found the words to convey. I'm so sorry you are still having to put up with all this stuff. Thanks for sharing your experiences with us, though -- I am sure this letter will be helpful to others as it was to me. Best, Rasche , J.D. Medicolegal Writing & Editorial Services 6541 N. Francisco, #2 Chicago, IL 60645 Re: My doctor took me off work. I also have the numbness mostly in arms,legs and behind. I have myoclonic jerks which make my arms legs and sometimes entire body jerk for no reason. It is a sensation like when you get a sudden chill and your body just shivers all over. The old timers used to say that the feeling was caused by someone walking over your future grave. My doctor put me on clonipine which has stopped the myoclonic jerking. The only drawback is that it causes extreme drowsiness. I take meds for inflamation, pain and the myoclonic jerks. I am presently awaiting my FMLA leave to roll over to another year so that I can have surgery for spinal stenosis. We'll work on the herniated discs in the neck at a later time. Hope your doctor finds an answer for you. You might want to look into Restless Leg Syndrome. Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 --- I just wanted to thank you for all the info you gave me. I feel a little more hopeful now that it is going to end up being related to my spine. Of course i had to look up spinal stenosis and myoclonic jerks. I actually get three diferent types of body movement, i have had that shiver feeling but i also get muscle jerks (mainly in my legs) and slow flinches(hard to expain). As for restless leg syn. that has been ruled out because of all the other things going on. But i hope the numbess is going to be related to spinal stenosis. Also i have been seeing a wonderful chiropractor for about 3 years, but now i am not sure if i should continue until i get a diagnosis. And i have developed problems with my ribs on my left side, he says that they are stuck together and won't release. This can cause extreme pain sometimes and makes is uncomfortable to lie down at times. You know when I think about all this stuff that is happening i cannot believe how quickly all of this has come on. But I quess i had a good 26 good years(boy am i getting old). But it still sucks anyways(just feeling sorry for myself). Well on a good note my husband and I just bought a 30ft rv trailer. We get it tomorrow. We part it at a perminant site. My 5 year old loves it. My husband and his family went out there every summer for the last 20 odd years. Thanks again, Debbie In , " twistedsisterbat " <twistedsisterbat@y...> wrote: > I also have the numbness mostly in arms,legs and behind. I have > myoclonic jerks which make my arms legs and sometimes entire body > jerk for no reason. It is a sensation like when you get a sudden > chill and your body just shivers all over. The old timers used to > say that the feeling was caused by someone walking over your future > grave. My doctor put me on clonipine which has stopped the myoclonic > jerking. The only drawback is that it causes extreme drowsiness. I > take meds for inflamation, pain and the myoclonic jerks. I am > presently awaiting my FMLA leave to roll over to another year so that > I can have surgery for spinal stenosis. We'll work on the herniated > discs in the neck at a later time. Hope your doctor finds an answer > for you. You might want to look into Restless Leg Syndrome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 OOPS. , you may have missed her introduction, but " twistedsisterbat " is a new member, who just happens to have a screen name similar to Kathleen's. Since we're all a bunch of twisted sisters (and brothers), it's not surprising we have two members with nearly the same name. Sharon Re: My doctor took me off work. I also have the numbness mostly in arms,legs and behind. I have myoclonic jerks which make my arms legs and sometimes entire body jerk for no reason. It is a sensation like when you get a sudden chill and your body just shivers all over. The old timers used to say that the feeling was caused by someone walking over your future grave. My doctor put me on clonipine which has stopped the myoclonic jerking. The only drawback is that it causes extreme drowsiness. I take meds for inflamation, pain and the myoclonic jerks. I am presently awaiting my FMLA leave to roll over to another year so that I can have surgery for spinal stenosis. We'll work on the herniated discs in the neck at a later time. Hope your doctor finds an answer for you. You might want to look into Restless Leg Syndrome. Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. Quote Link to comment Share on other sites More sharing options...
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