Re: Back from hospital Germany

[Guest guest]

Yolanda,

It's so good to hear from you! I'm sorry to hear that things were delayed for

you, but I'm glad to hear that you are much straighter now. I hope that you

continue your recovery as smoothly as possible.

How frustrating that you must wait three months before returning to get the

second surgery. In many cases, the second surgery is nowhere near as hard to

endure as the first. Most of the " work " is done during the first, but then

again I do not know exactly what your surgical plans were so I may be wrong!

I wish you the best! Please keep us updated with how you are doing.

>

> Hello,

>

> Well this is me back from hospital since two weeks. I just read that you

Elaine had to wait for your second operation and that your fist did give you

complications. I hope you are doing oke now and have had your second operation

and that this has gone well. I have thought of you but just did not feel like

reading or writing.

> I had my operation finally on the 24 th of Februari after it had been delayed

three times during my hospital stay. It even came to a point that one of the

docters said that they might not operatie me at all. Well I kind of lost it at

that moment and cryed my eyes out and said that I wanted to go home. It is a

long story but the hospital stay was not a good experience.I finally was

operated on by Prof Harms and the second best surgeon because it was more

complicated than expected. The operation succeded but because of severe

bloodloss I was scheduald for another opereation( a XLIF)from the side/ front

five days later. On wednsday they suddenly decided that I was going to be sent

home first and have to come back in three months. The reason why was not told.

Just go home and in three months they will decide what to do. I just got used to

the idea to have the operation and that is was better and that it is stable now

I just have to wait and see. Great I might just be getting better and then I can

start all over again....

> I am nice and straight wich is great and some other positive changes. I am out

of bed every couple of hours and as you all now out own exerince have a long way

to go.

> I wish good luck with the upcoming surgery of her child.

>

> greatings from the Netherlands Yolanda.

>

[Guest guest]

Thank you for your words ,

You are right about the second surgery it will be less demanding (I read this on

the internet) The XLIF is a minimal invasive surgery from the side to get to the

front part of the spine. It would take about 3,5 hours they said. But at this

point nothing is certain, maby they will decide that it is not nessesary or have

other plans. I just do not no, as I said nothing was explaind to me I was just

sent home. I just must see it positive, maby they want to think about it and

make the write choises.

I am supposed to phone if with problems, keep pushing it away to phone because

of the fear that I might have to come back. I gave my self till monday to see

how if the nerve pain will ease down.

I just read that there have been more operation done lately so The dokters are

still busy making us straight. I read that canadian flatbacker are having

problems that the term was not known. Unbeliveble.

How are you yourself ?

> >

> > Hello,

> >

> > Well this is me back from hospital since two weeks. I just read that you

Elaine had to wait for your second operation and that your fist did give you

complications. I hope you are doing oke now and have had your second operation

and that this has gone well. I have thought of you but just did not feel like

reading or writing.

> > I had my operation finally on the 24 th of Februari after it had been

delayed three times during my hospital stay. It even came to a point that one of

the docters said that they might not operatie me at all. Well I kind of lost it

at that moment and cryed my eyes out and said that I wanted to go home. It is a

long story but the hospital stay was not a good experience.I finally was

operated on by Prof Harms and the second best surgeon because it was more

complicated than expected. The operation succeded but because of severe

bloodloss I was scheduald for another opereation( a XLIF)from the side/ front

five days later. On wednsday they suddenly decided that I was going to be sent

home first and have to come back in three months. The reason why was not told.

Just go home and in three months they will decide what to do. I just got used to

the idea to have the operation and that is was better and that it is stable now

I just have to wait and see. Great I might just be getting better and then I can

start all over again....

> > I am nice and straight wich is great and some other positive changes. I am

out of bed every couple of hours and as you all now out own exerince have a long

way to go.

> > I wish good luck with the upcoming surgery of her child.

> >

> > greatings from the Netherlands Yolanda.

> >

>

[Guest guest]

Hi everye. I hope you are all doing well. I had surgery with Dr. Ondra on Feb 18 and was scheduled for the second part of surgery on Feb 20. I did not get the second part of surgry because of complications until March 11th. I got out of ICU today. I had several things going on. I had a lung colaspe and have not ben able to eat or drink since March 10. I am scheduled to take a swallow test tomorrow and if it goes well I will get the feeding ube and airway removed. Today is the first day I have felt like writing. Hang in there Yolanda I am not the right person at the moment to give advsie about surgeries. We each have to go over all the available info and decide what is in ou best interest. From: Yolanda <yobos@...> Sent: Friday, March 27, 2009 9:47:51 AMSubject: Re: Back from hospital Germany

Thank you for your words ,

You are right about the second surgery it will be less demanding (I read this on the internet) The XLIF is a minimal invasive surgery from the side to get to the front part of the spine. It would take about 3,5 hours they said. But at this point nothing is certain, maby they will decide that it is not nessesary or have other plans. I just do not no, as I said nothing was explaind to me I was just sent home. I just must see it positive, maby they want to think about it and make the write choises.

I am supposed to phone if with problems, keep pushing it away to phone because of the fear that I might have to come back. I gave my self till monday to see how if the nerve pain will ease down.

I just read that there have been more operation done lately so The dokters are still busy making us straight. I read that canadian flatbacker are having problems that the term was not known. Unbeliveble.

How are you yourself ?

> >

> > Hello,

> >

> > Well this is me back from hospital since two weeks. I just read that you Elaine had to wait for your second operation and that your fist did give you complications. I hope you are doing oke now and have had your second operation and that this has gone well. I have thought of you but just did not feel like reading or writing.

> > I had my operation finally on the 24 th of Februari after it had been delayed three times during my hospital stay. It even came to a point that one of the docters said that they might not operatie me at all. Well I kind of lost it at that moment and cryed my eyes out and said that I wanted to go home. It is a long story but the hospital stay was not a good experience.I finally was operated on by Prof Harms and the second best surgeon because it was more complicated than expected. The operation succeded but because of severe bloodloss I was scheduald for another opereation( a XLIF)from the side/ front five days later. On wednsday they suddenly decided that I was going to be sent home first and have to come back in three months. The reason why was not told. Just go home and in three months they will decide what to do. I just got used to the idea to have the operation and that is was better and that it is stable now I just have to wait and see.

Great I might just be getting better and then I can start all over again....

> > I am nice and straight wich is great and some other positive changes. I am out of bed every couple of hours and as you all now out own exerince have a long way to go.

> > I wish good luck with the upcoming surgery of her child.

> >

> > greatings from the Netherlands Yolanda.

> >

>

[Guest guest]

Dear Elaine,

I am so sorry to hear that you experienced complications and that you've been in

the ICU for so long. We will be sending loads of positive thoughts and wishes

that your swallow test goes well and that the complications will resolve

completely. I am amazed that you felt like writing so soon. Keep fighting; we

will keep thinking of you and will be on the lookout for updates from you,

loriann

> > >

> > > Hello,

> > >

> > > Well this is me back from hospital since two weeks. I just read that you

Elaine had to wait for your second operation and that your fist did give you

complications. I hope you are doing oke now and have had your second operation

and that this has gone well. I have thought of you but just did not feel like

reading or writing.

> > > I had my operation finally on the 24 th of Februari after it had been

delayed three times during my hospital stay. It even came to a point that one of

the docters said that they might not operatie me at all. Well I kind of lost it

at that moment and cryed my eyes out and said that I wanted to go home. It is a

long story but the hospital stay was not a good experience.I finally was

operated on by Prof Harms and the second best surgeon because it was more

complicated than expected. The operation succeded but because of severe

bloodloss I was scheduald for another opereation( a XLIF)from the side/ front

five days later. On wednsday they suddenly decided that I was going to be sent

home first and have to come back in three months. The reason why was not told.

Just go home and in three months they will decide what to do. I just got used to

the idea to have the operation and that is was better and that it is stable now

I just have to wait and see. Great I

> might just be getting better and then I can start all over again....

> > > I am nice and straight wich is great and some other positive changes. I am

out of bed every couple of hours and as you all now out own exerince have a long

way to go.

> > > I wish good luck with the upcoming surgery of her child.

> > >

> > > greatings from the Netherlands Yolanda.

> > >

> >

>

[Guest guest]

Elaine,

I wish you the best. I know that you had a rough time the first time around

with your revisions a while back. You're a very strong person. I can't imagine

how difficult this must be for you. Do you have any family that is able to be

there with you while you're out in Chicago? I wished I lived closer (I'm about

90 miles away) or could drive so I could come out to visit you.

> > >

> > > Hello,

> > >

> > > Well this is me back from hospital since two weeks. I just read that you

Elaine had to wait for your second operation and that your fist did give you

complications. I hope you are doing oke now and have had your second operation

and that this has gone well. I have thought of you but just did not feel like

reading or writing.

> > > I had my operation finally on the 24 th of Februari after it had been

delayed three times during my hospital stay. It even came to a point that one of

the docters said that they might not operatie me at all. Well I kind of lost it

at that moment and cryed my eyes out and said that I wanted to go home. It is a

long story but the hospital stay was not a good experience.I finally was

operated on by Prof Harms and the second best surgeon because it was more

complicated than expected. The operation succeded but because of severe

bloodloss I was scheduald for another opereation( a XLIF)from the side/ front

five days later. On wednsday they suddenly decided that I was going to be sent

home first and have to come back in three months. The reason why was not told.

Just go home and in three months they will decide what to do. I just got used to

the idea to have the operation and that is was better and that it is stable now

I just have to wait and see. Great I

> might just be getting better and then I can start all over again....

> > > I am nice and straight wich is great and some other positive changes. I am

out of bed every couple of hours and as you all now out own exerince have a long

way to go.

> > > I wish good luck with the upcoming surgery of her child.

> > >

> > > greatings from the Netherlands Yolanda.

> > >

> >

>

[Guest guest]

Hello Elaine, I just read your post and am so sorry about the delays in getting your second surgery. I am scheduled for surgery on April 8 at Northwestern with Dr. Koski. We will be coming to Chicago on Tuesday, April 7. I would be glad to visit you or pick up anything you might need. I'll watch the posts and will be glad to hear from you. Lois

From: elaine Mackey <shevfar@...>Subject: Re: Re: Back from hospital Germany , "Kamala Jolly " <advokam@...>Date: Sunday, March 29, 2009, 9:36 PM

Hi everye. I hope you are all doing well. I had surgery with Dr. Ondra on Feb 18 and was scheduled for the second part of surgery on Feb 20. I did not get the second part of surgry because of complications until March 11th. I got out of ICU today. I had several things going on. I had a lung colaspe and have not ben able to eat or drink since March 10. I am scheduled to take a swallow test tomorrow and if it goes well I will get the feeding ube and airway removed. Today is the first day I have felt like writing. Hang in there Yolanda I am not the right person at the moment to give advsie about surgeries. We each have to go over all the available info and decide what is in ou best interest.

From: Yolanda <yoboswanadoo (DOT) nl>FeistyScolioFlatbac kers@groups .comSent: Friday, March 27, 2009 9:47:51 AMSubject: Re: Back from hospital Germany

Thank you for your words ,You are right about the second surgery it will be less demanding (I read this on the internet) The XLIF is a minimal invasive surgery from the side to get to the front part of the spine. It would take about 3,5 hours they said. But at this point nothing is certain, maby they will decide that it is not nessesary or have other plans. I just do not no, as I said nothing was explaind to me I was just sent home. I just must see it positive, maby they want to think about it and make the write choises.I am supposed to phone if with problems, keep pushing it away to phone because of the fear that I might have to come back. I gave my self till monday to see how if the nerve pain will ease down.I just read that there have been more operation done lately so The dokters are still busy making us straight. I read that canadian flatbacker are having problems that the term was not known. Unbeliveble.How are you

yourself ?> >> > Hello,> > > > Well this is me back from hospital since two weeks. I just read that you Elaine had to wait for your second operation and that your fist did give you complications. I hope you are doing oke now and have had your second operation and that this has gone well. I have thought of you but just did not feel like reading or writing.> > I had my operation finally on the 24 th of Februari after it had been delayed three times during my hospital stay. It even came to a point that one of the docters said that they might not operatie me at all. Well I kind of lost it at that moment and cryed my eyes out and said that I wanted to go

home. It is a long story but the hospital stay was not a good experience.I finally was operated on by Prof Harms and the second best surgeon because it was more complicated than expected. The operation succeded but because of severe bloodloss I was scheduald for another opereation( a XLIF)from the side/ front five days later. On wednsday they suddenly decided that I was going to be sent home first and have to come back in three months. The reason why was not told. Just go home and in three months they will decide what to do. I just got used to the idea to have the operation and that is was better and that it is stable now I just have to wait and see. Great I might just be getting better and then I can start all over again....> > I am nice and straight wich is great and some other positive changes. I am out of bed every couple of hours and as you all now out own exerince have a long way to go.> > I wish good luck with the

upcoming surgery of her child.> > > > greatings from the Netherlands Yolanda.> >>

[Guest guest]

Yolanda,

I'm so sorry you've had to put up with all this frustration. You sound great for

someone who recently went through massive surgery in another country! -- but

still, I find myself feeling very disgruntled on your behalf. I think I would

insist on knowing the reasons for all these medical decisions. You have a right

to know why another surgery is being prescribed and then delayed for three

months. It sounds as if some of your doctors are acting pretty " high and mighty "

with you. I must say that when this happens to me, I am not the least bit polite

and let everyone know my displeasure! (But then, I probably have the reputation

of being " the patient from hell. " Some of these guys don't know what to do when

they encounter any adult female patient who is not the " good little girl " they

require her to be for the sake of their hefty egos.)

Anyway, if it were remotely possible to do so, I would immediately remove the

Harms cages from my body in protest at how you were " handled " by the

distinguished Dr. Harms and his colleagues -- or his entourage, or his Society

for Harms Worship, or whatever he has over there in Germany.

I hope you are feeling better and better, all things considered. Please be

especially nice to yourself. Do you have the help and support you need at home?

You will continue to be in my thoughts.

Best,

>

> Hello,

>

> Well this is me back from hospital since two weeks. I just read that you

Elaine had to wait for your second operation and that your fist did give you

complications. I hope you are doing oke now and have had your second operation

and that this has gone well. I have thought of you but just did not feel like

reading or writing.

> I had my operation finally on the 24 th of Februari after it had been delayed

three times during my hospital stay. It even came to a point that one of the

docters said that they might not operatie me at all. Well I kind of lost it at

that moment and cryed my eyes out and said that I wanted to go home. It is a

long story but the hospital stay was not a good experience.I finally was

operated on by Prof Harms and the second best surgeon because it was more

complicated than expected. The operation succeded but because of severe

bloodloss I was scheduald for another opereation( a XLIF)from the side/ front

five days later. On wednsday they suddenly decided that I was going to be sent

home first and have to come back in three months. The reason why was not told.

Just go home and in three months they will decide what to do. I just got used to

the idea to have the operation and that is was better and that it is stable now

I just have to wait and see. Great I might just be getting better and then I can

start all over again....

> I am nice and straight wich is great and some other positive changes. I am out

of bed every couple of hours and as you all now out own exerince have a long way

to go.

> I wish good luck with the upcoming surgery of her child.

>

> greatings from the Netherlands Yolanda.

>

[Guest guest]

Elaine, what a bummer! I have spent way too much time in that Northwestern ICU

myself, but nothing like the time you spent there. You are a real hero to be

posting to the group under the circumstances.

I am so, so sorry about your complications. The one thing that gives me some

confidence is that I had complications of my own - including a few doozies --

and felt that Northwestern handled all of them with consummate expertise. I

mean, if you have to have a lousy complication, that medical center is one of

the best places to have it, if that makes any sense . . . Anyway, I will be

thinking of you and rooting for you. Please keep in touch when you can.

Best,

> > >

> > > Hello,

> > >

> > > Well this is me back from hospital since two weeks. I just read that you

Elaine had to wait for your second operation and that your fist did give you

complications. I hope you are doing oke now and have had your second operation

and that this has gone well. I have thought of you but just did not feel like

reading or writing.

> > > I had my operation finally on the 24 th of Februari after it had been

delayed three times during my hospital stay. It even came to a point that one of

the docters said that they might not operatie me at all. Well I kind of lost it

at that moment and cryed my eyes out and said that I wanted to go home. It is a

long story but the hospital stay was not a good experience.I finally was

operated on by Prof Harms and the second best surgeon because it was more

complicated than expected. The operation succeded but because of severe

bloodloss I was scheduald for another opereation( a XLIF)from the side/ front

five days later. On wednsday they suddenly decided that I was going to be sent

home first and have to come back in three months. The reason why was not told.

Just go home and in three months they will decide what to do. I just got used to

the idea to have the operation and that is was better and that it is stable now

I just have to wait and see. Great I

> might just be getting better and then I can start all over again....

> > > I am nice and straight wich is great and some other positive changes. I am

out of bed every couple of hours and as you all now out own exerince have a long

way to go.

> > > I wish good luck with the upcoming surgery of her child.

> > >

> > > greatings from the Netherlands Yolanda.

> > >

> >

>

[Guest guest]

Hi Elaine,

I will keep you in my prayers...I hope all goes well tomorrow!...lauren

From: elaine Mackey <shevfar@...> ; Kamala Jolly <advokam@...>Sent: Sunday, March 29, 2009 5:36:43 PMSubject: Re: Re: Back from hospital Germany

Hi everye. I hope you are all doing well. I had surgery with Dr. Ondra on Feb 18 and was scheduled for the second part of surgery on Feb 20. I did not get the second part of surgry because of complications until March 11th. I got out of ICU today. I had several things going on. I had a lung colaspe and have not ben able to eat or drink since March 10. I am scheduled to take a swallow test tomorrow and if it goes well I will get the feeding ube and airway removed. Today is the first day I have felt like writing. Hang in there Yolanda I am not the right person at the moment to give advsie about surgeries. We each have to go over all the available info and decide what is in ou best interest.

From: Yolanda <yoboswanadoo (DOT) nl>FeistyScolioFlatbac kers@groups ..comSent: Friday, March 27, 2009 9:47:51 AMSubject: Re: Back from hospital Germany

Thank you for your words ,You are right about the second surgery it will be less demanding (I read this on the internet) The XLIF is a minimal invasive surgery from the side to get to the front part of the spine. It would take about 3,5 hours they said. But at this point nothing is certain, maby they will decide that it is not nessesary or have other plans. I just do not no, as I said nothing was explaind to me I was just sent home. I just must see it positive, maby they want to think about it and make the write choises.I am supposed to phone if with problems, keep pushing it away to phone because of the fear that I might have to come back. I gave my self till monday to see how if the nerve pain will ease down.I just read that there have been more operation done lately so The dokters are still busy making us straight. I read that canadian flatbacker are having problems that the term was not known. Unbeliveble.How are you

yourself ?> >> > Hello,> > > > Well this is me back from hospital since two weeks. I just read that you Elaine had to wait for your second operation and that your fist did give you complications. I hope you are doing oke now and have had your second operation and that this has gone well. I have thought of you but just did not feel like reading or writing.> > I had my operation finally on the 24 th of Februari after it had been delayed three times during my hospital stay. It even came to a point that one of the docters said that they might not operatie me at all. Well I kind of lost it at that moment and cryed my eyes out and said that I wanted to go home. It is a long story but the hospital stay

was not a good experience.I finally was operated on by Prof Harms and the second best surgeon because it was more complicated than expected. The operation succeded but because of severe bloodloss I was scheduald for another opereation( a XLIF)from the side/ front five days later. On wednsday they suddenly decided that I was going to be sent home first and have to come back in three months. The reason why was not told. Just go home and in three months they will decide what to do. I just got used to the idea to have the operation and that is was better and that it is stable now I just have to wait and see. Great I might just be getting better and then I can start all over again....> > I am nice and straight wich is great and some other positive changes. I am out of bed every couple of hours and as you all now out own exerince have a long way to go.> > I wish good luck with the upcoming surgery of her child.> > >

> greatings from the Netherlands Yolanda.> >>

[Guest guest]

Hi ,

You made me laugh reading that you would of taken out the Harms cages ha ha! I

did not get those put in (yet) by the way.

Professor Harms himself was actually very freindly when I spoke to him and het

took his time. This was before surgery. One of the dokters (dr Jensen) there was

a disaster. We came to the conclusion that he just did not like sick peolple. I

asked a docter to explain to me what they had done exactley and then Dr Jensen

turned up. He said that I had seen the x-rays and that I did not need to now

more because that was not good for my mental health! I know I should of made it

clear that it was a discrace how I was handeld aspecally by him. I just lost all

my fighting power (with words) and was so stressed every time he appeard. Anyway

I asked for the letter of the operation it self and now know exactly what they

did and what was wrong.

I will leave a complaint but not now. I will bring it all up after I know what

en when and if they will still do the next surgery.

I have got a lot of help. 24 hours a week for me and the kids and my mum comes

too. I had help get washed and dressed but am gladley able to do that my self

now.

I am doing a lot better and am out of bed for at the most 45 minutes which is

long for me. I stopped with the morfine this morning and am now using Tramadol

wich does ease the pain till now till a tollarable level.

Thank you for listing.

yolanda

> >

> > Hello,

> >

> > Well this is me back from hospital since two weeks. I just read that you

Elaine had to wait for your second operation and that your fist did give you

complications. I hope you are doing oke now and have had your second operation

and that this has gone well. I have thought of you but just did not feel like

reading or writing.

> > I had my operation finally on the 24 th of Februari after it had been

delayed three times during my hospital stay. It even came to a point that one of

the docters said that they might not operatie me at all. Well I kind of lost it

at that moment and cryed my eyes out and said that I wanted to go home. It is a

long story but the hospital stay was not a good experience.I finally was

operated on by Prof Harms and the second best surgeon because it was more

complicated than expected. The operation succeded but because of severe

bloodloss I was scheduald for another opereation( a XLIF)from the side/ front

five days later. On wednsday they suddenly decided that I was going to be sent

home first and have to come back in three months. The reason why was not told.

Just go home and in three months they will decide what to do. I just got used to

the idea to have the operation and that is was better and that it is stable now

I just have to wait and see. Great I might just be getting better and then I can

start all over again....

> > I am nice and straight wich is great and some other positive changes. I am

out of bed every couple of hours and as you all now out own exerince have a long

way to go.

> > I wish good luck with the upcoming surgery of her child.

> >

> > greatings from the Netherlands Yolanda.

> >

>

[Guest guest]

Dear Yolanda,

This Jensen person is a fool, because he does not even understand the very basics of psychology. Anyone who has lived with scoliosis is more than strong enough to ask for detailed explanation of what exactly was done in the operation. It is not good for mental health NOT to know! If the patient desires this information, it should be provided and while you are recuperating you can spend time visualing what they did to your spine. When you come to write your letter of complaint, mention that Jensen himself is not good for a patient's mental health because he is a bully.

Lida in London

One of the dokters (dr Jensen) there was a disaster. We came to the conclusion that he just did not like sick peolple. I asked a docter to explain to me what they had done exactley and then Dr Jensen turned up. He said that I had seen the x-rays and that I did not need to now more because that was not good for my mental health! I know I should of made it clear that it was a discrace how I was handeld aspecally by him. I just lost all my fighting power (with words) and was so stressed every time he appeard. Anyway I asked for the letter of the operation it self and now know exactly what they did and what was wrong. I will leave a complaint but not now. I will bring it all up after I know what en when and if they will still do the next surgery.

[Guest guest]

I'd be kinda careful about tossing back a critical assessment of this Dr. Jensen, if you still got another surgery coming up...

You never know, if your nice doctors, will leave, on vacation and leave you with this kooky doctor, while you heal from your second surgery...

Be critical, yes, in your assessment, but kill him with kindness, also...

Re: Back from hospital Germany

Dear Yolanda,

This Jensen person is a fool, because he does not even understand the very basics of psychology. Anyone who has lived with scoliosis is more than strong enough to ask for detailed explanation of what exactly was done in the operation. It is not good for mental health NOT to know! If the patient desires this information, it should be provided and while you are recuperating you can spend time visualing what they did to your spine. When you come to write your letter of complaint, mention that Jensen himself is not good for a patient's mental health because he is a bully.

Lida in London

One of the dokters (dr Jensen) there was a disaster. We came to the conclusion that he just did not like sick peolple. I asked a docter to explain to me what they had done exactley and then Dr Jensen turned up. He said that I had seen the x-rays and that I did not need to now more because that was not good for my mental health! I know I should of made it clear that it was a discrace how I was handeld aspecally by him. I just lost all my fighting power (with words) and was so stressed every time he appeard. Anyway I asked for the letter of the operation it self and now know exactly what they did and what was wrong. I will leave a complaint but not now. I will bring it all up after I know what en when and if they will still do the next surgery.

Internal Virus Database is out of date.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.6/1891 - Release Date: 2009-01-13 08:17

[Guest guest]

Sorry about leaving you with a bland, difficult explanation, for you to unravel...Yolanda...Let me try to lay out a specikal "tear jerker" of a plea that aims, right at their hearts...

Because...Let's face it...This Dr. Jensen, is a jerk, mean as mean gets...and throwing a hard punch back at him, may only embolden him...so take him down a notch...the old fashioned way...KILL HIM WITH KINDNESS...

Here's the kind of letter, I'd throw back at him...

Dear Evaluation People,

While I realize Dr. Jensen is a good doctor, maybe even great someday, I feel, at this moment, he needs to consider the patient, me, as someone, who needs more than a grunt or a dark stare. All of us Scoliosis surgery patients, have to have something more tangible, some kind of positive essence to keep us driving forward. Our path is truly difficult, you know, and we only wish to gain ahold some knowledge, that will propel us, to greater heights of understanding, our situation better. For sometimes, we are our greatest doctors, ourselves. We are able to acheive great measures, by focusing on little things you can enlighten us with.

Every single patient, today, needs that re-assuring element, in our recovery, and your response did nothing but send a shockwave of pain, of uncertainty, of anger and of fear, losing that inner balance, that helps along our path towards healing...

And I don't say these things to be mean. I am merely sharing our perspective as human beings with deformity issues, forced to deal with harsh issues, that are constantly, in the forefront, of our minds.

So please take this into consideration, with the most deepest of sympathies and a humble regard, that maybe by saying what I feel, enables both of us, to help both of us, as well as many others, in the healing process, maximize our sincere efforts. See, we all merely hope to bring upon ourselves, a tremendous soothing relief, a special knowing, a vision of happiness and health, that so many others, take for granted...and I hope you understand this now, better...

Sincerely...Yolanda...

Re: Back from hospital Germany

Dear Yolanda,

This Jensen person is a fool, because he does not even understand the very basics of psychology. Anyone who has lived with scoliosis is more than strong enough to ask for detailed explanation of what exactly was done in the operation. It is not good for mental health NOT to know! If the patient desires this information, it should be provided and while you are recuperating you can spend time visualing what they did to your spine. When you come to write your letter of complaint, mention that Jensen himself is not good for a patient's mental health because he is a bully.

Lida in London

One of the dokters (dr Jensen) there was a disaster. We came to the conclusion that he just did not like sick peolple. I asked a docter to explain to me what they had done exactley and then Dr Jensen turned up. He said that I had seen the x-rays and that I did not need to now more because that was not good for my mental health! I know I should of made it clear that it was a discrace how I was handeld aspecally by him. I just lost all my fighting power (with words) and was so stressed every time he appeard. Anyway I asked for the letter of the operation it self and now know exactly what they did and what was wrong. I will leave a complaint but not now. I will bring it all up after I know what en when and if they will still do the next surgery.

Internal Virus Database is out of date.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.6/1891 - Release Date: 2009-01-13 08:17

Internal Virus Database is out of date.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.6/1891 - Release Date: 2009-01-13 08:17

[Guest guest]

Thanks Jim for your way of seeing it.

I must say that your english cost me a bit more effort to understand.

I am origanley from Australia but I was only 10 years old when I came to the

Netherlands. So my English is oke (I know my writing a bit less) but it is not

like yours.

But anyway, you have a good point too, and your letter says a lot. To be honest

I haven't focussed on what I was going to write yet. I am oke now (mentaly) but

find it just unbeleveable that he was the way he was. When I walked around, nice

and straight, made up and looked well, he was friendly and made jokes. He was

real enthousiatic seeing me so straight and well. Because he usually was such an

ass I could not get it out of my mouth to thank him (and prof Harms) for what

they had done. He just could not cope with sick people lying in bed and groggy

with medicine. I think somewhere done the line he must of gotten bitter that

even though he does his best and fixes people up like hardly no one can, people

are sometimes unthankfull or even sue him. Maby if he was friendly people would

exept more from him.

My husband talked with him about being second best and not beeing able to make

his own decisions before operating eventhough he too is known as a great

surgeon. He said that it was a real bummer that Proffessor Harms always makes

the dissions about the operations and who does who. He wanted to do my operation

but Proffessor Harms decided that he was going to do my operation himsef. They

finally both where in the operaionroom and he was the second operator (again

second place) So I believe he must have some frustrations but he must learn not

to take it out on " us " .

I was doing fine last week, but am having a setback again. I am a bit shook up

because I have sleepy legs again since yesteday. I had not had this since the

operation. It has been away for a couple of hours but keeps coming back. The

physiotherapist says that is normal but I feel terrified again. Wish they had

just fixed my up at once. It makes me so uncertain how things are in my back and

if I have still got a chance that this well stay away if they do the next

operation.

Thanks,

Yolanda

>

> Sorry about leaving you with a bland, difficult explanation, for you to

unravel...Yolanda...Let me try to lay out a specikal " tear jerker " of a plea

that aims, right at their hearts...

>

> Because...Let's face it...This Dr. Jensen, is a jerk, mean as mean gets...and

throwing a hard punch back at him, may only embolden him...so take him down a

notch...the old fashioned way...KILL HIM WITH KINDNESS...

>

> Here's the kind of letter, I'd throw back at him...

>

> Dear Evaluation People,

>

> While I realize Dr. Jensen is a good doctor, maybe even great someday, I feel,

at this moment, he needs to consider the patient, me, as someone, who needs more

than a grunt or a dark stare. All of us Scoliosis surgery patients, have to have

something more tangible, some kind of positive essence to keep us driving

forward. Our path is truly difficult, you know, and we only wish to gain ahold

some knowledge, that will propel us, to greater heights of understanding, our

situation better. For sometimes, we are our greatest doctors, ourselves. We are

able to acheive great measures, by focusing on little things you can enlighten

us with.

>

> Every single patient, today, needs that re-assuring element, in our recovery,

and your response did nothing but send a shockwave of pain, of uncertainty, of

anger and of fear, losing that inner balance, that helps along our path towards

healing...

>

> And I don't say these things to be mean. I am merely sharing our perspective

as human beings with deformity issues, forced to deal with harsh issues, that

are constantly, in the forefront, of our minds.

>

> So please take this into consideration, with the most deepest of sympathies

and a humble regard, that maybe by saying what I feel, enables both of us, to

help both of us, as well as many others, in the healing process, maximize our

sincere efforts. See, we all merely hope to bring upon ourselves, a tremendous

soothing relief, a special knowing, a vision of happiness and health, that so

many others, take for granted...and I hope you understand this now, better...

>

> Sincerely...Yolanda...

> Re: Back from hospital Germany

>

>

>

> Dear Yolanda,

>

> This Jensen person is a fool, because he does not even understand the very

basics of psychology. Anyone who has lived with scoliosis is more than strong

enough to ask for detailed explanation of what exactly was done in the

operation. It is not good for mental health NOT to know! If the patient

desires this information, it should be provided and while you are recuperating

you can spend time visualing what they did to your spine. When you come to

write your letter of complaint, mention that Jensen himself is not good for a

patient's mental health because he is a bully.

>

> Lida in London

>

> One of the dokters (dr Jensen) there was a disaster. We came to the

conclusion that he just did not like sick peolple. I asked a docter to explain

to me what they had done exactley and then Dr Jensen turned up. He said that I

had seen the x-rays and that I did not need to now more because that was not

good for my mental health! I know I should of made it clear that it was a

discrace how I was handeld aspecally by him. I just lost all my fighting power

(with words) and was so stressed every time he appeard. Anyway I asked for the

letter of the operation it self and now know exactly what they did and what was

wrong.

> I will leave a complaint but not now. I will bring it all up after I

know what en when and if they will still do the next surgery.

>

>

>

>

>

>

> ----------------------------------------------------------------------------

>

>

>

> Internal Virus Database is out of date.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.10.6/1891 - Release Date:

2009-01-13 08:17

>

>

>

>

>

> ------------------------------------------------------------------------------

>

>

>

> Internal Virus Database is out of date.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.10.6/1891 - Release Date: 2009-01-13

08:17

>

[Guest guest]

Hi Lida,

Thank you too for your repley,

I like the term, he is a real bully, that is a good way of putting it!

I even dremt last night that he was sacked because of it! O well, I just hope

that the next time I get there I will not have much to do with him then. As I

wrote earlyer, Proffersor Harms is very nice to talk with but the problem is is

that he is always operating and traveling the hole world giving conferences.

I am in a bad state at the moment and having trouble coping with the pain. I

probably have been out of bed to much (I do say this is the reason but am

douting it) It makes me so unsertain that I know that this nerve pain is all

coming from the part that will probably be fixed at the front to stablize it.

Now I am afraid that the just might leave it as it is. I know I shouldn't worry

so much and just take a day at a time....

I had to let them know if I had any problems and I dit but that is all ready

three weeks ago. I just decided to phone again and just did this while writing

you. They promised that they would phone me tomorrow and let me know when I am

suppossed to come back to the hospital and decide wich kind of x-rays (CT, MRI

or what ever) I need to have. I told the secretary to tell them that I was not

doing so well. I will be very suprised if they do phone back tomorrow!

Sorry, just keep chatting away about my self . How are you doing yourself Lida?

groetjes (greetings) Yolanda

>

> Dear Yolanda,

>

> This Jensen person is a fool, because he does not even understand the very

> basics of psychology. Anyone who has lived with scoliosis is more than

> strong enough to ask for detailed explanation of what exactly was done in

> the operation. It is not good for mental health NOT to know! If the

> patient desires this information, it should be provided and while you are

> recuperating you can spend time visualing what they did to your spine. When

> you come to write your letter of complaint, mention that Jensen himself is

> not good for a patient's mental health because he is a bully.

>

> Lida in London

>

>

> One of the dokters (dr Jensen) there was a disaster. We came to the

> conclusion that he just did not like sick peolple. I asked a docter to

> explain to me what they had done exactley and then Dr Jensen turned up. He

> said that I had seen the x-rays and that I did not need to now more because

> that was not good for my mental health! I know I should of made it clear

> that it was a discrace how I was handeld aspecally by him. I just lost all

> my fighting power (with words) and was so stressed every time he appeard.

> Anyway I asked for the letter of the operation it self and now know exactly

> what they did and what was wrong.

> I will leave a complaint but not now. I will bring it all up after I know

> what en when and if they will still do the next surgery.

>

[Guest guest]

Your welcome, Yolanda...

It is so hard to cope with everything and we all understand the scary stuff that fills our minds...I wish you...the peace and the love and the happiness that surrounds you..May they all protect you...on your journey to a full recovery...

Best Wishes & many more happy days ahead,

Jim

Re: Back from hospital Germany> > > > Dear Yolanda,> > This Jensen person is a fool, because he does not even understand the very basics of psychology. Anyone who has lived with scoliosis is more than strong enough to ask for detailed explanation of what exactly was done in the operation. It is not good for mental health NOT to know! If the patient desires this information, it should be provided and while you are recuperating you can spend time visualing what they did to your spine. When you come to write your letter of complaint, mention that Jensen himself is not good for a patient's mental health because he is a bully.> > Lida in London> > One of the dokters (dr Jensen) there was a disaster. We came to the conclusion that he just did not like sick peolple. I asked a docter to explain to me what they had done exactley and then Dr Jensen turned up. He said that I had seen the x-rays and that I did not need to now more because that was not good for my mental health! I know I should of made it clear that it was a discrace how I was handeld aspecally by him. I just lost all my fighting power (with words) and was so stressed every time he appeard. Anyway I asked for the letter of the operation it self and now know exactly what they did and what was wrong. > I will leave a complaint but not now. I will bring it all up after I know what en when and if they will still do the next surgery.> > > > > > > ----------------------------------------------------------> > > > Internal Virus Database is out of date.> Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.10.6/1891 - Release Date: 2009-01-13 08:17> > > > > > ----------------------------------------------------------> > > > Internal Virus Database is out of date.> Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.10.6/1891 - Release Date: 2009-01-13 08:17>

Internal Virus Database is out of date.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.6/1891 - Release Date: 2009-01-13 08:17

[Guest guest]

I got home yesterday and I am still a long way from well but I am amking progress. I agree completely about Northwestern being one of the very best hospitals to be in when thing go wrong.

From: Rasche <elizabethrgonzalez@...> Sent: Monday, March 30, 2009 6:24:45 PMSubject: Re: Back from hospital Germany

Elaine, what a bummer! I have spent way too much time in that Northwestern ICU myself, but nothing like the time you spent there. You are a real hero to be posting to the group under the circumstances.I am so, so sorry about your complications. The one thing that gives me some confidence is that I had complications of my own - including a few doozies -- and felt that Northwestern handled all of them with consummate expertise. I mean, if you have to have a lousy complication, that medical center is one of the best places to have it, if that makes any sense . . . Anyway, I will be thinking of you and rooting for you. Please keep in touch when you can. Best,> > >> > > Hello,> > > > > > Well this is me back from hospital since two weeks. I just read that you Elaine had to wait for your second operation and that your fist did give you complications. I hope you are doing oke now and have had your second operation and that this has gone well. I have thought of you but just did not feel like reading or writing.> > > I had my operation finally on the 24 th of Februari after it had been delayed three times during my hospital stay. It even came to a point that one of the docters said that they might not operatie me at all. Well I kind of lost it at that moment and cryed my eyes out and said that I wanted to go home. It is a long story but the hospital stay

was not a good experience.I finally was operated on by Prof Harms and the second best surgeon because it was more complicated than expected. The operation succeded but because of severe bloodloss I was scheduald for another opereation( a XLIF)from the side/ front five days later. On wednsday they suddenly decided that I was going to be sent home first and have to come back in three months. The reason why was not told. Just go home and in three months they will decide what to do. I just got used to the idea to have the operation and that is was better and that it is stable now I just have to wait and see. Great I> might just be getting better and then I can start all over again....> > > I am nice and straight wich is great and some other positive changes. I am out of bed every couple of hours and as you all now out own exerince have a long way to go.> > > I wish good luck with the upcoming surgery of her

child.> > > > > > greatings from the Netherlands Yolanda.> > >> >>

[Guest guest]

Thanks . My son and sister came and were there for all of the bad stuff. They came home last week and then this week I came home.

From: rebeccamaas <rebeccamaas@...> Sent: Monday, March 30, 2009 7:42:21 AMSubject: Re: Back from hospital Germany

Elaine,I wish you the best. I know that you had a rough time the first time around with your revisions a while back. You're a very strong person. I can't imagine how difficult this must be for you. Do you have any family that is able to be there with you while you're out in Chicago? I wished I lived closer (I'm about 90 miles away) or could drive so I could come out to visit you.> > >> > > Hello,> > > > > > Well this is me back from hospital since two weeks. I just

read that you Elaine had to wait for your second operation and that your fist did give you complications. I hope you are doing oke now and have had your second operation and that this has gone well. I have thought of you but just did not feel like reading or writing.> > > I had my operation finally on the 24 th of Februari after it had been delayed three times during my hospital stay. It even came to a point that one of the docters said that they might not operatie me at all. Well I kind of lost it at that moment and cryed my eyes out and said that I wanted to go home. It is a long story but the hospital stay was not a good experience.I finally was operated on by Prof Harms and the second best surgeon because it was more complicated than expected. The operation succeded but because of severe bloodloss I was scheduald for another opereation( a XLIF)from the side/ front five days later. On wednsday they suddenly decided that I was going to be

sent home first and have to come back in three months. The reason why was not told. Just go home and in three months they will decide what to do. I just got used to the idea to have the operation and that is was better and that it is stable now I just have to wait and see. Great I> might just be getting better and then I can start all over again....> > > I am nice and straight wich is great and some other positive changes. I am out of bed every couple of hours and as you all now out own exerince have a long way to go.> > > I wish good luck with the upcoming surgery of her child.> > > > > > greatings from the Netherlands Yolanda.> > >> >>

[Guest guest]

Hi, Yolanda --

Glad to hear you got your records despite that incredible Dr. J.'s attempt to

shield you from your own medical history. Good grief. I wonder how he would know

what is good or bad for anyone's " mental health. " And just when I thought a few

more doctors had climbed down from Mt.Olympus and were at least trying to

pretend they considered themselves mere mortals like the rest of us. The hassles

you had were NOT what you needed at a time like that, IMHO.

I could empathize because I've run into one or two docs like that myself -- real

doozies, usually the arrogant Chief Resident type. There was one guy on the

spine service during a couple of my pump surgeries who made me want to scream.

He would sweep into my room with his little entourage and speak only to them,

droning on about my case in his Smug Little Twit tone. Well, actually he was not

a Little Twit but a Fairly Tall Twit -- even more annoying and intimidating when

you have been reduced to the status of an inert little post-ob blob down there

in your hospital bed, hoping no body parts are sticking out of your deeply

faded size XXXXXL lost-its-snaps hospital nightie with the arty design formed by

a random pattern of bleach-holes. (I wonder where those gowns go when they

finally totally disintegrate? No one in the Third World would go near one of

those garments. Thrift shop customers would demand that such detritus be removed

from the ranks of the more decent-looking secondhand stuff.)

So, anyway, Mr. Chief Asinine Resident would come waltzing in for two or three

minutes and would proceed to talk about me and around me, occasionally perhaps

giving me a rough, distracted poke or pounding on my knees with his little

hammer. Then, ecstatically self-satisfied, he would shepherd his small flock

back out the door, tossing some vague acknowledgment of my existence over a

shoulder as he departed. One day his farewell line was " Home today! " -- uttered

in the sing-song Baby Talk dialect he saved strictly for (1) young children with

severe developmental disabilities and (2)women in hospital gowns old enough to

be his mother. (And now I bet you're asking: " Does she mean the women or the

hospital gowns were old enough to be his mom? " Both, no doubt.)

I was till marveling, " 'Home today' . . . 'Home today'? With this undiagnosed

rash all over me? " when I fortunately received a second visit from a far more

observant person with greatly superior reality testing skills: the head nurse.

She was aware of my long history of bad antibiotic allergies, aware that my last

IV antibiotic infusion had been cancelled out of the evening shift's concern for

my worsening rash, and totally aware that I was nowhere near ready to go home

" today. " She adeptly rounded up my allergist and a dermatology consult or two

enabling me to go home the next day with a clear diagnosis and treatment plan

rather than in a frenzy of itching and burning in perptuity -- all of this, no

doubt, with the support and gratitude of my attending.

Man, that resident still makes my blood boil. He truly afforded me a rare

opportunity to practice spiritual detachment and the loving-kindness meditations

of several major world religions. Too bad I blew it and simply lapsed into

childlike tears of helpless humiliation after a visit from that dude. He had

that amazing knack for reducing a self-respecting person to a quasi-suicidal

semi-arthropod.

I never did file a complaint; bravo to you regarding your plans to do so. You

are definitely a Feisty Woman (and now a Revisionary Woman as well). I agree

that Dr. Jenson's approach to you was a disgrace. I can only hope that he

decides to go back to the molecular biology lab or wherever his hard little

heart truly longs to be. Patients must be protected from his brand of trauma and

toxicity.

Keep up the good work! I suspect you are going to experience an excellent

recovery from all this (not that you won't have your moments of feeling

discouraged). I truly believe that a spunky attitude is one of the best ways to

ensure that we get through these spinal ordeals intact.

It's also great to hear that you have so much outside and family help. Does the

Dutch government provide the outside help? We Americans don't know what we're

missing with our fragmented and exorbitant health care " system. " such as it is.

Hang in there, Yolanda!

Best,

>

> Professor Harms himself was actually very freindly when I spoke to him and het

took his time. This was before surgery. One of the dokters (dr Jensen) there was

a disaster. We came to the conclusion that he just did not like sick peolple.

[Guest guest]

Welcome home, Elaine!

I've so relieved that Part II is finally behind you.

We'll be looking forward to getting further progress reports. For now I bet you

mainly want to rest.

I think maybe you should get TWO Feisty Medals (figuratively speaking, of

course). Although maybe we actually should think about a program of medals or

trophies -- or something more meaningful, am not sure what -- for the people in

this group who have undergone flatback revision surgery. You, like so mamy

others, have come through the humongous stress and challenge of your two-part

surgery with phenomenal grace and style I feel honored to know you.

Be well, Elaine. Thanks so much for the update.

As ever,

> > > >

> > > > Hello,

> > > >

> > > > Well this is me back from hospital since two weeks. I just read that you

Elaine had to wait for your second operation and that your fist did give you

complications. I hope you are doing oke now and have had your second operation

and that this has gone well. I have thought of you but just did not feel like

reading or writing.

> > > > I had my operation finally on the 24 th of Februari after it had been

delayed three times during my hospital stay. It even came to a point that one of

the docters said that they might not operatie me at all. Well I kind of lost it

at that moment and cryed my eyes out and said that I wanted to go home. It is a

long story but the hospital stay was not a good experience.I finally was

operated on by Prof Harms and the second best surgeon because it was more

complicated than expected. The operation succeded but because of severe

bloodloss I was scheduald for another opereation( a XLIF)from the side/ front

five days later. On wednsday they suddenly decided that I was going to be sent

home first and have to come back in three months. The reason why was not told.

Just go home and in three months they will decide what to do. I just got used to

the idea to have the operation and that is was better and that it is stable now

I just have to wait and see. Great I

> > might just be getting better and then I can start all over again....

> > > > I am nice and straight wich is great and some other positive changes. I

am out of bed every couple of hours and as you all now out own exerince have a

long way to go.

> > > > I wish good luck with the upcoming surgery of her child.

> > > >

> > > > greatings from the Netherlands Yolanda.

> > > >

> > >

> >

>

[Guest guest]

Dear Lida,

I just loved this post from you, and I agree with you completely.

Following my second round of revision procedures, about a week after I went

home from the hospital, I began to have an unusual pain in my upper back. I

noticed that I seemed to be losing a good deal of correction. I went back to see

my surgeon. He took one look at the x-rays and called for a gurney to transport

me from his office to a bed in the adjacent hospital. I stayed on my back in bed

until they were able to perform emergency surgery the next morning. As it turned

out, I had somehow sustained a stress fracture. The fracture was widening

inexorably and, if not repaired, would soon reach my spinal cord.

Not only did my surgeon explain this to me in great detail -- as well as drawing

me a detailed diagram of his surgical plan -- but he also said he wanted to lend

me a book which might further clarify the issues for me. A little later, one of

the spinal fellows returned with a humongrous spinal surgery text; the surgeon

had inserted Post-Its to indicate the sections most relevant to my problem. I

spent many hours poring over this fascinating textbook.

The same surgeon also obtained the most " informed " consent I have ever been

privileged to give. He approached me with kindness and sensitivity but also with

absolute candor -- explaining carefully that I had a 50/50 chance of paraplegia

following the surgery. He assured me he would do everything in his power to

prevent this and would personally move my body onto the operating table, which

would be the riskiest part of the whole procedure.

I went into surgery feeling reasonably calm, as well as totally confident that I

was in the best hands. All went well, and I have had no further fractures or

other problems. I will never forget how my surgeon approached me on that and

many other occasions.

I only wish there were far more surgeons like him-- and far fewer Jensons -- in

a position to diagnose and treat our spinal deformities. I feel a personal pain

and a sense of profound outrage (as perhaps you do too) whenever one of our

members posts a story like Yolanda's to this group.

Best,

>

> Dear Yolanda,

>

> This Jensen person is a fool, because he does not even understand the very

> basics of psychology. Anyone who has lived with scoliosis is more than

> strong enough to ask for detailed explanation of what exactly was done in

> the operation. It is not good for mental health NOT to know! If the

> patient desires this information, it should be provided and while you are

> recuperating you can spend time visualing what they did to your spine. When

> you come to write your letter of complaint, mention that Jensen himself is

> not good for a patient's mental health because he is a bully.

>

> Lida in London

>

>

> One of the dokters (dr Jensen) there was a disaster. We came to the

> conclusion that he just did not like sick peolple. I asked a docter to

> explain to me what they had done exactley and then Dr Jensen turned up. He

> said that I had seen the x-rays and that I did not need to now more because

> that was not good for my mental health! I know I should of made it clear

> that it was a discrace how I was handeld aspecally by him. I just lost all

> my fighting power (with words) and was so stressed every time he appeard.

> Anyway I asked for the letter of the operation it self and now know exactly

> what they did and what was wrong.

> I will leave a complaint but not now. I will bring it all up after I know

> what en when and if they will still do the next surgery.

>

[Guest guest]

Hi Elizabeh,

What a story! It is indeed unbelevable that threre are doc's like this! The way

you describe your docter back then does sound very familiar. I think lots of us

have had doc's like this.It is good to know that I am not the only one. To be

honest it is not my first bad experience. The more docters you see the more

troubels you can get at the next. I noticed that they are usaually very frienly

when I tell my complaints and then the picturs do not show the problems as they

expect and they do not now how to help (or do not take me serious).It took at

least ten years before a docter realized I had flatback syndrome wich I and many

other docters had never heard of) Now my flatback was even worse than before the

first flatback was reparaird and was very clear.

Neurologist are mostly the worst of the kind. This time again my xrays (MRI, CT

and Mylogram) did not show why I had temporary loss of controle of my legs. The

neurologist sent a psychiatrist to test my mental state! it was only at the

operation itself that they found out that I had malunion of the osteotomie L3

and L4 and Thoracal 12 and L1 had so much movement. They found out that a

sergeon had by mistake removed a ligament that held L1-L2 in its place. I also

had a huge amount of scar tissue. I am now fused from S1 to L1 and th12 they did

not fuse, wich I do not understand. I have so many questions.... In about five

weeks I have to go back to the hospital but still have not got a date.

It was good to read in your mail to Lida that you do have really goed

experiences as well. You must have been terified by the way that you had a

spontainious fracture. I am glad to hear that they handeld it well and because

of this it turned out well.

Thanks for sharing your story with me.

Groetjes yolanda

> >

>

> > Professor Harms himself was actually very freindly when I spoke to him and

het took his time. This was before surgery. One of the dokters (dr Jensen) there

was a disaster. We came to the conclusion that he just did not like sick

peolple.

>

[Guest guest]

Sorry I ment Elziabeth where I wrote Lida!

yolanda

> > >

> >

> > > Professor Harms himself was actually very freindly when I spoke to him and

het took his time. This was before surgery. One of the dokters (dr Jensen) there

was a disaster. We came to the conclusion that he just did not like sick

peolple.

> >

>