Guest guest Posted November 18, 2000 Report Share Posted November 18, 2000 Judith, Are you using insulin needles? I'm surprised the b-12 is causing pain IM with insulin needles but not surprised the mag. is causing pain. Steve B. B12 injections > > > > > > > When I got my B12 from Wellness Pharmacy I called and asked them > > what is > > best > > > place to inject my B12. They said that if the B12 doesn't hit a > > muscle > > when > > > injected, it's like wasting the B12 because its not absorbed > > correctly if > > its > > > not in a muscle. Now, I am hearing that some are not injecting it > > into > > the > > > muscle. What to do? What to do? > > > > > > > > > This list is intended for patients to share personal experiences > > with each > > other, not to give medical advice. If you are interested in any > > treatment > > discussed here, please consult your doctor. > > > > > > > > > -------------------------- eGroups Sponsor > > > > This list is intended for patients to share personal experiences > > with each other, not to give medical advice. If you are interested > > in any treatment discussed here, please consult your doctor. > > > > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2000 Report Share Posted November 19, 2000 Judith, I have no problem giving IM shots w/insulin needles. Remember, they have different length needles depending on how deep you want to penetrate. I have little fat so I have no problem giving IM injection w/insulin needles and have no pain w/b-12. B12 injections > > > > > > > > > > > > > When I got my B12 from Wellness Pharmacy I called and asked > > them > > > > what is > > > > best > > > > > place to inject my B12. They said that if the B12 doesn't hit > > a > > > > muscle > > > > when > > > > > injected, it's like wasting the B12 because its not absorbed > > > > correctly if > > > > its > > > > > not in a muscle. Now, I am hearing that some are not > > injecting it > > > > into > > > > the > > > > > muscle. What to do? What to do? > > > > > > > > > > > > > > > This list is intended for patients to share personal > > experiences > > > > with each > > > > other, not to give medical advice. If you are interested in any > > > > treatment > > > > discussed here, please consult your doctor. > > > > > > > > > > > > > > > > > -------------------------- eGroups Sponsor > > > > > > > > This list is intended for patients to share personal experiences > > > > with each other, not to give medical advice. If you are > > interested > > > > in any treatment discussed here, please consult your doctor. > > > > > > > > > > ________________________________________________________________ > > > GET INTERNET ACCESS FROM JUNO! > > > Juno offers FREE or PREMIUM Internet access for less! > > > Join Juno today! For your FREE software, visit: > > > http://dl.www.juno.com/get/tagj. > > > > > > > > > This list is intended for patients to share personal experiences > > with each > > other, not to give medical advice. If you are interested in any > > treatment > > discussed here, please consult your doctor. > > > > > > > > > -------------------------- eGroups Sponsor > > > > This list is intended for patients to share personal experiences > > with each other, not to give medical advice. If you are interested > > in any treatment discussed here, please consult your doctor. > > > > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2000 Report Share Posted November 19, 2000 Steve, For mag IM I use 1 1/4 " 27 gauge needles. Sometimes they hurt; sometimes they don't hurt. Sometimes the mag burns awfully. Usually it burns some. When someone gave it to me in my butt, I had no better luch re pain. I don't know how much it's muscle injury but I very much know that mag is a very caustic substance. Once when given it IV it leaked out and the pain was horrific. IM needles for b-l2 are the same ones, when I used them. Much less painful, so I guess it was the med. But there is still injury to muscle tissue and with our illness and the muscle involvement my doc said to avoid that as much as possible and give sub cu when I can. Also, even when the pain isn't apparent " knots " form, meaning some type of inflammation is probably occurring in the muscle, and those knots are impossible to penetrate. In sum, you can't use insulin needles for the depth you need for IM. But you can use fine guarge needles. I was using a less fine needle and that hurt more. With the 27 guage there is less injury and less pain. But I'll take sub cu any day of the week and wish mag could be given that way. Judith On Sat, 18 Nov 2000 15:53:07 -0800 " R. Bullock " <bullocks@...> writes: > Judith, > > Are you using insulin needles? I'm surprised the b-12 is causing > pain IM > with insulin needles but not surprised the mag. is causing pain. > Steve B. > B12 injections > > > > > > > > > > When I got my B12 from Wellness Pharmacy I called and asked > them > > > what is > > > best > > > > place to inject my B12. They said that if the B12 doesn't hit > a > > > muscle > > > when > > > > injected, it's like wasting the B12 because its not absorbed > > > correctly if > > > its > > > > not in a muscle. Now, I am hearing that some are not > injecting it > > > into > > > the > > > > muscle. What to do? What to do? > > > > > > > > > > > > This list is intended for patients to share personal > experiences > > > with each > > > other, not to give medical advice. If you are interested in any > > > treatment > > > discussed here, please consult your doctor. > > > > > > > > > > > > > -------------------------- eGroups Sponsor > > > > > > This list is intended for patients to share personal experiences > > > with each other, not to give medical advice. If you are > interested > > > in any treatment discussed here, please consult your doctor. > > > > > > > ________________________________________________________________ > > GET INTERNET ACCESS FROM JUNO! > > Juno offers FREE or PREMIUM Internet access for less! > > Join Juno today! For your FREE software, visit: > > http://dl.www.juno.com/get/tagj. > > > > > > This list is intended for patients to share personal experiences > with each > other, not to give medical advice. If you are interested in any > treatment > discussed here, please consult your doctor. > > > > > -------------------------- eGroups Sponsor > > This list is intended for patients to share personal experiences > with each other, not to give medical advice. If you are interested > in any treatment discussed here, please consult your doctor. > ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 In a message dated 1/31/01 4:07:39 PM Eastern Standard Time, p_houser37@... writes: << Wow! Judy, those were great pictures! >> I SECOND that statement!!! What a handsome young man you have! Thanks so much for sharing the picture... I love to see pictures! Peggy wife to larry, mom to monica 16, jordan 13, tyler 10, dylan ds 5, and caleb ds and t9p 16 mos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 Pam, has never walked on his own. He does walk with help and with a walker if someone is right beside him. He has had surgeries on both knees. His petella's were always able to slip out of socket and then they finally slipped out and stuck so that is when they did the surgery. The first surgery was done in 1990 and Dr. Olney said he had to do a lot of corrective surgery besides placing the petella back to where it belonged. They other knee lasted until 1996 when the second surgery was done by Dr. Olney the same Doc. as the first surgery at KU Med Center, Kansas City, Kansas. The second surgery they had to place a screw in his knee also. They also stretched his ham strings during both of the surgeries. He also wears braces on both legs from just under the knee all the way to the end of his toes. His legs are pretty small around and his feet are long and very narrow. So walking is just something has not mastered by himself. He also has seizure activity most of the time according to the EEG's but his last one a few years ago was a little better they told me. He just doesn't seem to have the upper body control to master walking alone, that is one thing that we and the school has always worked hard on is his physical and occupational therapy. Anymore questions, just ask, I really don't mind any questions you would like to ask. Judy wife of Bob Mom to 21yrs. DS and 28 Judith > Wow! Judy, those were great pictures! The photographer > did a tremendous job. is a handsome young man. > > You said he is in a wheel chair. May I ask why? > > ===== > Pam Mom to Identical twins Hannah (Hannah Banana), (Huggy Bear) age 5, Josh 19 and Dusty 14 > > __________________________________________________ > Get personalized email addresses from - only $35 > a year! http://personal.mail./ > > > http://DSyndrome.com/Multiples > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 Oh Judy, has been through alot. I bet he gets frustrated knowing he can't walk. Does it ever make him mad? Poor fellow. : ) You said he also suffers from seizures? Does he have them often? My had a few when she was smaller but doesn't have them anymore. Thank God. She also doesn't walk. But she can as long as she is holding on to something. She uses a walker at school. This is the olny way she is allowed to go anywhere. They are more strict than old softy Mom. lol Tell I said hello from Tennessee. : ) Have a good day, Pam mom to Hannah and age 5 1/2 --- Judith Oyer <joyer@...> wrote: > Pam, has never walked on his own. He does walk > with help and with a > walker if someone is right beside him. He has had > surgeries on both knees. > His petella's were always able to slip out of socket > and then they finally > slipped out and stuck so that is when they did the > surgery. The first > surgery was done in 1990 and Dr. Olney said he had > to do a lot of corrective > surgery besides placing the petella back to where it > belonged. They other > knee lasted until 1996 when the second surgery was > done by Dr. Olney the > same Doc. as the first surgery at KU Med Center, > Kansas City, Kansas. The > second surgery they had to place a screw in his knee > also. They also > stretched his ham strings during both of the > surgeries. He also wears braces > on both legs from just under the knee all the way to > the end of his toes. > His legs are pretty small around and his feet are > long and very narrow. So > walking is just something has not mastered by > himself. He also has > seizure activity most of the time according to the > EEG's but his last one a > few years ago was a little better they told me. He > just doesn't seem to have > the upper body control to master walking alone, that > is one thing that we > and the school has always worked hard on is his > physical and occupational > therapy. Anymore questions, just ask, I really don't > mind any questions you > would like to ask. Judy wife of Bob Mom to > 21yrs. DS and 28 > Judith > > > > Wow! Judy, those were great pictures! The > photographer > > did a tremendous job. is a handsome young > man. > > > > You said he is in a wheel chair. May I ask why? > > > > ===== > > Pam Mom to Identical twins Hannah (Hannah > Banana), (Huggy Bear) age > 5, Josh 19 and Dusty 14 > > > > __________________________________________________ > > Get personalized email addresses from > - only $35 > > a year! http://personal.mail./ > > > > > > http://DSyndrome.com/Multiples > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 Peggy, Thanks so much and I have to agree, we think is a real handsome young man. Glad to share the pictures with everyone. Judy Wife to Bob Mom to 21yrs. DS & 28 Re: Judith > In a message dated 1/31/01 4:07:39 PM Eastern Standard Time, > p_houser37@... writes: > > << Wow! Judy, those were great pictures! >> > I SECOND that statement!!! What a handsome young man you have! > Thanks so much for sharing the picture... > I love to see pictures! > Peggy wife to larry, mom to monica 16, jordan 13, tyler 10, dylan ds 5, and > caleb ds and t9p 16 mos. > > > http://DSyndrome.com/Multiples > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 Pam, According to the EEG's they have done for 's seizures, they said he has continual seizure activity. They are petti mal, he used to have a lot of weird ones but mostly you can tell by they way his eyes do and sometimes he jerks at different parts of his body. Seizures are sure a mystery to even the Nuerologist's. He has been on medicine for them since he was around 1 yr. old. He really doesn't seem to mind not being able to walk by himself, but since it is hard to know what he really is thinking, who knows maybe he does. That is part of his physical therapy at school is walking down the halls with his walker and a para -educater right by him. He is such a happy guy all the time and when he is smiling it makes you want to smile right along with him. Judy wife to Bob Mom to 21yrs. DS & 28 Judith > > > > > > > Wow! Judy, those were great pictures! The > > photographer > > > did a tremendous job. is a handsome young > > man. > > > > > > You said he is in a wheel chair. May I ask why? > > > > > > ===== > > > Pam Mom to Identical twins Hannah (Hannah > > Banana), (Huggy Bear) age > > 5, Josh 19 and Dusty 14 > > > > > > __________________________________________________ > > > Get personalized email addresses from > > - only $35 > > > a year! http://personal.mail./ > > > > > > > > > http://DSyndrome.com/Multiples > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2001 Report Share Posted February 2, 2001 Hi Judy - I'm wondering if you had any problems when reached puberty? Rudy is 14 and 90% of the time the time he is my huggy bear wonderful kid BUTTTTTT there is the other 10% of the time. I swear I did not birth this kid and am ready to sell him to the highest bidder!! Anyway, just thought I'd ask for your input. 1 mom to Rudy (ds) & 14 & TJ 17 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2001 Report Share Posted February 2, 2001 Judith, I finally found 's Senior pictures. I had downloaded them a couple of days ago, but couldn't find them--I finally did. He is a very good-looking young man. He looks great in his red shirt. Thanks for sharing. Marcia Mom to Sara (DS) and 6 and Lucas 10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2001 Report Share Posted February 2, 2001 Thanks Judy - Rudy is " classified " as " moderate " but he is also non-verbal basically. He does sign and can cuss!! lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2001 Report Share Posted February 2, 2001 Hi , No there really weren't any problems when reached puberty. I guess the only way I can explain as to why there wasn't any problems is the level that functions and I know a lot of people have a hard time with lower functioning or higher functioning, but in 's case I have to be honest and tell you he functions very low, so different life changes really don't affect him like it would another person. He really is the same most all the time very happy, he only puckers up once in awhile if he doesn't feel well or if he hurts and then I have no idea where he is hurting since he really can't point to the spot. I just have to go by expressions and body language. He really doesn't ever cry just maybe whimpers a little and he has been this way since he was probably 3 yrs. old. I know this probably doesn't give you much input about your son Rudy. I really don't know anyone around here that has a son that has DS so I can't even give you ideas about when they went through puberty. I'm sure what your son is going through is perfectly normal along with puberty. Judy Wife to Bob Mom to 21yrs.DS & Re: Judith > Hi Judy - I'm wondering if you had any problems when reached puberty? > Rudy is 14 and 90% of the time the time he is my huggy bear wonderful kid > BUTTTTTT there is the other 10% of the time. I swear I did not birth this > kid and am ready to sell him to the highest bidder!! Anyway, just thought > I'd ask for your input. > > 1 mom to Rudy (ds) & 14 & TJ 17 > > > http://DSyndrome.com/Multiples > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 Sara, thanks for the info, we are in good ole' rainy california. I know Bryna Seagle Sp? is in SanFran, met her once at a conference but wasn't too impressed , but I think Regional Center or the schools may pay for us to see her...also am in the midst of trying to get an appointment with a child neurologist at Childrens hospital in Fresno. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 hi if u mix the whey protein with milk it will not be absorbed into your body properly. why u have to wait 20 minutes after tkaing before u eat again. I mix mine with distilled water and add glutamine to it . tealk > [Original Message] > From: judithwisdom <wisdomjf@...> > < > > Date: 6/6/2004 12:27:10 PM > Subject: Re: Cave-man diet and whey protein? > > Blake, > > Do you know what brand he recommends (Cheney). I've been looking > into these powders and they do vary it seems re ingredients, care in > manufacturing, casein or not, etc. > > And does Cheney recommend intake of this powder with milk or what? > Also to what end, purpose does he recommend it. I currently want to > use it to make a high protein, low-fat, low carb diet work as easily > as possible re preparation demands for lowering my too high lipid > profile and for some weight loss as well. > > If it helps my ME, that would be great. > > Thanks. > > Judith > > Thanks. > > Judith > > Fox et al, > > > > Many whey protein poweders contain next to no carbohydrates. Dr. > Cheney > > (who treated over 5000 CFs patients) highly recommends whey protein > > (10-20g/day). > > > > Regards, blake > > > > Cave-man diet and whey protein? > > > > > > > According to the cave-men diet one should try to lower one's > intake > > > of carbohydrate. > > > > > > Now whey seems to contain also a lot of carbohydrate? > > > > > > Is that correct? > > > > > > And if so, is there any whey protein that really only contains > > > protein?! > > > > > > thanks and regards > > > fox > > > *** > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Judith, Have you spoken to SAUK in London (020 8964 5343)? In my experience GPs are not very good at getting you to a scoliosis surgeon. If you want advice & referral consider contacting Mr Alan Gardner FRCS, retired from scoli surgery but still seeing patients and heavily into research. He is in Essex and his phone nr is 01245-22 34 56. There is also Edgar FRCS - I think he's at Stanmore. Lida in London > I'm as sure as I can be that mine are true harringtons, as you saidin your case. It's what I was told. I can't even name my affectedvertabrae as some on here can. I do know that mine are ruler straightrods, about a foot and a bit long and held in place with 3 (I think)bolts that go through and join to it's partner on the other side. Ithink they said I have one free vertabrae at the neck end and three atthe "tail" end. I call them scaffolding cause that's what they looklike. I was told that I was lucky to have them as 12 months before I'dhave had the plaster cast route and it would have failed. I was toldthat normally they would take them out again when I finished growingbut my condition being progressive they couldnt ever take them out orI'd go back to square one. They even gave me one to hold just beforemy surgery so I'd know what it was. To my knowledge I was not "wired"at all. I had broken ribs, one removed completely and bone grafts> but no wires. Oh and nearly 150 stitches, 10 or so ballbearingclips and I have scars on my wrists and neck from the drips. I was intheatre for 8 hours and had 16 pints of blood. My surgeon wasProfessor Webb (who was considered something pretty special, andI would hear for years, all over the country from manyothapeadics, how lucky I was to have had him) and I was partof Professor Burwell's research group (I hated that damn ISISmachine). Amazing what you remember isnt it?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Hi, Thank you for that information Lida. I have an appointment on monday in a scoliosis clinic - unfortunatley the only scoliosis clinic they can get me into is a childrens clinic. So I'm hoping that they have some idea of adult problems too! if not the information you sent will be especially useful. I'd like to say a big thank you to everyone who's sent me extra "ammunition" for my appointment - it's very much appreciated. I shall print it all out and take it with me. The poor bloke won't know whats hit him! My GP was actually ok with me, the GP I got into to see said that she had had harrington rods as a child and her body rejected them and she got a massive infection and they had to be removed so she thought I was lucky to have had them as long as I did. I don't feel very lucky though.....not in that respect anyway. however thank you guys - it's really helped. best wishes judith From: Lida Kraz <lidakraz@...> Sent: Wednesday, February 25, 2009 8:30:31 AMSubject: Judith Judith, Have you spoken to SAUK in London (020 8964 5343)? In my experience GPs are not very good at getting you to a scoliosis surgeon. If you want advice & referral consider contacting Mr Alan Gardner FRCS, retired from scoli surgery but still seeing patients and heavily into research. He is in Essex and his phone nr is 01245-22 34 56. There is also Edgar FRCS - I think he's at Stanmore. Lida in London > I'm as sure as I can be that mine are true harringtons, as you saidin your case. It's what I was told. I can't even name my affectedvertabrae as some on here can. I do know that mine are ruler straightrods, about a foot and a bit long and held in place with 3 (I think)bolts that go through and join to it's partner on the other side. Ithink they said I have one free vertabrae at the neck end and three atthe "tail" end. I call them scaffolding cause that's what they looklike. I was told that I was lucky to have them as 12 months before I'dhave had the plaster cast route and it would have failed. I was toldthat normally they would take them out again when I finished growingbut my condition being progressive they couldnt ever take them out orI'd go back to square one. They even gave me one to hold just beforemy surgery so I'd know what it was. To my knowledge I was not "wired"at all. I had broken ribs, one removed completely and bone grafts> but no wires. Oh and nearly 150 stitches, 10 or so ballbearingclips and I have scars on my wrists and neck from the drips. I was intheatre for 8 hours and had 16 pints of blood. My surgeon wasProfessor Webb (who was considered something pretty special, andI would hear for years, all over the country from manyothapeadics, how lucky I was to have had him) and I was partof Professor Burwell's research group (I hated that damn ISISmachine). Amazing what you remember isnt it?> Quote Link to comment Share on other sites More sharing options...
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