Eye swelling from sinuses and Washington state ENT

[Guest guest]

I have been dealing with Samter's triad for about 15 years. I had two sinus

surgeries and flush my sinuses daily using NeilMed sinus rinse now mixed with a

liquid steroid prescribed by the ENT. It used to be that every year, usually in

August, my right eye would swell above and below the lid. I don't have a fully

formed maxillary sinus on the right side. Since I started rinsing with the

steroid, I've had this swelling every other month.

I live in Western Washington and would like recommendations on a good ENT who is

familiar with this illness. I may need another surgery to shrink the polyps. I'd

like to go with a doctor who will try to " cure " this illness, or at least keep

it from flaring, even if that means aspirin desensitization.

Any help would be appreciated.

[Guest guest]

,

My ENT in Tacoma didn't seem too clued-in, but my allergy doc in Gig Harbor

( Brown, yes that's his real name) was just talking to me yesterday about

aspirin desensitization of a Samter's " poster child " patient of his who is doing

great now. Dr Brown seemed really knowledgeable; after reading many posts here,

it was good to discover that my own doc is quite up to speed on this, although

it may not be a useful approach for me, myself.

Currently he's got me introducing a Singulair tab dissolved in 3cc of saline

solution into sinuses, which to my surprise is actually helping with my morning

headaches and mucus-y nights. Originally I sprayed it; now I'm tipping upside

down and am putting 1.5cc into each nostril with a syringe = less messy.

Prednisone is clearing out polyps at this moment so we're in " wait and see " mode

to see how the Singulair works against future polyp production.

I stand humbled by all of you samter's folks' stories.

>

> I have been dealing with Samter's triad for about 15 years. I had two sinus

surgeries and flush my sinuses daily using NeilMed sinus rinse now mixed with a

liquid steroid prescribed by the ENT. It used to be that every year, usually in

August, my right eye would swell above and below the lid. I don't have a fully

formed maxillary sinus on the right side. Since I started rinsing with the

steroid, I've had this swelling every other month.

>

> I live in Western Washington and would like recommendations on a good ENT who

is familiar with this illness. I may need another surgery to shrink the polyps.

I'd like to go with a doctor who will try to " cure " this illness, or at least

keep it from flaring, even if that means aspirin desensitization.

>

> Any help would be appreciated.

>

>

>