russian melatonin paper

[Guest guest]

Hi,i don't know how i have managed to miss this site for so long!

Anyway, i have had samters for about 10years now. I live in the uk

and have found most of the medical profession comletely unaware of

this disorder. I have been attending a specialist joint clinic with

an immunologist and an ent surgeon for about 3 years. I have tried

singulair with not much benefit and am currently taking betnesol

steroid nose drops and a selection of inhalers including atrovent for

my asthma.I fully believe that my doctors do not appreciate the

severity of this problem. They seem to have some kind of selective

hearing which actually makes it rather embarrassing to be in the

room. It kind of goes like this... They say how have you been....i

say pretty bad, but today i'm ok (anyone else find that hope cures

all temporarily?)... they say oh good ,lets focus on the positive and

reduce your steroid drops to a spray... i say,but i've been really

bad even with the drops...they say lets focus on the

positive...you're better today. and so it goes on. I have eventually

realised that they do not understand how it affects my life, or how

to help me and they are trying to protect themselves by recommending

that i use the lowest dose of steroids possible. The decision on how

much to use is up to me.

Well, i have a 2 year old girl and i am certainly not going to sit

back and do nothing while the risk that she could suffer with this

remains. I am a biology alevel teacher so i have a little useful

background to help me in the research i have been doing. I see that

you also have found the russian paper on melatonin as the root of all

ou problems. i understand that our problem may have a root in

genetics but may have been precipitated by a virus. It causes us to

develop lower than normal melaton levels. Because melatonin controls

our sleep patterns among other things, our bodies have had to become

more sensitive to melatonin(any of you had problems sleeping as

ateenager?). This increase in sensitivity has allowed us to sleep but

it has caused another problem....we have become more sensitive to

melatonin's breakdown product........which is effectively

aspirin!!!! So, yes we have problems when we take in aspirin in the

form of a tablet or in high doses in our diet, but the main problem

comes from the aspirin naturally within us. The russian paper

suggests that we try to normalise our melatonin levels. In america

you have access to melatonin supplements which may normalise your

levels but be advised they are not recommend for young adults or

really anyone on a permanent basis. Melatonin (i will discuss it at

another time) would i believe be quite dangerous to take except under

hospital care as it would dramatically increase your aspirin levels

as well. The russian doctor suggests another medicine which our

bodies can make melatonin from and it is believed it woud be much

better for us. Problem, it is only licencsed in russia (and hence may

be unpure).

I brought the abstract of the paper to my specialists 6 months ago,

they tossed it aside. I then paid to speak to an endocrinology

specialist who looked at the paper, made a few enquiries, and got

back to me saying that he thinks it would be justified to try this

route of treatment,however,he coud not find info on epithalmin(i

found it easily enough on an internet search). He did say however

that he would sign a disclaimer,if i would ,o bring melatonin into

the country(a dose of 3 mg per night). Big results as far as i am

concerned . 2 problems though 1. he mentioned nothing about this

being dangerous 2. I am now pregnant and cannot take any new drugs.

Sorry this has been so jumbled. I am grabbing a moment during school

so time islimited.I am very excited to find this group and i have so

much to talk to you about . But it will have to wait.

Anyone get itchy ears?

Anyone get migraines and psoriasis?

Anyone get a high pulse rate assosiated with ther runny nose?

Anyone in uk?

talk again soon ,

ine