[BULK] Re: just some random thoughts....

[Guest guest]

Hi Tami,

No I don't mind and sorry for the delay in answering you. I had to

do a few things yesterday and this morning.

As for pain I go through surgeries and migraines with nothing at all

to take for the pain. If I do take anything it is Morphine or

Demoral, both I have to be hositpalized to take anymore and then

watched like a hawk. Usually I just put up with it and try to think

positive thoughts.

I sound like a mess and I truely am, but someone out there has it

worse then I do I am sure of it. So with that I try not to complain

about anything to much.

I do believe the chemical thing has a lot to do with headaches and

asthma as well as derpression etc. We are considering going to home

made everything here, but haven't yet since I have been sick now for

around a month and am having a rough time of making things go here as

it is. But tomorrow will be better.

Take care,

> >

> > I have:

> >

> >

> >

> > Samters

> >

> > Osteopenia (from Prednisone)

> >

> > No sense of smell (unless I go back onto Pred.)

> >

> > seven sinus surgeries

> >

> >

> >

> > I take:

> >

> >

> >

> > Nasonex twice daily

> >

> > Seritide twice daily

> >

> > Ventolin when needed

> >

> > And unfortunately Sinex when I block up just so I can breathe

that

> little

> > bit easier (it's bad news long term)

> >

> >

> >

> > My main issues is with breathing difficulties when the weather

> changes.

> > Find it difficult to exercise and as such have a somewhat bulgy

> tummy area.

> > I've tried exercise to flatten it to no avail.

> >

> >

> >

> > So compared to you Trudy, I'm just a `learner'

> >

> >

> >

> >

> >

> >

> >

> > _____

> >

> > From: samters [mailto:samters ]

On

> Behalf Of

> > Trudy

> > Sent: Thursday, 26 April 2007 3:15 PM

> > samters

> > Subject: just some random thoughts....

> >

> >

> >

> > hey all. i have been wondering lately if we all have some or

most

> of

> > the same health problems, and if they are related to samters or

> just

> > coincidence. i will start with my list and see who is similar.

> won't

> > fix the problem though it will help me to know i am not alone

and

> there

> > is quality of life within the perimeters of this disease. i

guess

> this

> > is kinda like an informal survey. i have samters, fibromyalgia,

> > vasculitis, osteoporosis (from prednisone), depression at

times,

> feel

> > like i have the flu all the time, crazy tired no matter how

much

> sleep

> > i get, weight gain (prednisone again), no sense of smell

(unless on

> > prednisone), two mucoceles, eight sinus surgeries, chronic

sinus

> > infection with staph and strep that requires daily 2gm.

rocephin

> > through a picc line that has lasted six months this time. whew.

> your

> > turn. thanks. trudy.

> >

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.463 / Virus Database: 269.6.0/775 - Release Date:

> 24/04/2007

> > 5:43 PM

> >

> >

> >

> > No virus found in this outgoing message.

> > Checked by AVG Free Edition.

> > Version: 7.5.463 / Virus Database: 269.6.0/775 - Release Date:

> 24/04/2007

> > 5:43 PM

> >

>