Prednisone Questions

[Guest guest]

Our dosage for a 32 pound 22 month old is 2 tsp at onset (usually once it hits

102-103). Repeat one timw if fever reoccurs in 24 hours. Do not repeat if

fever reoccurs 2-3 days later - our specualist feels there would be a different

cause if it was 3 days later.

99.5 is normal half the time for us. We've had her register 99.2 or 99.3 on a

well visit with no concern from the doctor.

I'm surprised by febrile seizures at such a low fever and having that be .

My understanding was that kids can handle much higher fevers with little

concern for seizures. Our daughter hit 108 with no issues - of course we were

still a bit scared and treated immediately.

Regarding the 5 days od Prednisone, your post is the first I recall stating such

a dosage.

Hope this helps a bit. Good luck.

Ginger .

Daughter - le, 22 months ( since 7-12 months)

Son - Jay, 5 weeks.

~Ginger

Systems Solutions Principal, CAR Financial Services

Work: (770) 206-6201

Cell: (770) 823-2871

TREO: (404) 915-5035

Sent from my TREO; thus, please excuse any typos. (Especially with missing p's

- that key sticks!)

Prednisone Questions

Hi folks. As some know, my daughter is 2.5 years old, and has been fevering for

over a year. Our journey so far:

- 3 months of Colchicine with no effect at all

- 3 months of Cimetidine. I hesitate to say no effect, but " wierd " effects.

First, she started having very low grade fevers for a week before the normal

episode, then the normal episode would come but be very mild. That happened

twice; the third time, the " week before " fever was 11 days, and the normal

episode was severe. The Dr. had us stop Cimetidine.

- 1 week of Prednisone. This is our latest project. This is where we have

questions.

Our prednisone dosage is 1 tsp every day for 5 days at onset of fever. On

Friday, we noticed her fever coming up (quickly), and it was 4 weeks to the day

since the end of her last one. Once it reached 100, we gave her the first

prednisone dose. (Sophie has a history of Febrile Seizures, so we can't really

wait too long to medicate her). As we guessed from reading this group, the

fever quickly subsided. She had a good day, and if she did have a fever it was

very very low. Since then, she has had fevers of up to 99.4 or 99.5 or so; the

fever isn't completely gone, and today marked the final day of Prednisone doses

for this round.

My questions are:

1) Does this dosage sound right? The 5 day thing seems odd to me.

2) Does this behavior match anyone else's? I had hoped the fever would

disappear after the prednisone, and it mostly has. I'm certainly not

complaining; we can handle < 100 fevers just fine, but the fact that something's

still going on there worries us, again because of the history of seizures.

I'd love to hear some detailed explanations of your experiences with Prednisone.

We have been given the green light to remove her tonsils, and we have a

consultation in just a few weeks for that, so I'm hopeful that the prednisone is

just a short term thing.

Josh

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We also received the same instructions for the dosage of prednisone - give once

if we're sure it's " the fever " and then once again 24 hours later if the fever

persists. Our specialist also said to call if the fever is not gone after that.

Your daughter does not sound like a classic case of , although I'm no

expert! Our son has been fevering for a year and does not run low grade temps

in between bouts so far. Hope this helps. Good luck with your little one.

carol

Prednisone Questions

Hi folks. As some know, my daughter is 2.5 years old, and has been fevering for

over a year. Our journey so far:

- 3 months of Colchicine with no effect at all

- 3 months of Cimetidine. I hesitate to say no effect, but " wierd " effects.

First, she started having very low grade fevers for a week before the normal

episode, then the normal episode would come but be very mild. That happened

twice; the third time, the " week before " fever was 11 days, and the normal

episode was severe. The Dr. had us stop Cimetidine.

- 1 week of Prednisone. This is our latest project. This is where we have

questions.

Our prednisone dosage is 1 tsp every day for 5 days at onset of fever. On

Friday, we noticed her fever coming up (quickly), and it was 4 weeks to the day

since the end of her last one. Once it reached 100, we gave her the first

prednisone dose. (Sophie has a history of Febrile Seizures, so we can't really

wait too long to medicate her). As we guessed from reading this group, the

fever quickly subsided. She had a good day, and if she did have a fever it was

very very low. Since then, she has had fevers of up to 99.4 or 99.5 or so; the

fever isn't completely gone, and today marked the final day of Prednisone doses

for this round.

My questions are:

1) Does this dosage sound right? The 5 day thing seems odd to me.

2) Does this behavior match anyone else's? I had hoped the fever would

disappear after the prednisone, and it mostly has. I'm certainly not

complaining; we can handle < 100 fevers just fine, but the fact that something's

still going on there worries us, again because of the history of seizures.

I'd love to hear some detailed explanations of your experiences with Prednisone.

We have been given the green light to remove her tonsils, and we have a

consultation in just a few weeks for that, so I'm hopeful that the prednisone is

just a short term thing.

Josh

________________________________________________________________________________\

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[Guest guest]

Our pred. dose for my 32 pound 4 year old son is 1 tsp. at the start

of a fever cycle. I don't know of a 5 day dose. That's strange to me -

but maybe someone else will understand it for you.

Hannah

[Guest guest]

Hi Josh

I have also never heard of giving Prednisone for this long and I have only ever

heard of kids fevering at much much higher temperatures during episodes.

Emma (22 months) gets to 106 or more every time. She is very unwell at these

high temperatures but has luckily never had a seizure.

As far as I know, Prednisone should be given at the onset of an episode, AFTER

any other infection has been excluded by a doctor, and only given once, and

sometimes one extra dose 24 hours later although we have not needed to give the

second dose so far.

Hope this helps

Inga

Prednisone Questions

Hi folks. As some know, my daughter is 2.5 years old, and has been fevering for

over a year. Our journey so far:

- 3 months of Colchicine with no effect at all

- 3 months of Cimetidine. I hesitate to say no effect, but " wierd " effects.

First, she started having very low grade fevers for a week before the normal

episode, then the normal episode would come but be very mild. That happened

twice; the third time, the " week before " fever was 11 days, and the normal

episode was severe. The Dr. had us stop Cimetidine.

- 1 week of Prednisone. This is our latest project. This is where we have

questions.

Our prednisone dosage is 1 tsp every day for 5 days at onset of fever. On

Friday, we noticed her fever coming up (quickly), and it was 4 weeks to the day

since the end of her last one. Once it reached 100, we gave her the first

prednisone dose. (Sophie has a history of Febrile Seizures, so we can't really

wait too long to medicate her). As we guessed from reading this group, the

fever quickly subsided. She had a good day, and if she did have a fever it was

very very low. Since then, she has had fevers of up to 99.4 or 99.5 or so; the

fever isn't completely gone, and today marked the final day of Prednisone doses

for this round.

My questions are:

1) Does this dosage sound right? The 5 day thing seems odd to me.

2) Does this behavior match anyone else's? I had hoped the fever would

disappear after the prednisone, and it mostly has. I'm certainly not

complaining; we can handle < 100 fevers just fine, but the fact that something's

still going on there worries us, again because of the history of seizures.

I'd love to hear some detailed explanations of your experiences with Prednisone.

We have been given the green light to remove her tonsils, and we have a

consultation in just a few weeks for that, so I'm hopeful that the prednisone is

just a short term thing.

Josh

________________________________________________________________________________\

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[Guest guest]

usually kids with asthma will take pred. this long. And they only take it when

they are real sick with asthma.

Bridget

hannahls73 <hannahlsmith@...> wrote:

Our pred. dose for my 32 pound 4 year old son is 1 tsp. at the start

of a fever cycle. I don't know of a 5 day dose. That's strange to me -

but maybe someone else will understand it for you.

Hannah

[Guest guest]

We were told to give it for five days as well. The first two days a

full dose and the other three a half dose. We weren't comfortable

giving it so much so we tried two days one month, three days the next

month and one day another month. Each time the fever came back within

a week and so we would have to wait out that fever until the next

month to give the prednislone. After a few tries we decided this

wasn't the best thing for our daughter so we stoped using it. Maybe

if we had listened to the doctor it would have worked, who knows. Our

daughter just had a T & A on the 25th of May and so if it doesn't work

we may be back to trying the Prednislone again. She had a 106.7 fever

twice during her last episode before surgery and we just feel like we

can't keep fighting it with just Mortin and Tylenol alone. We did also

by the way try Cimed. and it had no effect for us. I hope the

Prednisone works for you. If you want more info on my daughter feel

free to email me anytime.

Mother of ee 3

Ca

[Guest guest]

Our son is 2.5 years old. When we have given him prednisone, we have him one

dose on the onset of fever and another 24 hours later. Just be aware that a

side effect of prednisone for us was that he fevered more often. They got

closer and closer together. Good luck!!!

>

> From: Josh Denmark <joshdenmark@...>

> Date: 2007/06/12 Tue AM 10:51:24 EDT

>

> Subject: Prednisone Questions

>

> Hi folks. As some know, my daughter is 2.5 years old, and has been fevering

for over a year. Our journey so far:

> - 3 months of Colchicine with no effect at all

> - 3 months of Cimetidine. I hesitate to say no effect, but " wierd " effects.

First, she started having very low grade fevers for a week before the normal

episode, then the normal episode would come but be very mild. That happened

twice; the third time, the " week before " fever was 11 days, and the normal

episode was severe. The Dr. had us stop Cimetidine.

> - 1 week of Prednisone. This is our latest project. This is where we have

questions.

>

> Our prednisone dosage is 1 tsp every day for 5 days at onset of fever. On

Friday, we noticed her fever coming up (quickly), and it was 4 weeks to the day

since the end of her last one. Once it reached 100, we gave her the first

prednisone dose. (Sophie has a history of Febrile Seizures, so we can't really

wait too long to medicate her). As we guessed from reading this group, the

fever quickly subsided. She had a good day, and if she did have a fever it was

very very low. Since then, she has had fevers of up to 99.4 or 99.5 or so; the

fever isn't completely gone, and today marked the final day of Prednisone doses

for this round.

>

> My questions are:

> 1) Does this dosage sound right? The 5 day thing seems odd to me.

> 2) Does this behavior match anyone else's? I had hoped the fever would

disappear after the prednisone, and it mostly has. I'm certainly not

complaining; we can handle < 100 fevers just fine, but the fact that something's

still going on there worries us, again because of the history of seizures.

>

> I'd love to hear some detailed explanations of your experiences with

Prednisone. We have been given the green light to remove her tonsils, and we

have a consultation in just a few weeks for that, so I'm hopeful that the

prednisone is just a short term thing.

>

> Josh

>

>

>

>

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>

>

>

>

>

[Guest guest]

I have only been on 2 bouts of steroids since I was diagnosed in 2005. I'm concerned with side effects, but I've recently taken a 10 day pack and can relate to you saying like your kids feel like they have their mom back. I feel the same way - it's like night and day. Bianca

www.aigadesignjobs.org/Biafran

907-830-9277

[Guest guest]

The most I've ever done it is 2 weeks, tapering every other day.

From: Christy <whitech@...>Subject: Prednisone Questionssamters Date: Saturday, November 28, 2009, 7:58 AM

Do you take prednisone? How many milligrams? How many days at a time?I am curious because my ENT put me on a 35 day cycle of it (7 days each of 50mg, 30mg, 20mg, 10mg, and 5mg). I am just finishing it up. After 4 days I regained my sense of smell and have felt great. I am sleeping so much better. My 3 kids (all under 5 years old) feel like they have their mom back. I have experience very little side effects (extra energy, a little random hair growth... but that may be my imagination, increased appetite controlled by strict diet). My allergist seemed concerned about the dose and said that he never puts people on it for more than 10 days. Obviously, I am worried about long term side effects. My OB said that she didn't think my insurance would cover bone density tests (I am 36), but she didn't really look into it. I have been on 4 or 5 rounds this year- most for 10-15 days.Note: My sinuses were so compacted that the polyps were

coming out of the bottom of my nose. I did a 14 day round of prednisone in July when I was desinsitized and this is all new, fast growth. My ENT wants to do surgery, but since I am a teacher, I have to wait until Summer. Thanks!Christy

[Guest guest]

have you tried the low sals diet - it works for me. Keeps the polyps and sinuses in check as well as the asthma and rash.

samters From: avifisher@...Date: Sun, 29 Nov 2009 04:00:35 +0000Subject: Re: Prednisone Questions

i'm a fairly regular user or steroids - about 4 times per year - but i just had a bone density and i'm 2 standard deviations below the norm for my age (38 y/o male). I am going to (try to) avoid oral steroids for a year, but i have no air hole without them. just totally and completely swollen. i'm not even sure i have samters anymore since desense didn't work. but i am looking for something else that will alleviate the swelling tissue. any suggestions would be v much appreciated. tx / iddelz> > > From: Christy <whitech@...>> Subject: Prednisone Questions> samters > Date: Saturday, November 28, 2009, 7:58 AM> > > Â > > > > Do you take prednisone? How many milligrams? How many days at a time?> > I am curious because my ENT put me on a 35 day cycle of it (7 days each of 50mg, 30mg, 20mg, 10mg, and 5mg). I am just finishing it up. After 4 days I regained my sense of smell and have felt great. I am sleeping so much better. My 3 kids (all under 5 years old) feel like they have their mom back. > > I have experience very little side effects (extra energy, a little random hair growth... but that may be my imagination, increased appetite controlled by strict diet). My allergist seemed concerned about the dose and said that he never puts people on it for more than 10 days. Obviously, I am worried about long term side effects. My OB said that she didn't think my insurance would cover bone density tests (I am 36), but she didn't really look into it. I have been on 4 or 5 rounds this year- most for 10-15 days.> > Note: My sinuses were so compacted that the polyps were coming out of the bottom of my nose. I did a 14 day round of prednisone in July when I was desinsitized and this is all new, fast growth. My ENT wants to do surgery, but since I am a teacher, I have to wait until Summer. > > Thanks!> Christy>

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[Guest guest]

Margaret, Where is the best place to get plain, simple guidelines for the low-sal diet. And if you are desensitized to aspirin, would you still benefit from a low-sal diet?

From: Margaret <maggieuig1@...>Subject: RE: Re: Prednisone Questionssamters Date: Saturday, November 28, 2009, 9:15 PM

have you tried the low sals diet - it works for me. Keeps the polyps and sinuses in check as well as the asthma and rash.

samters@groups .comFrom: avifisher (DOT) comDate: Sun, 29 Nov 2009 04:00:35 +0000Subject: Re: Prednisone Questions

i'm a fairly regular user or steroids - about 4 times per year - but i just had a bone density and i'm 2 standard deviations below the norm for my age (38 y/o male). I am going to (try to) avoid oral steroids for a year, but i have no air hole without them. just totally and completely swollen. i'm not even sure i have samters anymore since desense didn't work. but i am looking for something else that will alleviate the swelling tissue. any suggestions would be v much appreciated. tx / iddelz> > > From: Christy

<whitech@... >> Subject: Prednisone Questions> samters@groups .com> Date: Saturday, November 28, 2009, 7:58 AM> > > Â > > > > Do you take prednisone? How many milligrams? How many days at a time?> > I am curious because my ENT put me on a 35 day cycle of it (7 days each of 50mg, 30mg, 20mg, 10mg, and 5mg). I am just finishing it up. After 4 days I regained my sense of smell and have felt great. I am sleeping so much better. My 3 kids (all under 5 years old) feel like they have their mom back. > > I have experience very little side effects (extra energy, a little random hair growth... but that may be my imagination, increased appetite controlled by strict diet). My allergist

seemed concerned about the dose and said that he never puts people on it for more than 10 days. Obviously, I am worried about long term side effects. My OB said that she didn't think my insurance would cover bone density tests (I am 36), but she didn't really look into it. I have been on 4 or 5 rounds this year- most for 10-15 days.> > Note: My sinuses were so compacted that the polyps were coming out of the bottom of my nose. I did a 14 day round of prednisone in July when I was desinsitized and this is all new, fast growth. My ENT wants to do surgery, but since I am a teacher, I have to wait until Summer. > > Thanks!> Christy>

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[Guest guest]

Here’s a link I have.  I was on the diet for a few months but

unfortunately it made absolutely no difference to me but then everyone is

different.

http://www.plantpoisonsandrottenstuff.info/content/elimination-diet/salicylates.aspx

From: Jane Marino

[mailto:janesmarino@...]

Sent: Sunday, 29 November 2009 3:22 PM

samters

Subject: RE: Re: Prednisone Questions

Margaret, Where is the

best place to get plain, simple guidelines for the low-sal diet. And if you

are desensitized to aspirin, would you still benefit from a low-sal diet?

From: Margaret <maggieuig1@...>

Subject: RE: Re: Prednisone Questions

samters

Date: Saturday, November 28, 2009, 9:15 PM

have you tried the low sals diet - it works for me. Keeps

the polyps and sinuses in check as well as the asthma and rash.

samters@groups .com

From: avifisher (DOT) com

Date: Sun, 29 Nov 2009 04:00:35 +0000

Subject: Re: Prednisone Questions

i'm a fairly regular user or

steroids - about 4 times per year - but i just had a bone density and i'm 2

standard deviations below the norm for my age (38 y/o male). I am going to

(try to) avoid oral steroids for a year, but i have no air hole without them.

just totally and completely swollen.

i'm not even sure i have samters anymore since desense didn't work. but i am

looking for something else that will alleviate the swelling tissue. any

suggestions would be v much appreciated. tx / iddelz

>

>

> From: Christy <whitech@... >

> Subject: Prednisone Questions

> samters@groups .com

> Date: Saturday, November 28, 2009, 7:58 AM

>

>

> Â

>

>

>

> Do you take prednisone? How many milligrams? How many days at a time?

>

> I am curious because my ENT put me on a 35 day cycle of it (7 days each

of 50mg, 30mg, 20mg, 10mg, and 5mg). I am just finishing it up. After 4 days

I regained my sense of smell and have felt great. I am sleeping so much

better. My 3 kids (all under 5 years old) feel like they have their mom back.

>

> I have experience very little side effects (extra energy, a little

random hair growth... but that may be my imagination, increased appetite controlled

by strict diet). My allergist seemed concerned about the dose and said that

he never puts people on it for more than 10 days. Obviously, I am worried

about long term side effects. My OB said that she didn't think my insurance

would cover bone density tests (I am 36), but she didn't really look into it.

I have been on 4 or 5 rounds this year- most for 10-15 days.

>

> Note: My sinuses were so compacted that the polyps were coming out of

the bottom of my nose. I did a 14 day round of prednisone in July when I was

desinsitized and this is all new, fast growth. My ENT wants to do surgery,

but since I am a teacher, I have to wait until Summer.

>

> Thanks!

> Christy

>

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do online.

[Guest guest]

There's also another resource that I have found handy over the years in helping my husband with Samters. My son has ADHD. There is a Dr. Feingold who has linked salicylate sensitivity to ADHD. I actually ordered a book that is a shopping guide from the Feingold organization to help my son and when I found out about the link between Salicylates and Samters, I started using the guide's foods for my husband as well.

The nice feature of the shopping guide is that it includes processed foods that are low in salicylates, so you can buy things like Fritos, certain kinds of chips, etc. that don't have high salicylate content. It's a pain to shop with the guide checking every item for the first several times, but it gets easier as you get accustomed to what foods you can buy.

The downside of this guide is that it is expensive to join the "Feingold Organization" ($82.50), but if anyone is interested you can contact:

shula@...

and she will tell you how to join and get the shopping guide.

Good luck! Sue

samters From: soniarobins@...Date: Sun, 29 Nov 2009 16:06:54 +1100Subject: RE: Re: Prednisone Questions

Here’s a link I have. I was on the diet for a few months but unfortunately it made absolutely no difference to me but then everyone is different.

http://www.plantpoisonsandrottenstuff.info/content/elimination-diet/salicylates.aspx

From: Jane Marino [mailto:janesmarino ] Sent: Sunday, 29 November 2009 3:22 PMsamters Subject: RE: Re: Prednisone Questions

Margaret, Where is the best place to get plain, simple guidelines for the low-sal diet. And if you are desensitized to aspirin, would you still benefit from a low-sal diet?

From: Margaret <maggieuig1hotmail>Subject: RE: Re: Prednisone Questionssamters Date: Saturday, November 28, 2009, 9:15 PM

have you tried the low sals diet - it works for me. Keeps the polyps and sinuses in check as well as the asthma and rash.

samters@groups .comFrom: avifisher (DOT) comDate: Sun, 29 Nov 2009 04:00:35 +0000Subject: Re: Prednisone Questions

i'm a fairly regular user or steroids - about 4 times per year - but i just had a bone density and i'm 2 standard deviations below the norm for my age (38 y/o male). I am going to (try to) avoid oral steroids for a year, but i have no air hole without them. just totally and completely swollen. i'm not even sure i have samters anymore since desense didn't work. but i am looking for something else that will alleviate the swelling tissue. any suggestions would be v much appreciated. tx / iddelz> > > From: Christy <whitech@... >> Subject: Prednisone Questions> samters@groups .com> Date: Saturday, November 28, 2009, 7:58 AM> > > Â > > > > Do you take prednisone? How many milligrams? How many days at a time?> > I am curious because my ENT put me on a 35 day cycle of it (7 days each of 50mg, 30mg, 20mg, 10mg, and 5mg). I am just finishing it up. After 4 days I regained my sense of smell and have felt great. I am sleeping so much better. My 3 kids (all under 5 years old) feel like they have their mom back. > > I have experience very little side effects (extra energy, a little random hair growth... but that may be my imagination, increased appetite controlled by strict diet). My allergist seemed concerned about the dose and said that he never puts people on it for more than 10 days. Obviously, I am worried about long term side effects. My OB said that she didn't think my insurance would cover bone density tests (I am 36), but she didn't really look into it. I have been on 4 or 5 rounds this year- most for 10-15 days.> > Note: My sinuses were so compacted that the polyps were coming out of the bottom of my nose. I did a 14 day round of prednisone in July when I was desinsitized and this is all new, fast growth. My ENT wants to do surgery, but since I am a teacher, I have to wait until Summer. > > Thanks!> Christy>

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[Guest guest]

I personally would like to take prednisolone this way. I'll ask my Docs next time.

Becky

From: "uarisk1@..." <uarisk1@...>samters Sent: Sun, 29 November, 2009 10:14:20Subject: Re: Prednisone Questions

I agree completely. I have been on alternate day dosing for over a year with little to no side effects. I take either 8mg or 4mg prednisolone every other day. Dosage depends on how my sinus/lungs are doing. I have had pretty regular sense of smell and lung function is improved.

An old family friend(a surgeon) is the one who recommended the alternating day dosage regimen. His wife has some digestive problem(I think Crohn's) and has been taking Prednisolone for over ten years to control her problem. She is completely healthy.

Marcus

Prednisone QuestionsDo you take prednisone? How many milligrams? How many days at a time?I

am curious because my ENT put me on a 35 day cycle of it (7 days each of50mg, 30mg, 20mg, 10mg, and 5mg). I am just finishing it up. After 4 days Iregained my sense of smell and have felt great. I am sleeping so muchbetter. My 3 kids (all under 5 years old) feel like they have their momback.I have experience very little side effects (extra energy, a little randomhair growth... but that may be my imagination, increased appetite controlledby strict diet). My allergist seemed concerned about the dose and said thathe never puts people on it for more than 10 days. Obviously, I am worriedabout long term side effects. My OB said that she didn't think my insurancewould cover bone density tests (I am 36), but she didn't really look intoit. I have been on 4 or 5 rounds this year- most for 10-15 days.Note: My sinuses were so compacted that the polyps were coming out of thebottom of my nose. I did a 14 day

round of prednisone in July when I wasdesinsitized and this is all new, fast growth. My ENT wants to do surgery,but since I am a teacher, I have to wait until Summer.Thanks!Christy------------ --------- --------- ------