newcomer

[Guest guest]

> > > Hey everyone, I'm Christie and I just joined

> > today. Not real sure how

> > > this works so please bare with me.

> > >

> > Welcome to the group Christie, you'll find lots of

> > good quality information here, and

> > people willing to share their experience. (There's

> > also some uncouth English guy - just

> > ignore him.) You are member number 1003, we just

> > passed 1000, and some of us are still

> > drunk on heady aromas like goat hair and jasmine.

> > Just kidding.

> >

> > Tisserand

> >

> >

> ,

> I was going to tell you not to frighten off the

> newcomers! (But you made me laugh!)

>

>

>

I'm expecting a pithy message from Anya to arrive any moment now telling me I'm

back on

moderation!

[Guest guest]

From:

[mailto: ] On Behalf Of Tisserand

Sent: Wednesday, September 20, 2006 8:54 AM

Subject: Re: Newcomer

> Hey everyone, I'm Christie and I just joined today. Not real sure

how

> this works so please bare with me.

>

I'm tempted, but this is a clean, upstanding group, and I'm sure we

all want to keep it that

way!

T.

See what happens when I go away for a few days? Wow, over 1,000!!!

Just how clean and upstanding can one be when one salivates protectively

over the hair of goat, ? :-) I think we are all loose enough to be

fun, but dazzle with our sobering intelligence, as well. Present company

intended.

Thanks to Anya for being the catalyst with the vision and glue that holds

this wonderful group together. Kudos, dear.

Be Well,

Marcia Elston http://www.wingedseed.com

" Give thanks for a little and you will find a lot. " Hausa Saying from

Nigeria

[Guest guest]

At 01:10 PM 9/20/2006, you wrote:

>I'm expecting a pithy message from Anya to arrive any moment now telling

>me I'm back on

>moderation!

Trying to lay low with carpal tunnel (much better today) and everybody goes

wonky on me -- that's mean to do to an overworked, underpaid list mom! If I

could, some uncouth Englishman would get a smack in the back of the head --

but that would hurt my wrist more, so I sentence you to having to sniff

really poorly-made, synthetics-laden perfumes.

Anya

http://anyasgarden.com/perfumes.htm Parfums Natural

http://artisannaturalperfumers.com The Artisan Natural Perfumers Guild

http://.com The Premier Natural Perfume Site Gateway

[Guest guest]

> >I'm expecting a pithy message from Anya to arrive any moment now telling

> >me I'm back on

> >moderation!

>

> Trying to lay low with carpal tunnel (much better today) and everybody goes

> wonky on me -- that's mean to do to an overworked, underpaid list mom! If I

> could, some uncouth Englishman would get a smack in the back of the head --

> but that would hurt my wrist more, so I sentence you to having to sniff

> really poorly-made, synthetics-laden perfumes.

>

>

> Anya

Hey, sorry list mom, I'll sniff anything you send me. And anyway - Christie's

still with us!

I'm going out of town for a fews days, so you can rest easy till Monday. Now go

back to

bed and sip some chamomile tea..

T.

[Guest guest]

tharris <nsigniah@...> wrote: Hello everyone...

I have a special interest in ancient oils and enjoy reading about them and how

they were used. I have a few on hand (frankincense, spikenard) that have amazing

skin properties but the aroma of some are an acquired taste lol.

>> they are but are fabulous ! *smile*

>

>

. >My favorite EO's include jasmine, nutmeg, frankincense,y-y,amber and the

woods (sandalwood, cedarwood, etc). I would like to try neroli, but the $$ is

prohibative for me. Maybe sometime in the future??

> ah a floral woody spicy ambery girl eh....

I am also somewhat of a naturalist (plants, gardening,composting), with a

passion for re-creating " lost arts " (soapmaking, calligraphy, illumination,

etc). My family is my world and I enjoy the precious moments I get to spend with

them. I am also a work-a-holic unfortunately, which limits the time I get to

spend with my greater loves.

> sounds like a girl after my own heart!! LOL calligraphy is a beautiful

art, as illuminations do you do some yerself? I love machine embroidery.....

and yes family time soo precious... plenty of soapmakers here to share info when

making from scratch etc.... you will have fun....

I look forward to meeting all of you in the virtual world here. I have yet to

meet anyone where I am living who shares my interest/passion for natural health

& EO's. Most days I never speak of it because people look at me like I'm

speaking a foreigh language. I get a lot of the " why can't you just buy off the

shelf like regular people " responses. My family supports me whole-heartedly, but

prefer I don't involve them in my " experiments "

>>> OH involve your family with your experiments!!! I think they will love

what you are getting up too and will feel involved...... it is nice to get

honest feedback too.

.

So again, thank you everyone... I look forward to hearing your stories/advice.

I'm sure I will have a lot of questions, and hope I can share a few of my own

experiences as well.

Bless you all, have a wonderful day!

Hi t harris

Welcome.:.....Janita here...member of the Guild and Group .:-).. there are

plenty of us who share all what you have been describing above .... jump in read

the files.... so much info there... any questions just pipe up plenty of

friendly folk to answer queries and questions..... dont be shy *:-D..... we all

are here to share, learn and have fun...

Every good wish, Janita

Janita Haan Natural Perfume

Flowers of Myddfai project http://www.tiny.cc/flowers817

Janita's Attar http://www.janitasattars.blogspot.com

---------------------------------

Support the World Aids Awareness campaign this month with for Good

[Guest guest]

> Welcome.:.....Janita here...member of the Guild and Group .:-)..

there are plenty of us who share all what you have been describing

above .... jump in read the files.... so much info there... any

questions just pipe up plenty of friendly folk to answer queries and

questions..... dont be shy *:-D..... we all are here to share, learn

and have fun...

>

Thanks Janita Nice to meet you. What are your

interests/preferences, etc?

re: Illumination & calligraphy - yes I've done over 100 custom pieces

reflecting different time periods and cultures, although I haven't

touched my pens/paints in several years.

re: my family - I have tried to involve them in my projects, but they

just smile, hug me, and go back to their own interests. Although now

that my son has grown, he comes to me every now and again for

advice. I just smile, give him a hug and a few pointers, etc.

Besides, if they truly aren't interested, I don't push them. It's

all good. =)

Blessings,

Wolfnbuffalo

[Guest guest]

i have always heard that when a kid is self abusive you should ignore them and the behavior. You definitely have your hands full. You are a very special person to take on this type of responsibility. Ciara is a very blessed daughter.Sent from my iPhoneGwen HebertOn Nov 24, 2009, at 10:40 AM, "L" <kslemieux@...> wrote:

My name is and my almost 5yr old daughter was just given the diagnosis of being on the autism spectrum. I know next to nothing about autism. Ciara constantly hits herself in the head. It ranges from mild tapping but can escalate till she causes bruising and bloody lips. She also has the ocassional tantrum (?meltdown) with the classic kicking and thrashing and crying. These last up to 4 hours. I have no idea of her intelligence but think it is higher than what she is assesed to be (severe MR). She has multiple medical issues which include slight hearing loss bilaterally, visual problems (corrected with glasses), unrepaired cleft palate, has a trach and a g-tube. She can walk with a walker but doesn't pull herself to a stand. She is nowhere ready for potty-training. She also has sleep issues (free-floating pattern). We've known she has had behavioral issues but until now they have taken a backseat to all of the physical. She is also adopted at the age of 3. There is a heavy component of alcohol, marijuana and cocaine use by her birth mom while pregnant. I need any help I can get but mostly ideas in addressing the self abuse to start with. She doesn't redirect well and we have had to resort to using soft elbow restraints to prevent injury. Now she is almost dependent on the restraints to control herself. Thanks for reading my book and can you please help?

[Guest guest]

Lesley Hicks would be a great support for you -- you adopted her correct? Lesley adopted Devin -- I will send her and email, just to make sure she sees this! , you are doing a great job. Now that she has a diagnosis, you will be guided into the things that are most helpful for behavioral management....Some of the things we have done (I have a three yr old boy) -- we got him into Occupational therapy which you may already have as you say you had physical issues...but try to get someone who is sensory certified, as that was a God-send for us....also some ABA or something that will help you help her to manage behavior. I have ideas, but don't want to post an novel... lol...

For now welcome -- email me off group if you like -- Question...is she on any medication to help with her aggression and or anxiety?

e

ljdjd1234@...

From: L <kslemieux@...>autism Sent: Tue, November 24, 2009 10:40:16 AMSubject: Newcomer

My name is and my almost 5yr old daughter was just given the diagnosis of being on the autism spectrum. I know next to nothing about autism. Ciara constantly hits herself in the head. It ranges from mild tapping but can escalate till she causes bruising and bloody lips. She also has the ocassional tantrum (?meltdown) with the classic kicking and thrashing and crying. These last up to 4 hours. I have no idea of her intelligence but think it is higher than what she is assesed to be (severe MR). She has multiple medical issues which include slight hearing loss bilaterally, visual problems (corrected with glasses), unrepaired cleft palate, has a trach and a g-tube. She can walk with a walker but doesn't pull herself to a stand. She is nowhere ready for potty-training. She also has sleep issues (free-floating pattern). We've known she has had behavioral issues but until now they have taken a backseat to all of the physical. She is also adopted at the

age of 3. There is a heavy component of alcohol, marijuana and cocaine use by her birth mom while pregnant. I need any help I can get but mostly ideas in addressing the self abuse to start with. She doesn't redirect well and we have had to resort to using soft elbow restraints to prevent injury. Now she is almost dependent on the restraints to control herself. Thanks for reading my book and can you please help?

[Guest guest]

I wish we could ignore the hitting. Problem is she causes herself bruising and

bloody lips. It is also the only way she has to tell us when something is wrong

(like she can't breath or is in pain) so we are stuck in a no-win situation. She

is also very creative and if she gets really ticked off she rips her trach out

which causes her to stop breathing. Isn't life fun??????

>

>

>

>

>

>

> My name is and my almost 5yr old daughter was just given the

> diagnosis of being on the autism spectrum. I know next to nothing about

autism.

> Ciara constantly hits herself in the head. It ranges from mild tapping but

> can escalate till she causes bruising and bloody lips. She also has the

> ocassional tantrum (?meltdown) with the classic kicking and thrashing and

> crying. These last up to 4 hours. I have no idea of her intelligence but

think it

> is higher than what she is assesed to be (severe MR). She has multiple

> medical issues which include slight hearing loss bilaterally, visual problems

> (corrected with glasses), unrepaired cleft palate, has a trach and a

> g-tube. She can walk with a walker but doesn't pull herself to a stand. She

is

> nowhere ready for potty-training. She also has sleep issues (free-floating

> pattern). We've known she has had behavioral issues but until now they have

> taken a backseat to all of the physical. She is also adopted at the age of

> 3. There is a heavy component of alcohol, marijuana and cocaine use by her

> birth mom while pregnant. I need any help I can get but mostly ideas in

> addressing the self abuse to start with. She doesn't redirect well and we

have

> had to resort to using soft elbow restraints to prevent injury. Now she is

> almost dependent on the restraints to control herself. Thanks for reading

> my book and can you please help?

>

[Guest guest]

Can the clef pallete be repaired? I wonder if the head hitting is because she is trying to communicate and can not. Our son would head bang until he started being able to communicate. Most of the time it just stems from frustration. The head banging could also be from abuse when she was in foster care or with her birth parents???

My heart goes out to you. We had a son that needed a g-tube and a trach but was to sick and suffering to much to go through the surgery. I hope there is away to fix the cleft pallete so she can eat and breath on her own and hopefully talk it might relieve some of the behavior issues.

Holly

From: pkuenstler@... <pkuenstler@...>Subject: Re: Newcomerautism Date: Tuesday, November 24, 2009, 2:50 PM

Welcome , I am the grandmother of a 17 year old autistic grandson. My heart goes out to you with the challenges you face, but you must be a special person. I haven't had any experience with those problems. Karac's meltdowns started when he was older. There are a lot of smart, experienced mothers on this list that I am sure will have some ideas for you. I'll put you and Ciara on my prayer list. Love and blessings, Pat K

Newcomer

My name is and my almost 5yr old daughter was just given the diagnosis of being on the autism spectrum. I know next to nothing about autism. Ciara constantly hits herself in the head. It ranges from mild tapping but can escalate till she causes bruising and bloody lips. She also has the ocassional tantrum (?meltdown) with the classic kicking and thrashing and crying. These last up to 4 hours. I have no idea of her intelligence but think it is higher than what she is assesed to be (severe MR). She has multiple medical issues which include slight hearing loss bilaterally, visual problems (corrected with glasses), unrepaired cleft palate, has a trach and a g-tube. She can walk with a walker but doesn't pull herself to a stand. She is nowhere ready for potty-training. She also has sleep issues (free-floating pattern). We've known she has had behavioral issues but until now they have taken a backseat to all of the physical. She is also adopted at

the age of 3. There is a heavy component of alcohol, marijuana and cocaine use by her birth mom while pregnant. I need any help I can get but mostly ideas in addressing the self abuse to start with. She doesn't redirect well and we have had to resort to using soft elbow restraints to prevent injury. Now she is almost dependent on the restraints to control herself. Thanks for reading my book and can you please help?

[Guest guest]

The cleft can be repaired but there is basically no reason to repair it. She

will never eat because of some facial paralysis which prevents her from

swallowing, protecting her airway or talking. Our best bet for communication is

sign language which we're working on. She actually had good care in foster homes

(never with her birth parents) but did move 5 times in her first 3 years.

>

>

> From: pkuenstler@... <pkuenstler@...>

> Subject: Re: Newcomer

> autism

> Date: Tuesday, November 24, 2009, 2:50 PM

>

>

>  

>

>

>

> Welcome ,  I am the grandmother of a 17 year old autistic grandson. My

heart goes out to you with the challenges you face, but you must be a special

person.  I haven't had any experience with those problems.  Karac's meltdowns

started when he was older.  There are a lot of smart, experienced mothers on

this list that I am sure will have some ideas for you.  I'll put you and Ciara

on my prayer list.  Love and blessings, Pat K

>

>

>

> Newcomer

>

>

>  

>

>

>

> My name is and my almost 5yr old daughter was just given the diagnosis

of being on the autism spectrum. I know next to nothing about autism. Ciara

constantly hits herself in the head. It ranges from mild tapping but can

escalate till she causes bruising and bloody lips. She also has the ocassional

tantrum (?meltdown) with the classic kicking and thrashing and crying. These

last up to 4 hours. I have no idea of her intelligence but think it is higher

than what she is assesed to be (severe MR). She has multiple medical issues

which include slight hearing loss bilaterally, visual problems (corrected with

glasses), unrepaired cleft palate, has a trach and a g-tube. She can walk with a

walker but doesn't pull herself to a stand. She is nowhere ready for

potty-training. She also has sleep issues (free-floating pattern). We've known

she has had behavioral issues but until now they have taken a backseat to all of

the physical. She is also adopted at the

> age of 3. There is a heavy component of alcohol, marijuana and cocaine use by

her birth mom while pregnant. I need any help I can get but mostly ideas in

addressing the self abuse to start with. She doesn't redirect well and we have

had to resort to using soft elbow restraints to prevent injury. Now she is

almost dependent on the restraints to control herself. Thanks for reading my

book and can you please help?

>

[Guest guest]

I was told I have lumbar SS and my doc recommended PT for 1 month, then if that

does not help a nerve block then if all else fails surgery , does this sound

normal? I have significant pain in my lower region in hips down the back of my

legs to the back of my knees.

[Guest guest]

Yes it does sound perfectly normal. One should always try conservative measures before opting for any type of spine surgery.PTEpidural injectionsNerve blocksnerve pain meds such as neurontin or lyrica if you are suffering with nerve painAqua therapy, but be sure it is a real aqua therapy with trained physical therapists, no some kind of water therapy at a gym or local Y.All of these may possibly relieve some or all of your pain, but it is important to remember that it is not a cure for spinal stenosis. There is only one cure for spinal stenosis, which is a narrowing of the space that the nerves pass through in the spinal column, through the vertebrae.The only way to cure spinal stenosis is to widen the space that is being narrowed with

osteophytes, which is excess bone growth.On the other hand, strengthening the core muscles with PT and aqua therapy can be enough to heal a disc that is pressing on the nerves because of the narrowing.injections can be enough to aid in shrinking the disc back into place, because the steroids will help to ease inflammation on the nerves and the disc.If these conservative measures provide no relief or not enough relief, then the only real option is to have surgery to relieve the pain.Has you present doctor discussed what type of surgery he/she would do?There are various types of surgery that can be done, and it is important to find out all the information from your present surgery first, then proceed to get several other opinions from other spine surgeons that are not affiliated with your present spine surgeon before going ahead with surgery

of any kind.Good luck with the conservative measures.They did not work for me and in 2006, I opted for surgery to widen the lateral recess of the vertebrae to relieve the pressure on the nerves at the L4/L5.Since then I have had no problems with that vertebrae and have gone on to do all of the things that I did prior to having any type of spine problem.FranFrom: rosied <rosemary512002@...>Subject: newcomerSpinal Stenosis Treatment Date: Thursday, July 8, 2010, 4:17 PM

I was told I have lumbar SS and my doc recommended PT for 1 month, then if that does not help a nerve block then if all else fails surgery , does this sound normal? I have significant pain in my lower region in hips down the back of my legs to the back of my knees.

[Guest guest]

>

> I was told I have lumbar SS and my doc recommended PT for 1 month, then if

that does not help a nerve block then if all else fails surgery , does this

sound normal? I have significant pain in my lower region in hips down the back

of my legs to the back of my knees.

I had the same pain in the same places. For 10 years drs told me I had spinal

stenosis or and arthriiis. After two visits to a physical Therapist I don't have

any pain.

Bob

[Guest guest]

HI Bob and welcome.Yes what you where told is very normal. Spine surgery is always the last choice to make and one should always try conservative measures first.Very often, PT will help. It strengthens the core muscles which support your spine and with that support you will have better ability to stand straight and move correctly, as well as learn to move correctly and correct your posture etc.If PT doesn't provide enough or any or long term relief, then the next step is steroid injections and see if that will help decrease the pain and get you back to functioning without pain.Only if conservative measures don't help should you consider any type of spine surgery. At that point, you then want to get several other opinions

before deciding on surgery, what type of surgery and if surgery is the right choice for you.Good luck and if you have more questions just ask away.FranFrom: rfayhallock <rfayhallock@...>Subject: Re: newcomerSpinal Stenosis Treatment Date: Friday, December 3, 2010, 5:26 PM

>

> I was told I have lumbar SS and my doc recommended PT for 1 month, then if that does not help a nerve block then if all else fails surgery , does this sound normal? I have significant pain in my lower region in hips down the back of my legs to the back of my knees.

I had the same pain in the same places. For 10 years drs told me I had spinal stenosis or and arthriiis. After two visits to a physical Therapist I don't have any pain.

Bob