Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 > Ok - here goes ... 3-4 weeks on the elimination diet and then the tests > begin (4 of them), 1 each week under medical supervision at Westmead > Hospital. Their's usually 5 tests but from what I told them they are pretty > confident they can pick Sulphites as a trigger already. > > Any good recipe suggestions ?? Send them now ! LOL. > > ka, wow, good luck with all of this. What tests are they running? I had the sulfite challenge and yellow dye #5 also as they said most ASA allergic people are allergic to these, I wasn't. Whew. Hopefully you can find a site online to support your new diet! Let us know how you are doing. Trudy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Good luck, ! How come you have to go on the elimination diet first? I haven't heard of this before. Sounds interesting. Where is Westmead Hospital exactly? At Scripps we had to eliminate caffeine from our diets during the study for some reason. It was a bummer because the first time I was there they had these amazing chocolate chip cookies and the second time I got desensitized I couldn't have any. Interestingly, they also tested me for sulfites and Dr. son said like 99 percent of people or more were not allergic to them. They did this in a so-called single-blind run-in, which means they give you other things without you knowing it before they give you the aspirin. Well, I hope all goes well for you -- I am not sure what results you hope for, I guess either way you will get some answers. Lori > Ok - here goes ... 3-4 weeks on the elimination diet and then the tests > begin (4 of them), 1 each week under medical supervision at Westmead > Hospital. Their's usually 5 tests but from what I told them they are pretty > confident they can pick Sulphites as a trigger already. > > Any good recipe suggestions ?? Send them now ! LOL. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Trudy, Oh, that's right, I had the yellow dye #5 at Scripps, too. It was so long ago I almost forgot. Where did you have the sulfite and yellow dye done? Funny thing is, Dr. son said it is a myth and that most people with Samters are not allergic to these things. They've tested many patients there as I described in the other post to . Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 > Trudy, > > Oh, that's right, I had the yellow dye #5 at Scripps, too. It was so > long ago I almost forgot. Where did you have the sulfite and yellow > dye done? Funny thing is, Dr. son said it is a myth and that > most people with Samters are not allergic to these things. They've > tested many patients there as I described in the other post to . > > Lori Same for me as being so long ago! I was in Kodiak, Alaska and was Medivaced to Seattle. I can't even remember the name of the hospital! I had passed out on the plane because they wouldn't give me my meds as needed, instead they gave them in eight hour intervals. Yeah, that was fun. I thought I was dying as my system let go (I didn't want to get too graphic) and they had to put Atropine in my heart. I met a doc in Seattle who finally treated me in a way that I was comfortable for the first time in years. I have also had numerous allergy tests and only show allergy to mold, mildew, dust, dustmites, bees, all antibiotics except Quinolons, ASA, NSAID's, and shellfish. I say only because I can still eat foods that others can't. Anyway, after a few trips to ER in respiratory arrest and phase four asthma I now get to monitor my meds by myself for the past ten years at least. I had to go to ER tonight as my breathing got funky and I am maxed out on meds and inhalers and covered with hives. Of course the ER doc gave me a heavy dose of prednisone and said get with my regular doc on Tuesday. I really think that all the years on prednisone have comprimised my immune system now and I can't function very well without them. If I test positive for Churg-Strauss I will be using them for the rest of my life. Trudy. Quote Link to comment Share on other sites More sharing options...
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