Nasal Steroids

[Guest guest]

Flonase worked for a while, for me, and then it wore off and sense of smell

disappeared again.

I was prescribed something else which worked only very briefly.

I'm now on Nalcrom disolved in Flunisolide which also worked -- my sense of

smell returned, but only for a few weeks and then its effect wore off also.

I still use it to keep conjestion at a manageable level, but sense of smell

is not returning.

The pattern seems to be that these steroids have an initial hit and then the

body builds up some sort of immunity to their effect. When I challenged my

allergist on this, he helpfully shrugged his shoulders and said " you're

damned if you do and damned if you don't " . (And he gets paid for such

wisdom ! ) In any case, I now just spray when I feel I need to -- not

regularly, 2ce a day, as prescribed.

Ken West

From: " Rob Cumberledge " <rob@...>

Organization: The Computer Cafe

Reply-samters

Date: Tue, 3 Sep 2002 08:22:12 -0400

<samters >

Subject: Re: Nasal Steroids

I use Flonase and I don't think it helps at all.

Rob

Nasal Steroids

Have any of you all found that intranasal steroids (sprays, inhalers, or

drops) have given you any relief of nasal inflammation and polyps? One such

product has helped me a bit, but not enough to let me avoid the use of

systemic steroids -- and, to my dismay, it is being discontinued by its

manufacturer. Details at

http://personal.ecu.edu/wuenschk/SteroidsNasal.htm.

Karl W.

[Guest guest]

I use Beconase AQ and at least it keeps the congestion at bay. It does not help my sense of smell. Nasal steroids worked in the beginning for my smell but they don't now.

Evie

Nasal Steroids Have any of you all found that intranasal steroids (sprays, inhalers, ordrops) have given you any relief of nasal inflammation and polyps? One suchproduct has helped me a bit, but not enough to let me avoid the use ofsystemic steroids -- and, to my dismay, it is being discontinued by itsmanufacturer. Details athttp://personal.ecu.edu/wuenschk/SteroidsNasal.htm.Karl W.

[Guest guest]

Using Rhinocort Turbuhaler nasal powder.

This is the second time I’ve gone

through a course of this. The first time, I gained my smell back for 1 week,

then lost it again.

This time round, I’m now into my

second week, but my sense of smell is intermittent.

My doctor advised me to rotate nasal steroids,

for the mere fact that once your body gets used to it, it’s not that

effective anymore.

Will give update on progress.

Re: Nasal

Steroids

I use Beconase AQ and at least

it keeps the congestion at bay. It does not help my sense of smell. Nasal

steroids worked in the beginning for my smell but they don't now.

Evie

Nasal Steroids

Have any of you all found that

intranasal steroids (sprays, inhalers, or

drops) have given you any relief of nasal

inflammation and polyps? One such

product has helped me a bit, but not enough to let

me avoid the use of

systemic steroids -- and, to my dismay, it is

being discontinued by its

manufacturer. Details at

http://personal.ecu.edu/wuenschk/SteroidsNasal.htm.

Karl W.

To

unsubscribe from this group, send an email to:

samters-unsubscribe

Your use of

is subject to the

Terms of Service.

[Guest guest]

I have never had any benefit that I can notice from any of these sprays.

My allergies are still bad, whenever I bend over my nose runs clear

liquid, it is horrible. I read your site and am not surprised that the

health insurance companies here are not offering us anything that may

actually help.

At 07:55 PM 8/31/2002 -0400, you wrote:

Have any

of you all found that intranasal steroids (sprays, inhalers, or drops)

have given you any relief of nasal inflammation and polyps? One

such product has helped me a bit, but not enough to let me avoid the use

of systemic steroids -- and, to my dismay, it is being discontinued by

its manufacturer. Details at

http://personal.ecu.edu/wuenschk/SteroidsNasal.htm.

Karl W.

[Guest guest]

I would like to commend 's doc for providing him with an effective means of delivering steroids to the upper nasal chamber. I only wish that US drug manufacturers and the US FDA would be as concerned with us as is 's doc. The FDA has ruled that nasal inhalers with CFC propellants must be phased out. There is at least one non-CFC propellant available, developed by 3M, but the drug companies do not want to pay 3M for it -- instead they are discontinuing their nasal inhalers and forcing us to use spray products that do not effectively deliver the steroid. What a dilemma -- when the revolution comes, who do I hang first, a banker or the CEO of a drug company?

More details at http://personal.ecu.edu/wuenschk/SteroidsNasal.htm.

Re: Nasal Steroids

My Doc has me using Flovent 110 for this purpose. It has worked very well for me, shrinking my polyps and improving my smell. As you know the Flovent delivery is for oral use. Doc modified the "end" from another nasal unit to accept the Flovent canister. Unfortunately, I don't know what he used, but it allows me to place the plastic tip (about 1/2" long) in my nostril and get a good blast of medication.

[Guest guest]

Hi Karl

I am using a combination of 3 weeks on fluticasone spray and then 1 week on

betnosol drops, I do notice an improvement every time I use the drops. Also I

have experienced a huge improvement in all aspects of symptoms since I have

closely followed a sal free diet and also avoided preservatives such as

benzoates.

My asthma has all but disappeared however I still take Seretide 500 twice

daily. In addition I take singulair morning and night. With no set backs I am

hoping to back off on the seretide in 6 months. For me the diet has made a

difference

Regards

[Guest guest]

After my surgery this spring, I did not get my sense

of smell back. My Dr. prescribed TobraDex (tobramycin

and dexamethasone) which according to the directions

is an ophthalmic solution. Web MD says " Tobramycin is

anantibiotic. It is used to treat bacterial

infections. Dexamethasone is a steroid. " I laid on a

bed with my head over the edge and put three drops in

each nostril. It didn't do anything for me, but he

said it does for some people.(I'm also on Nasonex and

Singulair).

Jim Mayo

--- mccreathjr@... wrote:

> Hi Karl

>

> I am using a combination of 3 weeks on fluticasone

> spray and then 1 week on

> betnosol drops, I do notice an improvement every

> time I use the drops. Also I

> have experienced a huge improvement in all aspects

> of symptoms since I have

> closely followed a sal free diet and also avoided

> preservatives such as

> benzoates.

>

> My asthma has all but disappeared however I still

> take Seretide 500 twice

> daily. In addition I take singulair morning and

> night. With no set backs I am

> hoping to back off on the seretide in 6 months. For

> me the diet has made a

> difference

>

> Regards

>

>

>

__________________________________________________

[Guest guest]

I think we would better off if we could just administer the fluticasone as nose drops -- which is essentially what the nasules do, but as a metered dose. The same manufacturer that claims, overseas, that the nasules deliver the product more effectively than do the sprays, has shown no interest in marketing the nasules in the US. Why? I can only speculate. Perhaps it is because in the US all actions are motivated by the bottom line ($), and the number of patients who need this delivery system is too small to make it highly profitable.

I have now switched to the Nasacort Inhaler, the only nasal steroid still available in pressurized form in the US. The active ingredient is the same drug that gives me long-lasting relief when injected, Kenalog.

Karl W.

RE: Mecca Position

BTW, is there any chance that the Nasules could come to the US?

Jim