Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 i just wanted to post an update about me going off of my aspirin. it has now been 2 weeks since my last asa and i am still desensitized and everything is the same. it is very odd. for the first few days i was on high alert thinking i would have some sort of reaction or asthma attack but i have been fine. i am coming down with a cold now that is adding to my snot but samters-wise i am the same. who knew? maybe i will stay like this with no asa? as for the posts about diet this is something i have read alot about and tried most everything. leukotrienes seem to be the big culprit and our bodies flood with then after eating certain foods, particuarly animal products such as poultry and farmed salmon. there have been some posts in the past about this and the relationship with arachondic acid which is what is present in animal products (eggs have a ton) and in turn makes our bodies make more leukotrienes and then allergy symptoms and inflammation. i have found, for myself, that minimal dairy and wheat (wheat is more a culprit for me), and no poultry has been the best for me. and after the holidays where i ate tons of dairy and wheat and turkey, i noticed my nose clogging more and the swelling sensation coming back. for me this has helped the most. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 > From: " elliecub " <elliecub@...> > i just wanted to post an update about me going off of my aspirin. it has now > been 2 weeks since my last asa and i am still desensitized and everything is > the same. it is very odd. for the first few days i was on high alert thinking > i would have some sort of reaction or asthma attack but i have been fine. i > am coming down with a cold now that is adding to my snot but samters-wise i am > the same. who knew? maybe i will stay like this with no asa? There is not a reaction from becoming un-de-sensitized, only, probably, a return of whatever Samters' symptoms that you endured before desensitization. A cold may be part of, or masking, those symptoms. When you say you are " still desensitized " , that implies you know you can take ASA without a reaction. Can you? Be careful if you try it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 before i was sensitized i could not use minty toothpaste or eat mint without severe wheezing. this changed when i got sens. i can still tolerate mint fine even without the asa. and i have my husband muscle test me for it and i am still strong. i am sure it is a cold i have now because my entire family has it. we will see. has anyone gone off asa and become resensitized? laura > > > From: " elliecub " <elliecub@...> > > i just wanted to post an update about me going off of my aspirin. it has now > > been 2 weeks since my last asa and i am still desensitized and everything is > > the same. it is very odd. for the first few days i was on high alert thinking > > i would have some sort of reaction or asthma attack but i have been fine. i > > am coming down with a cold now that is adding to my snot but samters-wise i am > > the same. who knew? maybe i will stay like this with no asa? > > There is not a reaction from becoming un-de-sensitized, > only, probably, a return of whatever Samters' symptoms that you endured > before desensitization. A cold may be part of, or masking, those symptoms. > > When you say you are " still desensitized " , that implies you know you can > take ASA without a reaction. Can you? Be careful if you try it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 Hello, I was told by my Consultant that if I was to stop taking aspirin, I would probably feel great and think I was desensitised or cured for a while, but then all the symptoms would come back after some time. We had discussed this as I was thinking about quiting the desens programme earlier in the year due to having difficulties becoming desensitisd to 300mg. Instead, my consultant told me to take increasing doses, which I did at home with a few precautions in place. I was ok and became desens by 600mg, which is the dose I take now. So, , it is possible that you are enjoying the after effects of having been desens for a while, although I do hope they last for a long time. Please keep us updated - I'd like to know how long you feel the after effect benefits from stopping asa desens.. Becky (sorry, slightly tipsy from an early evening New Years Eve party!!)elliecub <elliecub@...> wrote: before i was sensitized i could not use minty toothpaste or eat mint without severe wheezing. this changed when i got sens. i can still tolerate mint fine even without the asa. and i have my husband muscle test me for it and i am still strong. i am sure it is a cold i have now because my entire family has it. we will see. has anyone gone off asa and become resensitized? laura>> > From: "elliecub" <elliecub@...>> > i just wanted to post an update about me going off of my aspirin. it has now> > been 2 weeks since my last asa and i am still desensitized and everything is> > the same. it is very odd. for the first few days i was on high alert thinking> > i would have some sort of reaction or asthma attack but i have been fine. i> > am coming down with a cold now that is adding to my snot but samters-wise i am> > the same. who knew? maybe i will stay like this with no asa? > > There is not a reaction from becoming un-de-sensitized,> only, probably, a return of whatever Samters' symptoms that you endured> before desensitization. A cold may be part of, or masking, those symptoms.> > When you say you are "still desensitized", that implies you know you can> take ASA without a reaction. Can you? Be careful if you try it.> Support the World Aids Awareness campaign this month with for Good Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Hi Ellie -- what do you mean you are still desensitized? I'm confused! Hope your symptom relief continues, though. After being desensitized for seven years, I went off aspirin in 2002 and have found that my symptoms were much better than before the desensitization, it kind of stabilized things for me. I still have quite large polyps at times, though, and in the meantime Singulair and Advair came out, which are the mainstays of my treatment. Arachidonic acid (AA) is in egg YOLKS, but not the whites. I don't seem to have a problem eating occasional whole eggs, however. Actually I found a web site which might explain why, and it says that eating free-range poultry and eggs from free-range animals is not as bad for AA as products from factory farms, this has to do with the grain that the factory farm animals are fed. I only eat eggs from free-range chickens. Apparently free-range pork and grass-fed beef may be okay in terms of AA, although I don't eat beef and rarely eat pork. Arachidonic acid is also found in all red meats, by the way, in higher quantities than in meats with lower fat. I'm not sure about salmon. I have read many places that it is only farm-raised salmon that has high levels of AA in it and that Alaskan wild salmon, for instance, is not only okay but has high levels of omega-3 and should be eaten regularly to reduce AA and inflammation. Personally I have seen a great improvement by cutting out milk, beef and most high-fat foods. Occasionally I do have some ice cream, but as long as it's not regularly I seem to do fine. I only eat the free-range eggs as I mentioned. I do eat a fair amount of fish, despite the controversy for people with aspirin-sensitive asthma. I try to only eat fish that are in good suppply for environmental reasons. There is a book called the Inflammation Free Diet that is supposed to be good (I have not read it myself, perhaps someone here has and can post info about it) and has information about this type of thing. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Hello, I know I am still desensitized because I can still enjoy all the foods related to asa (like mint) with no wheezing and i get muscle tested for it and still come out saying that I am OK with it. (Muscle testing is a technique alot of NAET practitioners and some other doctors use to test what you are allergic or sensitive to. If you test weak to a substance than you are allergic or sensitive to it) Plus i still feel the same nasal-wise, nothing like i felt before desens, which was miserable. it has been 2 1/2 weeks since my last asa. I am going next week to my ENT to get a look up my nose to see what is going on. on another subject, does anyone wear a medic alert bracelet saying they are allergic to asa or are dependent on it? i used to but am tired of wearing it. just curious. i just want to wish everyone a happy new year. i am so happy to have found this group. over the past couple years it has been such a blessing to be able to connect to with others who know and understand how hard it can be living with samters. i appreciate everyone's contributions to this site. > > Hi Ellie -- what do you mean you are still desensitized? I'm > confused! Hope your symptom relief continues, though. > > After being desensitized for seven years, I went off aspirin in 2002 > and have found that my symptoms were much better than before the > desensitization, it kind of stabilized things for me. I still have > quite large polyps at times, though, and in the meantime Singulair > and Advair came out, which are the mainstays of my treatment. > > Arachidonic acid (AA) is in egg YOLKS, but not the whites. I don't > seem to have a problem eating occasional whole eggs, however. > Actually I found a web site which might explain why, and it says that > eating free-range poultry and eggs from free-range animals is not as > bad for AA as products from factory farms, this has to do with the > grain that the factory farm animals are fed. > > I only eat eggs from free-range chickens. Apparently free-range pork > and grass-fed beef may be okay in terms of AA, although I don't eat > beef and rarely eat pork. > > Arachidonic acid is also found in all red meats, by the way, in > higher quantities than in meats with lower fat. > > I'm not sure about salmon. I have read many places that it is only > farm-raised salmon that has high levels of AA in it and that Alaskan > wild salmon, for instance, is not only okay but has high levels of > omega-3 and should be eaten regularly to reduce AA and inflammation. > > Personally I have seen a great improvement by cutting out milk, beef > and most high-fat foods. > > Occasionally I do have some ice cream, but as long as it's not > regularly I seem to do fine. I only eat the free-range eggs as I > mentioned. I do eat a fair amount of fish, despite the controversy > for people with aspirin-sensitive asthma. I try to only eat fish > that are in good suppply for environmental reasons. > > There is a book called the Inflammation Free Diet that is supposed to > be good (I have not read it myself, perhaps someone here has and can > post info about it) and has information about this type of thing. > > Lori > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 > I have reacted very badly to ibuprofen and motrin before, but right now i am > up to 640mg of aspirin and have had little to no reaction at all. This seems > very strange to me. I was already on advair, nasonex, and singulair before > starting this, then while here have also been put on 40mg of prednisone and > zyflo for the desens. I'm not sure what to make of this right now, and i'm > not sure if i'm not reacting just because i'm on so much medication to stop a > reaction in the first place. I do have one more dosage to take today before > i'm done, and that'll be something like 800mg i believe. Maybe i'm not > allergic to aspirin anymore... Don't count on it. > Seems like another case where the Prednisone is suppressing the reaction. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Thank you. Glad to see your surgery went well too. I just had surgery last month and i feel a million times better. It took me about 7-10 days before i started to get my smell back. I then started a compound steroid spray 3 weeks later which brought my smell back to 100%. > > IÂ agree with Ken...the prednisolone and other meds could be masking your > reactions. Or else you could be cured > Good luck with the rest of the process. > Becky > > > > > ________________________________ > From: Ken West <kenwest@...> > samters > Sent: Wed, 30 June, 2010 20:32:22 > Subject: Re: desens > > Â > > I have reacted very badly to ibuprofen and motrin before, but right now i am > > up to 640mg of aspirin and have had little to no reaction at all. This seems > > very strange to me. I was already on advair, nasonex, and singulair before > > starting this, then while here have also been put on 40mg of prednisone and > > zyflo for the desens. I'm not sure what to make of this right now, and i'm > > not sure if i'm not reacting just because i'm on so much medication to stop a > > reaction in the first place. I do have one more dosage to take today before > > i'm done, and that'll be something like 800mg i believe. Maybe i'm not > > allergic to aspirin anymore... > Don't count on it. > > > > Seems like another case where the Prednisone is suppressing the reaction. > Quote Link to comment Share on other sites More sharing options...
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