Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007  Frighteningly absolutely true. Re: Re: Desensitizing Except the backlash with bring out the NIMBY advocates and maybe even eugenicists disguised as geneticists. When resources are scarce the weak will be prey.On Mar 16, 2007, at 7:56 PM, searchingforserenity111 wrote:That would be excellent!!> >>>>>> > > > > >> >>>>>> > > > > > Why not sound a deaf-producing siren every 20minutes.> >>>>>> > > > > > > >>>>>> > > > > >> >>>>> > > > >> >>>> > > >> >>> > >> >> >> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Hi Col, The problem as I see it. People will see the billboards- copy down the AS website and go to them as their source of info. What will AS tell them? Certainly nothing about concerns over vaccines.Nothing about the research that has been done to confirm a link or at least warrants more research. They will tell them autism is primarily genetic, Their VP has publically stated that. Will they tell them we don't know yet how to determine what genes- but there has been promising genetic research.Look we might have 100 genes or more that sporadically change and cause autism. You use the example of people using technology to identify genetic disorders. Autism has not been found to be genetic- that is of course it depends who you talk to. So far I see AS trying to guide the public's perception that autism is common and that autism is genetic. And that is dangerous to children living today with " autism " and children in the future who may " spontaneously " develop autism. Maybe science will find the genes that supposedly cause " sporadic autism " and all the concerned future parents will have the option of termintating a pregnancy through autism genetic testing. That day is coming and AS is working to usher it in. > > Hi , > > We have alot of billboards here, too. But, I don't think many people dismiss it at all. Just a > year ago, when I would quote the numbers to people, they were surprised. Now, more > people know. And they are beginning to ask more questions about why that it is. > > I think that every young couple who is planning to have children, every pregnant mother > and the father, and grandparents are now beginning to take notice. > > People have all sorts of tests during pregnancy for things like down syndrome and other > trisomy syndromes (18 and 13, etc.) and if they are told they have a 1 in 500 chance of > having a child with one of these trisomy disorders, they are concerned. But, let's face it, > the concern is far higher for someone who is older. The young worry less. > > To know that autism strikes 1 in 150 no matter what your age is striking. I think maybe > the only ones who are more desensitized to the issue is people who are already there. > > Col Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 I agree. That’s why I drive around with the “Autism is Reversible- GenerationRescue.org” sticker on my back window. Then on the other side I have “Demand Vaccines Without Mercury” (btw- who sent that to me a couple of years ago?) And the NAA plate frame with the website on it. And the NAA “My loved one has autism- you can help” sticker on one window. Oh ya- and my license plate number is “NAALI” so if anyone googles that they will find information about biomed. One day a woman was standing in the parking lot writing down websites off my car... She has a grandson with autism. I found something else that works. It costs about $30 to get 1000 business cards printed at most local print shops. Get a black and white card that says your name, number and email- then list the websites you want people to know. That way when you are in public and people ask you about autism- you can hand it to them. I find a lot of people know Something else with an asd kid- and they want to pass on info- so the card works well. I did that with our conference- I put the date and website on it- plus my contact info. I’m glad I did it. $30 can go a long way.... On 3/17/07 9:31 AM, " andrea52521991 " <mkeller@...> wrote: Hi Col, The problem as I see it. People will see the billboards- copy down the AS website and go to them as their source of info. What will AS tell them? Certainly nothing about concerns over vaccines.Nothing about the research that has been done to confirm a link or at least warrants more research. They will tell them autism is primarily genetic, Their VP has publically stated that. Will they tell them we don't know yet how to determine what genes- but there has been promising genetic research.Look we might have 100 genes or more that sporadically change and cause autism. You use the example of people using technology to identify genetic disorders. Autism has not been found to be genetic- that is of course it depends who you talk to. So far I see AS trying to guide the public's perception that autism is common and that autism is genetic. And that is dangerous to children living today with " autism " and children in the future who may " spontaneously " develop autism. Maybe science will find the genes that supposedly cause " sporadic autism " and all the concerned future parents will have the option of termintating a pregnancy through autism genetic testing. That day is coming and AS is working to usher it in. > > Hi , > > We have alot of billboards here, too. But, I don't think many people dismiss it at all. Just a > year ago, when I would quote the numbers to people, they were surprised. Now, more > people know. And they are beginning to ask more questions about why that it is. > > I think that every young couple who is planning to have children, every pregnant mother > and the father, and grandparents are now beginning to take notice. > > People have all sorts of tests during pregnancy for things like down syndrome and other > trisomy syndromes (18 and 13, etc.) and if they are told they have a 1 in 500 chance of > having a child with one of these trisomy disorders, they are concerned. But, let's face it, > the concern is far higher for someone who is older. The young worry less. > > To know that autism strikes 1 in 150 no matter what your age is striking. I think maybe > the only ones who are more desensitized to the issue is people who are already there. > > Col Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Great ideas . I think I will spend the 30 bucks to do the busniess cards. I only have one sticker on my car- NAA's autism is treatable- think autism- think cure. > > I agree. That¹s why I drive around with the ³Autism is Reversible- > GenerationRescue.org² sticker on my back window. > Then on the other side I have ³Demand Vaccines Without Mercury² (btw- who > sent that to me a couple of years ago?) > And the NAA plate frame with the website on it. And the NAA ³My loved one > has autism- you can help² sticker on one window. > Oh ya- and my license plate number is ³NAALI² so if anyone googles that they > will find information about biomed. > > One day a woman was standing in the parking lot writing down websites off my > car... She has a grandson with autism. > > I found something else that works. It costs about $30 to get 1000 business > cards printed at most local print shops. > Get a black and white card that says your name, number and email- then list > the websites you want people to know. > That way when you are in public and people ask you about autism- you can > hand it to them. I find a lot of people know > Something else with an asd kid- and they want to pass on info- so the card > works well. I did that with our conference- > I put the date and website on it- plus my contact info. I¹m glad I did it. > $30 can go a long way.... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 I drive around -- and have been stopped numerous times -- for info from the bumper stickers I purchased at the NAA website ( " Autism, no mystery, it's mercury " is one of them, and I have a couple of others too. A cheap source of business cards that you can create yourself is www.vistaprint.com -- they have free cards, you just pay for shipping (approx. $5). -BJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Who says AS has to do it? There are a lot of billboard companies who would be glad to donate at least part of the fee to smaller autism orgs. Debi > > Hi Col, > > The problem as I see it. People will see the billboards- copy down > the AS website and go to them as their source of info. What will AS > tell them? Certainly nothing about concerns over vaccines.Nothing > about the research that has been done to confirm a link or at least > warrants more research. They will tell them autism is primarily > genetic, Their VP has publically stated that. Will they tell them we > don't know yet how to determine what genes- but there has been > promising genetic research.Look we might have 100 genes or more that > sporadically change and cause autism. > > You use the example of people using technology to identify genetic > disorders. Autism has not been found to be genetic- that is of course > it depends who you talk to. So far I see AS trying to guide the > public's perception that autism is common and that autism is genetic. > And that is dangerous to children living today with " autism " and > children in the future who may " spontaneously " develop autism. > > Maybe science will find the genes that supposedly cause " sporadic > autism " and all the concerned future parents will have the option of > termintating a pregnancy through autism genetic testing. That day is > coming and AS is working to usher it in. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 What those Down's statistics don't tell you, though, is that the great majority of children w/Down's (80%) are born to women under 35. Duh, women under 35 have more babies than older women. These mothers tend to have an unnoticed glitch on their own chromosome 21. Heard it in a class a long time ago. In this same class we were told about a study that showed many men in prison having XYY. They found out later - oops! - it's common in the general population. I suspect we will find that mutations are common as well, Carolyn http://tinyurl.com/26pjy3 > > Hi , > > We have alot of billboards here, too. But, I don't think many people dismiss it at all. Just a > year ago, when I would quote the numbers to people, they were surprised. Now, more > people know. And they are beginning to ask more questions about why that it is. > > I think that every young couple who is planning to have children, every pregnant mother > and the father, and grandparents are now beginning to take notice. > > People have all sorts of tests during pregnancy for things like down syndrome and other > trisomy syndromes (18 and 13, etc.) and if they are told they have a 1 in 500 chance of > having a child with one of these trisomy disorders, they are concerned. But, let's face it, > the concern is far higher for someone who is older. The young worry less. > > To know that autism strikes 1 in 150 no matter what your age is striking. I think maybe > the only ones who are more desensitized to the issue is people who are already there. > > Col > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 As I recall from the news, people in England started this some month ago. > > >>>>>> > > > > > > > >>>>>> > > > > > Why not sound a deaf-producing siren every 20 > minutes. > > >>>>>> > > > > > > > >>>>>> > > > > > > > >>>>> > > > > > > >>>> > > > > > >>> > > > > >> > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 > That¹s why I drive around with the ³Autism is Reversible - > GenerationRescue.org² sticker on my back window. Then on > the other side I have ³Demand Vaccines Without Mercury² > (btw-who sent that to me a couple of years ago?) > > I'm the one who sent you the DEMAND VACCINES WITHOUT MERCURY bumper stickers. I had them printed up at Northern Sun Merchandising in Minneapolis, Minnesota. If you are a Green Liberal hippie anarchist, you'll love their catalog. http://www.northernsun.com/ Next, I'm thinking about: MERCURY IS KILLING US - Hokkanen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 This site has lotsa goodies on it: Just a few- banana gene http://www.northernsun.com/n/s/1940.html ritalin/prozac/viagra http://www.northernsun.com/n/s/0731.html > > That¹s why I drive around with the ³Autism is Reversible - > > GenerationRescue.org² sticker on my back window. Then on > > the other side I have ³Demand Vaccines Without Mercury² > > (btw-who sent that to me a couple of years ago?) > > > > > > I'm the one who sent you the > DEMAND VACCINES > WITHOUT MERCURY > bumper stickers. > > I had them printed up at Northern Sun Merchandising in Minneapolis, > Minnesota. If you are a Green Liberal hippie anarchist, you'll love > their catalog. > > http://www.northernsun.com/ > > Next, I'm thinking about: > MERCURY IS > KILLING US > > - Hokkanen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 This site has lotsa goodies on it: Just a few- banana gene http://www.northernsun.com/n/s/1940.html ritalin/prozac/viagra http://www.northernsun.com/n/s/0731.html > > That¹s why I drive around with the ³Autism is Reversible - > > GenerationRescue.org² sticker on my back window. Then on > > the other side I have ³Demand Vaccines Without Mercury² > > (btw-who sent that to me a couple of years ago?) > > > > > > I'm the one who sent you the > DEMAND VACCINES > WITHOUT MERCURY > bumper stickers. > > I had them printed up at Northern Sun Merchandising in Minneapolis, > Minnesota. If you are a Green Liberal hippie anarchist, you'll love > their catalog. > > http://www.northernsun.com/ > > Next, I'm thinking about: > MERCURY IS > KILLING US > > - Hokkanen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 Hi , I agree with you to a point. They may go the as website, or they may just do a general search about autism. I don't know anyone who would just go to their website and read about autism. They are going to do an entire website search and read everything they can. My thinking is that if AS wants to raise awareness, and it is coming out of their pockets to pay for all of those billboards, great. Other autism organizations have to come up with creative ideas to take full advantage of the campaign by AS to raise such awareness. Let them state the numbers on billboards. Let the other autism organizations raise awareness as to why the numbers are what they are. Col > > > > Hi , > > > > We have alot of billboards here, too. But, I don't think many > people dismiss it at all. Just a > > year ago, when I would quote the numbers to people, they were > surprised. Now, more > > people know. And they are beginning to ask more questions about why > that it is. > > > > I think that every young couple who is planning to have children, > every pregnant mother > > and the father, and grandparents are now beginning to take notice. > > > > People have all sorts of tests during pregnancy for things like > down syndrome and other > > trisomy syndromes (18 and 13, etc.) and if they are told they have > a 1 in 500 chance of > > having a child with one of these trisomy disorders, they are > concerned. But, let's face it, > > the concern is far higher for someone who is older. The young worry > less. > > > > To know that autism strikes 1 in 150 no matter what your age is > striking. I think maybe > > the only ones who are more desensitized to the issue is people who > are already there. > > > > Col > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Hi Trulyblest, Are you still using Epsom Salt on your skin? I found that helps me with the " deadening " of the crawling sensation. It sounds like you are doing the right things with the antihistamines and all. Wasn't there someone on this site who took something to help with the nerves as they got past their " mite " mare? One of the husbands???? Can't remember which one???? Lady Dee > > How does one desensitize ones self? Every time an eye lash falls on my > cheek, or a tiny piece of thread lands on my arm during work, I'm > getting the feeling of a crawlie... > > I take a claritin in the morning, Benadryl at night and I'm also on a > vitamin regimin. Should I up the B vitamins... I mean to a bit higher > but still safe level? Or will time eventually heal the nerves? > Any suggestions? > > Thanks!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 tryblest I know the place you are at right now. I'm there with you. I am on high allert ALL the time, its been a trauma, a real trauma.... All I can say is that its been 7 months now since this ended, and my skin is still SUPER sensitive to anything and everything..... I cant remember what it feels like to live inside my skin.....what normal twitches, and prickles, and sensations feel like. I am sorry that I dont have some useful tips for you.....if you find anything that works I would love to know z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Lady Dee, You're right about that. His dermatologist gave him something that made woozy but helped with the "creepy crawlies." I think his name was Neal. Is there someone who posts here with a husband named Neal? Mark From: ladydee96 <ladydee96@...>Subject: Re: Desensitizingbird mites Date: Thursday, July 3, 2008, 1:03 PM Hi Trulyblest,Are you still using Epsom Salt on your skin? I found that helps me with the "deadening" of the crawling sensation. It sounds like you are doing the right things with the antihistamines and all. Wasn't there someone on this site who took something to help with the nerves as they got past their "mite"mare? One of the husbands???? Can't remember which one????Lady Dee >> How does one desensitize ones self? Every time an eye lash falls on my > cheek, or a tiny piece of thread lands on my arm during work, I'm > getting the feeling of a crawlie... > > I take a claritin in the morning, Benadryl at night and I'm also on a > vitamin regimin. Should I up the B vitamins... I mean to a bit higher > but still safe level? Or will time eventually heal the nerves? > Any suggestions?> > Thanks!!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Hi all, that would be Joan Wood's husband. Re: Desensitizingbird mitesDate: Thursday, July 3, 2008, 1:03 PM Hi Trulyblest,Are you still using Epsom Salt on your skin? I found that helps me with the "deadening" of the crawling sensation. It sounds like you are doing the right things with the antihistamines and all. Wasn't there someone on this site who took something to help with the nerves as they got past their "mite"mare? One of the husbands???? Can't remember which one????Lady Dee >> How does one desensitize ones self? Every time an eye lash falls on my > cheek, or a tiny piece of thread lands on my arm during work, I'm > getting the feeling of a crawlie... > > I take a claritin in the morning, Benadryl at night and I'm also on a > vitamin regimin. Should I up the B vitamins... I mean to a bit higher > but still safe level? Or will time eventually heal the nerves? > Any suggestions?> > Thanks!!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Hi LD! I never could use the Esom Salts on my skin... unfortunately... as I have diabetes. It made me really sick the first time I tried it. That's when I saw it on the package... " Do Not Use If You Have Diabetes " ... Duh... You're right! It was Joan's husband Neal who had obtained a prescription to help with his nerve endings after their " Mite Mare " . I'll do a post search and see if I can find it. Thank you kindly LD!! > > > > How does one desensitize ones self? Every time an eye lash falls on > my > > cheek, or a tiny piece of thread lands on my arm during work, I'm > > getting the feeling of a crawlie... > > > > I take a claritin in the morning, Benadryl at night and I'm also on a > > vitamin regimin. Should I up the B vitamins... I mean to a bit higher > > but still safe level? Or will time eventually heal the nerves? > > Any suggestions? > > > > Thanks!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 It's horrible isn't it Z? To flinch at every little thing that touches the skin. I find myself running to the microscope whenever I find something that doesn't immediately look familiar and thinking to my self.. " Oh Heavens... Here we go again... They're back... More mites " . Only to find that it's a very small flake of dried skin or something. If I find anything that works I will most certainly let you know!!! Maybe someone here will have a remedy! I'll try almost anything at this point! Have a great 4th. Z! > > tryblest > I know the place you are at right now. I'm there with you. > I am on high allert ALL the time, its been a trauma, a real trauma.... > All I can say is that its been 7 months now since this ended, and my > skin is still SUPER sensitive to anything and everything..... > I cant remember what it feels like to live inside my skin.....what > normal twitches, and prickles, and sensations feel like. > I am sorry that I dont have some useful tips for you.....if you find > anything that works I would love to know > z > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Hi Truly, Sorry about the Epsom Salts but I am sure there must be other solutions out there for you. But praise God at least you don't have those demon mites bothering you anymore. There are lotions like Sarna, Noxema or other lotions with menthol which work like a local anesthetic on the skin but they don't last all day long. You might have to reapply those during the day and they make the skin feel " chilly " for about an hour but those type might work. Just a thought.... LD > > > > > > How does one desensitize ones self? Every time an eye lash falls > on > > my > > > cheek, or a tiny piece of thread lands on my arm during work, I'm > > > getting the feeling of a crawlie... > > > > > > I take a claritin in the morning, Benadryl at night and I'm also > on a > > > vitamin regimin. Should I up the B vitamins... I mean to a bit > higher > > > but still safe level? Or will time eventually heal the nerves? > > > Any suggestions? > > > > > > Thanks!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Thanks MNF and Frito for your good memory! LD > > > > How does one desensitize ones self? Every time an eye lash falls on > my > > cheek, or a tiny piece of thread lands on my arm during work, I'm > > getting the feeling of a crawlie... > > > > I take a claritin in the morning, Benadryl at night and I'm also on a > > vitamin regimin. Should I up the B vitamins... I mean to a bit higher > > but still safe level? Or will time eventually heal the nerves? > > Any suggestions? > > > > Thanks!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Glad to be of help. Re: Desensitizing Thanks MNF and Frito for your good memory! LD> >> > How does one desensitize ones self? Every time an eye lash falls on > my > > cheek, or a tiny piece of thread lands on my arm during work, I'm > > getting the feeling of a crawlie... > > > > I take a claritin in the morning, Benadryl at night and I'm also on a > > vitamin regimin. Should I up the B vitamins... I mean to a bit higher > > but still safe level? Or will time eventually heal the nerves? > > Any suggestions?> > > > Thanks!!> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 Hi Trulyblest. Our Derm gave Neal a capsule called Gabapentin 300MG to take 1-3xday. It made him real drowsy so he only took at night. It is used to heal nerve endings from having shingles and a few other things. It took him 3-4 days before the feeling went completely away but he has not had any since (that would be about the middle of February). I think it was about $60 for a month supply but you shouldn't need that much unless the whole family takes it. Good luck to you. The CedarCide also stops the crawling feeling. You might need to repeat it if you still feel them after using it but it does work. Good luck to you. Joan Desensitizing How does one desensitize ones self? Every time an eye lash falls on my cheek, or a tiny piece of thread lands on my arm during work, I'm getting the feeling of a crawlie... :(I take a claritin in the morning, Benadryl at night and I'm also on a vitamin regimin. Should I up the B vitamins... I mean to a bit higher but still safe level? Or will time eventually heal the nerves? Any suggestions?Thanks!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 You to trylblest! I guess all we can hope to do is take one day at a time....just like we did when we had the mites. Hope everyone has a wonderful holiday! z > > > > tryblest > > I know the place you are at right now. I'm there with you. > > I am on high allert ALL the time, its been a trauma, a real trauma.... > > All I can say is that its been 7 months now since this ended, and my > > skin is still SUPER sensitive to anything and everything..... > > I cant remember what it feels like to live inside my skin.....what > > normal twitches, and prickles, and sensations feel like. > > I am sorry that I dont have some useful tips for you.....if you find > > anything that works I would love to know > > z > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 I HAVE BEEN OUT MOST OF THE WEEK SO CAN'T REMEMBER IF I ANSWERED THIS POST. NEAL TOOK GABAPENTIN 300MG TO GET HIS NERVE ENDINGS HEALED. DR. PRESCRIBED 3XDAY BUT HE COULD ONLY TAKE 1, SO HE TOOK IT AT BEDTIME FOR SEVERAL DAYS AND IT DID THE TRICK. THIS STUFF IS USED FOR SHINGLES SUFFERERS AND OTHER THINGS. MY DOCTOR PRESCRIBED IT TO ME FOR POOR DIGESTION BUT I NEVER TOOK IT SO CAN'T SAY WHAT THAT DOES BUT THE NERVE ENDING HEALING DOES WORK GREAT. JOAN Re: Desensitizing tryblestI know the place you are at right now. I'm there with you.I am on high allert ALL the time, its been a trauma, a real trauma....All I can say is that its been 7 months now since this ended, and my skin is still SUPER sensitive to anything and everything.....I cant remember what it feels like to live inside my skin.....what normal twitches, and prickles, and sensations feel like.I am sorry that I dont have some useful tips for you.....if you find anything that works I would love to know :)z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2009 Report Share Posted November 21, 2009 I would recommend for all in the New York/New Jersey area, Dr. Bosso of Nyack, NY. He is an allergist with whom I went through desensitizing in September, 2009. My sense of smell has returned completely and I feel better than I have in a long, long time. I am on 4 adult asperin a day and seem to be tolerating that dose. Quote Link to comment Share on other sites More sharing options...
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