Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 Yeah, I agree. Perhaps a more effective approach would be " Every 20 minutes a child is diagnosed with Mercury Poisoning " or, " every 20 minutes a child is diagnosed with autism, shortly thereafter it is recognized as mercury poisoning " . Maybe the dramatic, truthful, cold slap in the face would bring about more meaningful awareness. > > Today I was listening to one of my new favorite radio shows > > www.lenandjoe.com > > they we talking abot how drug companies tell you in a low key kind of > way all the side effects you may experience from taking a partiular > drug. So, when you experiene those effects no big deal just deal with > it. They have told you over and over again about it...who cares. > You've hear it repeatedly. > > Got me thinking about Autism Speaks and their autism awareness > billboards that are everywhere around my town. > > If I lived in this community and I didn't know anything about autism > but everywhere I drove I saw a billboard that stated > > " every 20 minutes a child is diagnosed with autism " I would start to > think that was " normal " and I wouldn't feel any sense of alarm or > concern....that's just the way it is. > > I'm really sick of " awareness " > > So much awareness is bringing on a sense of desensitization. Who > cares? > > I have 5 AS billboards in my community that I have seen. Autism is > the new normal. > > Thanks AS. > > They are successfully altering our perceptions. > > Think about it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 Why not sound a deaf-producing siren every 20 minutes. Re: Desensitizing Yeah, I agree. Perhaps a more effective approach would be " Every 20 minutes a child is diagnosed with Mercury Poisoning" or, "every 20 minutes a child is diagnosed with autism, shortly thereafter it is recognized as mercury poisoning". Maybe the dramatic, truthful, cold slap in the face would bring about more meaningful awareness.>> Today I was listening to one of my new favorite radio shows> > www.lenandjoe.com> > they we talking abot how drug companies tell you in a low key kind of > way all the side effects you may experience from taking a partiular > drug. So, when you experiene those effects no big deal just deal with > it. They have told you over and over again about it...who cares. > You've hear it repeatedly.> > Got me thinking about Autism Speaks and their autism awareness > billboards that are everywhere around my town.> > If I lived in this community and I didn't know anything about autism > but everywhere I drove I saw a billboard that stated > > "every 20 minutes a child is diagnosed with autism" I would start to > think that was "normal" and I wouldn't feel any sense of alarm or > concern....that's just the way it is.> > I'm really sick of "awareness" > > So much awareness is bringing on a sense of desensitization. Who > cares?> > I have 5 AS billboards in my community that I have seen. Autism is > the new normal.> > Thanks AS.> > They are successfully altering our perceptions.> > Think about it.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 I think a billboard with a rolling total at a few major cities would be good, although I LOVE the siren idea! Debi > > Why not sound a deaf-producing siren every 20 minutes. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 Seriously you guys, on one main road here there are 3 billboards from my house to the highway. Imagine Joe blow who drives to work that way everyday. Do you think he's shocked or concerned? He has just assimilated that fact into his brain. " a child is diagnosed with autism every 20 minutes'...hmmmmm big deal. > > > > Why not sound a deaf-producing siren every 20 minutes. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 What good is " awareness " anyway if there is no cure or treatment (per AS)? What do you do with your new awareness? Donate money to AS so they can make more people aware? > > > > > > Why not sound a deaf-producing siren every 20 minutes. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 Here is my analogy to awareness and early detection of autism. If you had a street where children were running into traffic and being killed or maimed at an alarming rate, would you invest in ambulances to scrape their mangled bodies off the street or in a fence to keep them from getting into the street from the start? KIMBERLY > > What good is " awareness " anyway if there is no cure or treatment (per > AS)? What do you do with your new awareness? Donate money to AS so > they can make more people aware? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 Kim, Oh, no... not a fence... A fence would trap the kids in the yard. What would happen to the 1 in 100,000 kid who might either die or be harmed by a killer bee who happened to sting the kid in the yard when the kid couldn't run away because of the fence. Shame on you for not taking that kid into consideration. Stop being so selfish, you are a dangerous person. > > > > What good is " awareness " anyway if there is no cure or treatment (per > > AS)? What do you do with your new awareness? Donate money to AS so > > they can make more people aware? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 What say we make it an ELECTRIC fence, then the folks at Rotenberg will approve? (wink wink, nudge nudge, say no more!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 The people so loudly promoting awareness, not necessarily a bad thing, have had almost nothing to do with the ambulances, and are not talking much about that. They are merely saying, look! children are being killed and maimed in the street, and pretty much stop there, leaving the children in the street to suffer their fate. On Mar 16, 2007, at 2:23 PM, krstagliano wrote: > Here is my analogy to awareness and early detection of autism. > > If you had a street where children were running into traffic and being > killed or maimed at an alarming rate, would you invest in ambulances > to > scrape their mangled bodies off the street or in a fence to keep them > from getting into the street from the start? > > KIMBERLY > > > > > > What good is " awareness " anyway if there is no cure or treatment > (per > > AS)? What do you do with your new awareness? Donate money to AS so > > they can make more people aware? > > J. Krakow Attorney At Law 2001 Marcus Avenue, Suite N125 Lake Success, New York 11042 (516) 354-3300 (646) 349-1771 (fax) (212) 227-0600 (NYC telephone) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 isnt that 'mindspeak' in Orwells classic, the programming of the proles? Ange. Re: Desensitizing Seriously you guys, on one main road here there are 3 billboards from my house to the highway. Imagine Joe blow who drives to work that way everyday. Do you think he's shocked or concerned?He has just assimilated that fact into his brain."a child is diagnosed with autism every 20 minutes'...hmmmmm big deal.> >> > Why not sound a deaf-producing siren every 20 minutes. > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 " mindpseak " - " Autism speaks " that was not lost on me. > > > > > > Why not sound a deaf-producing siren every 20 minutes. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 The word you are thinking of is " doublespeak " . It means 180 degree spin by governments. For example, " We are establishing the peace " really means " we are going to war " . The sign over a Nazi Concentration Camp read in German " Work will set you free " . What it actually meant was " We will work you to death " . Lenny > > > > > > > > Why not sound a deaf-producing siren every 20 minutes. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 So,what is Autsim Speaks " doublespeak " with all their awareness billboards? There are so many in my community- I think the average man (or woman) really is ok with autism being diagnosed every twenty mintues. You drive down Rt. 46 in my town you see three of those billboards telling you the same thing, you think -so what. > > > > > > > > > > Why not sound a deaf-producing siren every 20 minutes. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 How about a sign that says “Each person with autism costs taxpayers 20 million dollars” Get autism? On 3/16/07 7:45 PM, " andrea52521991 " <mkeller@...> wrote: So,what is Autsim Speaks " doublespeak " with all their awareness billboards? There are so many in my community- I think the average man (or woman) really is ok with autism being diagnosed every twenty mintues. You drive down Rt. 46 in my town you see three of those billboards telling you the same thing, you think -so what. > > > > > > > > > > Why not sound a deaf-producing siren every 20 minutes. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 That would be excellent!! > >>>>>> > > > > > > >>>>>> > > > > > Why not sound a deaf-producing siren every 20 minutes. > >>>>>> > > > > > > >>>>>> > > > > > > >>>>> > > > > > >>>> > > > > >>> > > > >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 So " AutismSpeaks " means " AutismMuzzles " ? Sorry, I felt a lunatic urge... On Mar 16, 2007, at 7:37 PM, schaferatsprynet wrote: The word you are thinking of is " doublespeak " . It means 180 degree spin by governments. For example, " We are establishing the peace " really means " we are going to war " . The sign over a Nazi Concentration Camp read in German " Work will set you free " . What it actually meant was " We will work you to death " . Lenny > > > > > > > > Why not sound a deaf-producing siren every 20 minutes. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Except the backlash with bring out the NIMBY advocates and maybe even eugenicists disguised as geneticists. When resources are scarce the weak will be prey. On Mar 16, 2007, at 7:56 PM, searchingforserenity111 wrote: That would be excellent!! > >>>>>> > > > > > > >>>>>> > > > > > Why not sound a deaf-producing siren every 20 minutes. > >>>>>> > > > > > > >>>>>> > > > > > > >>>>> > > > > > >>>> > > > > >>> > > > >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 I agree, and doing more of the math for them would help even more. Add a line like " Funding Diagnosis and effective treatment of autism can save taxpayers an average of $19.5M per child (or whatever it is) " Also, thank you for writing an honest number--the $20M. I'm so sick of the $2 million number I always hear which is utter crap. Just an average person's lost lifetime salary would exceed that, not to mention care and the loss of income to the family, and all kinds of incidentals. So many people just don't care from a humanitarian perspective...but the money gets their attention. Sad, but true. Jenna > > >>>>>> > > > > > > > >>>>>> > > > > > Why not sound a deaf-producing siren every 20 > minutes. > > >>>>>> > > > > > > > >>>>>> > > > > > > > >>>>> > > > > > > >>>> > > > > > >>> > > > > >> > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Well, I wasn’t sure of the number but Bob or Lifespire gave some numbers at the hearing last week. Was it $20 million Bob? On 3/16/07 9:16 PM, " wewillwin07 " <wewillwin07@...> wrote: I agree, and doing more of the math for them would help even more. Add a line like " Funding Diagnosis and effective treatment of autism can save taxpayers an average of $19.5M per child (or whatever it is) " Also, thank you for writing an honest number--the $20M. I'm so sick of the $2 million number I always hear which is utter crap. Just an average person's lost lifetime salary would exceed that, not to mention care and the loss of income to the family, and all kinds of incidentals. So many people just don't care from a humanitarian perspective...but the money gets their attention. Sad, but true. Jenna > > >>>>>> > > > > > > > >>>>>> > > > > > Why not sound a deaf-producing siren every 20 > minutes. > > >>>>>> > > > > > > > >>>>>> > > > > > > > >>>>> > > > > > > >>>> > > > > > >>> > > > > >> > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Also Sprack Autism-Genetik (Thus Autism Speaks) Lenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 That would be the 180 spin Lenny was referring to. What about that makes you a lunatic? Maybe it wreaks of fringe, but it doesn't necessarily make you a lunatic. > > So " AutismSpeaks " means " AutismMuzzles " ? > > Sorry, I felt a lunatic urge... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Hi , Our numbers based on actual experience: approximately $17million for an individual with high need and approximately $12million for a person with lower level of need. THis is for a disabled adult from age 23-66. The number is for NYC so there is a factor for high real estate costs in NYC, but the difference is not as high as you might think. Also, this builds in a 3% trend increase, which is consistent with government cost increase factors used by the govt in projecting expenses and also our experience. These numbers include no costs to age 23 and no lost earnings and similar items. To read the testimony in a pdf go to: http://a-champ.org/insurance_coverage.html and click link at the top of the page. Bob K. On Mar 16, 2007, at 9:54 PM, christine wrote: Well, I wasn’t sure of the number but Bob or Lifespire gave some numbers at the hearing last week. Was it $20 million Bob? On 3/16/07 9:16 PM, " wewillwin07 " <wewillwin07@...> wrote: > >  >  > > I agree, and doing more of the math for them would help even more.  > Add a line like " Funding Diagnosis and effective treatment of autism > can save taxpayers an average of $19.5M per child (or whatever it is) " > > Also, thank you for writing an honest number--the $20M.  > I'm so sick of the $2 million number I always hear which is utter > crap.  Just an average person's lost lifetime salary would exceed > that, not to mention care and the loss of income to the family, and > all kinds of incidentals. > > So many people just don't care from a humanitarian perspective...but > the money gets their attention.  Sad, but true. > > Jenna  > > > > > >>>>>> > > >   > > > > > >>>>>> > > >   > > Why not sound a deaf-producing siren every 20 > > minutes. > > > >>>>>> > > >   > > > > > >>>>>> > > >   > > > > > >>>>> > > >   > > > > >>>> > > > > > > >>> > > > > > >> > > > > > > > > >  > > > > > > > > > > >  >     Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Somebody said so... On Mar 16, 2007, at 10:04 PM, andrea52521991 wrote: That would be the 180 spin Lenny was referring to. What about that makes you a lunatic? Maybe it wreaks of fringe, but it doesn't necessarily make you a lunatic. > > So " AutismSpeaks " means " AutismMuzzles " ? > > Sorry, I felt a lunatic urge... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 That would be the 180 spin Lenny was referring to. What about that makes you a lunatic? Maybe it wreaks of fringe, but it doesn't necessarily make you a lunatic. > > So " AutismSpeaks " means " AutismMuzzles " ? > > Sorry, I felt a lunatic urge... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Hi , We have alot of billboards here, too. But, I don't think many people dismiss it at all. Just a year ago, when I would quote the numbers to people, they were surprised. Now, more people know. And they are beginning to ask more questions about why that it is. I think that every young couple who is planning to have children, every pregnant mother and the father, and grandparents are now beginning to take notice. People have all sorts of tests during pregnancy for things like down syndrome and other trisomy syndromes (18 and 13, etc.) and if they are told they have a 1 in 500 chance of having a child with one of these trisomy disorders, they are concerned. But, let's face it, the concern is far higher for someone who is older. The young worry less. To know that autism strikes 1 in 150 no matter what your age is striking. I think maybe the only ones who are more desensitized to the issue is people who are already there. Col > > > > > > > > > > > > Why not sound a deaf-producing siren every 20 minutes. > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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