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Lori,

This is heartbreaking. I am at a loss to express my feelings.

We can't thank you enough for all the tireless work and inspiration you

have brought us all these years.

Our thoughts are with you and your family.

I'd rather let others speak.

>

> Sadly my breast cancer has spread throughout my body and I won't be

able to participate in the Samters group on any regular basis (not that

I have been for a while).

>

> This group is so important. I have had many hopes and dreams for it,

many of which have not come true, but now as I near the end of my life I

have to make priorities. I feel this is a strong group and could

survive even more strongly with even stronger leadership. I bid you to

make a foundation for research, education, understanding. This illness

destroys people's lives all too often and doctors just don't get it.

>

> I'm tired now and won't say I wont ever check in again but for nor

this is adieu, in gratitude to the founders and moderators and members

here. I have done some infighting here as I stand up for my very strong

beliefs but it's only for the good of the group and the good of the

truth and if nothing else I am about the TRUTH. Samters has a strong

genetic component and anyone who dnies his is shooting him or herself in

the foot.

>

> Lori Out.

>

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Dear Lori,

I am so sorry to hear this. You have battled long and hard with breast cancer as well as Samters and you are an inspiration to all of us. You are absolutely right -this group IS very important, and I hope your wishes will be carried out and that our group becomes stronger and more active in its work.

Sending love and hugs,

Becky x

From: truelori <lori@...>samters Sent: Friday, 13 March, 2009 8:20:42Subject: mostly leaving group

Sadly my breast cancer has spread throughout my body and I won't be able to participate in the Samters group on any regular basis (not that I have been for a while).This group is so important. I have had many hopes and dreams for it, many of which have not come true, but now as I near the end of my life I have to make priorities. I feel this is a strong group and could survive even more strongly with even stronger leadership. I bid you to make a foundation for research, education, understanding. This illness destroys people's lives all too often and doctors just don't get it.I'm tired now and won't say I wont ever check in again but for nor this is adieu, in gratitude to the founders and moderators and members here. I have done some infighting here as I stand up for my very strong beliefs but it's only for the good of the group and the good of the truth and if nothing else I am about the TRUTH. Samters has a strong genetic component

and anyone who dnies his is shooting him or herself in the foot.Lori Out.

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Dear Lori

I’m very sorry to read your words. The hard work you have

done for this group and your sensitive approach has been deeply appreciated by

all of us, all along. You are in our thoughts, I wish you strength, hope,

patience and perseverance with all my heart. Take care, look after yourself…

Berna Bridge

From: samters

[mailto:samters ] On Behalf Of asfyso

Sent: 13 March 2009 10:35

samters

Subject: Re: mostly leaving group

Lori,

This is heartbreaking. I am at a loss to express my feelings.

We can't thank you enough for all the tireless work and inspiration you

have brought us all these years.

Our thoughts are with you and your family.

I'd rather let others speak.

>

> Sadly my breast cancer has spread throughout my body and I won't be

able to participate in the Samters group on any regular basis (not that

I have been for a while).

>

> This group is so important. I have had many hopes and dreams for it,

many of which have not come true, but now as I near the end of my life I

have to make priorities. I feel this is a strong group and could

survive even more strongly with even stronger leadership. I bid you to

make a foundation for research, education, understanding. This illness

destroys people's lives all too often and doctors just don't get it.

>

> I'm tired now and won't say I wont ever check in again but for nor

this is adieu, in gratitude to the founders and moderators and members

here. I have done some infighting here as I stand up for my very strong

beliefs but it's only for the good of the group and the good of the

truth and if nothing else I am about the TRUTH. Samters has a strong

genetic component and anyone who dnies his is shooting him or herself in

the foot.

>

> Lori Out.

>

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Dear Lori,

In case you read this....I am sorry to hear your news. I've been with you for so many years and feel like I know you personally. You have done a wonderful job with this site.

I will pray for an easy transition from this life to the next. I could talk about the unfairness of it all, but it won't change anything for you. I wish you peace and love and please know that you did make a huge difference in my life with Samters. I will miss you.

Love,

Tami

mostly leaving group

Sadly my breast cancer has spread throughout my body and I won't be able to participate in the Samters group on any regular basis (not that I have been for a while).This group is so important. I have had many hopes and dreams for it, many of which have not come true, but now as I near the end of my life I have to make priorities. I feel this is a strong group and could survive even more strongly with even stronger leadership. I bid you to make a foundation for research, education, understanding. This illness destroys people's lives all too often and doctors just don't get it.I'm tired now and won't say I wont ever check in again but for nor this is adieu, in gratitude to the founders and moderators and members here. I have done some infighting here as I stand up for my very strong beliefs but it's only for the good of the group and the good of the truth and if nothing else I am about the TRUTH. Samters has a strong genetic component and anyone who dnies his is shooting him or herself in the foot.Lori Out.

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Lori,

I am new to the group so haven't had a chance to know you through it, but I can

say with certainty that it is already very helpful to me in managing a condition

that is not well understood by my doctors. The information I find here will be

given to them and challenge them to do research and find ways to help me. I

will be able to be a better mother for the assistance and support this group can

give me in managing the symptoms my symptoms. I know the hereditary component,

because my father also has suffered for forty years with Samters. Please know

that you have my gratitude for your contributions to this resource. I will do

what I can to make sure my children don't suffer from samters the way my father

and I do.

Thank you, I wish you strength and peace.

>

> Sadly my breast cancer has spread throughout my body and I won't be able to

participate in the Samters group on any regular basis (not that I have been for

a while).

>

> This group is so important. I have had many hopes and dreams for it, many of

which have not come true, but now as I near the end of my life I have to make

priorities. I feel this is a strong group and could survive even more strongly

with even stronger leadership. I bid you to make a foundation for research,

education, understanding. This illness destroys people's lives all too often

and doctors just don't get it.

>

> I'm tired now and won't say I wont ever check in again but for nor this is

adieu, in gratitude to the founders and moderators and members here. I have

done some infighting here as I stand up for my very strong beliefs but it's only

for the good of the group and the good of the truth and if nothing else I am

about the TRUTH. Samters has a strong genetic component and anyone who dnies

his is shooting him or herself in the foot.

>

> Lori Out.

>

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Lori:I am so sorry to hear about your cancer. You have been so vital to this group.I wish you all the best and, I am sure I speak for all of us here when I say, we will always be here for you.ieOn Mar 13, 2009, at 4:20 AM, truelori wrote:Sadly my breast cancer has spread throughout my body and I won't be able to participate in the Samters group on any regular basis (not that I have been for a while).This group is so important. I have had many hopes and dreams for it, many of which have not come true, but now as I near the end of my life I have to make priorities. I feel this is a strong group and could survive even more strongly with even stronger leadership. I bid you to make a foundation for research, education, understanding. This illness destroys people's lives all too often and doctors just don't get it.I'm tired now and won't say I wont ever check in again but for nor this is adieu, in gratitude to the founders and moderators and members here. I have done some infighting here as I stand up for my very strong beliefs but it's only for the good of the group and the good of the truth and if nothing else I am about the TRUTH. Samters has a strong genetic component and anyone who dnies his is shooting him or herself in the foot.Lori Out.

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Lori,

Thank you so much for what you have given this group. I was constantly impressed that you would always respond in detail to posts sometimes at 1 am your time.

I personally have learned so much, in my dealing with this condition we share, from your insight. Thanks again. My thoughts and prayers are with you as go through this ultimate stage in your life.

mostly leaving group

Sadly my breast cancer has spread throughout my body and I won't be able to participate in the Samters group on any regular basis (not that I have been for a while).

This group is so important. I have had many hopes and dreams for it, many of which have not come true, but now as I near the end of my life I have to make priorities. I feel this is a strong group and could survive even more strongly with even stronger leadership. I bid you to make a foundation for research, education, understanding. This illness destroys people's lives all too often and doctors just don't get it.

I'm tired now and won't say I wont ever check in again but for nor this is adieu, in gratitude to the founders and moderators and members here. I have done some infighting here as I stand up for my very strong beliefs but it's only for the good of the group and the good of the truth and if nothing else I am about the TRUTH. Samters has a strong genetic component and anyone who dnies his is shooting him or herself in the foot.

Lori Out.

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Lori,

My apologies for the delay in responding but my computer has

been down for a few weeks.

I can’t tell you how devastated I am to hear of your news. You’ve

been such a wealth of information and support to everyone that’s involved in

this group. You’ve given your all and so much more and you’ve help make this

group into what it is today.

Be strong, have faith and know that everyone here will be

thinking and praying for you Lori. You’ve been a guiding light to us all.

God bless you Lori

From: truelori

[mailto:lori@...]

Sent: Friday, 13 March 2009 7:21 PM

samters

Subject: mostly leaving group

Sadly my breast cancer has spread throughout my

body and I won't be able to participate in the Samters group on any regular

basis (not that I have been for a while).

This group is so important. I have had many hopes and dreams for it, many of

which have not come true, but now as I near the end of my life I have to make

priorities. I feel this is a strong group and could survive even more strongly

with even stronger leadership. I bid you to make a foundation for research,

education, understanding. This illness destroys people's lives all too often

and doctors just don't get it.

I'm tired now and won't say I wont ever check in again but for nor this is

adieu, in gratitude to the founders and moderators and members here. I have

done some infighting here as I stand up for my very strong beliefs but it's

only for the good of the group and the good of the truth and if nothing else I

am about the TRUTH. Samters has a strong genetic component and anyone who dnies

his is shooting him or herself in the foot.

Lori Out.

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.0.237 / Virus Database: 270.11.12/1998 - Release Date: 03/12/09

18:23:00

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Lori, thank you for the time and effort you have put into this site. I look back to when I first joined the group, you were the main poster with knowledge about this disease. I remember Ken being the moderator. I will continue to pray for you and your family. We all must one day go this route into our next level and I pray that your transition is easy. May God Bless you with Peace and may he bless us to take up your vision and run with it. Be blessed and have sweet rest. We love you heree at the Samters group. Thank you for your time and your talent. GwenRafter

From: truelori <lori@...>samters Sent: Friday, March 13, 2009 4:20:42 AMSubject: mostly leaving groupSadly my breast cancer has spread throughout my body and I won't be able to participate in the Samters group on any regular basis (not that I have been for a while).This group is so important. I have had many hopes and dreams for it, many of which have not come true, but now as I near the end of my life I have to make priorities. I feel this is a strong group and could survive even more strongly with even stronger leadership. I bid you to make a foundation for research, education, understanding. This illness destroys people's lives all too often and doctors just don't get

it.I'm tired now and won't say I wont ever check in again but for nor this is adieu, in gratitude to the founders and moderators and members here. I have done some infighting here as I stand up for my very strong beliefs but it's only for the good of the group and the good of the truth and if nothing else I am about the TRUTH. Samters has a strong genetic component and anyone who dnies his is shooting him or herself in the foot.Lori Out.------------------------------------

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Dearest Lori,

I joined this group a couple of years ago and at that time you were a regular participant. I want to thank you for the knowledge you have shared over the last many years. I appreciate learning from your health experiences with Samters. I will be keeping you in my prayers.

Jane

From: truelori <lori@...>Subject: mostly leaving groupsamters Date: Friday, March 13, 2009, 2:20 AM

Sadly my breast cancer has spread throughout my body and I won't be able to participate in the Samters group on any regular basis (not that I have been for a while).This group is so important. I have had many hopes and dreams for it, many of which have not come true, but now as I near the end of my life I have to make priorities. I feel this is a strong group and could survive even more strongly with even stronger leadership. I bid you to make a foundation for research, education, understanding. This illness destroys people's lives all too often and doctors just don't get it.I'm tired now and won't say I wont ever check in again but for nor this is adieu, in gratitude to the founders and moderators and members here. I have done some infighting here as I stand up for my very strong beliefs but it's only for the good of the group and the good of the truth and if nothing else I am about the TRUTH. Samters has a strong genetic component

and anyone who dnies his is shooting him or herself in the foot.Lori Out.

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Dear Lori,

I have been on and off of here since I was diagnosed with Samter's in 2002. I have been silent for the most part only posting here and there. I do for the most part read the posts, and esp. yours. You have done a wonderful job with this group. I am in tears now, but I want you to know that my thoughts and prayers are with you during this time.

Blessings,

From: truelori <lori@...>samters Sent: Friday, March 13, 2009 4:20:42 AMSubject: mostly leaving group

Sadly my breast cancer has spread throughout my body and I won't be able to participate in the Samters group on any regular basis (not that I have been for a while).This group is so important. I have had many hopes and dreams for it, many of which have not come true, but now as I near the end of my life I have to make priorities. I feel this is a strong group and could survive even more strongly with even stronger leadership. I bid you to make a foundation for research, education, understanding. This illness destroys people's lives all too often and doctors just don't get it.I'm tired now and won't say I wont ever check in again but for nor this is adieu, in gratitude to the founders and moderators and members here. I have done some infighting here as I stand up for my very strong beliefs but it's only for the good of the group and the good of the truth and if nothing else I am about the TRUTH. Samters has a strong genetic component

and anyone who dnies his is shooting him or herself in the foot.Lori Out.

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Lori,

Words can’t describe what I feel right now, you have been such a

great part of this group for the many years I have been here. I am so sorry to

hear about how your cancer has spread. I hope and wish you the best for

whatever time you have left and will keep you in my thoughts. Be at peace and

know you have enriched the lives of many people on this group and your archived

posts will continue to do so for a long time.

K.

From:

samters [mailto:samters ] On Behalf Of truelori

Sent: Friday, March 13, 2009 4:21 AM

samters

Subject: mostly leaving group

Sadly my breast cancer has spread throughout my

body and I won't be able to participate in the Samters group on any regular

basis (not that I have been for a while).

This group is so important. I have had many hopes and dreams for it, many of

which have not come true, but now as I near the end of my life I have to make

priorities. I feel this is a strong group and could survive even more strongly

with even stronger leadership. I bid you to make a foundation for research,

education, understanding. This illness destroys people's lives all too often

and doctors just don't get it.

I'm tired now and won't say I wont ever check in again but for nor this is

adieu, in gratitude to the founders and moderators and members here. I have

done some infighting here as I stand up for my very strong beliefs but it's

only for the good of the group and the good of the truth and if nothing else I

am about the TRUTH. Samters has a strong genetic component and anyone who dnies

his is shooting him or herself in the foot.

Lori Out.

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Hi Lori,

Thank you for letting us know your status. I am so sorry about your

illness and I am so grateful for your contributions to this group!

Please know that I am wishing you peace in this profound life

transition. You deserve compassion and contact and unconditional love.

I am in school right now for a Master's in Public Health. I don't know

yet what I will do with this degree, but I hope to do a lot to improve

the medical system in this country, and reduce health disparities

between the haves and those who have less to none.

Wishing you peace...

--

Beldon

Body Integrity

626 Balboa Street

San Francisco, CA 94118

(415) 531-4902

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Lori,

My heart is open for you and may you smile from here on in. This is indeed a great group and I have taught my Doctors much from it. I even found a benefit a few months ago from a reader in Massachusetts. This group owes you bit time.

please check in with your wisdom a few more times. We will always think of you!!

Tom from Maine

Lori,I also was stunned to read your post and saddened by its contents. You have contributed so much to this group, and I am sure you would not remember one of the posts you wrote to me when I was at a very low point several years ago. I rarely post, but I was so frustrated and depressed by the various Samters symptoms at the time, that I just felt the need to vent, REALLY vent, to the group...something that is rarely seen here. You wrote the most heart-felt and uplifting response to me, that it truly allowed me to turn the corner and leave my own pity party once and for all.I say this because you need to know that YOU HAVE TRULY MADE A POSITIVE DIFFERENCE IN OTHERS' LIVES.God bless you,>> Sadly my breast cancer has spread throughout my body and I won't be able to participate in the Samters group on any regular basis (not that I have been for a while).> > This group is so important. I have had many hopes and dreams for it, many of which have not come true, but now as I near the end of my life I have to make priorities. I feel this is a strong group and could survive even more strongly with even stronger leadership. I bid you to make a foundation for research, education, understanding. This illness destroys people's lives all too often and doctors just don't get it.> > I'm tired now and won't say I wont ever check in again but for nor this is adieu, in gratitude to the founders and moderators and members here. I have done some infighting here as I stand up for my very strong beliefs but it's only for the good of the group and the good of the truth and if nothing else I am about the TRUTH. Samters has a strong genetic component and anyone who dnies his is shooting him or herself in the foot.> > Lori Out.>

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Lori,

I also was stunned to read your post and saddened by its contents. You have

contributed so much to this group, and I am sure you would not remember one of

the posts you wrote to me when I was at a very low point several years ago. I

rarely post, but I was so frustrated and depressed by the various Samters

symptoms at the time, that I just felt the need to vent, REALLY vent, to the

group...something that is rarely seen here. You wrote the most heart-felt and

uplifting response to me, that it truly allowed me to turn the corner and leave

my own pity party once and for all.

I say this because you need to know that YOU HAVE TRULY MADE A POSITIVE

DIFFERENCE IN OTHERS' LIVES.

God bless you,

>

> Sadly my breast cancer has spread throughout my body and I won't be able to

participate in the Samters group on any regular basis (not that I have been for

a while).

>

> This group is so important. I have had many hopes and dreams for it, many of

which have not come true, but now as I near the end of my life I have to make

priorities. I feel this is a strong group and could survive even more strongly

with even stronger leadership. I bid you to make a foundation for research,

education, understanding. This illness destroys people's lives all too often

and doctors just don't get it.

>

> I'm tired now and won't say I wont ever check in again but for nor this is

adieu, in gratitude to the founders and moderators and members here. I have

done some infighting here as I stand up for my very strong beliefs but it's only

for the good of the group and the good of the truth and if nothing else I am

about the TRUTH. Samters has a strong genetic component and anyone who dnies

his is shooting him or herself in the foot.

>

> Lori Out.

>

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dear Lori,I was so sad to read your post. Contemplating the end of your life must be terrifying. Hopefully you have your family close to love and support you on your final journey. My thoughts are with you and your loved ones - I wish you all strength, courage and love.Thank you for all the good work that you did for the members of the group. It has certainly helped me to cope with my illness.Love and thanks,Maggiesamters From: lori@...Date: Fri, 13 Mar 2009 08:20:42 +0000Subject: mostly leaving group

Sadly my breast cancer has spread throughout my body and I won't be able to participate in the Samters group on any regular basis (not that I have been for a while).

This group is so important. I have had many hopes and dreams for it, many of which have not come true, but now as I near the end of my life I have to make priorities. I feel this is a strong group and could survive even more strongly with even stronger leadership. I bid you to make a foundation for research, education, understanding. This illness destroys people's lives all too often and doctors just don't get it.

I'm tired now and won't say I wont ever check in again but for nor this is adieu, in gratitude to the founders and moderators and members here. I have done some infighting here as I stand up for my very strong beliefs but it's only for the good of the group and the good of the truth and if nothing else I am about the TRUTH. Samters has a strong genetic component and anyone who dnies his is shooting him or herself in the foot.

Lori Out.

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Lori;I know that God has a very special place for someone with as big a heart as you. I look forward to meeting you someday.... Thanks for all you have shared with us.DougFrom: truelori <lori@...>Subject: mostly leaving groupsamters Date: Friday, March 13, 2009, 1:20 AMSadly my breast cancer has spread throughout my body and I won't be able toparticipate in the Samters group on any regular basis (not that I have been fora while).This group is so important. I have had many hopes and dreams for it, many ofwhich have not come true, but now as I near the end of my life I have to

makepriorities. I feel this is a strong group and could survive even more stronglywith even stronger leadership. I bid you to make a foundation for research,education, understanding. This illness destroys people's lives all toooften and doctors just don't get it.I'm tired now and won't say I wont ever check in again but for nor thisis adieu, in gratitude to the founders and moderators and members here. I havedone some infighting here as I stand up for my very strong beliefs but it'sonly for the good of the group and the good of the truth and if nothing else Iam about the TRUTH. Samters has a strong genetic component and anyone who dnieshis is shooting him or herself in the foot.Lori Out.------------------------------------

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Dear Lori,

I am really so sorry to hear about your condition/situation.

I haven't been posting often (since introducing myself and telling my story

regarding Samter's) to this group but instead I have been reading the precious

postings of the other members with great interest and appreciation a lot - and

very often the postings have been from you, Lori.

I remember you as one of those, who always has had a few or more kind words and

valuable insights to share with everyone involved.

I wish you all the best now.

With loving thoughts,

>

> Sadly my breast cancer has spread throughout my body and I won't be able to

participate in the Samters group on any regular basis (not that I have been for

a while).

>

> This group is so important. I have had many hopes and dreams for it, many of

which have not come true, but now as I near the end of my life I have to make

priorities. I feel this is a strong group and could survive even more strongly

with even stronger leadership. I bid you to make a foundation for research,

education, understanding. This illness destroys people's lives all too often

and doctors just don't get it.

>

> I'm tired now and won't say I wont ever check in again but for nor this is

adieu, in gratitude to the founders and moderators and members here. I have

done some infighting here as I stand up for my very strong beliefs but it's only

for the good of the group and the good of the truth and if nothing else I am

about the TRUTH. Samters has a strong genetic component and anyone who dnies

his is shooting him or herself in the foot.

>

> Lori Out.

>

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Dear Lori

Like so many before in this chain of messages I know that we collectively have a debt of gratitude for all the time, energy and compassion you have demonstrated on this site and supported fellow Samters sufferers through good times and bad.

At times like this I often turn to the lyrics of songs and just now I imagine all your Samters friends joining together in a chorus for you with just a little help from Carole King

With my very best wishes to you and your family

Mike

When you're down and troubled And you need some love and care And nothing, nothing is going right Close your eyes and think of me And soon I'll be there To brighten up even your darkest nights You just call out my name And you know where ever I am I'll come running to see you again Winter, Spring, Summer or fall All you have to do is call And I'll be there If the sky above you Grows dark and full of clouds And that old north wind begins to blow keep your head together and call my name out loud soon you'll hear me knocking at your door You just call out my name And you know where ever I am I'll come running to see Winter, Spring, Summer or fall All you have to do is call And I'll be there Ain't it good to know that you've got a friend

And you have so many

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Dear Lori,

I wanted to thank you very much. You have been helped so many of us!

Peace and love,

Helen

>

> Sadly my breast cancer has spread throughout my body and I won't be able to

participate in the Samters group on any regular basis (not that I have been for

a while).

>

> This group is so important. I have had many hopes and dreams for it, many of

which have not come true, but now as I near the end of my life I have to make

priorities. I feel this is a strong group and could survive even more strongly

with even stronger leadership. I bid you to make a foundation for research,

education, understanding. This illness destroys people's lives all too often

and doctors just don't get it.

>

> I'm tired now and won't say I wont ever check in again but for nor this is

adieu, in gratitude to the founders and moderators and members here. I have

done some infighting here as I stand up for my very strong beliefs but it's only

for the good of the group and the good of the truth and if nothing else I am

about the TRUTH. Samters has a strong genetic component and anyone who dnies

his is shooting him or herself in the foot.

>

> Lori Out.

>

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Lori I am sure you are now headstrong so I wish you all the best and enjoy

what time you have left with your wonderful family. You have touched us with

your comments over the years.

Blessings,

Steve

From: samters [mailto:samters ] On Behalf Of

truelori

Sent: 13 March 2009 06:21

samters

Subject: mostly leaving group

Sadly my breast cancer has spread throughout my body and I won't be able to

participate in the Samters group on any regular basis (not that I have been

for a while).

This group is so important. I have had many hopes and dreams for it, many of

which have not come true, but now as I near the end of my life I have to

make priorities. I feel this is a strong group and could survive even more

strongly with even stronger leadership. I bid you to make a foundation for

research, education, understanding. This illness destroys people's lives all

too often and doctors just don't get it.

I'm tired now and won't say I wont ever check in again but for nor this is

adieu, in gratitude to the founders and moderators and members here. I have

done some infighting here as I stand up for my very strong beliefs but it's

only for the good of the group and the good of the truth and if nothing else

I am about the TRUTH. Samters has a strong genetic component and anyone who

dnies his is shooting him or herself in the foot.

Lori Out.

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Dear Lori,Thank you for sharing your wisdom and spirit with us in the group. I will be thinking of you, and may the rest of your days be full of peace, love, family, and friends."Dogs have masters, while cats have staff."

--unknown

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