Guest guest Posted November 19, 2005 Report Share Posted November 19, 2005 Did the lady say what exactly was the homework problem? I learned a long time ago that " homework " was best done at school. For my daughter, home is home and school is school, and never the twain shall meet. Also, how old is this child? Whether she's been in contact with her daughter's teachers or not, I don't think what she did was appropriate. ,RN lemobrn@... You must do the thing you think you cannot do. Eleanor Roosevelt >From: " Barry Hitchcock " <bazndeb@...> >Reply-Autism and Aspergers Treatment ><Autism and Aspergers Treatment > >Subject: Question for ALL >Date: Fri, 18 Nov 2005 07:18:42 -0600 > > > >OK here is a question for everyone. Yesterday we were driving to my sons >doctor’s appointment (over an hours drive away) I was listening to a >talk show host program about a lady in Oklahoma and her daughter. The >host asked everyone’s opinion on this matter and just thought I would >bring it to the group to see what everyone here thinks. Callers called >in with all kinds of opinions what is yours? > >The lady in Oklahoma was having problems with her daughter doing >homework. It was so bad that she decided to teach her a lesson. IF she >wasn’t to do her homework or to be educated, she took this upon herself >to “show” her just what life would be like with no education. The lady >took her daughter to a street corner and made a sign for her to hold up >for every passing car that read “Will work for food”. They were there >for an hour until someone reported her. DO you think the mother should >be in trouble is this abuse? In your opinion, was this too harsh? Do >you agree or disagree? >Curious Deb’s > >-- >No virus found in this incoming message. >Checked by AVG Free Edition. >Version: 7.1.362 / Virus Database: 267.13.3/173 - Release Date: >11/16/2005 > > >-- >No virus found in this outgoing message. >Checked by AVG Free Edition. >Version: 7.1.362 / Virus Database: 267.13.3/174 - Release Date: >11/17/2005 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2005 Report Share Posted November 19, 2005 I have no idea how old or other details. I missed all of that before I tuned in. Question for ALL >Date: Fri, 18 Nov 2005 07:18:42 -0600 > > > >OK here is a question for everyone. Yesterday we were driving to my sons >doctor’s appointment (over an hours drive away) I was listening to a >talk show host program about a lady in Oklahoma and her daughter. The >host asked everyone’s opinion on this matter and just thought I would >bring it to the group to see what everyone here thinks. Callers called >in with all kinds of opinions what is yours? > >The lady in Oklahoma was having problems with her daughter doing >homework. It was so bad that she decided to teach her a lesson. IF she >wasn’t to do her homework or to be educated, she took this upon herself >to “show” her just what life would be like with no education. The lady >took her daughter to a street corner and made a sign for her to hold up >for every passing car that read “Will work for food”. They were there >for an hour until someone reported her. DO you think the mother should >be in trouble is this abuse? In your opinion, was this too harsh? Do >you agree or disagree? >Curious Deb’s > >-- >No virus found in this incoming message. >Checked by AVG Free Edition. >Version: 7.1.362 / Virus Database: 267.13.3/173 - Release Date: >11/16/2005 > > >-- >No virus found in this outgoing message. >Checked by AVG Free Edition. >Version: 7.1.362 / Virus Database: 267.13.3/174 - Release Date: >11/17/2005 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2005 Report Share Posted November 20, 2005 I would say if your child has been taught right from wrong. Since there are developmental delays, then I would think they would have to be taught differently than other people. Some people don’t understand that. Look at the teachers who teaches our schools. Why do they have so many problems teaching these kids? They don’t understand these kids. Atleast our school doesn’t. I know it’s MY job as a parent to teach right from wrong and teachers teach academics but my point is here if the child with delays has a bad experience at school (which mine does) then this makes our job as parents much harder. In our case, my son breaks down, turns inward…what has he really learnt at all? As for now, I don’t have the skills to teach him the way he should be taught, which is why I am learning skills myself to reach him. We do what we have to do. Basically, if he has done a crime I would make sure he knew what he was doing, if he thought it was right or wrong firstly then I would judge if he needed to be reprimanded by law. Hopefully I have already taught him everything there is to know about right and wrong. They would never understand or hear the excuse “he is autistic” how many criminals do you know that have been let off the hook? IM not saying to simply excuse his crime but if we are talking about it….then I just thought I would add all of this. Debs in Bama J Re: Question for ALL I don't think it was abusive in any way! Hopefully it taught the girl a good lesson. It might have embarrassed the girl doing it, but it will save her alot more embarrassement later on in life. Sometimes you have to show tough love, as long as the child isn't being physically or mentally abused. There's one question also alot of parents have broughten up. Would you turn in your child if you knew he commited a crime? Alot of parent's would say NO!! I guess it would depend on the crime. What do you guys think? I would say, Yes, that I would. But then I've never been in that situation. It would have to probably be the hardest thing to do. But then there's that " tough love " question again. Barry Hitchcock <bazndeb@...> wrote: OK here is a question for everyone. Yesterday we were driving to my sons doctor’s appointment (over an hours drive away) I was listening to a talk show host program about a lady in Oklahoma and her daughter. The host asked everyone’s opinion on this matter and just thought I would bring it to the group to see what everyone here thinks. Callers called in with all kinds of opinions what is yours? The lady in Oklahoma was having problems with her daughter doing homework. It was so bad that she decided to teach her a lesson. IF she wasn’t to do her homework or to be educated, she took this upon herself to “show” her just what life would be like with no education. The lady took her daughter to a street corner and made a sign for her to hold up for every passing car that read “Will work for food”. They were there for an hour until someone reported her. DO you think the mother should be in trouble is this abuse? In your opinion, was this too harsh? Do you agree or disagree? Curious Deb’s -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.3/173 - Release Date: 11/16/2005 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.3/174 - Release Date: 11/17/2005 -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.4/175 - Release Date: 11/18/2005 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.4/175 - Release Date: 11/18/2005 -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.4/176 - Release Date: 11/20/2005 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.4/176 - Release Date: 11/20/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2005 Report Share Posted November 20, 2005 That's a very good point.Maybe one day they will take this into consideration the same as they do people with schizophrenia.I know they get lesser sentences ,because my dad has it ,and one time went he wasn't taking his meds. he got in trouble carrying a loaded gun he had bought from a pawn shop with lots of ammo. Probably something that would put someone else into the state penn. But all he got was 30 days in a mental hospital. (He is fine now ,this was long ago.)But maybe since these kids can't really empathize they should get lesser sentences but still be punished. I think with the way my son is it would only take one trip of not having everything just so and he'd be done.Just some thoughts.....Barry Hitchcock <bazndeb@...> wrote: I would say if your child has been taught right from wrong. Since there are developmental delays, then I would think they would have to be taught differently than other people. Some people don’t understand that. Look at the teachers who teaches our schools. Why do they have so many problems teaching these kids? They don’t understand these kids. Atleast our school doesn’t. I know it’s MY job as a parent to teach right from wrong and teachers teach academics but my point is here if the child with delays has a bad experience at school (which mine does) then this makes our job as parents much harder. In our case, my son breaks down, turns inward…what has he really learnt at all? As for now, I don’t have the skills to teach him the way he should be taught, which is why I am learning skills myself to reach him. We do what we have to do. Basically, if he has done a crime I would make sure he knew what he was doing, if he thought it was right or wrong firstly then I would judge if he needed to be reprimanded by law. Hopefully I have already taught him everything there is to know about right and wrong. They would never understand or hear the excuse “he is autistic” how many criminals do you know that have been let off the hook? IM not saying to simply excuse his crime but if we are talking about it….then I just thought I would add all of this. Debs in Bama J -----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of TIFFANY BISHOPSent: Friday, November 18, 2005 11:33 PMAutism and Aspergers Treatment Subject: RE: Question for ALL I agree ,they still should know right from wrong,they may have developmental problems ,but for most the difference between right and wrong isn't one of them,is it?Barry Hitchcock <bazndeb@...> wrote: Hhhmm…turn in your own child. Well that question would certainly stir a lot of people. I wouldn’t want to see my child get the death penalty but what would I really do???? I would hope, depending on the crime he would do the time. I think this is the only way people learn if they are going to learn?? -----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of WeberSent: Friday, November 18, 2005 9:11 AMAutism and Aspergers Treatment Subject: Re: Question for ALL I don't think it was abusive in any way! Hopefully it taught the girl a good lesson. It might have embarrassed the girl doing it, but it will save her alot more embarrassement later on in life. Sometimes you have to show tough love, as long as the child isn't being physically or mentally abused. There's one question also alot of parents have broughten up. Would you turn in your child if you knew he commited a crime? Alot of parent's would say NO!! I guess it would depend on the crime. What do you guys think? I would say, Yes, that I would. But then I've never been in that situation. It would have to probably be the hardest thing to do. But then there's that "tough love" question again. Barry Hitchcock <bazndeb@...> wrote: OK here is a question for everyone. Yesterday we were driving to my sons doctor’s appointment (over an hours drive away) I was listening to a talk show host program about a lady in Oklahoma and her daughter. The host asked everyone’s opinion on this matter and just thought I would bring it to the group to see what everyone here thinks. Callers called in with all kinds of opinions what is yours? The lady in Oklahoma was having problems with her daughter doing homework. It was so bad that she decided to teach her a lesson. IF she wasn’t to do her homework or to be educated, she took this upon herself to “show” her just what life would be like with no education. The lady took her daughter to a street corner and made a sign for her to hold up for every passing car that read “Will work for food”. They were there for an hour until someone reported her. DO you think the mother should be in trouble is this abuse? In your opinion, was this too harsh? Do you agree or disagree? Curious Deb’s --No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.3/173 - Release Date: 11/16/2005 --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.3/174 - Release Date: 11/17/2005 --No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.4/175 - Release Date: 11/18/2005 --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.4/175 - Release Date: 11/18/2005 --No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.4/176 - Release Date: 11/20/2005 --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.4/176 - Release Date: 11/20/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 lolo52 wrote: > I believe that the mother's intentions are good and no, she is not > trying to abuse her daughter. The problem is that for some > children,because of the way their brain works, it is impossible for > the, to do homework. It is not a question of a lack of will but ... > Yes, the child can learn a lesson, but again perhaps not. It may > cause the reverse effect, and put more guilt and despair over the > child if that child is an AS. Lolo >> >> Good for her! I wish the gummint would quit trying to micromanage >> our lives.... >> >> Abuse? No. Might have hurt her little feelings, but I betcha she >> gets over it and thanks her mom eventually. >> But nobody said anything about the girl being autistic. It sounded to me, from what we were told, that it was a rebellious teenager. That's something I also have experience with, having been one myself at one time and also having raised Louie's elder sister. She had a real problem with homework....not a physical one, just a procrastination one. She refused to do homework until the last minute. So we had to be something we don't like to be, we had to be mean. Homework was to be started (with a snack at hand) right after getting home from school. We refused to let her have dinner if her homework wasn't done. And this was not a lot of homework, either. I mean, if she had reading, she could do it after dinner (and no TV or going out until it was done). But all written work had to be done before dinner. She got home at 3:30, dinner was at 6, it was sufficient time. And we really had pitched battles about it, with yelling and screaming and slammed doors and everything! But the homework got done. A few years ago, she called to talk one evening. In the course of the conversation, she said that she didn't know how in the world we stood her when she was a teen! Said that if she'd been us, she'd have put her away somewhere!! And then thanked us for making sure she grew up with morals and graduated high school. So even with all the turmoil for those loooooong teenage years it's worth it in the end for everyone. Annie, who loves ya annie@... -- My sources are unreliable, but their information is fascinating. -- Ashleigh Brilliant Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 Well yes but as you and I know there are those people looking to get out of trouble and if it’s easier to say hey, IM sick to lessen the load of trouble they do so. I think this ruins it for people that are indeed legit with such issues. It’s with everything else, there are people who abuse the system and it makes it harder for the ones that are truly in need. I don’t think our system is ready for any of this but I do know they are over populated in jails etc…where do they put such individuals and this maybe the reason for less sentences. To be honest as I read your post (no pun attended) I thought wow now that’s scary…. your dad walking around with a loaded gun with lots of ammo and with a diagnosis of schizophrenia. Saying this it leads me back to the question, what would I do? Everyone is different, no people are alike, and diagnosis is a diagnosis if you commit a crime do you do the time? IF you were an average person and hearing this …it would make you stop and think… such as we are now… discussing it. I guess that’s why we aren’t in legal law huh? LOL Maybe that is why there are separate trials, court cases based on individuality and if you can “prove” yourself or if someone else can “prove” it for you that you Really didn’t know what you were doing based on your problems… is half the battle. Deb’s J Re: Question for ALL I don't think it was abusive in any way! Hopefully it taught the girl a good lesson. It might have embarrassed the girl doing it, but it will save her alot more embarrassement later on in life. Sometimes you have to show tough love, as long as the child isn't being physically or mentally abused. There's one question also alot of parents have broughten up. Would you turn in your child if you knew he commited a crime? Alot of parent's would say NO!! I guess it would depend on the crime. What do you guys think? I would say, Yes, that I would. But then I've never been in that situation. It would have to probably be the hardest thing to do. But then there's that " tough love " question again. Barry Hitchcock <bazndeb@...> wrote: OK here is a question for everyone. Yesterday we were driving to my sons doctor’s appointment (over an hours drive away) I was listening to a talk show host program about a lady in Oklahoma and her daughter. The host asked everyone’s opinion on this matter and just thought I would bring it to the group to see what everyone here thinks. Callers called in with all kinds of opinions what is yours? The lady in Oklahoma was having problems with her daughter doing homework. It was so bad that she decided to teach her a lesson. IF she wasn’t to do her homework or to be educated, she took this upon herself to “show” her just what life would be like with no education. The lady took her daughter to a street corner and made a sign for her to hold up for every passing car that read “Will work for food”. They were there for an hour until someone reported her. DO you think the mother should be in trouble is this abuse? In your opinion, was this too harsh? Do you agree or disagree? Curious Deb’s -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.3/173 - Release Date: 11/16/2005 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.3/174 - Release Date: 11/17/2005 -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.4/175 - Release Date: 11/18/2005 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.4/175 - Release Date: 11/18/2005 -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.4/176 - Release Date: 11/20/2005 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.4/176 - Release Date: 11/20/2005 -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.4/176 - Release Date: 11/20/2005 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.362 / Virus Database: 267.13.4/176 - Release Date: 11/20/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 Yea,this was really scary ,not only for the safety of my father but all of those involved because what if he would have hurt someone in one of his dilusions.He is O.K. now and even has the ability to joke and say things like ..wow that guy is crazier than me.Now that they have him on a med that works. I 'm pretty sure the cops went and shut that guy that sold it to him down.But I agree with you ,I don't think I could do that type of work though,I would be too lenient.Barry Hitchcock <bazndeb@...> wrote: Well yes but as you and I know there are those people looking to get out of trouble and if it’s easier to say hey, IM sick to lessen the load of trouble they do so. I think this ruins it for people that are indeed legit with such issues. It’s with everything else, there are people who abuse the system and it makes it harder for the ones that are truly in need. I don’t think our system is ready for any of this but I do know they are over populated in jails etc…where do they put such individuals and this maybe the reason for less sentences. To be honest as I read your post (no pun attended) I thought wow now that’s scary…. your dad walking around with a loaded gun with lots of ammo and with a diagnosis of schizophrenia. Saying this it leads me back to the question, what would I do? Everyone is different, no people are alike, and diagnosis is a diagnosis if you commit a crime do you do the time? IF you were an average person and hearing this …it would make you stop and think… such as we are now… discussing it. I guess that’s why we aren’t in legal law huh? LOL Maybe that is why there are separate trials, court cases based on individuality and if you can “prove” yourself or if someone else can “prove” it for you that you Really didn’t know what you were doing based on your problems… is half the battle. Deb’s J -----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of TIFFANY BISHOPSent: Sunday, November 20, 2005 2:13 PMAutism and Aspergers Treatment Subject: RE: Question for ALL That's a very good point.Maybe one day they will take this into consideration the same as they do people with schizophrenia.I know they get lesser sentences ,because my dad has it ,and one time went he wasn't taking his meds. he got in trouble carrying a loaded gun he had bought from a pawn shop with lots of ammo. Probably something that would put someone else into the state penn. But all he got was 30 days in a mental hospital. (He is fine now ,this was long ago.)But maybe since these kids can't really empathize they should get lesser sentences but still be punished. I think with the way my son is it would only take one trip of not having everything just so and he'd be done.Just some thoughts.....Barry Hitchcock <bazndeb@...> wrote: I would say if your child has been taught right from wrong. Since there are developmental delays, then I would think they would have to be taught differently than other people. Some people don’t understand that. Look at the teachers who teaches our schools. Why do they have so many problems teaching these kids? They don’t understand these kids. Atleast our school doesn’t. I know it’s MY job as a parent to teach right from wrong and teachers teach academics but my point is here if the child with delays has a bad experience at school (which mine does) then this makes our job as parents much harder. In our case, my son breaks down, turns inward…what has he really learnt at all? As for now, I don’t have the skills to teach him the way he should be taught, which is why I am learning skills myself to reach him. We do what we have to do. Basically, if he has done a crime I would make sure he knew what he was doing, if he thought it was right or wrong firstly then I would judge if he needed to be reprimanded by law. Hopefully I have already taught him everything there is to know about right and wrong. They would never understand or hear the excuse “he is autistic” how many criminals do you know that have been let off the hook? IM not saying to simply excuse his crime but if we are talking about it….then I just thought I would add all of this. Debs in Bama J -----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of TIFFANY BISHOPSent: Friday, November 18, 2005 11:33 PMAutism and Aspergers Treatment Subject: RE: Question for ALL I agree ,they still should know right from wrong,they may have developmental problems ,but for most the difference between right and wrong isn't one of them,is it?Barry Hitchcock <bazndeb@...> wrote: Hhhmm…turn in your own child. Well that question would certainly stir a lot of people. I wouldn’t want to see my child get the death penalty but what would I really do???? I would hope, depending on the crime he would do the time. I think this is the only way people learn if they are going to learn?? -----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of WeberSent: Friday, November 18, 2005 9:11 AMAutism and Aspergers Treatment Subject: Re: Question for ALL I don't think it was abusive in any way! Hopefully it taught the girl a good lesson. It might have embarrassed the girl doing it, but it will save her alot more embarrassement later on in life. Sometimes you have to show tough love, as long as the child isn't being physically or mentally abused. There's one question also alot of parents have broughten up. Would you turn in your child if you knew he commited a crime? Alot of parent's would say NO!! I guess it would depend on the crime. What do you guys think? I would say, Yes, that I would. But then I've never been in that situation. It would have to probably be the hardest thing to do. But then there's that "tough love" question again. Barry Hitchcock <bazndeb@...> wrote: OK here is a question for everyone. Yesterday we were driving to my sons doctor’s appointment (over an hours drive away) I was listening to a talk show host program about a lady in Oklahoma and her daughter. The host asked everyone’s opinion on this matter and just thought I would bring it to the group to see what everyone here thinks. Callers called in with all kinds of opinions what is yours? The lady in Oklahoma was having problems with her daughter doing homework. It was so bad that she decided to teach her a lesson. IF she wasn’t to do her homework or to be educated, she took this upon herself to “show” her just what life would be like with no education. The lady took her daughter to a street corner and made a sign for her to hold up for every passing car that read “Will work for food”. They were there for an hour until someone reported her. DO you think the mother should be in trouble is this abuse? In your opinion, was this too harsh? Do you agree or disagree? Curious Deb’s --No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.3/173 - Release Date: 11/16/2005 --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.3/174 - Release Date: 11/17/2005 --No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.4/175 - Release Date: 11/18/2005 --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.4/175 - Release Date: 11/18/2005 --No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.4/176 - Release Date: 11/20/2005 --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.4/176 - Release Date: 11/20/2005 --No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.4/176 - Release Date: 11/20/2005 --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.4/176 - Release Date: 11/20/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 Hi Debs - Your kid is kind hearted, empathetic. dlp The only problem I had was he wanted to “give” him food as we started to pull away. Anyway…IDeb’s J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 To be honest, Dawn, this makes no sense to me, either. Charlotte??? Ellen Ellen Garber Bronfeld egskb@... Question for all I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? Something doesn't sound right, and I am trying to understand this, can anyone help? thanks Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 To be honest, Dawn, this makes no sense to me, either. Charlotte??? Ellen Ellen Garber Bronfeld egskb@... Question for all I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? Something doesn't sound right, and I am trying to understand this, can anyone help? thanks Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Dawn this does not make sense to me either and I am an ISC. What I do know is that if there is no diagnosis of mental retardation one can still require active treatment if they have deficits 3 of the 6 following areas: Self care mobility learning language self direction capacity for independent living What is her disability? Tara Kosieniak www.sibsnetwork.org AdultSIBSNet listserv: AdultSibsNet/ SIBS Blogger: http://sibsnetwork.blogspot.com/ Face book group SIBS Network: http://www.facebook.com/home.php?#/group.php?gid=9209702292 Face book cause Supporting IL Brothers and Sisters: http://apps.facebook.com/causes/118226?m=63ef53bf I isearchigive for SIBS (Supporting Illinois Brothers and Sisters) Help me raise money for SIBS just by searching the Internet with www.isearchigive.com/SIBS and when shopping on line go to www.igive.com/SIBS From: sweettart_60638 <sweettart_60638@...> Subject: Question for all IPADDUnite Date: Tuesday, July 21, 2009, 8:57 AM I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? Something doesn't sound right, and I am trying to understand this, can anyone help? thanks Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Dawn this does not make sense to me either and I am an ISC. What I do know is that if there is no diagnosis of mental retardation one can still require active treatment if they have deficits 3 of the 6 following areas: Self care mobility learning language self direction capacity for independent living What is her disability? Tara Kosieniak www.sibsnetwork.org AdultSIBSNet listserv: AdultSibsNet/ SIBS Blogger: http://sibsnetwork.blogspot.com/ Face book group SIBS Network: http://www.facebook.com/home.php?#/group.php?gid=9209702292 Face book cause Supporting IL Brothers and Sisters: http://apps.facebook.com/causes/118226?m=63ef53bf I isearchigive for SIBS (Supporting Illinois Brothers and Sisters) Help me raise money for SIBS just by searching the Internet with www.isearchigive.com/SIBS and when shopping on line go to www.igive.com/SIBS From: sweettart_60638 <sweettart_60638@...> Subject: Question for all IPADDUnite Date: Tuesday, July 21, 2009, 8:57 AM I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? Something doesn't sound right, and I am trying to understand this, can anyone help? thanks Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 I'm confused, too, partly just because this active treatment stuff is so stupid to me. I'm pretty sure that Director Teninty has said that she wants to take that language out of a new waiver. We don't want active treatment, we want a life! But that doesn't help right this minute. Were you " invited to apply " for the Home-Based Support Services Program or did you just send it in? You can really only get in the program now if your name is drawn from the PUNS and you are invited to apply or your sister is in a crisis. Or this could be the way that your local case coordination agency is interpreting waiver language. Anyway, if I were in your shoes, I'd call you Network Facilitator, and ask him or her. Do you know who that is? Charlotte _____ From: IPADDUnite [mailto:IPADDUnite ] On Behalf Of ELLEN BRONFELD Sent: Tuesday, July 21, 2009 9:04 AM IPADDUnite Subject: Re: Question for all To be honest, Dawn, this makes no sense to me, either. Charlotte??? Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) <mailto:egskb%40sbcglobal.net> net Question for all I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? Something doesn't sound right, and I am trying to understand this, can anyone help? thanks Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 I'm confused, too, partly just because this active treatment stuff is so stupid to me. I'm pretty sure that Director Teninty has said that she wants to take that language out of a new waiver. We don't want active treatment, we want a life! But that doesn't help right this minute. Were you " invited to apply " for the Home-Based Support Services Program or did you just send it in? You can really only get in the program now if your name is drawn from the PUNS and you are invited to apply or your sister is in a crisis. Or this could be the way that your local case coordination agency is interpreting waiver language. Anyway, if I were in your shoes, I'd call you Network Facilitator, and ask him or her. Do you know who that is? Charlotte _____ From: IPADDUnite [mailto:IPADDUnite ] On Behalf Of ELLEN BRONFELD Sent: Tuesday, July 21, 2009 9:04 AM IPADDUnite Subject: Re: Question for all To be honest, Dawn, this makes no sense to me, either. Charlotte??? Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) <mailto:egskb%40sbcglobal.net> net Question for all I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? Something doesn't sound right, and I am trying to understand this, can anyone help? thanks Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Could this mean the state feels she requires either in-home nursing care or residential nursing home services? I remember when we did that DRS application, it was not to prevent 'institutionalization' but to prevent 'need for nursing home care'...so could it be that the DHS/Developmental Disabilities Division is punting over to some other Division within DHS? Just a thought.. L. Question for all I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? Something doesn't sound right, and I am trying to understand this, can anyone help? thanks Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Could this mean the state feels she requires either in-home nursing care or residential nursing home services? I remember when we did that DRS application, it was not to prevent 'institutionalization' but to prevent 'need for nursing home care'...so could it be that the DHS/Developmental Disabilities Division is punting over to some other Division within DHS? Just a thought.. L. Question for all I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? Something doesn't sound right, and I am trying to understand this, can anyone help? thanks Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 In response to my first post: The story goes like this, my father died when we were very little, my mother passed away 2 years ago, Jodi had no other place to go, so me and my sister Rose took Jodi in and we are caring for her. Since then we have been trying to get services for my sister. We are looking for a higher functioning ICF (Alden Trails) or a CILA for her residence. Jodi requires a nurse for her g-tube feedings, and for her medicine distribution and suctioning support. Jodi has Arthrogryposis, Epilepsy, Asthma, Pierre Robin syndrome and cannot talk/swallow. She wears AFO leg braces to help her walk, and she cannot completley take care of herself. For the time being we are basically passing her house to house so we can work/care for her because she cannot be left alone ever. which is very stressful for on all of us, she needs a stable home and her own life. So Jodi qualifies for " emergency status " and at the time their were no openings for a higher functioning ICF so we in turn applied for Home based support services and were denied. Now Alden Trails has an opening and my caseworker at Suburban Access is telling me that Jodi cannot get placed into an ICF now because she was denied the home based support services. The reason they denied her is " Does not need active treatment " ? and they gaver her alternative support services: Dept. of Rehab services and Progress Center for Independent Living. I don't know what any of this means and don't understand why she doesn't qualify for an ICF with her medical/physical emergency needs. I don't understand what all this means and why she cannot get placed in an ICF, doesn't she have a right to services? Everyone that I talk to are telling me that something is not right with her case. I am 29 years old, my other sister Rose is 27 basically we are newbies with working with DHS, etc... Any light you can shed on this would be very much appreciated. Thanks Dawn > > I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? > > We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? > > Something doesn't sound right, and I am trying to understand this, can anyone help? > > > thanks > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 In response to my first post: The story goes like this, my father died when we were very little, my mother passed away 2 years ago, Jodi had no other place to go, so me and my sister Rose took Jodi in and we are caring for her. Since then we have been trying to get services for my sister. We are looking for a higher functioning ICF (Alden Trails) or a CILA for her residence. Jodi requires a nurse for her g-tube feedings, and for her medicine distribution and suctioning support. Jodi has Arthrogryposis, Epilepsy, Asthma, Pierre Robin syndrome and cannot talk/swallow. She wears AFO leg braces to help her walk, and she cannot completley take care of herself. For the time being we are basically passing her house to house so we can work/care for her because she cannot be left alone ever. which is very stressful for on all of us, she needs a stable home and her own life. So Jodi qualifies for " emergency status " and at the time their were no openings for a higher functioning ICF so we in turn applied for Home based support services and were denied. Now Alden Trails has an opening and my caseworker at Suburban Access is telling me that Jodi cannot get placed into an ICF now because she was denied the home based support services. The reason they denied her is " Does not need active treatment " ? and they gaver her alternative support services: Dept. of Rehab services and Progress Center for Independent Living. I don't know what any of this means and don't understand why she doesn't qualify for an ICF with her medical/physical emergency needs. I don't understand what all this means and why she cannot get placed in an ICF, doesn't she have a right to services? Everyone that I talk to are telling me that something is not right with her case. I am 29 years old, my other sister Rose is 27 basically we are newbies with working with DHS, etc... Any light you can shed on this would be very much appreciated. Thanks Dawn > > I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? > > We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? > > Something doesn't sound right, and I am trying to understand this, can anyone help? > > > thanks > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Hav eyou addressed this with your network facilitator? I had been under the impression our director of dd was aware of your sister. I am more disappointed than ever that this is still the case. Your sister is indeed am emergency. Has any answered where she would be if it were not for you andyour other sister. This should be at Pat Quinns desk. This could be anyone of us. I am so sorry you are having to deal with this. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Hav eyou addressed this with your network facilitator? I had been under the impression our director of dd was aware of your sister. I am more disappointed than ever that this is still the case. Your sister is indeed am emergency. Has any answered where she would be if it were not for you andyour other sister. This should be at Pat Quinns desk. This could be anyone of us. I am so sorry you are having to deal with this. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 This is a wild guess, but now that I recall your sister's story and have re-read the bureaucratic lingo, I'd say that they might be saying-- " Her health care needs are too complicated for the program we offer. You need to try a basically medical kind of program. " OR " We can't fund something so intensive in a home-based setting. " They are probably viewing your sister as a candidate for a nursing home arrangement. I know you are aggravated beyond belief, but it might be worth a try to call Div of Rehab Services, and tell your story, including what these clueless people told you. The reason I suggest it is because I think that DRS will say that this is wrong, and they may be able to steer you to the right people. My guess is that you'll be talking to your legislators before this is over. Maybe you should start now. Ask them why someone in your sister's situation cannot get any kind of help. -Gail From: sweettart_60638 <sweettart_60638@...> Subject: Re: Question for all IPADDUnite Date: Tuesday, July 21, 2009, 7:44 PM In response to my first post: The story goes like this, my father died when we were very little, my mother passed away 2 years ago, Jodi had no other place to go, so me and my sister Rose took Jodi in and we are caring for her. Since then we have been trying to get services for my sister. We are looking for a higher functioning ICF (Alden Trails) or a CILA for her residence. Jodi requires a nurse for her g-tube feedings, and for her medicine distribution and suctioning support. Jodi has Arthrogryposis, Epilepsy, Asthma, Pierre Robin syndrome and cannot talk/swallow. She wears AFO leg braces to help her walk, and she cannot completley take care of herself. For the time being we are basically passing her house to house so we can work/care for her because she cannot be left alone ever. which is very stressful for on all of us, she needs a stable home and her own life. So Jodi qualifies for " emergency status " and at the time their were no openings for a higher functioning ICF so we in turn applied for Home based support services and were denied. Now Alden Trails has an opening and my caseworker at Suburban Access is telling me that Jodi cannot get placed into an ICF now because she was denied the home based support services. The reason they denied her is " Does not need active treatment " ? and they gaver her alternative support services: Dept. of Rehab services and Progress Center for Independent Living. I don't know what any of this means and don't understand why she doesn't qualify for an ICF with her medical/physical emergency needs. I don't understand what all this means and why she cannot get placed in an ICF, doesn't she have a right to services? Everyone that I talk to are telling me that something is not right with her case. I am 29 years old, my other sister Rose is 27 basically we are newbies with working with DHS, etc... Any light you can shed on this would be very much appreciated. Thanks Dawn > > I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? > > We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? > > Something doesn't sound right, and I am trying to understand this, can anyone help? > > > thanks > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 This is a wild guess, but now that I recall your sister's story and have re-read the bureaucratic lingo, I'd say that they might be saying-- " Her health care needs are too complicated for the program we offer. You need to try a basically medical kind of program. " OR " We can't fund something so intensive in a home-based setting. " They are probably viewing your sister as a candidate for a nursing home arrangement. I know you are aggravated beyond belief, but it might be worth a try to call Div of Rehab Services, and tell your story, including what these clueless people told you. The reason I suggest it is because I think that DRS will say that this is wrong, and they may be able to steer you to the right people. My guess is that you'll be talking to your legislators before this is over. Maybe you should start now. Ask them why someone in your sister's situation cannot get any kind of help. -Gail From: sweettart_60638 <sweettart_60638@...> Subject: Re: Question for all IPADDUnite Date: Tuesday, July 21, 2009, 7:44 PM In response to my first post: The story goes like this, my father died when we were very little, my mother passed away 2 years ago, Jodi had no other place to go, so me and my sister Rose took Jodi in and we are caring for her. Since then we have been trying to get services for my sister. We are looking for a higher functioning ICF (Alden Trails) or a CILA for her residence. Jodi requires a nurse for her g-tube feedings, and for her medicine distribution and suctioning support. Jodi has Arthrogryposis, Epilepsy, Asthma, Pierre Robin syndrome and cannot talk/swallow. She wears AFO leg braces to help her walk, and she cannot completley take care of herself. For the time being we are basically passing her house to house so we can work/care for her because she cannot be left alone ever. which is very stressful for on all of us, she needs a stable home and her own life. So Jodi qualifies for " emergency status " and at the time their were no openings for a higher functioning ICF so we in turn applied for Home based support services and were denied. Now Alden Trails has an opening and my caseworker at Suburban Access is telling me that Jodi cannot get placed into an ICF now because she was denied the home based support services. The reason they denied her is " Does not need active treatment " ? and they gaver her alternative support services: Dept. of Rehab services and Progress Center for Independent Living. I don't know what any of this means and don't understand why she doesn't qualify for an ICF with her medical/physical emergency needs. I don't understand what all this means and why she cannot get placed in an ICF, doesn't she have a right to services? Everyone that I talk to are telling me that something is not right with her case. I am 29 years old, my other sister Rose is 27 basically we are newbies with working with DHS, etc... Any light you can shed on this would be very much appreciated. Thanks Dawn > > I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? > > We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? > > Something doesn't sound right, and I am trying to understand this, can anyone help? > > > thanks > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 Gail, that is the advice I gave the family too in a phone call today. Go to DRS for Home Services but also appeal that ineligibilty decision because that will bite you later if you don't. ________________________________ From: G Mrozak <mrsovaltine@...> IPADDUnite Sent: Wednesday, July 22, 2009 11:02:42 AM Subject: Re: Re: Question for all This is a wild guess, but now that I recall your sister's story and have re-read the bureaucratic lingo, I'd say that they might be saying-- " Her health care needs are too complicated for the program we offer. You need to try a basically medical kind of program. " OR " We can't fund something so intensive in a home-based setting. " They are probably viewing your sister as a candidate for a nursing home arrangement. I know you are aggravated beyond belief, but it might be worth a try to call Div of Rehab Services, and tell your story, including what these clueless people told you. The reason I suggest it is because I think that DRS will say that this is wrong, and they may be able to steer you to the right people. My guess is that you'll be talking to your legislators before this is over. Maybe you should start now. Ask them why someone in your sister's situation cannot get any kind of help. -Gail From: sweettart_60638 <sweettart_60638> Subject: Re: Question for all IPADDUnite@gro ups.com Date: Tuesday, July 21, 2009, 7:44 PM In response to my first post: The story goes like this, my father died when we were very little, my mother passed away 2 years ago, Jodi had no other place to go, so me and my sister Rose took Jodi in and we are caring for her. Since then we have been trying to get services for my sister. We are looking for a higher functioning ICF (Alden Trails) or a CILA for her residence. Jodi requires a nurse for her g-tube feedings, and for her medicine distribution and suctioning support. Jodi has Arthrogryposis, Epilepsy, Asthma, Pierre Robin syndrome and cannot talk/swallow. She wears AFO leg braces to help her walk, and she cannot completley take care of herself. For the time being we are basically passing her house to house so we can work/care for her because she cannot be left alone ever. which is very stressful for on all of us, she needs a stable home and her own life. So Jodi qualifies for " emergency status " and at the time their were no openings for a higher functioning ICF so we in turn applied for Home based support services and were denied. Now Alden Trails has an opening and my caseworker at Suburban Access is telling me that Jodi cannot get placed into an ICF now because she was denied the home based support services. The reason they denied her is " Does not need active treatment " ? and they gaver her alternative support services: Dept. of Rehab services and Progress Center for Independent Living. I don't know what any of this means and don't understand why she doesn't qualify for an ICF with her medical/physical emergency needs. I don't understand what all this means and why she cannot get placed in an ICF, doesn't she have a right to services? Everyone that I talk to are telling me that something is not right with her case. I am 29 years old, my other sister Rose is 27 basically we are newbies with working with DHS, etc... Any light you can shed on this would be very much appreciated. Thanks Dawn > > I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? > > We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? > > Something doesn't sound right, and I am trying to understand this, can anyone help? > > > thanks > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 Gail, that is the advice I gave the family too in a phone call today. Go to DRS for Home Services but also appeal that ineligibilty decision because that will bite you later if you don't. ________________________________ From: G Mrozak <mrsovaltine@...> IPADDUnite Sent: Wednesday, July 22, 2009 11:02:42 AM Subject: Re: Re: Question for all This is a wild guess, but now that I recall your sister's story and have re-read the bureaucratic lingo, I'd say that they might be saying-- " Her health care needs are too complicated for the program we offer. You need to try a basically medical kind of program. " OR " We can't fund something so intensive in a home-based setting. " They are probably viewing your sister as a candidate for a nursing home arrangement. I know you are aggravated beyond belief, but it might be worth a try to call Div of Rehab Services, and tell your story, including what these clueless people told you. The reason I suggest it is because I think that DRS will say that this is wrong, and they may be able to steer you to the right people. My guess is that you'll be talking to your legislators before this is over. Maybe you should start now. Ask them why someone in your sister's situation cannot get any kind of help. -Gail From: sweettart_60638 <sweettart_60638> Subject: Re: Question for all IPADDUnite@gro ups.com Date: Tuesday, July 21, 2009, 7:44 PM In response to my first post: The story goes like this, my father died when we were very little, my mother passed away 2 years ago, Jodi had no other place to go, so me and my sister Rose took Jodi in and we are caring for her. Since then we have been trying to get services for my sister. We are looking for a higher functioning ICF (Alden Trails) or a CILA for her residence. Jodi requires a nurse for her g-tube feedings, and for her medicine distribution and suctioning support. Jodi has Arthrogryposis, Epilepsy, Asthma, Pierre Robin syndrome and cannot talk/swallow. She wears AFO leg braces to help her walk, and she cannot completley take care of herself. For the time being we are basically passing her house to house so we can work/care for her because she cannot be left alone ever. which is very stressful for on all of us, she needs a stable home and her own life. So Jodi qualifies for " emergency status " and at the time their were no openings for a higher functioning ICF so we in turn applied for Home based support services and were denied. Now Alden Trails has an opening and my caseworker at Suburban Access is telling me that Jodi cannot get placed into an ICF now because she was denied the home based support services. The reason they denied her is " Does not need active treatment " ? and they gaver her alternative support services: Dept. of Rehab services and Progress Center for Independent Living. I don't know what any of this means and don't understand why she doesn't qualify for an ICF with her medical/physical emergency needs. I don't understand what all this means and why she cannot get placed in an ICF, doesn't she have a right to services? Everyone that I talk to are telling me that something is not right with her case. I am 29 years old, my other sister Rose is 27 basically we are newbies with working with DHS, etc... Any light you can shed on this would be very much appreciated. Thanks Dawn > > I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? > > We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? > > Something doesn't sound right, and I am trying to understand this, can anyone help? > > > thanks > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 I suggest you and your sister, take Gail's advice and contact your state representative, or Judy Biggert right away. Bring video of your sister to show. From: IPADDUnite [mailto:IPADDUnite ] On Behalf Of G Mrozak Sent: Wednesday, July 22, 2009 11:03 AM IPADDUnite Subject: Re: Re: Question for all This is a wild guess, but now that I recall your sister's story and have re-read the bureaucratic lingo, I'd say that they might be saying-- " Her health care needs are too complicated for the program we offer. You need to try a basically medical kind of program. " OR " We can't fund something so intensive in a home-based setting. " They are probably viewing your sister as a candidate for a nursing home arrangement. I know you are aggravated beyond belief, but it might be worth a try to call Div of Rehab Services, and tell your story, including what these clueless people told you. The reason I suggest it is because I think that DRS will say that this is wrong, and they may be able to steer you to the right people. My guess is that you'll be talking to your legislators before this is over. Maybe you should start now. Ask them why someone in your sister's situation cannot get any kind of help. -Gail From: sweettart_60638 <sweettart_60638@... <mailto:sweettart_60638%40> > Subject: Re: Question for all IPADDUnite <mailto:IPADDUnite%40> Date: Tuesday, July 21, 2009, 7:44 PM In response to my first post: The story goes like this, my father died when we were very little, my mother passed away 2 years ago, Jodi had no other place to go, so me and my sister Rose took Jodi in and we are caring for her. Since then we have been trying to get services for my sister. We are looking for a higher functioning ICF (Alden Trails) or a CILA for her residence. Jodi requires a nurse for her g-tube feedings, and for her medicine distribution and suctioning support. Jodi has Arthrogryposis, Epilepsy, Asthma, Pierre Robin syndrome and cannot talk/swallow. She wears AFO leg braces to help her walk, and she cannot completley take care of herself. For the time being we are basically passing her house to house so we can work/care for her because she cannot be left alone ever. which is very stressful for on all of us, she needs a stable home and her own life. So Jodi qualifies for " emergency status " and at the time their were no openings for a higher functioning ICF so we in turn applied for Home based support services and were denied. Now Alden Trails has an opening and my caseworker at Suburban Access is telling me that Jodi cannot get placed into an ICF now because she was denied the home based support services. The reason they denied her is " Does not need active treatment " ? and they gaver her alternative support services: Dept. of Rehab services and Progress Center for Independent Living. I don't know what any of this means and don't understand why she doesn't qualify for an ICF with her medical/physical emergency needs. I don't understand what all this means and why she cannot get placed in an ICF, doesn't she have a right to services? Everyone that I talk to are telling me that something is not right with her case. I am 29 years old, my other sister Rose is 27 basically we are newbies with working with DHS, etc... Any light you can shed on this would be very much appreciated. Thanks Dawn > > I applied for home based services for my sister and got this response, does anyone know exactly what this means? " you do not need active treatment for your developmental disability rather your limitations appear to be related to your medical condistion requiring nursing assistance rather than active treatment " I am trying to get a clear answer from my case worker and I am having no luck, in which I was also told that she cannot get into an ICF because of the results of this letter, does anyone know if this is true of not? > > We only applied for Home based support, and basically if we didn't apply for the home based services she could of been placed in an ICF? They have an opening at an ICF that she wants to go to, and yet my caseworker is saying she can't be placed, yet she is an emergency status, and has a Developmental disability and requires 24 hour nursing, where else is she supposed to go? > > Something doesn't sound right, and I am trying to understand this, can anyone help? > > > thanks > Dawn > Quote Link to comment Share on other sites More sharing options...
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