Re: Questionaire question re: mildew/fungus

April 15, 2003

Thanks vic,

That's a great idea. I will add it.

On Tue, 2003-04-15 at 12:26, vicloisel@... wrote:

> Hi Tami et al,

>

> Based on the responses to my posting about having lived in a damp,

> mildewy basement apartment around the time I started developing

> Samters, I would definitely suggest including a question or 2 about

> that sort of thing on your questionnaire. Such as:

>

> Have you ever lived or worked in a damp apartment or other indoor

> environment with a noticeable or suspected presence of mold, mildew,

> or fungus (on walls, baseboards, etc)? If so, how does that period

> correlate, time-wise, to onset of Samters symptoms? If after onset,

> was there any worsening of symptoms?

>

> Thanks,

> - Vic -

>

April 15, 2003

actually i'm not sure that I can -- I think it's just an initial

message, and can't be edited. Anyone have suggestions on how to do

this?

On Tue, 2003-04-15 at 12:26, vicloisel@... wrote:

> Hi Tami et al,

>

> Based on the responses to my posting about having lived in a damp,

> mildewy basement apartment around the time I started developing

> Samters, I would definitely suggest including a question or 2 about

> that sort of thing on your questionnaire. Such as:

>

> Have you ever lived or worked in a damp apartment or other indoor

> environment with a noticeable or suspected presence of mold, mildew,

> or fungus (on walls, baseboards, etc)? If so, how does that period

> correlate, time-wise, to onset of Samters symptoms? If after onset,

> was there any worsening of symptoms?

>

> Thanks,

> - Vic -

>

April 15, 2003

While we're on the subject, a few other questions have occured to me

recently:

1. Does anyone else experience, every once in a while, a wierd

pulsating feeling in a blood vessel somewhere? Every once in a while I

get this, in a random place like the arm or leg, or even temple.

2. Did anyone else here use melatonin around the time of first noticing

symptoms?

3. Did anyone else here have insomnia around that time, or a strange

sleep cycle that was out of sync with Mr. Sun?

The reason I ask is because I recently came across an article (I'll post

it)

http://www.nel.edu/23_4/NEL230402R02_Evsyukova.htm

which links leukotriene overproduction in us ASA types with low daytime

production of melatonin. I've always been a " night person " , doing my

best work and having the most energy after the sun goes down. I'm

wondering if there's a trend.

On Tue, 2003-04-15 at 14:35, Condouris wrote:

> actually i'm not sure that I can -- I think it's just an initial

> message, and can't be edited. Anyone have suggestions on how to do

> this?

>

> On Tue, 2003-04-15 at 12:26, vicloisel@... wrote:

> > Hi Tami et al,

> >

> > Based on the responses to my posting about having lived in a damp,

> > mildewy basement apartment around the time I started developing

> > Samters, I would definitely suggest including a question or 2 about

> > that sort of thing on your questionnaire. Such as:

> >

> > Have you ever lived or worked in a damp apartment or other indoor

> > environment with a noticeable or suspected presence of mold, mildew,

> > or fungus (on walls, baseboards, etc)? If so, how does that period

> > correlate, time-wise, to onset of Samters symptoms? If after onset,

> > was there any worsening of symptoms?

> >

> > Thanks,

> > - Vic -

> >

April 15, 2003

I've always been an early morning person, but since all this Samters stuff started I am tired ALL of the time :-) If I don't get a good 8-9 hours of sleep I am usually wiped out the next day. Even when I do get enough sleep I still feel tired all of the time. I used to be a very active person and I have had to cut way back because I just can't do it anymore.

Rob

2. Did anyone else here use melatonin around the time of first noticingsymptoms?3. Did anyone else here have insomnia around that time, or a strangesleep cycle that was out of sync with Mr. Sun?The reason I ask is because I recently came across an article (I'll postit) http://www.nel.edu/23_4/NEL230402R02_Evsyukova.htmwhich links leukotriene overproduction in us ASA types with low daytimeproduction of melatonin. I've always been a "night person", doing mybest work and having the most energy after the sun goes down. I'mwondering if there's a trend.

April 15, 2003

Rob, you might also want to have yourself checked for sleep apnea -- the

samter's symptoms can't be helping, but unrefreshing sleep can often be

an indicator of apnea.

On Tue, 2003-04-15 at 15:31, Rob Cumberledge wrote:

> I've always been an early morning person, but since all this Samters

> stuff started I am tired ALL of the time :-) If I don't get a good

> 8-9 hours of sleep I am usually wiped out the next day. Even when I

> do get enough sleep I still feel tired all of the time. I used to be

> a very active person and I have had to cut way back because I just

> can't do it anymore.

>

> Rob

> 2. Did anyone else here use melatonin around the time of

> first noticing

> symptoms?

>

> 3. Did anyone else here have insomnia around that time, or a

> strange

> sleep cycle that was out of sync with Mr. Sun?

>

> The reason I ask is because I recently came across an article

> (I'll post

> it)

> http://www.nel.edu/23_4/NEL230402R02_Evsyukova.htm

>

> which links leukotriene overproduction in us ASA types with

> low daytime

> production of melatonin. I've always been a " night person " ,

> doing my

> best work and having the most energy after the sun goes down.

> I'm

> wondering if there's a trend.

>

April 15, 2003

Been there, done that. In fact, when I was at Scripps they were running a "volunteer" sleep study and they also said I was fine (sleep wise). It's just the rest of my body that is screwed up.

Re: Questionaire question re: mildew/fungus

Rob, you might also want to have yourself checked for sleep apnea -- thesamter's symptoms can't be helping, but unrefreshing sleep can often bean indicator of apnea.On Tue, 2003-04-15 at 15:31, Rob Cumberledge wrote:> I've always been an early morning person, but since all this Samters> stuff started I am tired ALL of the time :-) If I don't get a good> 8-9 hours of sleep I am usually wiped out the next day. Even when I> do get enough sleep I still feel tired all of the time. I used to be> a very active person and I have had to cut way back because I just> can't do it anymore.> > Rob> 2. Did anyone else here use melatonin around the time of> first noticing> symptoms?> > 3. Did anyone else here have insomnia around that time, or a> strange> sleep cycle that was out of sync with Mr. Sun?> > The reason I ask is because I recently came across an article> (I'll post> it) > http://www.nel.edu/23_4/NEL230402R02_Evsyukova.htm> > which links leukotriene overproduction in us ASA types with> low daytime> production of melatonin. I've always been a "night person",> doing my> best work and having the most energy after the sun goes down. > I'm> wondering if there's a trend.> > >

April 15, 2003

Rob,

Thanks very much for the interesting article. I had never seen any mention before of Melatonin relative to Samters. I have never taken Melatonin myself. Of course, like many with Aspirin Triad, I do feel fatigued much of the time. I'll have to ask my Dr. about it. I never recall anything special/memorable happening when I first realized that I had polyps. I had hayfever all my life and had bee stings also, but none directly related to the onset of ASA. I would guess that I had taken Ornade or another common antihistamine for much of my life - especially during the autumn season. Houston, TX had both mold and air pollution back in 1990 when I first developed ASA, but I was living in an air-conditioned house (with electrostatic precipitator filters on the A/C).

Jim

Re: Questionaire question re: mildew/fungus

I've always been an early morning person, but since all this Samters stuff started I am tired ALL of the time :-) If I don't get a good 8-9 hours of sleep I am usually wiped out the next day. Even when I do get enough sleep I still feel tired all of the time. I used to be a very active person and I have had to cut way back because I just can't do it anymore.

Rob

2. Did anyone else here use melatonin around the time of first noticingsymptoms?3. Did anyone else here have insomnia around that time, or a strangesleep cycle that was out of sync with Mr. Sun?The reason I ask is because I recently came across an article (I'll postit) http://www.nel.edu/23_4/NEL230402R02_Evsyukova.htmwhich links leukotriene overproduction in us ASA types with low daytimeproduction of melatonin. I've always been a "night person", doing mybest work and having the most energy after the sun goes down. I'mwondering if there's a trend.

April 15, 2003

Thanks for all the responses for the questionaire. Keeping thinking everyone of your worst time period with samters, when you felt the sickest and what you were doing for a living ect. I can tell we've all had thoughts of what causes our symtoms to become overwhelming. I'll be gone for a four day vacation (much needed) so email your questions and I'll get them together. Thank you everyone. I have to tell you all it's so uplifting to be in contact with so many people. I've almost become a recluse since I've become ill with samters. I finally feel like I'm in contact with the world again. Who knows, maybe I'll even become spontaneous this weekend. What a surprise that would be for my husband!

Tami

Re: Questionaire question re: mildew/fungus

Thanks vic,That's a great idea. I will add it.On Tue, 2003-04-15 at 12:26, vicloisel@... wrote:> Hi Tami et al,> > Based on the responses to my posting about having lived in a damp,> mildewy basement apartment around the time I started developing> Samters, I would definitely suggest including a question or 2 about> that sort of thing on your questionnaire. Such as:> > Have you ever lived or worked in a damp apartment or other indoor> environment with a noticeable or suspected presence of mold, mildew,> or fungus (on walls, baseboards, etc)? If so, how does that period> correlate, time-wise, to onset of Samters symptoms? If after onset,> was there any worsening of symptoms?> > Thanks,> - Vic ->

April 17, 2003

I've tried to take Melatonin a few times but found that it greatly

aggrevated my sinus problems. Just reciently I've been taking

liquid calcium at night before bedtime and its the best thing I've

ever done for sleeping, its just great. Also if you have taken oral

cortizone you need to consider bone loss and a need for

calcium anyway. I've been taking Singular and my Asthma has

been greatly improved, but my sinus and nasal polyps problem

has been a real pain. I can't get any air through one side going

on two years now. I am affected by mold and I live about six

miles from the ocean. When I lived further inland in a hot and dry

environment I felt much better. Although I live in San Diego I will

not go to Scripps for Samter treatment. Who wants to take asprin

everyday with the possible side-effects. The only time I took two

asprin in my adult life since getting asthma I wound up in the

emergency room. Has anyone heard of treating polyps with

caspsaicin? Its been done in Europe and I'm trying to find a

nasal product that contains it, no luck yet.

> Rob,

> Thanks very much for the interesting article. I had never seen

any mention before of Melatonin relative to Samters. I have never

taken Melatonin myself. Of course, like many with Aspirin Triad, I

do feel fatigued much of the time. I'll have to ask my Dr. about it. I

never recall anything special/memorable happening when I first

realized that I had polyps. I had hayfever all my life and had bee

stings also, but none directly related to the onset of ASA. I would

guess that I had taken Ornade or another common

antihistamine for much of my life - especially during the autumn

season. Houston, TX had both mold and air pollution back in

1990 when I first developed ASA, but I was living in an

air-conditioned house (with electrostatic precipitator filters on the

A/C).

> Jim

> Re: Questionaire question re:

mildew/fungus

>

> I've always been an early morning person, but since all this

Samters stuff started I am tired ALL of the time :-) If I don't get a

good 8-9 hours of sleep I am usually wiped out the next day.

Even when I do get enough sleep I still feel tired all of the time. I

used to be a very active person and I have had to cut way back

because I just can't do it anymore.

>

> Rob

>

> 2. Did anyone else here use melatonin around the time of

first noticing

> symptoms?

>

> 3. Did anyone else here have insomnia around that time, or

a strange

> sleep cycle that was out of sync with Mr. Sun?

>

> The reason I ask is because I recently came across an

article (I'll post

> it)

> http://www.nel.edu/23_4/NEL230402R02_Evsyukova.htm

>

> which links leukotriene overproduction in us ASA types with

low daytime

> production of melatonin. I've always been a " night person " ,

doing my

> best work and having the most energy after the sun goes

down. I'm

> wondering if there's a trend.

>

April 17, 2003