Aspirin Desen

[Guest guest]

Where are you getting the desense done, with Dr. Bosso? If it's with a

good doctor, I really feel it's nothing to worry about. I had very

severe reactions and almost died when I took it before I knew I would

have a reaction, but the desense was really a piece of cake. I already

had an IV in so they could administer the meds right away and control

the reaction from the first moment I felt it.

As you probably know, it most definitely improved my symptoms, and not

only was I able to stay off prednisone while on the aspirin, I have

rarely taken prednisone since the first time I was desensitized ten

years ago, even since I've been off the aspirin now for three and a

half years. Before the desense, even doses as high as 50 milligrams

and up of prednisone did not control my symptoms at all.

Lori

[Guest guest]

Hi Lori,

Since I'm newly diagnosed please forgive this stupid question...But since you quit taking aspirin 3 plus years ago are your symptoms still in check. Are you allergic to aspirin? Isyou asthma better? My doctor wants to desensitize me but I'm very nervous. thank you,Ollietruelori <lori@...> wrote:

Where are you getting the desense done, with Dr. Bosso? If it's with a good doctor, I really feel it's nothing to worry about. I had very severe reactions and almost died when I took it before I knew I would have a reaction, but the desense was really a piece of cake. I already had an IV in so they could administer the meds right away and control the reaction from the first moment I felt it.As you probably know, it most definitely improved my symptoms, and not only was I able to stay off prednisone while on the aspirin, I have rarely taken prednisone since the first time I was desensitized ten years ago, even since I've been off the aspirin now for three and a half years. Before the desense, even doses as high as 50 milligrams and up of prednisone did not control my symptoms at

all.Lori

[Guest guest]

Hello to all, I am very excited to say that I am now on Zyflo! My Doctor seems to feel that this really is a key to reducing polyp growth and controlling the asthma associated with Samters. I am having surgery on the 18th and I am in the process of working out the details for aspirin desentization- my doctor is trying to persuade my insurance company. It feels good to be making some strides toward improved health instead of being run over by this disorder. It is hard to tell if the zyflo is working because of the pre surgery prednisone burst, I will keep you posted. I will also resume pulmicort respule rinses after the surgery I put mine in a saline solution and use a Neilsmed bottle.

, NH

Re: Re: aspirin desen

Hi Lori,

Since I'm newly diagnosed please forgive this stupid question...But since you quit taking aspirin 3 plus years ago are your symptoms still in check. Are you allergic to aspirin? Isyou asthma better? My doctor wants to desensitize me but I'm very nervous. thank you,Ollietruelori <lori@...> wrote:

Where are you getting the desense done, with Dr. Bosso? If it's with a good doctor, I really feel it's nothing to worry about. I had very severe reactions and almost died when I took it before I knew I would have a reaction, but the desense was really a piece of cake. I already had an IV in so they could administer the meds right away and control the reaction from the first moment I felt it.As you probably know, it most definitely improved my symptoms, and not only was I able to stay off prednisone while on the aspirin, I have rarely taken prednisone since the first time I was desensitized ten years ago, even since I've been off the aspirin now for three and a half years. Before the desense, even doses as high as 50 milligrams and up of prednisone did not control my symptoms at all.Lori

[Guest guest]

I'm not sure what you mean by my symptoms being " in check " really.

The person I was responding to asked specifically about prednisone,

and I have been able to be off the prednisone for almost the entire

ten years since I was first desensitized, which is a big contrast to

pre-desensitization.

I still have polyps and asthma, and I take medications for them

everyday. But when I went off the aspirin after seven years, it did

not cause me to have to go back on prednisone. My theory, which is

really based on nothing except my personal experience, is that

during that seven years it allowed my body to normalize itself a

little bit. Also, in the meantime Singulair, Advair and Nasonex

came out, none of which were available in 1995.

I have no idea if I am still allergic to aspirin, but I can't think

of any reason why I would not be. I assume, and have been told,

that going off the aspirin makes you sensitive to it again.

Why are you nervous about the desensitization? I mean, it can make

you nervous, but what specifically about it is anxiety-producing for

you?

Lori in NY

[Guest guest]

Hi Everyone,

I just had my lung function tests and am all set for my desensitization starting

tomorrow morning. After talking with the doctor I was hoping some of you could

verify the procedure. I am being told the following.

I will first recieve a dose of 20mg and then wait 3 hours to see if a reaction.

If not I will then get a dose of 40 mg. If I do have a reaction I will be

treated as needed and sent home for the day. I then come back the next day and

continue upping the dose.

Were any of you sent home after being treated for your first reaction. I was

under the impression that once the reaction is under control the process would

continue that same day.

Any advice would be greatly appreciated.

Thanks,

Pete

[Guest guest]

In my case they continued to up the dose after I reacted the first day. They also had me full of steroids and singulair before and during the process and I was put on a nebulizer when I reacted. It sounds as if different places do the desensitization differently. On Nov 12, 2009, at 1:11 PM, jcpeter17 wrote:

Hi Everyone,

I just had my lung function tests and am all set for my desensitization starting tomorrow morning. After talking with the doctor I was hoping some of you could verify the procedure. I am being told the following.

I will first recieve a dose of 20mg and then wait 3 hours to see if a reaction. If not I will then get a dose of 40 mg. If I do have a reaction I will be treated as needed and sent home for the day. I then come back the next day and continue upping the dose.

Were any of you sent home after being treated for your first reaction. I was under the impression that once the reaction is under control the process would continue that same day.

Any advice would be greatly appreciated.

Thanks,

Pete

[Guest guest]

The interval between doses was one hour for me. Three mornings of treatments. Starting at 20mg. I would have spirometry tests 20 minutes after each dose. There was sometimes a small reduction in the reading but well with norms.

Re: Aspirin Desen

In my case they continued to up the dose after I reacted the first day. They also had me full of steroids and singulair before and during the process and I was put on a nebulizer when I reacted. It sounds as if different places do the desensitization differently.

On Nov 12, 2009, at 1:11 PM, jcpeter17 wrote:

Hi Everyone,

I just had my lung function tests and am all set for my desensitization starting tomorrow morning. After talking with the doctor I was hoping some of you could verify the procedure. I am being told the following.

I will first recieve a dose of 20mg and then wait 3 hours to see if a reaction. If not I will then get a dose of 40 mg. If I do have a reaction I will be treated as needed and sent home for the day. I then come back the next day and continue upping the dose.

Were any of you sent home after being treated for your first reaction. I was under the impression that once the reaction is under control the process would continue that same day.

Any advice would be greatly appreciated.

Thanks,

Pete