Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 When you irrigate, make sure to keep your mouth open so that there is not high pressure in your nostril, you will get fluid draining into your pharynx, so lean forward so that you don't aspirate. Also do not close your other nostril- though it may be helpful when you are not subject to ear infections, it will aggravate them if you are. > When I do I get ear infections. Not that I don't get them anyway, but > they come on faster and more ferocious when I irrigate. > > I've tried gentle methods like the netti pot. I tried the Neil Med > bottle, I tried snorting water out of my palm, I bought the $100. > machine from grossan. > > It really ticks me off. I paid over $100. for the pulmicort. I used > it every day for a week and then had an ear infection. Cleared that > up used it again got another ear infection. > > I'm so tired of all of this. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 I actually find I have more issues with my ears using the Neilmed bottle vs the WaterPik. I also have to be very, very careful blowing my nose afterwards or my ears hurt. Have you tried irrigating and then not blowing your nose for 5-10 mins or only blowing it very gently? Though it sounds like if you are already prone to ear infections irrigating might not be so good for that… K. I can't irrigate When I do I get ear infections. Not that I don't get them anyway, but they come on faster and more ferocious when I irrigate. I've tried gentle methods like the netti pot. I tried the Neil Med bottle, I tried snorting water out of my palm, I bought the $100. machine from grossan. It really ticks me off. I paid over $100. for the pulmicort. I used it every day for a week and then had an ear infection. Cleared that up used it again got another ear infection. I'm so tired of all of this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 I irrigate daily and absolutely have too in order to breather. However, I too, have to be very careful of my left ear as it easily becomes irritated and/or infected from irrigating. I'll tell you what I now do. I use the Neilmed bottle. I bend my head over the sink and tilt it slightly to the right. That way, water still goes into my left side but does not go into the ear canal. Its hard to explain, I just know how far to tilt to the right in order to move water through the left side but not into the ear canal. Have you had your ears checked? Is your Eustachian tube open into the sinuses? You may want your ENT to look at that. Perhaps that needs to be corrected as with Samters, you need to be able to irrigate. Janetffnysnvl <tffnysnvl@...> wrote: When I do I get ear infections. Not that I don't get them anyway, butthey come on faster and more ferocious when I irrigate. I've tried gentle methods like the netti pot. I tried the Neil Medbottle, I tried snorting water out of my palm, I bought the $100.machine from grossan. It really ticks me off. I paid over $100. for the pulmicort. I usedit every day for a week and then had an ear infection. Cleared thatup used it again got another ear infection.I'm so tired of all of this. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 I've had it checked. At one point I even had a tube placed. The ENT thought it would help. It didn't really. I still got 2 infections in the ear, the second one was so bad it pushed the tube out. Now I have a permanent hole from so many ruptures. I always leave my mouth open when irrigating. As to closing the other nostril, why would I do that? Isn't the point to have the solution go through your sinuses and out the other side? I can't blow my nose. I haven't been able to blow my nose in 10 years. Unless I'm on prednisone. I've tried 4 different methods in the hopes of finding 1 that worked without recurrent infections. I had really high hopes of the pulmicort. I'm miserable and I can't do anything about it. > > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 I have the same sort of problems. I had to blow my nose this morning because I was so stuffed up. I got so dizzy I felt like I was going to fall over. It does not happen every time but I never know when it will. The irrigation thing seems to work til I end up with a terrible sinus infection shortly thereafter. I mean I feel clearer for a bit. And the stuff that comes out of my nose is amazing but then I end up worse. I have some hearing loss in my right ear that I have really just noticed as being worse the last couple of years. It seems like no matter what I do it is a never ending cycle. Evie -- Re: I can't irrigate I can sympatize with this poster.Though, I don't get ear infections I too have issues when irrigatingwith my Neli Med. I can "feel" my ears getting full of water whenusing the device. Thus, I only irrigate on an as needed basis. I amoverly concerned about further damaging myself and loosing my hearing.One thing that I've often noticed as well is when blowing my nose, myright ear clogs, I get really bad vertigo, and my body teperatureraises. This can go on for several minutes until somethingde-pressurizes and my ear makes a "fizzle" sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 I am right there with you both. I am often simply amazed at what comes out of my sinuses. I do my best to irrigate but I have to lay off for a few days when my ears start to bother me. I finally had a formal audiology test this year as I knew I had major hearing loss. As a teacher, this is a real problem. My ENTs office did the test and let me know that my ear drums are actually pulled inside out! Probably from 20 years of blowing my nose and pressure on the Eustachian tubes from polyps. He feels that if I can every fully get control of this sinus mess the ear drums may self-correct. In the meantime, I am not a candidate for hearing aids. Pretty discouraging. I teach children with disabilities. I thank God daily that I have my limbs and my eyes and etc., etc. But, we sure didn't get a fun or pretty disease now did we? I've never met another person face to face with this illness. Somehow its comforting to know you are all out there although, I am sorry anyone is suffering with this. Jane♥♥ ♥♥ <dragonflyfaerie@...> wrote: I have the same sort of problems. I had to blow my nose this morning because I was so stuffed up. I got so dizzy I felt like I was going to fall over. It does not happen every time but I never know when it will. The irrigation thing seems to work til I end up with a terrible sinus infection shortly thereafter. I mean I feel clearer for a bit. And the stuff that comes out of my nose is amazing but then I end up worse. I have some hearing loss in my right ear that I have really just noticed as being worse the last couple of years. It seems like no matter what I do it is a never ending cycle. Evie -- Re: I can't irrigate I can sympatize with this poster.Though, I don't get ear infections I too have issues when irrigatingwith my Neli Med. I can "feel" my ears getting full of water whenusing the device. Thus, I only irrigate on an as needed basis. I amoverly concerned about further damaging myself and loosing my hearing.One thing that I've often noticed as well is when blowing my nose, myright ear clogs, I get really bad vertigo, and my body teperatureraises. This can go on for several minutes until somethingde-pressurizes and my ear makes a "fizzle" sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Jane brought up a really good point. We all have a disease that is relatively rare. My Primary, my pulmonologist and my ENT each only have one Samter's patient. It is me of course. I have also never met a Samter's patient. Sometimes I wonder how long we all will live. When first diagnosed at age 47 my Doctors told me I wold never see 60. Now I am 56 and they say I may see 70. Some days I wonder. I remain positive, keep a smile and deal with the issues many of you deal with. The questions to all of you are: 1. Any Samters patients from Maine. 2. Any of you serious mountain climbers? I am and hope to do Kiliminjaro in Sept but am worried with my problem yes. 3. Anyone from the San Diego area. I am visiting there in July. 4. Any finally the big one, what are our lifespans...any ideas?? Would be nice to meet a real live person with my issues. Tom from Maine Re: I can't irrigate I can sympatize with this poster. Though, I don't get ear infections I too have issues when irrigating with my Neli Med. I can "feel" my ears getting full of water when using the device. Thus, I only irrigate on an as needed basis. I am overly concerned about further damaging myself and loosing my hearing. One thing that I've often noticed as well is when blowing my nose, my right ear clogs, I get really bad vertigo, and my body teperature raises. This can go on for several minutes until something de-pressurizes and my ear makes a "fizzle" sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Looking for last minute shopping deals? Find them fast with Search. Planning your summer road trip? Check out AOL Travel Guides. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Tom that’s rather taken the wind out of my sails. I had no idea it had any bearing on life expectancy and none of my doctors, ENT or allergist have ever mentioned it. I would suggest that if you feel fit enough to do Kiliminjaro then go for it. I find that my breathing has become more difficult over the past six months though without the wheezing that generally goes with the asthma and yes, it does worry me. I mentioned it to my doctor and all he did was put me on anti depressants because I have quite a bit of stress in my life.  From: samters [mailto:samters ] On Behalf Of teblake@... Sent: Monday, 24 March 2008 12:42 PM samters Subject: Re: Re: I can't irrigate Jane brought up a really good point. We all have a disease that is relatively rare. My Primary, my pulmonologist and my ENT each only have one Samter's patient. It is me of course. I have also never met a Samter's patient. Sometimes I wonder how long we all will live. When first diagnosed at age 47 my Doctors told me I wold never see 60. Now I am 56 and they say I may see 70. Some days I wonder. I remain positive, keep a smile and deal with the issues many of you deal with. The questions to all of you are: 1. Any Samters patients from Maine. 2. Any of you serious mountain climbers? I am and hope to do Kiliminjaro in Sept but am worried with my problem yes. 3. Anyone from the San Diego area. I am visiting there in July. 4. Any finally the big one, what are our lifespans...any ideas?? Would be nice to meet a real live person with my issues. Tom from Maine -----Original Message----- From: Jane Marino <janesmarino@...> samters Sent: Sun, 23 Mar 2008 9:16 pm Subject: Re: Re: I can't irrigate I am right there with you both. I am often simply amazed at what comes out of my sinuses. I do my best to irrigate but I have to lay off for a few days when my ears start to bother me. I finally had a formal audiology test this year as I knew I had major hearing loss. As a teacher, this is a real problem. My ENTs office did the test and let me know that my ear drums are actually pulled inside out! Probably from 20 years of blowing my nose and pressure on the Eustachian tubes from polyps. He feels that if I can every fully get control of this sinus mess the ear drums may self-correct. In the meantime, I am not a candidate for hearing aids. Pretty discouraging. I teach children with disabilities. I thank God daily that I have my limbs and my eyes and etc., etc. But, we sure didn't get a fun or pretty disease now did we? I've never met another person face to face with this illness. Somehow its comforting to know you are all out there although, I am sorry anyone is suffering with this. Jane ♥♥ ♥♥ <dragonflyfaeriegmail> wrote: I have the same sort of problems. I had to blow my nose this morning because I was so stuffed up. I got so dizzy I felt like I was going to fall over. It does not happen every time but I never know when it will. The irrigation thing seems to work til I end up with a terrible sinus infection shortly thereafter. I mean I feel clearer for a bit. And the stuff that comes out of my nose is amazing but then I end up worse. I have some hearing loss in my right ear that I have really just noticed as being worse the last couple of years. It seems like no matter what I do it is a never ending cycle. Evie -- Re: I can't irrigate I can sympatize with this poster. Though, I don't get ear infections I too have issues when irrigating with my Neli Med. I can " feel " my ears getting full of water when using the device. Thus, I only irrigate on an as needed basis. I am overly concerned about further damaging myself and loosing my hearing. One thing that I've often noticed as well is when blowing my nose, my right ear clogs, I get really bad vertigo, and my body teperature raises. This can go on for several minutes until something de-pressurizes and my ear makes a " fizzle " sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Looking for last minute shopping deals? Find them fast with Search. Planning your summer road trip? Check out AOL Travel Guides. No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 22/03/2008 4:43 PM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 22/03/2008 4:43 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 In re: to not meeting anyone else face to face, I wanted you to know that made me chuckle. I'm at the point that I roll my eyes every time a coworker asks me, "Are you stuffed up again?" No, people, not "again" -- "still." I've worked here five and a half years. You don't know by now that I'm stuffed up every day? Actually, during my performance review after my second year, a supervisor had the gall to write in the comments, "Bob is routinely sick and should attend to his health." I had violent thoughts. I may have had violent words to go with them.Knowing you all understand helps a lot. I don't know who started this group but I'm grateful. Re: I can't irrigate I can sympatize with this poster.Though, I don't get ear infections I too have issues when irrigatingwith my Neli Med. I can "feel" my ears getting full of water whenusing the device. Thus, I only irrigate on an as needed basis. I amoverly concerned about further damaging myself and loosing my hearing.One thing that I've often noticed as well is when blowing my nose, myright ear clogs, I get really bad vertigo, and my body teperatureraises. This can go on for several minutes until somethingde-pressurizes and my ear makes a "fizzle" sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 I used to get ‘oh have you got a cold’, to the extent in the end I just gave up and said yes. Try explaining Samters to a person and they think you’re horribly contagious or have the plague or some such thing. From: samters [mailto:samters ] On Behalf Of Bob Sent: Monday, 24 March 2008 1:47 PM samters Subject: Re: Re: I can't irrigate In re: to not meeting anyone else face to face, I wanted you to know that made me chuckle. I'm at the point that I roll my eyes every time a coworker asks me, " Are you stuffed up again? " No, people, not " again " -- " still. " I've worked here five and a half years. You don't know by now that I'm stuffed up every day? Actually, during my performance review after my second year, a supervisor had the gall to write in the comments, " Bob is routinely sick and should attend to his health. " I had violent thoughts. I may have had violent words to go with them. Knowing you all understand helps a lot. I don't know who started this group but I'm grateful. Re: I can't irrigate I can sympatize with this poster. Though, I don't get ear infections I too have issues when irrigating with my Neli Med. I can " feel " my ears getting full of water when using the device. Thus, I only irrigate on an as needed basis. I am overly concerned about further damaging myself and loosing my hearing. One thing that I've often noticed as well is when blowing my nose, my right ear clogs, I get really bad vertigo, and my body teperature raises. This can go on for several minutes until something de-pressurizes and my ear makes a " fizzle " sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage. No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 22/03/2008 4:43 PM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 22/03/2008 4:43 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 You so just made me laugh. : ) I know I would have been tempted to choke someone. LOL People find out I have had 8 sinus surgeries and ask me why they can't fix what is wrong with me. Like OMG why didn't the surgery help. I always have tissues in my pockets and purses. People that don't really know me well make comments like "are you sick again?". I try to explain about the Samters and get blank looks. I get tired of trying to make people understand. Evie -- Re: Re: I can't irrigate In re: to not meeting anyone else face to face, I wanted you to know that made me chuckle. I'm at the point that I roll my eyes every time a coworker asks me, "Are you stuffed up again?" No, people, not "again" -- "still." I've worked here five and a half years. You don't know by now that I'm stuffed up every day? Actually, during my performance review after my second year, a supervisor had the gall to write in the comments, "Bob is routinely sick and should attend to his health." I had violent thoughts. I may have had violent words to go with them.Knowing you all understand helps a lot. I don't know who started this group but I'm grateful. Re: I can't irrigate I can sympatize with this poster.Though, I don't get ear infections I too have issues when irrigatingwith my Neli Med. I can "feel" my ears getting full of water whenusing the device. Thus, I only irrigate on an as needed basis. I amoverly concerned about further damaging myself and loosing my hearing.One thing that I've often noticed as well is when blowing my nose, myright ear clogs, I get really bad vertigo, and my body teperatureraises. This can go on for several minutes until somethingde-pressurizes and my ear makes a "fizzle" sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 If I could get them to think I had the plague, at least they'd leave me alone. I get the glassy stare for a minute, then they excuse themselves and walk away, only to return the next day to begin the cycle anew. I might try your plague suggestion Re: I can't irrigate I can sympatize with this poster. Though, I don't get ear infections I too have issues when irrigating with my Neli Med. I can "feel" my ears getting full of water when using the device. Thus, I only irrigate on an as needed basis. I am overly concerned about further damaging myself and loosing my hearing. One thing that I've often noticed as well is when blowing my nose, my right ear clogs, I get really bad vertigo, and my body teperature raises. This can go on for several minutes until something de-pressurizes and my ear makes a "fizzle" sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage. No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 22/03/2008 4:43 PM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 22/03/2008 4:43 PM Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Just tell them with a very serious look on your face that you’re extremely contagious with a very rare type of plague and they’re no known cure which really isn’t all that far from the truth. Perhaps save a polyp from the next surgery and show them next time they ask what’s wrong ‘oh let me show you this’! From: samters [mailto:samters ] On Behalf Of Bob Sent: Monday, 24 March 2008 2:04 PM samters Subject: Re: Re: I can't irrigate If I could get them to think I had the plague, at least they'd leave me alone. I get the glassy stare for a minute, then they excuse themselves and walk away, only to return the next day to begin the cycle anew. I might try your plague suggestion Re: I can't irrigate I can sympatize with this poster. Though, I don't get ear infections I too have issues when irrigating with my Neli Med. I can " feel " my ears getting full of water when using the device. Thus, I only irrigate on an as needed basis. I am overly concerned about further damaging myself and loosing my hearing. One thing that I've often noticed as well is when blowing my nose, my right ear clogs, I get really bad vertigo, and my body teperature raises. This can go on for several minutes until something de-pressurizes and my ear makes a " fizzle " sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage. No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 22/03/2008 4:43 PM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 22/03/2008 4:43 PM Looking for last minute shopping deals? Find them fast with Search. No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 22/03/2008 4:43 PM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 22/03/2008 4:43 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Tom from Maine -- I live in the Portland area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Bob, I get the same exact thing! No, I'm not sick so it's ok to use my pen. I've had this issue for 10 years now and it's really starting to agitate me every time I have/need to explain why I sound stuffy and need to continuously blow my nose. I couldn't agree more, thank you whomever started this group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 My staple response now-a-days has been I have incurable sinus disease. Then I crack a joke about having big " snot rockets " affixed inside my sinus cavities. It tends to get the point across. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 I’ve had this now for 29 years and haven’t yet met anyone else who has it. I’d like to think there’s more than just myself in this country and wish it could get a lot more publicity. I even wrote to a couple of television morning shows here in the hope they’d have it as a topic but no such luck. From: samters [mailto:samters ] On Behalf Of Todd Henry Sent: Monday, 24 March 2008 3:10 PM samters Subject: Re: I can't irrigate Bob, I get the same exact thing! No, I'm not sick so it's ok to use my pen. I've had this issue for 10 years now and it's really starting to agitate me every time I have/need to explain why I sound stuffy and need to continuously blow my nose. I couldn't agree more, thank you whomever started this group. No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 22/03/2008 4:43 PM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 22/03/2008 4:43 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Hello Tom from Maine, I live in NH near the seacoast. I always thought this was a double edge sword the good news is that it probably won’t kill you, the bad news is you will live with these symptoms for a very, very long time! I have gotten to a place where my symptoms are relatively under control but it still can broadside me when I least expect it. I am not a mountain climber by any means, it took a long time to get my symptoms under control and I am terribly out of shape. It seems my asthma kicks up when ever I start an exercise routine. I need to learn to go slow and steady and not get discouraged. From: samters [mailto:samters ] On Behalf Of teblake@... Sent: Sunday, March 23, 2008 9:42 PM samters Subject: Re: Re: I can't irrigate Jane brought up a really good point. We all have a disease that is relatively rare. My Primary, my pulmonologist and my ENT each only have one Samter's patient. It is me of course. I have also never met a Samter's patient. Sometimes I wonder how long we all will live. When first diagnosed at age 47 my Doctors told me I wold never see 60. Now I am 56 and they say I may see 70. Some days I wonder. I remain positive, keep a smile and deal with the issues many of you deal with. The questions to all of you are: 1. Any Samters patients from Maine. 2. Any of you serious mountain climbers? I am and hope to do Kiliminjaro in Sept but am worried with my problem yes. 3. Anyone from the San Diego area. I am visiting there in July. 4. Any finally the big one, what are our lifespans...any ideas?? Would be nice to meet a real live person with my issues. Tom from Maine -----Original Message----- From: Jane Marino <janesmarino@...> samters Sent: Sun, 23 Mar 2008 9:16 pm Subject: Re: Re: I can't irrigate I am right there with you both. I am often simply amazed at what comes out of my sinuses. I do my best to irrigate but I have to lay off for a few days when my ears start to bother me. I finally had a formal audiology test this year as I knew I had major hearing loss. As a teacher, this is a real problem. My ENTs office did the test and let me know that my ear drums are actually pulled inside out! Probably from 20 years of blowing my nose and pressure on the Eustachian tubes from polyps. He feels that if I can every fully get control of this sinus mess the ear drums may self-correct. In the meantime, I am not a candidate for hearing aids. Pretty discouraging. I teach children with disabilities. I thank God daily that I have my limbs and my eyes and etc., etc. But, we sure didn't get a fun or pretty disease now did we? I've never met another person face to face with this illness. Somehow its comforting to know you are all out there although, I am sorry anyone is suffering with this. Jane ♥♥ ♥♥ <dragonflyfaeriegmail> wrote: I have the same sort of problems. I had to blow my nose this morning because I was so stuffed up. I got so dizzy I felt like I was going to fall over. It does not happen every time but I never know when it will. The irrigation thing seems to work til I end up with a terrible sinus infection shortly thereafter. I mean I feel clearer for a bit. And the stuff that comes out of my nose is amazing but then I end up worse. I have some hearing loss in my right ear that I have really just noticed as being worse the last couple of years. It seems like no matter what I do it is a never ending cycle. Evie -- Re: I can't irrigate I can sympatize with this poster. Though, I don't get ear infections I too have issues when irrigating with my Neli Med. I can " feel " my ears getting full of water when using the device. Thus, I only irrigate on an as needed basis. I am overly concerned about further damaging myself and loosing my hearing. One thing that I've often noticed as well is when blowing my nose, my right ear clogs, I get really bad vertigo, and my body teperature raises. This can go on for several minutes until something de-pressurizes and my ear makes a " fizzle " sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Looking for last minute shopping deals? Find them fast with Search. Planning your summer road trip? Check out AOL Travel Guides. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 I have had lots of helpful suggestions that I should find a job that doesn’t bother my health……any suggestions? From: samters [mailto:samters ] On Behalf Of Bob Sent: Sunday, March 23, 2008 10:47 PM samters Subject: Re: Re: I can't irrigate In re: to not meeting anyone else face to face, I wanted you to know that made me chuckle. I'm at the point that I roll my eyes every time a coworker asks me, " Are you stuffed up again? " No, people, not " again " -- " still. " I've worked here five and a half years. You don't know by now that I'm stuffed up every day? Actually, during my performance review after my second year, a supervisor had the gall to write in the comments, " Bob is routinely sick and should attend to his health. " I had violent thoughts. I may have had violent words to go with them. Knowing you all understand helps a lot. I don't know who started this group but I'm grateful. Re: I can't irrigate I can sympatize with this poster. Though, I don't get ear infections I too have issues when irrigating with my Neli Med. I can " feel " my ears getting full of water when using the device. Thus, I only irrigate on an as needed basis. I am overly concerned about further damaging myself and loosing my hearing. One thing that I've often noticed as well is when blowing my nose, my right ear clogs, I get really bad vertigo, and my body teperature raises. This can go on for several minutes until something de-pressurizes and my ear makes a " fizzle " sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 I guess that depends on what factors bother you most. I work in an office, in a city. One would think that was pretty "safe", but I find things like cold air, bus exhaust, and dust from the paper shredder will set me off. My symptoms were most under control when I did desk side support (I'm a computer consultant) which had me moving most of the day from person to person throughout a school district. However, that job actually predates my diagnosis, and my symptoms may not have been fully developed. I guess I don't have a suggestion, but we might be able to come up with some if you tell us what your career is, or what your skills and talents are. Re: I can't irrigate I can sympatize with this poster. Though, I don't get ear infections I too have issues when irrigating with my Neli Med. I can "feel" my ears getting full of water when using the device. Thus, I only irrigate on an as needed basis. I am overly concerned about further damaging myself and loosing my hearing. One thing that I've often noticed as well is when blowing my nose, my right ear clogs, I get really bad vertigo, and my body teperature raises. This can go on for several minutes until something de-pressurizes and my ear makes a "fizzle" sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 I am a teacher in a school and unfortunately for children, our schools are some of the moldiest, run down buildings in this country. But, I love what I do. I do live with significant symptoms most of the time although they are better since I did aspirin desens. last July. My thinking has always been, why would I stop working as a teacher when I know I get symptoms from driving on the highway or sometimes from simply walking near someone in the grocery store wearing perfume? I wear an ionizer around my neck all the time and constantly have to field questions asking what it is? Oh well, maybe I am educating the public! I'm not sure there is a healthy place to work unless someone truly can create that "bubble" we can put ourselves into. I'm telling you, I really think we were all dropped off on the wrong planet!!! JaneBob <rthomp0215@...> wrote: I guess that depends on what factors bother you most. I work in an office, in a city. One would think that was pretty "safe", but I find things like cold air, bus exhaust, and dust from the paper shredder will set me off. My symptoms were most under control when I did desk side support (I'm a computer consultant) which had me moving most of the day from person to person throughout a school district. However, that job actually predates my diagnosis, and my symptoms may not have been fully developed. I guess I don't have a suggestion, but we might be able to come up with some if you tell us what your career is, or what your skills and talents are. Re: I can't irrigateI can sympatize with this poster.Though, I don't get ear infections I too have issues when irrigatingwith my Neli Med. I can "feel" my ears getting full of water whenusing the device. Thus, I only irrigate on an as needed basis. I amoverly concerned about further damaging myself and loosing my hearing.One thing that I've often noticed as well is when blowing my nose, myright ear clogs, I get really bad vertigo, and my body teperatureraises. This can go on for several minutes until somethingde-pressurizes and my ear makes a "fizzle" sound and I am ok!Shirleys CreationPicturefrom wwwFont ...BellevueLooking for last minute shopping deals? Find them fast with Search.Never miss a thing. Make your homepage.____________________________________________________________________________________Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008  Dear Tom Re: How long we will live with Samters: I developed rhinitis, polyps and asprin induced asthma when I was 9. Chronic asthma started in my late 20's after my first and before my second pregnancy. I am now 49! I have been able to live with Samters for 40 years, brought up 2 children, worked for 26 years, still working as the head teacher of a secondary school... I'm planning to live for another 40 years ) hopefully. I don't understand how your doctor could predict your life span. During the late 60's, early 70's, when my illness started there weren't the medicines of today, in Turkey, where I live. I had numerous operations, suffered a lot of discomfort. Thanks God, Ventolin (salbutamol) became available when I was at university, then the steroid sprays. Now, with Nasonex, Flixotide, Claritine, Ventolin, Singulair, I have more comfort. I have not met any other Samters patients. I am very happy to have found this group. Please plan to live for 40 more years:)) Best wishes Berna Bridge Re: I can't irrigate I can sympatize with this poster.Though, I don't get ear infections I too have issues when irrigatingwith my Neli Med. I can "feel" my ears getting full of water whenusing the device. Thus, I only irrigate on an as needed basis. I amoverly concerned about further damaging myself and loosing my hearing.One thing that I've often noticed as well is when blowing my nose, myright ear clogs, I get really bad vertigo, and my body teperatureraises. This can go on for several minutes until somethingde-pressurizes and my ear makes a "fizzle" sound and I am ok! Shirleys Creation Picture from www Font .. Bellevue Looking for last minute shopping deals? Find them fast with Search. Planning your summer road trip? Check out AOL Travel Guides. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 I just tell people I have allergies and when they ask what I’m allergic to my standard response is “Air.” But it does get old getting the hairy eyeball when you are blowing your nose in public and you can just tell they are thinking that sick person should be at home. At least at work everyone now knows I’m allergic to everything and leaves me alone. I don’t know anyone else with Samter’s but I do know several people (including my dad who has had 3 now) who have all had sinus surgeries for polyps. K. Re: I can't irrigate My staple response now-a-days has been I have incurable sinus disease. Then I crack a joke about having big " snot rockets " affixed inside my sinus cavities. It tends to get the point across. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 I can relate to the voice part. I am a politician although I prefer to call it a representative of the people. I speak at a lot of engagements and sometimes I find myself not responding to an item at a meeting because at that particular moment my voice or throat is acting up. Several times I have had to cancel out of speaking commitments. I have considered running for Governor but due to Samters' I have ruled it out. I cannot smell and have minimal taste but what I miss the most is the ability to have a 5 minute kiss. If I could only hold my breath that long. Tom started this group, and he is actually the one "Samterite" that I have met in person!! :)I get really really really sick of people asking me if I have a cold. I used to be a singer, and it's hard not to be able to sing the way I used to because of this. I hate my voice. Lori> > I have the same sort of problems. I had to blow my nose this morning because I was so stuffed up. I got so dizzy I felt like I was going to fall over. It does not happen every time but I never know when it will. The irrigation thing seems to work til I end up with a terrible sinus infection shortly thereafter. I mean I feel clearer for a bit. And the stuff that comes out of my nose is amazing but then I end up worse. I have some hearing loss in my right ear that I have really just noticed as being worse the last couple of years. It seems like no matter what I do it is a never ending> cycle. > > Evie> > -- Re: I can't irrigate> > > I can sympatize with this poster.> > Though, I don't get ear infections I too have issues when irrigating> with my Neli Med. I can "feel" my ears getting full of water when> using the device. Thus, I only irrigate on an as needed basis. I am> overly concerned about further damaging myself and loosing my hearing.> > One thing that I've often noticed as well is when blowing my nose, my> right ear clogs, I get really bad vertigo, and my body teperature> raises. This can go on for several minutes until something> de-pressurizes and my ear makes a "fizzle" sound and I am ok!> > > > > > > > > Shirleys Creation> Picture from> www> Font .. Bellevue> > > > > > > > > > Looking for last minute shopping deals? > Find them fast with Search.> > > <!--> > #ygrp-mkp{> border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;}> #ygrp-mkp hr{> border:1px solid #d8d8d8;}> #ygrp-mkp #hd{> color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;}> #ygrp-mkp #ads{> margin-bottom:10px;}> #ygrp-mkp .ad{> padding:0 0;}> #ygrp-mkp .ad a{> color:#0000ff;text-decoration:none;}> -->> > <!--> > #ygrp-sponsor #ygrp-lc{> font-family:Arial;}> #ygrp-sponsor #ygrp-lc #hd{> margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;}> #ygrp-sponsor #ygrp-lc .ad{> margin-bottom:10px;padding:0 0;}> -->> > <!--> > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;}> #ygrp-mlmsg table {font-size:inherit;font:100%;}> #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;}> #ygrp-mlmsg pre, code {font:115% monospace;}> #ygrp-mlmsg * {line-height:1.22em;}> #ygrp-text{> font-family:Georgia;> }> #ygrp-text p{> margin:0 0 1em 0;}> #ygrp-tpmsgs{> font-family:Arial;> clear:both;}> #ygrp-vitnav{> padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> #ygrp-vitnav a{> padding:0 1px;}> #ygrp-actbar{> clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;}> #ygrp-actbar .left{> float:left;white-space:nowrap;}> .bld{font-weight:bold;}> #ygrp-grft{> font-family:Verdana;font-size:77%;padding:15px 0;}> #ygrp-ft{> font-family:verdana;font-size:77%;border-top:1px solid #666;> padding:5px 0;> }> #ygrp-mlmsg #logo{> padding-bottom:10px;}> > #ygrp-reco {> margin-bottom:20px;padding:0px;}> #ygrp-reco #reco-head {> font-weight:bold;color:#ff7900;}> > #reco-grpname{> font-weight:bold;margin-top:10px;}> #reco-category{> font-size:77%;}> #reco-desc{> font-size:77%;}> > #ygrp-vital{> background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> #ygrp-vital #vithd{> font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> #ygrp-vital ul{> padding:0;margin:2px 0;}> #ygrp-vital ul li{> list-style-type:none;clear:both;border:1px solid #e0ecee;> }> #ygrp-vital ul li .ct{> font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> #ygrp-vital ul li .cat{> font-weight:bold;}> #ygrp-vital a{> text-decoration:none;}> > #ygrp-vital a:hover{> text-decoration:underline;}> > #ygrp-sponsor #hd{> color:#999;font-size:77%;}> #ygrp-sponsor #ov{> padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> #ygrp-sponsor #ov ul{> padding:0 0 0 8px;margin:0;}> #ygrp-sponsor #ov li{> list-style-type:square;padding:6px 0;font-size:77%;}> #ygrp-sponsor #ov li a{> text-decoration:none;font-size:130%;}> #ygrp-sponsor #nc{> background-color:#eee;margin-bottom:20px;padding:0 8px;}> #ygrp-sponsor .ad{> padding:8px 0;}> #ygrp-sponsor .ad #hd1{> font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> #ygrp-sponsor .ad a{> text-decoration:none;}> #ygrp-sponsor .ad a:hover{> text-decoration:underline;}> #ygrp-sponsor .ad p{> margin:0;}> o{font-size:0;}> .MsoNormal{> margin:0 0 0 0;}> #ygrp-text tt{> font-size:120%;}> blockquote{margin:0 0 0 4px;}> .replbq{margin:4;}> -->> > > > > > > ________________________________________________________________________> Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> Create a Home Theater Like the Pros. Watch the video on AOL Home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 started this group, and he is actually the one " Samterite " that I have met in person!! I get really really really sick of people asking me if I have a cold. I used to be a singer, and it's hard not to be able to sing the way I used to because of this. I hate my voice. Lori > > I have the same sort of problems. I had to blow my nose this morning because I was so stuffed up. I got so dizzy I felt like I was going to fall over. It does not happen every time but I never know when it will. The irrigation thing seems to work til I end up with a terrible sinus infection shortly thereafter. I mean I feel clearer for a bit. And the stuff that comes out of my nose is amazing but then I end up worse. I have some hearing loss in my right ear that I have really just noticed as being worse the last couple of years. It seems like no matter what I do it is a never ending > cycle. > > Evie > > -- Re: I can't irrigate > > > I can sympatize with this poster. > > Though, I don't get ear infections I too have issues when irrigating > with my Neli Med. I can " feel " my ears getting full of water when > using the device. Thus, I only irrigate on an as needed basis. I am > overly concerned about further damaging myself and loosing my hearing. > > One thing that I've often noticed as well is when blowing my nose, my > right ear clogs, I get really bad vertigo, and my body teperature > raises. This can go on for several minutes until something > de-pressurizes and my ear makes a " fizzle " sound and I am ok! > > > > > > > > > Shirleys Creation > Picture from > www > Font .. Bellevue > > > > > > > > > > Looking for last minute shopping deals? > Find them fast with Search. > > > <!-- > > #ygrp-mkp{ > border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} > #ygrp-mkp hr{ > border:1px solid #d8d8d8;} > #ygrp-mkp #hd{ > color:#628c2a;font-size:85%;font-weight:bold;line- height:122%;margin:10px 0px;} > #ygrp-mkp #ads{ > margin-bottom:10px;} > #ygrp-mkp .ad{ > padding:0 0;} > #ygrp-mkp .ad a{ > color:#0000ff;text-decoration:none;} > --> > > <!-- > > #ygrp-sponsor #ygrp-lc{ > font-family:Arial;} > #ygrp-sponsor #ygrp-lc #hd{ > margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} > #ygrp-sponsor #ygrp-lc .ad{ > margin-bottom:10px;padding:0 0;} > --> > > <!-- > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg table {font-size:inherit;font:100%;} > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg pre, code {font:115% monospace;} > #ygrp-mlmsg * {line-height:1.22em;} > #ygrp-text{ > font-family:Georgia; > } > #ygrp-text p{ > margin:0 0 1em 0;} > #ygrp-tpmsgs{ > font-family:Arial; > clear:both;} > #ygrp-vitnav{ > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} > #ygrp-vitnav a{ > padding:0 1px;} > #ygrp-actbar{ > clear:both;margin:25px 0;white-space:nowrap;color:#666;text- align:right;} > #ygrp-actbar .left{ > float:left;white-space:nowrap;} > .bld{font-weight:bold;} > #ygrp-grft{ > font-family:Verdana;font-size:77%;padding:15px 0;} > #ygrp-ft{ > font-family:verdana;font-size:77%;border-top:1px solid #666; > padding:5px 0; > } > #ygrp-mlmsg #logo{ > padding-bottom:10px;} > > #ygrp-reco { > margin-bottom:20px;padding:0px;} > #ygrp-reco #reco-head { > font-weight:bold;color:#ff7900;} > > #reco-grpname{ > font-weight:bold;margin-top:10px;} > #reco-category{ > font-size:77%;} > #reco-desc{ > font-size:77%;} > > #ygrp-vital{ > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} > #ygrp-vital #vithd{ > font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text- transform:uppercase;} > #ygrp-vital ul{ > padding:0;margin:2px 0;} > #ygrp-vital ul li{ > list-style-type:none;clear:both;border:1px solid #e0ecee; > } > #ygrp-vital ul li .ct{ > font-weight:bold;color:#ff7900;float:right;width:2em;text- align:right;padding-right:.5em;} > #ygrp-vital ul li .cat{ > font-weight:bold;} > #ygrp-vital a{ > text-decoration:none;} > > #ygrp-vital a:hover{ > text-decoration:underline;} > > #ygrp-sponsor #hd{ > color:#999;font-size:77%;} > #ygrp-sponsor #ov{ > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} > #ygrp-sponsor #ov ul{ > padding:0 0 0 8px;margin:0;} > #ygrp-sponsor #ov li{ > list-style-type:square;padding:6px 0;font-size:77%;} > #ygrp-sponsor #ov li a{ > text-decoration:none;font-size:130%;} > #ygrp-sponsor #nc{ > background-color:#eee;margin-bottom:20px;padding:0 8px;} > #ygrp-sponsor .ad{ > padding:8px 0;} > #ygrp-sponsor .ad #hd1{ > font-family:Arial;font-weight:bold;color:#628c2a;font- size:100%;line-height:122%;} > #ygrp-sponsor .ad a{ > text-decoration:none;} > #ygrp-sponsor .ad a:hover{ > text-decoration:underline;} > #ygrp-sponsor .ad p{ > margin:0;} > o{font-size:0;} > .MsoNormal{ > margin:0 0 0 0;} > #ygrp-text tt{ > font-size:120%;} > blockquote{margin:0 0 0 4px;} > .replbq{margin:4;} > --> > > > > > > > ______________________________________________________________________ ______________ > Be a better friend, newshound, and > know-it-all with Mobile. 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