Re: rash/paracetamol and CSS

[Guest guest]

I have had hives/rash from the get go with this. The only thing that

slows mine down is prednisone (and I have been on that for over 30

years for those who don't know my story) and vistaril. Mine are

urticarial and it is a whole body type thing. Sometimes they are

right under the skin and other times they are above the skin and

large in diameter but regardless of above or underneath...they itch

like the dickens. When I had my first anaphylactic shock reaction was

the first time I ever had any kind of a rash/hives. With that

episode, they started like a red dot, then spread out in irregular

patterns, kinda like alligator skin. They were white in the middle

with an irregular red ring around them. Some of them were 7-8 inches

in diameter and some were only about a 1/2 inch...they progressed to

being above the skin and were about 1/2 to 3 inches in diameter and

some were 1 - 1 1/2 inches in height. Since that first outbreak I

would have recurrent bouts with them practically every day until they

put me on prednisone and vistaril. At this time, they are only fairly

under control and if I don't take the prednisone (20 mgs. daily) and

vistaril, they cover my whole body and stay that way for days on end.

So, in my case the prednisone helps. I do have to say that avoiding

foods, toiletries, perfumes and other things that have natural

salicylates in them has helped too. I also have hives/rash whenever I

take a shower or bath. One doctor called the rash I get after a

shower " dermatographism " and called the other one " urticaria " .

I think the rash/hives are a part of Samter's or any other eicosanoid

imbalance disease as our eicosanoid pathway is out of kelter. And

that pathway controls inflammation and allergies along with other

things.

I have been reading the posts about CSS with much interest. My doctor

(years ago when I was first diagnosed) said that they were unsure

whether the profound asthma sensitive allergy, recurrent urticaria,

nasal polyposis, severe sinus disease and high eosinophil count were

an allergic angiitis or another profound immunologic abnormality. Can

you tell that I found some of my old medical records? ;-)

Would all this go along with CSS?

- New Mexico