Latest visit to Dr Nasser, UK

[Guest guest]

HI all,

I have just returned from my latest round trip to Addenbrookes, Cambridge to see

Dr Nasser.

My main issues with Samters now that I am desensitised are my sinuses, which are

permanently chronically infected despeite constantly taking a range of

antibiotics and doing my nasal/sinus rinses 3x daily. Plus my SoS is

non-existant unless I have a big course of predisolone.

We had decided to try me on some other antibiotics (Azithromycin) to see if that

works. Does anyone have any experience with this antibiotic? I tend to get

colitis with erythromycin-type antibiotics so am not looking forward to starting

this particular one. Anyway, I'm going to have a week off antibiotics, then get

a sample of what is actually groing in my sinuses.

I am also going to have my first CAT scan in years soon and my next appointment

is a joint one with Dr Nasser and his associated ENT surgeon with the thoughts

of possibly sorting out my frontals. It has been just over 9 years since my

first and last operation for Samters, and apparently I don't even need to stop

taking aspirin for this operation, although I am quite suspicious of this as I

do bleed/bruise badly with cuts/accidents.

I'll let you know how I get on.

Also, Dr Nasser was just wondering how those were getting on with being desense

via the dissolved aspirin drops into the nose...has anyone here been desense

this way? Has this form of desensitiation worked long term?

Regards

Becky (Somerset, UK)