Re: asa desens and salicylate foods

[Guest guest]

Also, I was curious if anyone took enzymes or anything for that matter that helps with the quick digestion of the aspirin and thus is able to enjoy a healthy stomach. I take 650 mg aspirin 3x a day right now (for one month, then back to only 2x a day) and I take ranitidine tabs 150mg 2x a day and so far, I have had no stomach problems. I have heard people say they can eat food w/sals once desens'd but I am still opting to eat low sals right now because I still have polyps on the left side and I am trying to get them to shrink.Thank you for bringing up this topic. Look forward to hearing folks input.

[Guest guest]

I have been desensitized to asa for over 3 years now. I have never altered my diet except to go gluten free. However, I am about to go back into surgery for polyps next Friday. Very discouraging as I have faithfully taken my daily aspirin. Maybe there is something to the asa diet???From: Darcie <darciecoe@...>Subject: asa desens and salicylate foodssamters Date: Saturday, October 15, 2011, 10:08 PM

Hi gang. I haven't posted for awhile because of several reasons. Migraines, asthma, body aches, coughing, congestion and stomach pain being among the reasons. I just wanted to open up the debate about being asa desensitized and the ability to eat salicylate containing foods again. I know we have discussed this in the past but I would like to revisit this topic if I could. There are a number of us that have been able to eat "normal" diets following the desense and also many that have still "reacted". I still can't wrap my head around why we can't consume salicylate containing foods such as fruit and vegetables after the desense. Please share with those of us that are new(er) to the forum. Also, I was curious if anyone took enzymes or anything for that matter that helps with the quick digestion of the aspirin and thus is able to enjoy a healthy stomach. Lastly, has anyone been successful going raw or juicing following desense? Fruits

and veggies are supposed to be the body's "cleaners" but the high salicylate makeup of them just messes me up.

Thanks so much, Rob

[Guest guest]

Hi Rob - I had my desens in July. At that time I asked the question about salicylate foods and immunologist told me the make-up of sal foods is completely different to that of ASA itself, so not to restrict myself unless I noticed a difference, which I didn't. The desens was a huge success for me, as my nose and sinuses are non-reactive (no sneezing, congestion, dripping etc) and I feel soooo much better. Plus my sense of SOS has returned - what a bonus! As it turns out, I had an ALCAT test after that, and found out that I am highly reactive to gluten and sugars, among other things, so I cut those out completely (the idea of doing this is MUCH worse than the actual thing BTW) and feel really really well. I am basically on the paleo diet - mostly meat and fruit/veggies and nuts, except for those items which were shown reactive. Initially I had no energy at all, (you have to go through withdrawal) but 4 weeks into it I am feeling very well and my energy is returning. I take 650 mgs a day of aspirin with no stomach problems. If you do have stomach irritation, I recommend seeing a nutritionist who can try you on different enzymes - there are so many out there, some work for the bowels, some for the pancreas, some for the stomach, and it's hard to know which will work. I take a few but those work for me and it took a while to find the right ones. Lastly, I juice all the time, (using the fruits/veggies that I am allowed) but if you find that your body reacts, then obviously it's not for you. Ultimately, that is the best guide and each one of us is different.This is such a journey . . . . good luck to you.

> samters > From: darciecoe@...> Date: Sun, 16 Oct 2011 04:08:29 +0000> Subject: asa desens and salicylate foods> > Hi gang. I haven't posted for awhile because of several reasons. Migraines, asthma, body aches, coughing, congestion and stomach pain being among the reasons. I just wanted to open up the debate about being asa desensitized and the ability to eat salicylate containing foods again. I know we have discussed this in the past but I would like to revisit this topic if I could. There are a number of us that have been able to eat "normal" diets following the desense and also many that have still "reacted". I still can't wrap my head around why we can't consume salicylate containing foods such as fruit and vegetables after the desense. Please share with those of us that are new(er) to the forum. Also, I was curious if anyone took enzymes or anything for that matter that helps with the quick digestion of the aspirin and thus is able to enjoy a healthy stomach. Lastly, has anyone been successful going raw or juicing following desense? Fruits and veggies are supposed to be the body's "cleaners" but the high salicylate makeup of them just messes me up.> > Thanks so much, Rob> > > > ------------------------------------> >

[Guest guest]

I don't quite understand how the salicylates in food are different from those in aspirin and other NSAIDS. I was told that if desensitized one gets so much salicylate from the aspirin that the amount in food shouldn't make any difference. But everyone has different reactions and different issues and also different abilities to cut out things from their diet. I On Oct 16, 2011, at 10:26 AM, wrote:

Hi Rob - I had my desens in July. At that time I asked the question about salicylate foods and immunologist told me the make-up of sal foods is completely different to that of ASA itself, so not to restrict myself unless I noticed a difference, which I didn't. The desens was a huge success for me, as my nose and sinuses are non-reactive (no sneezing, congestion, dripping etc) and I feel soooo much better. Plus my sense of SOS has returned - what a bonus! As it turns out, I had an ALCAT test after that, and found out that I am highly reactive to gluten and sugars, among other things, so I cut those out completely (the idea of doing this is MUCH worse than the actual thing BTW) and feel really really well. I am basically on the paleo diet - mostly meat and fruit/veggies and nuts, except for those items which were shown reactive. Initially I had no energy at all, (you have to go through withdrawal)

but 4 weeks into it I am feeling very well and my energy is returning. I take 650 mgs a day of aspirin with no stomach problems. If you do have stomach irritation, I recommend seeing a nutritionist who can try you on different enzymes - there are so many out there, some work for the bowels, some for the pancreas, some for the stomach, and it's hard to know which will work. I take a few but those work for me and it took a while to find the right ones. Lastly, I juice all the time, (using the fruits/veggies that I am allowed) but if you find that your body reacts, then obviously it's not for you. Ultimately, that is the best guide and each one of us is different.This is such a journey . . . . good luck to you.

> samters > From: darciecoe@...> Date: Sun, 16 Oct 2011 04:08:29 +0000> Subject: asa desens and salicylate foods> > Hi gang. I haven't posted for awhile because of several reasons. Migraines, asthma, body aches, coughing, congestion and stomach pain being among the reasons. I just wanted to open up the debate about being asa desensitized and the ability to eat salicylate containing foods again. I know we have discussed this in the past but I would like to revisit this topic if I could. There are a number of us that have been able to eat "normal" diets following the desense and also many that have still "reacted". I still can't wrap my head around why we can't consume salicylate containing foods such as fruit and vegetables after the desense. Please share with those of us that are new(er) to the forum. Also, I was curious if anyone took enzymes or anything for that matter that helps with the quick digestion

of the aspirin and thus is able to enjoy a healthy stomach. Lastly, has anyone been successful going raw or juicing following desense? Fruits and veggies are supposed to be the body's "cleaners" but the high salicylate makeup of them just messes me up.> > Thanks so much, Rob> > > > ------------------------------------> >

[Guest guest]

Forgot to mention, liquid aloe is also good for stomach irritation and digestive issues in general. Best is 's for me. Clear and tasteless.

> samters > From: darciecoe@...> Date: Sun, 16 Oct 2011 04:08:29 +0000> Subject: asa desens and salicylate foods> > Hi gang. I haven't posted for awhile because of several reasons. Migraines, asthma, body aches, coughing, congestion and stomach pain being among the reasons. I just wanted to open up the debate about being asa desensitized and the ability to eat salicylate containing foods again. I know we have discussed this in the past but I would like to revisit this topic if I could. There are a number of us that have been able to eat "normal" diets following the desense and also many that have still "reacted". I still can't wrap my head around why we can't consume salicylate containing foods such as fruit and vegetables after the desense. Please share with those of us that are new(er) to the forum. Also, I was curious if anyone took enzymes or anything for that matter that helps with the quick digestion of the aspirin and thus is able to enjoy a healthy stomach. Lastly, has anyone been successful going raw or juicing following desense? Fruits and veggies are supposed to be the body's "cleaners" but the high salicylate makeup of them just messes me up.> > Thanks so much, Rob> > > > ------------------------------------> >

[Guest guest]

Hi Jane,Aspirin desensitization is an important factor in preventing polyp regrowth, but it is by no means at all a guarantee in itself that polyps will not come back. For instance, germs and allergies are strong polyp boosters, and aspirin desensitization cannot prevent them. What aspirin desensitization does, however, is that it makes the mucosa less inflammatory and therefore less prone to polyp development.> > From: Darcie darciecoe@...> Subject: asa desens and salicylate foods> samters > Date: Saturday, October 15, 2011, 10:08 PM> > > > > > > > > > > > > > > > > Â > > > > > > > > > > Hi gang. I haven't posted for awhile because of several reasons. Migraines, asthma, body aches, coughing, congestion and stomach pain being among the reasons. I just wanted to open up the debate about being asa desensitized and the ability to eat salicylate containing foods again. I know we have discussed this in the past but I would like to revisit this topic if I could. There are a number of us that have been able to eat "normal" diets following the desense and also many that have still "reacted". I still can't wrap my head around why we can't consume salicylate containing foods such as fruit and vegetables after the desense. Please share with those of us that are new(er) to the forum. Also, I was curious if anyone took enzymes or anything for that matter that helps with the quick digestion of the aspirin and thus is able to enjoy a healthy stomach. Lastly, has anyone been successful going raw or juicing following desense? Fruits and> veggies are supposed to be the body's "cleaners" but the high salicylate makeup of them just messes me up.> > > > Thanks so much, Rob>

[Guest guest]

Hi Joan,Aspirin is acetylsalicylic acid, which has a stronger effect than the salicylates in food because of the acetyl- addition. This is in fact why aspirin was invented in the first place : to have a painkiller stronger and with less side-effects than willow bark extract.You are right in pointing out that aspirin desense should be efficient against the salicylates in food, but we should keep in mind that we may individually react to a variety of other compounds, which are not necessarily salicylate-related, and which can be determined only by trial.> > > > > Hi Rob - I had my desens in July. At that time I asked the question about salicylate foods and immunologist told me the make-up of sal foods is completely different to that of ASA itself, so not to restrict myself unless I noticed a difference, which I didn't. The desens was a huge success for me, as my nose and sinuses are non-reactive (no sneezing, congestion, dripping etc) and I feel soooo much better. Plus my sense of SOS has returned - what a bonus!> > > > As it turns out, I had an ALCAT test after that, and found out that I am highly reactive to gluten and sugars, among other things, so I cut those out completely (the idea of doing this is MUCH worse than the actual thing BTW) and feel really really well. I am basically on the paleo diet - mostly meat and fruit/veggies and nuts, except for those items which were shown reactive. Initially I had no energy at all, (you have to go through withdrawal) but 4 weeks into it I am feeling very well and my energy is returning. > > > > I take 650 mgs a day of aspirin with no stomach problems. If you do have stomach irritation, I recommend seeing a nutritionist who can try you on different enzymes - there are so many out there, some work for the bowels, some for the pancreas, some for the stomach, and it's hard to know which will work. I take a few but those work for me and it took a while to find the right ones.> > > > Lastly, I juice all the time, (using the fruits/veggies that I am allowed) but if you find that your body reacts, then obviously it's not for you. Ultimately, that is the best guide and each one of us is different.> > This is such a journey . . . . good luck to you.> > > > > > > > > > > > > samters > > > From: darciecoe@...> > > Date: Sun, 16 Oct 2011 04:08:29 +0000> > > Subject: asa desens and salicylate foods> > > > > > Hi gang. I haven't posted for awhile because of several reasons. Migraines, asthma, body aches, coughing, congestion and stomach pain being among the reasons. I just wanted to open up the debate about being asa desensitized and the ability to eat salicylate containing foods again. I know we have discussed this in the past but I would like to revisit this topic if I could. There are a number of us that have been able to eat "normal" diets following the desense and also many that have still "reacted". I still can't wrap my head around why we can't consume salicylate containing foods such as fruit and vegetables after the desense. Please share with those of us that are new(er) to the forum. Also, I was curious if anyone took enzymes or anything for that matter that helps with the quick digestion of the aspirin and thus is able to enjoy a healthy stomach. Lastly, has anyone been successful going raw or juicing following desense? Fruits and veggies are supposed to be the body's "cleaners" but the high salicylate makeup of them just messes me up.> > > > > > Thanks so much, Rob> > > > > > > > > > > > ------------------------------------> > > > > >

[Guest guest]

I am back from Scripps in San Diego and have been desensitized. I still have

asthma and now I am constantly smelling cigarette smoke through my nose. I am

not around any smoke and would much rather have no sos than this. I have yet to

get a cat scan to rule out the worst(tumor) but am hopeul it is not. I just

wanted to share with you guys some of the answers I received from my doctor

there. In response to any relation to salicylates in food and in aspirin, my

doctor said there was none. I was very surprised by this and must admit, I am

still a bit skeptical. I also posed the question of how far we are from finding

a cure and also asked if there is any record of anyone beating this disease.

The doc(who is rated in the top 1% of allergists in the country) stated that it

is unknown when there will be a cure and that nobody has yet to beat this.

People have beaten stage 4 malignancies but not this??? He said that asa

desense is the single best treatment for AERD thus far but that all it does is

slow down the inflammation and the polyp growth. I spent 2 days grilling him on

questions so please feel free to ask me anything of concern to you and I will

try my best to answer it while it is still fresh in my mind. All in all, the

experience was a bit discouraging but I find comfort in knowing that we are all

committed to helping eachother be well.

Thanks, Rob

>

> Also, I was curious if anyone took enzymes or anything for that matter that

helps with the quick digestion of the aspirin and thus is able to enjoy a

healthy stomach. I take 650 mg aspirin 3x a day right now (for one month, then

back to only 2x a day) and I take ranitidine tabs 150mg 2x a day and so far, I

have had no stomach problems. 

> I have heard people say they can eat food w/sals once desens'd but I am still

opting to eat low sals right now because I still have polyps on the left side

and I am trying to get them to shrink.

> Thank you for bringing up this topic. Look forward to hearing folks input.

>

>

[Guest guest]

Hi Bianca. He didn't specify whether symptoms change for the better or worse.

He did say that most of us Samters sufferers have alot more going on,

specifically oral allergy syndrome, which exacerabates all of our symptoms. I

did talk to him on a few occasions specifically about juicing, going raw and

enzyme therapy. He was not a big believer in the benefits of any of it. I can

tell you I wasn't surprised too much with his reaction because he is a medical

doctor. However, with him being an allergy specialist, I thought he would be

more open to things outside the box. Both him and his assistant recommended I

go on Xolair and nasonex in addition to the asa. As far as non medication

recommendations, they told me Vitamin D3 and elimination of foods that I am

reactive to are about all I can do.

I am still fairly new to this disease(1 year) but I can honestly say, I am sick

and tired of being sick and tired already. I am pretty much done with

preservatives, artificial anything and processed foods. I am now a 2 x a day

juicer and I hope it helps. I liked my doctors at Scripps but I still believe

we, as sufferers, will probably do more for ourselves then the medical

profession will do. I also believe that we are so void of benefcial enzymes in

our diet so supplementing with them probably would help tremendously with

digestion and inflammation.

Rob.

> > >

> > > Also, I was curious if anyone took enzymes or anything for that matter

that helps with the quick digestion of the aspirin and thus is able to enjoy a

healthy stomach. I take 650 mg aspirin 3x a day right now (for one month, then

back to only 2x a day) and I take ranitidine tabs 150mg 2x a day and so far, I

have had no stomach problems.

> > > I have heard people say they can eat food w/sals once desens'd but I am

still opting to eat low sals right now because I still have polyps on the left

side and I am trying to get them to shrink.

> > > Thank you for bringing up this topic. Look forward to hearing folks input.

> > >

> > >

> >

> >

>

[Guest guest]

Another email which I don't think reached our group a few days ago!Becky----- Forwarded Message -----From: Bannister <beckyb256@...>"samters " <samters >Sent: Saturday, 22 October 2011, 9:25Subject: Re: Re: asa desens and salicylate foodsThanks Rob,well at least your Dr was being honest. I'd be really grateful if you could jot down here other things that you remember too.My Dr also said there is no relation between aspirin and food salycilates, so really we SHOULD still be reacting to all foods high inn sals, but I do not. Being desens has enabled me to eat a full diet, and the only thing I still need to be careful with is wine. Being desens has greatly controlled my asthma - but not completely, and it has slowed my polyp growth, but I still need operations to remove them when they eventually grow.BeckyFrom: Darcie <darciecoe@...>samters Sent: Saturday, 22 October 2011, 5:52Subject: Re: asa desens and salicylate foods

I am back from Scripps in San Diego and have been desensitized. I still have asthma and now I am constantly smelling cigarette smoke through my nose. I am not around any smoke and would much rather have no sos than this. I have yet to get a cat scan to rule out the worst(tumor) but am hopeul it is not. I just wanted to share with you guys some of the answers I received from my doctor there. In response to any relation to salicylates in food and in aspirin, my doctor said there was none. I was very surprised by this and must admit, I am still a bit skeptical. I also posed the question of how far we are from finding a cure and also asked if there is any record of anyone beating this disease. The doc(who is rated in the top 1% of allergists in the country) stated that it is unknown when there will be a cure and that nobody has yet to beat this. People have beaten stage 4 malignancies but not this??? He said that asa desense is the

single best treatment for AERD thus far but that all it does is slow down the inflammation and the polyp growth. I spent 2 days grilling him on questions so please feel free to ask me anything of concern to you and I will try my best to answer it while it is still fresh in my mind. All in all, the experience was a bit discouraging but I find comfort in knowing that we are all committed to helping eachother be well.

Thanks, Rob

>

> Also, I was curious if anyone took enzymes or anything for that matter that helps with the quick digestion of the aspirin and thus is able to enjoy a healthy stomach. I take 650 mg aspirin 3x a day right now (for one month, then back to only 2x a day) and I take ranitidine tabs 150mg 2x a day and so far, I have had no stomach problems.

> I have heard people say they can eat food w/sals once desens'd but I am still opting to eat low sals right now because I still have polyps on the left side and I am trying to get them to shrink.

> Thank you for bringing up this topic. Look forward to hearing folks input.

>

>