FW: Re: aspirin vs. oral steroids/Ken

[Guest guest]

> From: " truelori " <lori@...>

.. . . snip . . .

>

> In terms of the surgery, as I said, I definitely don't want to appear

> to be advocating for surgery. It's just my guess that because you

> didn't have the sinus surgery the aspirin desensitization would not

> work as well. Doesn't mean you should have surgery, though. I

> sometimes think honestly that I am worse off having had surgery ever,

> but since the first one it seems I may always need it (scar tissue

> forming polyps and such). BUt there's really no way to prove this so

> I may as well forget about it. And anyway surgery seems to work

> better for me each time because of all the new treatments that are

> available in the last 12 years.

OK -- here's the question: Which is more effective?

Eliminating polyps with surgery, followed by Desensitization,

or,

eliminating polyps with Prednisone, followed by Desensitization?

I ask, because right now, following 3 weeks of Prednisone, currently reduced

to 2mg/day, my sense of smell is as good as when I was 10, and this comes

after months of total congestions and anosmia. So, why not do

Desensitization now? Why would surgery be of benefit at this time?

Ken West

[Guest guest]

> From: Jim Brown <jim747@...>

.. . . snip . . .

> My surgeon was afraid to get back too close to my eyes and brain. In my

> opinion, following up on computerized surgery with aspirin desens. should be a

> good combination for many. Just my humble opinion. Jim

OK, here's how I see it:

Prednisone = osteonecrosis.

Surgery = risk to EYES and BRAIN, over and over again.

Desensitization = ASA = microbleeding.

Low salicylate diet = BOOOOORING.

I think I'll just double my prescription for J & B.

Ken West

[Guest guest]

As they say.....there ain't no free lunch. Life's a bitch...and then you die.

I think the reason for surgery is when prednisone or other chemical means no

longer TOTALLY shrink

the polyps. When they were almost sticking out of my nose, no amount of

prednisone or diet or

aspirin would shrink them all the way back. Then you have to cut them out.

Oh yes, unfortunatly, for many of us even your last solution makes our polyps

worse. That's really

the pits.

Jim (TX)

--- Ken West <kenwest@...> wrote:

>

> > From: Jim Brown <jim747@...>

> . . . snip . . .

> > My surgeon was afraid to get back too close to my eyes and brain. In my

> > opinion, following up on computerized surgery with aspirin desens. should be

a

> > good combination for many. Just my humble opinion. Jim

>

> OK, here's how I see it:

> Prednisone = osteonecrosis.

> Surgery = risk to EYES and BRAIN, over and over again.

> Desensitization = ASA = microbleeding.

> Low salicylate diet = BOOOOORING.

>

> I think I'll just double my prescription for J & B.

>

> Ken West

>

>

>

>

>

>

[Guest guest]

I agree Jim, I no longer drink any alcohol it makes things so bad for my

sinuses it just isn't worth it!

Re: FW: Re: aspirin vs. oral steroids/Ken

>

> As they say.....there ain't no free lunch. Life's a bitch...and then you

> die.

>

> I think the reason for surgery is when prednisone or other chemical means

> no longer TOTALLY shrink

> the polyps. When they were almost sticking out of my nose, no amount of

> prednisone or diet or

> aspirin would shrink them all the way back. Then you have to cut them out.

>

> Oh yes, unfortunatly, for many of us even your last solution makes our

> polyps worse. That's really

> the pits.

>

> Jim (TX)

>

>

> --- Ken West <kenwest@...> wrote:

>

>>

>> > From: Jim Brown <jim747@...>

>> . . . snip . . .

>> > My surgeon was afraid to get back too close to my eyes and brain. In my

>> > opinion, following up on computerized surgery with aspirin desens.

>> > should be a

>> > good combination for many. Just my humble opinion. Jim

>>

>> OK, here's how I see it:

>> Prednisone = osteonecrosis.

>> Surgery = risk to EYES and BRAIN, over and over again.

>> Desensitization = ASA = microbleeding.

>> Low salicylate diet = BOOOOORING.

>>

>> I think I'll just double my prescription for J & B.

>>

>> Ken West

>>

>>

>>

>>

>>

>>

[Guest guest]

Ken:

That about sums it up!!

I've just became anosmic again after 4 1/2 months of doing well

since my last prednisone course. My allergist wants to go through

with the ASA desense but doesn't see the need for surgery prior

since the polyps typically grow back so quickly. So all in all a big

decision to make. Risk another surgery and than the desense or go

the prednisone route again then try it.

I've tried to work with a low salicylate diet too but when I can

smell and taste well I want to enjoy food and drink!! What's the

sense of being able to smell and taste if you have to live on such a

restricted diet?? No fun at all!! I for one seem lucky in the fact

that I've rarely experienced an acute exacerbation of any symptoms

after eating high salicyalte foods, so even less motivation to stick

with the diet. But now since I'm anosmic again, perhaps it's all

caught up with me.

Kinda in a dilemma here with which route to go at this point.

Hang in there and have another J & B!!

Mike

> > From: Jim Brown <jim747@s...>

> . . . snip . . .

> > My surgeon was afraid to get back too close to my eyes and

brain. In my

> > opinion, following up on computerized surgery with aspirin

desens. should be a

> > good combination for many. Just my humble opinion. Jim

>

> OK, here's how I see it:

> Prednisone = osteonecrosis.

> Surgery = risk to EYES and BRAIN, over and over again.

> Desensitization = ASA = microbleeding.

> Low salicylate diet = BOOOOORING.

>

> I think I'll just double my prescription for J & B.

>

> Ken West