I hope this helps some of you.

September 21, 2010

Hi Everyone,Just thought I would let you know in my search to find a doctor that can actually help people with Samter's Triad I came across Dr. Tucker Allergist and Immunologist in West Palm Beach, Florida. Apparently people travel from all parts of the world to see Dr. Tucker with very rare allergy cases that most doctors can not help. Dr. Tucker who has got to be close to 80 years old actually worked on allergy cases with Max Samter, and knew him personally. I have not met a more worldly knowledgeable doctor in my life. He has written many books and is in Top Docs magazine. He says that most people with nasal polyps also have allergies to mold and yeast. I really never tested positive to allergies at all no matter which

allergist did a skin test on me. Most doctors will not do the kind of skin testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go back tomorrow for him to review my skin again. He immediately talked about mold and diet. Most people have Fungal Sinusitis which also causes a lot of fungus and yeast in other parts of the body, as well as sinuses. His recommendation is 30 day treatment of oral Fungal medication along with diet, and he took a Qvar 40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two puffs in each nostril I felt immediate relief from sinus congestion. It also gets into the lungs from the nose so it works for both. I would have never known that. He studies the many different allergy reactions the body has to different things some allergens don't show up right away, and mainstream doctors only concentrate on Type I allergy reactions.He also recommends herbal anti

- inflammatory, and Omega 3 fish oil. Whole food diet especially RAW fruits and veggies which I already knew. No dairy either which I also knew. He also recommended x-clear nasal spray. I will be seeing him again, but I am very hopeful of more he can do to help Samters. From: <rebeebit@...>samters Sent: Sun, September 19, 2010 8:37:13 PMSubject: Re: Change of email Thinking of you . As if any of us need more on our plates. Take care. >

> > > My apologies for not doing this in the correct section but I'm under so > much > > stress right now I just can't think straight and I'd really appreciate it > if > > someone could do the right thing for me. > > > > > > > > My partner of some 42 years who is aged 66 has decided I needed recycling > > for a 32 year from the Philippines. > > > > > > > > My new email will be celtic_dove@ > > > > > > > > Thanks > > > > > > > > > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514) > > Database version: 6.15890 > > http://www.pctools.com/en/spyware-doctor-antivirus/ > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514) > Database version: 6.15900 > http://www.pctools.com/spyware-doctor-antivirus/ > <http://www.pctools.com/en/spyware-doctor-antivirus/> > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514) > Database version: 6.15900 > http://www.pctools.com/en/spyware-doctor-antivirus/ >

September 24, 2010

Iâ€™ve heard the thing about â€œmost people with Samerâ€™s have fungal

sinusitis before.â€Â Iâ€™m not convinced.Â I am not allergic to mold.Â It was one

of the few things I did not react to when I was tested and I have never had any

sort of reaction I can connect to molds.Â I was tested for fungal sinusitis,

though I do believe that test came back â€œinconclusive.â€Â The ENT I was seeing

at the time even had me do a course of anti-fungal oral med, which is nasty

stuff.Â I think I took it for a month, maybe it was longer.Â But it didnâ€™t do

anything to improve my nose so the conclusion was that mold was not a problem.

K.

From:

samters [mailto:samters ] On Behalf Of

Roth

Sent: Tuesday, September 21, 2010 11:53 PM

samters

Subject: I hope this helps some of you.

Hi

Everyone,

Just

thought I would let you know in my search to find a doctor that can actually

help people with Samter's Triad I came across Dr. Tucker Allergist

and Immunologist in West Palm Beach, Florida. Apparently people travel from all

parts of the world to see Dr. Tucker with very rare allergy cases that most

doctors can not help. Dr. Tucker who has got to be close to 80 years old

actually worked on allergy cases with Max Samter, and knew him personally. I

have not met a more worldly knowledgeable doctor in my life. He has written

many books and is in Top Docs magazine.

He says

that most people with nasal polyps also have allergies to mold and yeast. I

really never tested positive to allergies at all no matter which allergist did

a skin test on me. Most doctors will not do the kind of skin testing Dr. Tucker

does. I had close to 200 allergy tests done, and have to go back tomorrow for

him to review my skin again. He immediately talked about mold and diet. Most

people have Fungal Sinusitis which also causes a lot of fungus and yeast in

other parts of the body, as well as sinuses. His recommendation is 30 day

treatment of oral Fungal medication along with diet, and he took a Qvar 40mg

rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two puffs

in each nostril I felt immediate relief from sinus congestion. It also gets

into the lungs from the nose so it works for both. I would have never known

that. He studies the many different allergy reactions the body has to different

things some allergens don't show up right away, and mainstream doctors only

concentrate on Type I allergy reactions.

He also

recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole

food diet especially RAW fruits and veggies which I already knew. No

dairy either which I also knew. He also recommended x-clear nasal spray.

I will be

seeing him again, but I am very hopeful of more he can do to help

Samters.

From:

<rebeebit@...>

samters

Sent: Sun, September 19, 2010 8:37:13 PM

Subject: Re: Change of email

Thinking of you . As if any of us need

more on our plates. Take care.

> >

> > My apologies for not doing this in the correct section but I'm under

so

> much

> > stress right now I just can't think straight and I'd really

appreciate it

> if

> > someone could do the right thing for me.

> >

> > My partner of some 42 years who is aged 66 has decided I needed

recycling

> > for a 32 year from the Philippines.

> >

> > My new email will be celtic_dove@

> >

> > Thanks

> >

> > E-mail message checked by Spyware Doctor (7.0.0.514)

> > Database version: 6.15890

> > http://www.pctools.com/en/spyware-doctor-antivirus/

> >

>

> E-mail message checked by Spyware Doctor (7.0.0.514)

> Database version: 6.15900

> http://www.pctools.com/spyware-doctor-antivirus/

> <http://www.pctools.com/en/spyware-doctor-antivirus/>

>

> E-mail message checked by Spyware Doctor (7.0.0.514)

> Database version: 6.15900

> http://www.pctools.com/en/spyware-doctor-antivirus/

>

October 3, 2010

Thank you for your story Beverly. Your home and area you live in sound wonderful!

Why have you lost muscle strength?

Becky x

From: anaturallearner <contact@...>samters Sent: Sat, 2 October, 2010 23:29:15Subject: Re: I hope this helps some of you.

My immunologist said it was very easy to recognise fungal sinusitis, and I imagine a simple test would confirm it. If it is positive then a course of anti-fungal medication should prove useful. Don't use them unless you are tested and it is positive. I've had polyps since childhood (five polypectomies so far); my frontal and ethnoid sinuses have been blocked since my teen years. I average 6 years between surgeries. I use Rhinocort (Budesonide nasal spray twice a day. My asthma is being controlled by Seretide (Fluticasone propionate/Salmeterol xinafoate) and Singluar (montelukast sodium). I was better when I was desensitised to aspirin but needed an operation and had to stop taking it - the last desensitisation process failed. I haven't had a sense of smell for close on 30 years (lost it in my early 20s), though it would rarely break through for a day or so, and would come back for up to three weeks after nasal surgery.

My ENT is going to put a T-Tube in my ear as the eustachian tube doesn't drain and wanted to remove the polyps again as I have 80% blockage. However, after vomiting forcefully following anesthesia from an operation four weeks ago my sense of smell has returned. I'll be interested to see what he has to say when I see him next. :-) I've had a barrage of allergy tests done, skin and blood, and I'm not allergic to anything except aspirin and NSAIDS. We live in a low allergy house - all natural timbers, leather furniture, low allergy personal products, a couple of miles from the beach (cleaner air), in the country. It's a pain living with this condition - the worse bit is losing muscle strength and depression which are the most debilitating aspects of it for me.Thanks for reading my story. Beverley Australia

Thank you for your story Beverly. Your house and

October 3, 2010

I wish I was treated with a fungal med. I was found to have invasive aspergillosis which was taken out at my last op, yet I wasn't given any fungal meds. I now of course have the same issues with infection as I did before my op. I feel no better at all, and my sos only returned for one week.

Becky

From: Jane Marino <janesmarino@...>samters Sent: Sun, 3 October, 2010 5:26:09Subject: RE: I hope this helps some of you.

,My ENT always treats me with Diflucan, a antifungal med. every time I get a sinus infection. He feels there is always a good chance of having some degree of fungus in the sinuses simply from the many different environments we interact with each day.Jane

From: Keefer <julie.keefer@...>Subject: RE: I hope this helps some of you.samters Date: Friday, September 24, 2010, 2:31 PM

Iâ€™ve heard the thing about â€œmost people with Samerâ€™s have fungal sinusitis before.â€ Iâ€™m not convinced. I am not allergic to mold. It was one of the few things I did not react to when I was tested and I have never had any sort of reaction I can connect to molds. I was tested for fungal sinusitis, though I do believe that test came back â€œinconclusive.â€ The ENT I was seeing at the time even had me do a course of anti-fungal oral med, which is nasty stuff. I think I took it for a month, maybe it was longer. But it didnâ€™t do anything to improve my nose so the conclusion was that mold was not a problem.

K.

From: samters [mailto:samters ] On Behalf Of RothSent: Tuesday, September 21, 2010 11:53 PMsamters Subject: I hope this helps some of you.

Hi Everyone,

Just thought I would let you know in my search to find a doctor that can actually help people with Samter's Triad I came across Dr. Tucker Allergist and Immunologist in West Palm Beach, Florida. Apparently people travel from all parts of the world to see Dr. Tucker with very rare allergy cases that most doctors can not help. Dr. Tucker who has got to be close to 80 years old actually worked on allergy cases with Max Samter, and knew him personally. I have not met a more worldly knowledgeable doctor in my life. He has written many books and is in Top Docs magazine.

He says that most people with nasal polyps also have allergies to mold and yeast. I really never tested positive to allergies at all no matter which allergist did a skin test on me. Most doctors will not do the kind of skin testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go back tomorrow for him to review my skin again. He immediately talked about mold and diet. Most people have Fungal Sinusitis which also causes a lot of fungus and yeast in other parts of the body, as well as sinuses. His recommendation is 30 day treatment of oral Fungal medication along with diet, and he took a Qvar 40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two puffs in each nostril I felt immediate relief from sinus congestion. It also gets into the lungs from the nose so it works for both. I would have never known that. He studies the many different allergy reactions the body has to

different things some allergens don't show up right away, and mainstream doctors only concentrate on Type I allergy reactions.

He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole food diet especially RAW fruits and veggies which I already knew. No dairy either which I also knew. He also recommended x-clear nasal spray.

I will be seeing him again, but I am very hopeful of more he can do to help Samters.

From: <rebeebit@...>samters Sent: Sun, September 19, 2010 8:37:13 PMSubject: Re: Change of email

Thinking of you . As if any of us need more on our plates. Take care.> >> > My apologies for not doing this in the correct section but I'm under so> much> > stress right now I just can't think straight and I'd really appreciate it> if> > someone could do the right thing for me.> > > > > > > > My partner of some 42 years who is aged 66 has decided I needed recycling> > for a 32 year from the Philippines.> > > > > > > > My new email will be celtic_dove@> > > > > > > >

Thanks> > > > > > > > > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > Database version: 6.15890> > http://www.pctools.com/en/spyware-doctor-antivirus/> >> > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> Database version: 6.15900> http://www.pctools.com/spyware-doctor-antivirus/> <http://www.pctools.com/en/spyware-doctor-antivirus/> > > > > > > E-mail message checked by Spyware

Doctor (7.0.0.514)> Database version: 6.15900> http://www.pctools.com/en/spyware-doctor-antivirus/>

October 3, 2010

Thanks Becky.

I have no idea why I lose strength. My son, who has had cholinergic urticaria

for 8 years also gets it. I had a bout of that when I was in my teens, but it

only lasted the summer. It runs in the family and I suspect it is somehow

related to my asthma and sinus problems.

Some days, when my tolerance levels are low, I feel fatigued and can't lift

heavy things. I used to keep diaries of my symptoms, what I ate, environmental

factors.

Beverley

>

> Thank you for your story Beverly. Your home and area you live in sound

> wonderful!

> Why have you lost muscle strength?

> Becky x

>

October 3, 2010

Hi Beverley,

that's really interesting. I'm sure they are related too.

Becky

From: anaturallearner <contact@...>samters Sent: Sun, 3 October, 2010 9:51:05Subject: Re: I hope this helps some of you.

Thanks Becky. I have no idea why I lose strength. My son, who has had cholinergic urticaria for 8 years also gets it. I had a bout of that when I was in my teens, but it only lasted the summer. It runs in the family and I suspect it is somehow related to my asthma and sinus problems. Some days, when my tolerance levels are low, I feel fatigued and can't lift heavy things. I used to keep diaries of my symptoms, what I ate, environmental factors. Beverley >> Thank you for your story Beverly. Your home and area you live in sound > wonderful!> Why have you lost muscle strength?> Becky x> > >

October 3, 2010

I agree with your ENT Jane. I also think there is some or all fungal in sinuses depending how bad is how long to stay on fungal med. Also, fungal is harder to kill then bacterial infections. Sent on the SprintÂ® Now Network from my BlackBerryÂ®From: Jane Marino <janesmarino@...>Sender: samters Date: Sat, 2 Oct 2010 21:26:09 -0700 (PDT)<samters >Reply samters Subject: RE: I hope this helps some of you. ,My ENT always treats me with Diflucan, a antifungal med. every time I get a sinus infection. He feels there is always a good chance of having some degree of fungus in the sinuses simply from the many different environments we interact with each day.JaneFrom: Keefer <julie.keefer@...>Subject: RE: I hope this helps some of you.samters Date: Friday, September 24, 2010, 2:31 PM Iâ€™ve heard the thing about â€œmost people with Samerâ€™s have fungalsinusitis before.â€ Iâ€™m not convinced. I am not allergic to mold. It was oneof the few things I did not react to when I was tested and I have never had anysort of reaction I can connect to molds. I was tested for fungal sinusitis,though I do believe that test came back â€œinconclusive.â€ The ENT I was seeingat the time even had me do a course of anti-fungal oral med, which is nastystuff. I think I took it for a month, maybe it was longer. But it didnâ€™t doanything to improve my nose so the conclusion was that mold was not a problem. K. From:samters [mailto:samters ] On Behalf Of RothSent: Tuesday, September 21, 2010 11:53 PMsamters Subject: I hope this helps some of you. HiEveryone, Justthought I would let you know in my search to find a doctor that can actuallyhelp people with Samter's Triad I came across Dr. Tucker Allergistand Immunologist in West Palm Beach, Florida. Apparently people travel from allparts of the world to see Dr. Tucker with very rare allergy cases that mostdoctors can not help. Dr. Tucker who has got to be close to 80 years oldactually worked on allergy cases with Max Samter, and knew him personally. Ihave not met a more worldly knowledgeable doctor in my life. He has writtenmany books and is in Top Docs magazine. He saysthat most people with nasal polyps also have allergies to mold and yeast. Ireally never tested positive to allergies at all no matter which allergist dida skin test on me. Most doctors will not do the kind of skin testing Dr. Tuckerdoes. I had close to 200 allergy tests done, and have to go back tomorrow forhim to review my skin again. He immediately talked about mold and diet. Mostpeople have Fungal Sinusitis which also causes a lot of fungus and yeast inother parts of the body, as well as sinuses. His recommendation is 30 daytreatment of oral Fungal medication along with diet, and he took a Qvar 40mgrescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two puffsin each nostril I felt immediate relief from sinus congestion. It also getsinto the lungs from the nose so it works for both. I would have never knownthat. He studies the many different allergy reactions the body has to differentthings some allergens don't show up right away, and mainstream doctors onlyconcentrate on Type I allergy reactions. He alsorecommends herbal anti - inflammatory, and Omega 3 fish oil. Wholefood diet especially RAW fruits and veggies which I already knew. Nodairy either which I also knew. He also recommended x-clear nasal spray. I will beseeing him again, but I am very hopeful of more he can do to helpSamters. From: <rebeebit@...>samters Sent: Sun, September 19, 2010 8:37:13 PMSubject: Re: Change of email Thinking of you . As if any of us needmore on our plates. Take care.> >> > My apologies for not doing this in the correct section but I'm underso> much> > stress right now I just can't think straight and I'd reallyappreciate it> if> > someone could do the right thing for me.> > > > > > > > My partner of some 42 years who is aged 66 has decided I neededrecycling> > for a 32 year from the Philippines.> > > > > > > > My new email will be celtic_dove@> > > > > > > > Thanks> > > > > > > > > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > Database version: 6.15890> > http://www.pctools.com/en/spyware-doctor-antivirus/> >> > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> Database version: 6.15900> http://www.pctools.com/spyware-doctor-antivirus/> <http://www.pctools.com/en/spyware-doctor-antivirus/> > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> Database version: 6.15900> http://www.pctools.com/en/spyware-doctor-antivirus/>

October 3, 2010

,Thank you for letting us know about Dr. Tucker in Florida. I have the greatest respect for doctors who take a global approach, feel concerned for their patients and take all the time required to discuss the case in detail. More often than not, most doctors dismiss their patients after 15 minutes or, in the best of cases, a half-hour or an hour. This happens either out of economic reasons (spending 30 minutes vs 15 minutes with a patient halves the doctor's daily income if the fee is not per hour) or out of ignorance of the condition, or boredom, or a combination of similar reasons.So, it's great to know that there are doctors out like Dr. Tucker who are willing to listen, and take some time to educate their patients. They really deserve top honors in doctors' rankings and in patients' esteem.However, even great doctors cannot be expected to know everything on every possible condition, and this is true not only for general medecine practicioners but also even for specialists. Just in the ENT discipline, there are about several dozen possible pathological conditions, which means that it is practically impossible for even the most devoted ENT to stay informed of everything that is going on on every pathology. So, starting from the general ENT field, for example, some - not all, just some - branch more towards the ear, others more towards the larynx, others still more towards the sinuses. This allows to concentrate on just a few medical journals and stay on top of most of what is happening - but still only with regular, tedious reading.So, my point is that even if I have a few comments or disagreements with what Dr. Tuckers may think or say about Samter's, it does not mean at all that I do not believe that he's a great doctor, but it may be that one cannot expect even great doctors to know everything on every condition.Regarding mold allergies, it is not true that most people with nasal polyps have allergies to mold and yeast. At least, it is not true stated that way. There have been major, still partly ongoing debates between ENTs as to the cause of nasal polyps and sinusitis. At one point, several years ago, a Mayo Clinic team thought they had discovered that molds and fungi were the root of all sinusitis and perhaps polyps. This was hyped in the media with great fanfare, as if they had found the definitive cause of all sinusitis in the world and that the cure to all forms of sinusitis could be had with a simple antifungal drug.Well, sinusitis and polyposis unfortunately are still here, and most people treated with antifungals are not definitvely cured, far from it. Why is that? Simply because there is not ONE cause of sinusitis but MANY, which means that there are several "brands" of sinusitis around. The Mayo Clinic team saw molds in the sinuses of sinusitis patients and none in healthy patients, which made them believe everything was fungal in nature, but it turned out that they had not looked thoroughly enough and that even healthy patients do have fungi inside their sinuses too. A lot of things can cause sinusitis : viruses, bacteria, fungi, allergies, etc. Once you have sinusitis, as its name implies, you have a sinus inflammation. You also have an immune reaction going on, fighting whatever there is to fight, or fighting nothing worth fighting in the case of allergies. So, when you have sinusitis, whatever its origin, you DO have a greater sensitivity to fungi, lower allergy thresholds, poorer defences against molds, just as you have poorer defences against bacteria and viruses. But it does not mean at all that 1) the root cause of the sinusitis is fungi, nor 2) that you will be cured with antifungals.This finding was confirmed in a recent Egyptian study, in which the authors were surprised to find exactly the same molds in healthy and diseased sinuses, the only difference being more inflammation in the diseased sinuses and also slightly more active fungal production (which is logical : fungi thrive better in diseased sinuses).This being said, it does not hurt to try antifungals at least once ; they might even improve your situation, but, in the majority of case, they will not definitively cure the sinusitis. If they do cure it, it will mean the sinusitis was indeed essentially fungal. It they don't, it does not mean there are absolutely no fungi inside, but that those fungi are not the driving force behind the sinusitis.Note that there ARE a number of sinusitis cases which are fungal in origin, because the individual lives in a highly infested environment, or has been infested once and has not managed to clear it. Fungal sinusitis is a fully recognized "brand" of sinusitis, and must be treated as such, ie with comprehensive allergy tests, fungal desensitization when possible, decontamining or moving when the housing is involved, antifungal drugs or even surgery when necessary. A sub-brand of fungal sinusitis called "invasive fungal sinusitis" is even very dangerous because, as its name implies, the fungi are not contained and manage to invade the entire body until death ensues ; fortunately, it is not common. So fungal sinusitis is a bona fide entity that must be treated as far as possible, but it probably is not the most generic form of sinusitis.Right now, research points more convincingly towards bacteria, notably in the form of biofilms, as "a" major cause of chronic sinusitis and chronic polyposis (but not as "the" cause since there are, as we said, a variety of causes). This is why I often post about biofilms here, and I believe research will keep going in that direction. Do note that bacterial biofilms often harbor fungi as roommates so, once again, it's not that bacterial sinusitis do not contain fungi, just that antifungals alone will not help even if they don't hurt.Also note that some antifungals, notably herbal mixes with Oregano, for instance, are marketed as antifungals - which they indeed are - but they also have great antibacterial activity - and this is also the case with oregano (especially oregano essential oil). So, feeling better after taking an "antifungal herbal mix" says nothing about the nature of the sinusitis unless more information about the mix is known.Regarding allergy testing, true, major allergies must be tested, identified, and addressed - by desensitization, avoidance, medication, etc. However, once someone has inflammation that is advanced enough, the general allergy thresholds are lowered and they appear to be allergic to a vast lot of things that they had not thought of. If you have bad enough Samter's, you could put anything on the allergy testing set close to your nose, and your mucosa would react. Same thing with your skin if you have bad enough urticaria.Regarding inhalers and steroids, if you pump enough of the right kind of steroid inside your nose, the inflammation will diminish readily and you will likely regain good breathing, sense of smell, etc. But this is temporary, as it (usually) does not address the root cause of the inflammation, and the greater the dose, the greater the side effects. From that point on, the idea is to try the various corticosteroid molecules available in spray, inhalers or ampules and find the lowest possible dose that achieves a desirable level of efficiency.Xlear nasal spray contains Xylitol (a natural sweetener) and a preservative in saline. Xylitol may help contain some pathogens (it is used in toothpastes to contain mouth bacteria). If it brings relief, fine, otherwise there is not much risk in trying.Regarding anti-allergy herbs, you might let us know what they are once you try them.Fish oils are recommended because they lower the leukotriene production in the body, leukotrienes being a compound that is over-produced in the Samter's nasal mucosa and also in the asthmatic lungs. When taking fish oils, also take some vitamin E to prevent the fish oils from oxydation.Whole food, mediterranean-style diets that are rich in vegetables, especially green ones, and fruits are recommended, but eating everything raw vs eating only the usual foods raw is not likely to bring spectacular advantages. Bad sugars and fats (cakes, pastries, high-glycemic-index foods, processed foods, Omega-6-rich foods, meat-based deli etc) should be avoided or at least under-represented in the diet.Please let us know what comes out of your treatment, and if you feel better from it, that will be great.> > >> > > My apologies for not doing this in the correct section but I'm under so> > much> > > stress right now I just can't think straight and I'd really appreciate it> > if> > > someone could do the right thing for me.> > > > > > > > > > > > My partner of some 42 years who is aged 66 has decided I needed recycling> > > for a 32 year from the Philippines.> > > > > > > > > > > > My new email will be celtic_dove@> > > > > > > > > > > > Thanks> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > > Database version: 6.15890> > > http://www.pctools.com/en/spyware-doctor-antivirus/> > >> > > > > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > Database version: 6.15900> > http://www.pctools.com/spyware-doctor-antivirus/> > <http://www.pctools.com/en/spyware-doctor-antivirus/> > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > Database version: 6.15900> > http://www.pctools.com/en/spyware-doctor-antivirus/> >>

October 3, 2010

I had the regular skin scratch tests done but then he did

several under-the-skin needle tests which he said were more sensitive.Â He did

those for several that were faint reactions maybe so he could be sure.Â Mold was

one of these and it still didnâ€™t react.Â My stepmother is very allergic to

molds and I have been around her when she is having bad allergy issues and I am

fine, so that has been my other â€œtest.â€Â

K.

From:

samters [mailto:samters ] On Behalf Of samsmom6602@...

Sent: Saturday, October 02, 2010 6:04 PM

samters

Subject: Re: I hope this helps some of you.

,

What kind of allergy tests did you have? The regular skin allergy tests may not

pick up mold allergies it didn't for me either. It wasn't until I got skin

allergy injection testing that it picked up on many mold allergies. Dr Tucker

did almost 200 allergy tests on me. Then I had to go back the following day to

see if I had type 4 allergy reactions most drs will not do this.

Sent on the SprintÂ® Now Network from my BlackBerryÂ®

From: " Keefer "

<julie.keefer@...>

Sender: samters

Date: Fri, 24 Sep 2010 16:31:39 -0400

Replysamters

Subject: RE: I hope this helps some of you.

Iâ€™ve heard the thing about â€œmost people

with Samerâ€™s have fungal sinusitis before.â€ Iâ€™m not convinced. I am

not allergic to mold. It was one of the few things I did not react to

when I was tested and I have never had any sort of reaction I can connect to

molds. I was tested for fungal sinusitis, though I do believe that test

came back â€œinconclusive.â€ The ENT I was seeing at the time even had me do

a course of anti-fungal oral med, which is nasty stuff. I think I took it

for a month, maybe it was longer. But it didnâ€™t do anything to improve my

nose so the conclusion was that mold was not a problem.

K.

From:

samters [mailto:samters ] On Behalf Of

Roth

Sent: Tuesday, September 21, 2010 11:53 PM

samters

Subject: I hope this helps some of you.

Hi

Everyone,

Just

thought I would let you know in my search to find a doctor that can actually

help people with Samter's Triad I came across Dr. Tucker Allergist

and Immunologist in West Palm Beach, Florida. Apparently people travel from all

parts of the world to see Dr. Tucker with very rare allergy cases that most

doctors can not help. Dr. Tucker who has got to be close to 80 years old

actually worked on allergy cases with Max Samter, and knew him personally. I

have not met a more worldly knowledgeable doctor in my life. He has written

many books and is in Top Docs magazine.

He

says that most people with nasal polyps also have allergies to mold and yeast.

I really never tested positive to allergies at all no matter which allergist

did a skin test on me. Most doctors will not do the kind of skin testing Dr.

Tucker does. I had close to 200 allergy tests done, and have to go back

tomorrow for him to review my skin again. He immediately talked about mold and

diet. Most people have Fungal Sinusitis which also causes a lot of fungus and

yeast in other parts of the body, as well as sinuses. His recommendation is 30

day treatment of oral Fungal medication along with diet, and he took a Qvar

40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two

puffs in each nostril I felt immediate relief from sinus congestion. It also

gets into the lungs from the nose so it works for both. I would have never

known that. He studies the many different allergy reactions the body has to

different things some allergens don't show up right away, and mainstream

doctors only concentrate on Type I allergy reactions.

He

also recommends herbal anti - inflammatory, and Omega 3 fish oil.

Whole food diet especially RAW fruits and veggies which I already knew.

No dairy either which I also knew. He also recommended x-clear nasal spray.

I

will be seeing him again, but I am very hopeful of more he can do to help

Samters.

From:

<rebeebit@...>

samters

Sent: Sun, September 19, 2010 8:37:13 PM

Subject: Re: Change of email

Thinking of you . As if any of us need more on our plates. Take care.

> >

> > My apologies for not doing this in the correct section but I'm under

so

> much

> > stress right now I just can't think straight and I'd really

appreciate it

> if

> > someone could do the right thing for me.

> >

> > My partner of some 42 years who is aged 66 has decided I needed

recycling

> > for a 32 year from the Philippines.

> >

> > My new email will be celtic_dove@

> >

> > Thanks

> >

> > E-mail message checked by Spyware Doctor (7.0.0.514)

> > Database version: 6.15890

> > http://www.pctools.com/en/spyware-doctor-antivirus/

> >

>

> E-mail message checked by Spyware Doctor (7.0.0.514)

> Database version: 6.15900

> http://www.pctools.com/spyware-doctor-antivirus/

> <http://www.pctools.com/en/spyware-doctor-antivirus/>

>

> E-mail message checked by Spyware Doctor (7.0.0.514)

> Database version: 6.15900

> http://www.pctools.com/en/spyware-doctor-antivirus/

>

October 3, 2010

Wow. They confirmed you had fungus and didnâ€™t treat you

afterwards with antifungals??Â Have you tried them since or asked your doctor

about them?Â I may be skeptical about treating someone without a confirmed

issue, but when it is confirmed I am kind of surprised the follow-up treatment didnâ€™t

include an antifungal.

K.

From:

samters [mailto:samters ] On Behalf Of

Bannister

Sent: Sunday, October 03, 2010 3:31 AM

samters

Subject: Re: I hope this helps some of you.

I wish I was treated with a fungal med. I was found to have

invasive aspergillosis which was taken out at my last op, yet I wasn't given

any fungal meds. I now of course have the same issues with infection as I

did before my op. I feel no better at all, and my sos only returned for one

week.

Becky

From: Jane Marino

<janesmarino@...>

samters

Sent: Sun, 3 October, 2010 5:26:09

Subject: RE: I hope this helps some of you.

,

My ENT always treats me with Diflucan, a antifungal med. every time I get a

sinus infection. He feels there is always a good chance of having some

degree of fungus in the sinuses simply from the many different environments

we interact with each day.

Jane

From: Keefer <julie.keefer@...>

Subject: RE: I hope this helps some of you.

samters

Date: Friday, September 24, 2010, 2:31 PM

Iâ€™ve

heard the thing about â€œmost people with Samerâ€™s have fungal sinusitis

before.â€ Iâ€™m not convinced. I am not allergic to mold. It

was one of the few things I did not react to when I was tested and I have

never had any sort of reaction I can connect to molds. I was tested for

fungal sinusitis, though I do believe that test came back

â€œinconclusive.â€ The ENT I was seeing at the time even had me do a

course of anti-fungal oral med, which is nasty stuff. I think I took it

for a month, maybe it was longer. But it didnâ€™t do anything to improve

my nose so the conclusion was that mold was not a problem.

K.

From: samters

[mailto:samters ] On Behalf Of Roth

Sent: Tuesday, September 21, 2010 11:53 PM

samters

Subject: I hope this helps some of you.

Hi Everyone,

Just thought I would let you know in my search

to find a doctor that can actually help people with Samter's Triad I came

across Dr. Tucker Allergist and Immunologist in West Palm Beach,

Florida. Apparently people travel from all parts of the world to see Dr.

Tucker with very rare allergy cases that most doctors can not help. Dr.

Tucker who has got to be close to 80 years old actually worked on allergy

cases with Max Samter, and knew him personally. I have not met a more worldly

knowledgeable doctor in my life. He has written many books and is in Top Docs

magazine.

He says that most people with nasal polyps

also have allergies to mold and yeast. I really never tested positive to

allergies at all no matter which allergist did a skin test on me. Most

doctors will not do the kind of skin testing Dr. Tucker does. I had close to

200 allergy tests done, and have to go back tomorrow for him to review my

skin again. He immediately talked about mold and diet. Most people have

Fungal Sinusitis which also causes a lot of fungus and yeast in other parts

of the body, as well as sinuses. His recommendation is 30 day treatment of

oral Fungal medication along with diet, and he took a Qvar 40mg rescue Asthma

inhaler and turned it into a sinus inhaler for my nose. Two puffs in each

nostril I felt immediate relief from sinus congestion. It also gets into the

lungs from the nose so it works for both. I would have never known that. He

studies the many different allergy reactions the body has to different things

some allergens don't show up right away, and mainstream doctors only

concentrate on Type I allergy reactions.

He also recommends herbal anti

- inflammatory, and Omega 3 fish oil. Whole food diet especially

RAW fruits and veggies which I already knew. No dairy either which I

also knew. He also recommended x-clear nasal spray.

I will be seeing him again, but I am very

hopeful of more he can do to help Samters.

From: <rebeebit@...>

samters

Sent: Sun, September 19, 2010 8:37:13 PM

Subject: Re: Change of email

Thinking of you . As if any of us need more on our plates. Take care.

> >

> > My apologies for not doing this in the correct section but I'm

under so

> much

> > stress right now I just can't think straight and I'd really

appreciate it

> if

> > someone could do the right thing for me.

> >

> > My partner of some 42 years who is aged 66 has decided I needed

recycling

> > for a 32 year from the Philippines.

> >

> > My new email will be celtic_dove@

> >

> > Thanks

> >

> > E-mail message checked by Spyware Doctor (7.0.0.514)

> > Database version: 6.15890

> > http://www.pctools.com/en/spyware-doctor-antivirus/

> >

>

> E-mail message checked by Spyware Doctor (7.0.0.514)

> Database version: 6.15900

> http://www.pctools.com/spyware-doctor-antivirus/

> <http://www.pctools.com/en/spyware-doctor-antivirus/>

>

> E-mail message checked by Spyware Doctor (7.0.0.514)

> Database version: 6.15900

> http://www.pctools.com/en/spyware-doctor-antivirus/

>

October 3, 2010

Me too, , I am sure I have the same fungal issue going on, and my biggest concern that it is simply my relatively good immunity which is preventing this fungus from taking hold.

I guess it's up to me to shout when I'm not feeling too good. ;-)

Becky

From: Keefer <julie.keefer@...>samters Sent: Sun, 3 October, 2010 16:02:46Subject: RE: I hope this helps some of you.

Wow. They confirmed you had fungus and didnâ€™t treat you afterwards with antifungals?? Have you tried them since or asked your doctor about them? I may be skeptical about treating someone without a confirmed issue, but when it is confirmed I am kind of surprised the follow-up treatment didnâ€™t include an antifungal.

K.

From: samters [mailto:samters ] On Behalf Of BannisterSent: Sunday, October 03, 2010 3:31 AMsamters Subject: Re: I hope this helps some of you.

I wish I was treated with a fungal med. I was found to have invasive aspergillosis which was taken out at my last op, yet I wasn't given any fungal meds. I now of course have the same issues with infection as I did before my op. I feel no better at all, and my sos only returned for one week.

Becky

From: Jane Marino <janesmarino@...>samters Sent: Sun, 3 October, 2010 5:26:09Subject: RE: I hope this helps some of you.

,My ENT always treats me with Diflucan, a antifungal med. every time I get a sinus infection. He feels there is always a good chance of having some degree of fungus in the sinuses simply from the many different environments we interact with each day.Jane

From: Keefer <julie.keefer@...>Subject: RE: I hope this helps some of you.samters Date: Friday, September 24, 2010, 2:31 PM

Iâ€™ve heard the thing about â€œmost people with Samerâ€™s have fungal sinusitis before.â€ Iâ€™m not convinced. I am not allergic to mold. It was one of the few things I did not react to when I was tested and I have never had any sort of reaction I can connect to molds. I was tested for fungal sinusitis, though I do believe that test came back â€œinconclusive.â€ The ENT I was seeing at the time even had me do a course of anti-fungal oral med, which is nasty stuff. I think I took it for a month, maybe it was longer. But it didnâ€™t do anything to improve my nose so the conclusion was that mold was not a problem.

K.

From: samters [mailto:samters ] On Behalf Of RothSent: Tuesday, September 21, 2010 11:53 PMsamters Subject: I hope this helps some of you.

Hi Everyone,

Just thought I would let you know in my search to find a doctor that can actually help people with Samter's Triad I came across Dr. Tucker Allergist and Immunologist in West Palm Beach, Florida. Apparently people travel from all parts of the world to see Dr. Tucker with very rare allergy cases that most doctors can not help. Dr. Tucker who has got to be close to 80 years old actually worked on allergy cases with Max Samter, and knew him personally. I have not met a more worldly knowledgeable doctor in my life. He has written many books and is in Top Docs magazine.

He says that most people with nasal polyps also have allergies to mold and yeast. I really never tested positive to allergies at all no matter which allergist did a skin test on me. Most doctors will not do the kind of skin testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go back tomorrow for him to review my skin again. He immediately talked about mold and diet. Most people have Fungal Sinusitis which also causes a lot of fungus and yeast in other parts of the body, as well as sinuses. His recommendation is 30 day treatment of oral Fungal medication along with diet, and he took a Qvar 40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two puffs in each nostril I felt immediate relief from sinus congestion. It also gets into the lungs from the nose so it works for both. I would have never known that. He studies the many different allergy reactions the body has to different

things some allergens don't show up right away, and mainstream doctors only concentrate on Type I allergy reactions.

He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole food diet especially RAW fruits and veggies which I already knew. No dairy either which I also knew. He also recommended x-clear nasal spray.

I will be seeing him again, but I am very hopeful of more he can do to help Samters.

From: <rebeebit@...>samters Sent: Sun, September 19, 2010 8:37:13 PMSubject: Re: Change of email

Thinking of you . As if any of us need more on our plates. Take care.> >> > My apologies for not doing this in the correct section but I'm under so> much> > stress right now I just can't think straight and I'd really appreciate it> if> > someone could do the right thing for me.> > > > > > > > My partner of some 42 years who is aged 66 has decided I needed recycling> > for a 32 year from the Philippines.> > > > > > > > My new email will be celtic_dove@> > > > > > > > Thanks> > > > > > > >

> > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > Database version: 6.15890> > http://www.pctools.com/en/spyware-doctor-antivirus/> >> > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> Database version: 6.15900> http://www.pctools.com/spyware-doctor-antivirus/> <http://www.pctools.com/en/spyware-doctor-antivirus/> > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> Database version: 6.15900>

http://www.pctools.com/en/spyware-doctor-antivirus/>

October 3, 2010

Thank you for this very comprehensive ost Asfy.

What you have said is very similar to what my Uncle (a pathologist) said to me to try to reassure me about my particualar sinus fungal issue.

Becky

From: asfy <asfyso@...>samters Sent: Sun, 3 October, 2010 15:07:55Subject: Re: I hope this helps some of you.

,

Thank you for letting us know about Dr. Tucker in Florida. I have the greatest respect for doctors who take a global approach, feel concerned for their patients and take all the time required to discuss the case in detail. More often than not, most doctors dismiss their patients after 15 minutes or, in the best of cases, a half-hour or an hour. This happens either out of economic reasons (spending 30 minutes vs 15 minutes with a patient halves the doctor's daily income if the fee is not per hour) or out of ignorance of the condition, or boredom, or a combination of similar reasons.

So, it's great to know that there are doctors out like Dr. Tucker who are willing to listen, and take some time to educate their patients. They really deserve top honors in doctors' rankings and in patients' esteem.

However, even great doctors cannot be expected to know everything on every possible condition, and this is true not only for general medecine practicioners but also even for specialists. Just in the ENT discipline, there are about several dozen possible pathological conditions, which means that it is practically impossible for even the most devoted ENT to stay informed of everything that is going on on every pathology. So, starting from the general ENT field, for example, some - not all, just some - branch more towards the ear, others more towards the larynx, others still more towards the sinuses. This allows to concentrate on just a few medical journals and stay on top of most of what is happening - but still only with regular, tedious reading.

So, my point is that even if I have a few comments or disagreements with what Dr. Tuckers may think or say about Samter's, it does not mean at all that I do not believe that he's a great doctor, but it may be that one cannot expect even great doctors to know everything on every condition.

Regarding mold allergies, it is not true that most people with nasal polyps have allergies to mold and yeast. At least, it is not true stated that way. There have been major, still partly ongoing debates between ENTs as to the cause of nasal polyps and sinusitis. At one point, several years ago, a Mayo Clinic team thought they had discovered that molds and fungi were the root of all sinusitis and perhaps polyps. This was hyped in the media with great fanfare, as if they had found the definitive cause of all sinusitis in the world and that the cure to all forms of sinusitis could be had with a simple antifungal drug.

Well, sinusitis and polyposis unfortunately are still here, and most people treated with antifungals are not definitvely cured, far from it. Why is that? Simply because there is not ONE cause of sinusitis but MANY, which means that there are several "brands" of sinusitis around. The Mayo Clinic team saw molds in the sinuses of sinusitis patients and none in healthy patients, which made them believe everything was fungal in nature, but it turned out that they had not looked thoroughly enough and that even healthy patients do have fungi inside their sinuses too.

A lot of things can cause sinusitis : viruses, bacteria, fungi, allergies, etc. Once you have sinusitis, as its name implies, you have a sinus inflammation. You also have an immune reaction going on, fighting whatever there is to fight, or fighting nothing worth fighting in the case of allergies. So, when you have sinusitis, whatever its origin, you DO have a greater sensitivity to fungi, lower allergy thresholds, poorer defences against molds, just as you have poorer defences against bacteria and viruses. But it does not mean at all that 1) the root cause of the sinusitis is fungi, nor 2) that you will be cured with antifungals.

This finding was confirmed in a recent Egyptian study, in which the authors were surprised to find exactly the same molds in healthy and diseased sinuses, the only difference being more inflammation in the diseased sinuses and also slightly more active fungal production (which is logical : fungi thrive better in diseased sinuses).

This being said, it does not hurt to try antifungals at least once ; they might even improve your situation, but, in the majority of case, they will not definitively cure the sinusitis. If they do cure it, it will mean the sinusitis was indeed essentially fungal. It they don't, it does not mean there are absolutely no fungi inside, but that those fungi are not the driving force behind the sinusitis.

Note that there ARE a number of sinusitis cases which are fungal in origin, because the individual lives in a highly infested environment, or has been infested once and has not managed to clear it. Fungal sinusitis is a fully recognized "brand" of sinusitis, and must be treated as such, ie with comprehensive allergy tests, fungal desensitization when possible, decontamining or moving when the housing is involved, antifungal drugs or even surgery when necessary. A sub-brand of fungal sinusitis called "invasive fungal sinusitis" is even very dangerous because, as its name implies, the fungi are not contained and manage to invade the entire body until death ensues ; fortunately, it is not common. So fungal sinusitis is a bona fide entity that must be treated as far as possible, but it probably is not the most generic form of sinusitis.

Right now, research points more convincingly towards bacteria, notably in the form of biofilms, as "a" major cause of chronic sinusitis and chronic polyposis (but not as "the" cause since there are, as we said, a variety of causes). This is why I often post about biofilms here, and I believe research will keep going in that direction. Do note that bacterial biofilms often harbor fungi as roommates so, once again, it's not that bacterial sinusitis do not contain fungi, just that antifungals alone will not help even if they don't hurt.

Also note that some antifungals, notably herbal mixes with Oregano, for instance, are marketed as antifungals - which they indeed are - but they also have great antibacterial activity - and this is also the case with oregano (especially oregano essential oil). So, feeling better after taking an "antifungal herbal mix" says nothing about the nature of the sinusitis unless more information about the mix is known.

Regarding allergy testing, true, major allergies must be tested, identified, and addressed - by desensitization, avoidance, medication, etc. However, once someone has inflammation that is advanced enough, the general allergy thresholds are lowered and they appear to be allergic to a vast lot of things that they had not thought of. If you have bad enough Samter's, you could put anything on the allergy testing set close to your nose, and your mucosa would react. Same thing with your skin if you have bad enough urticaria.

Regarding inhalers and steroids, if you pump enough of the right kind of steroid inside your nose, the inflammation will diminish readily and you will likely regain good breathing, sense of smell, etc. But this is temporary, as it (usually) does not address the root cause of the inflammation, and the greater the dose, the greater the side effects. From that point on, the idea is to try the various corticosteroid molecules available in spray, inhalers or ampules and find the lowest possible dose that achieves a desirable level of efficiency.

Xlear nasal spray contains Xylitol (a natural sweetener) and a preservative in saline. Xylitol may help contain some pathogens (it is used in toothpastes to contain mouth bacteria). If it brings relief, fine, otherwise there is not much risk in trying.

Regarding anti-allergy herbs, you might let us know what they are once you try them.

Fish oils are recommended because they lower the leukotriene production in the body, leukotrienes being a compound that is over-produced in the Samter's nasal mucosa and also in the asthmatic lungs. When taking fish oils, also take some vitamin E to prevent the fish oils from oxydation.

Whole food, mediterranean-style diets that are rich in vegetables, especially green ones, and fruits are recommended, but eating everything raw vs eating only the usual foods raw is not likely to bring spectacular advantages. Bad sugars and fats (cakes, pastries, high-glycemic-index foods, processed foods, Omega-6-rich foods, meat-based deli etc) should be avoided or at least under-represented in the diet.

Please let us know what comes out of your treatment, and if you feel better from it, that will be great.

> > >> > > My apologies for not doing this in the correct section but I'm under so> > much> > > stress right now I just can't think straight and I'd really appreciate it> > if> > > someone could do the right thing for me.> > > > > > > > > > > > My partner of some 42 years who is aged 66 has decided I needed recycling> > > for a 32 year from the Philippines.> > > > > > > > > > > > My new email will be celtic_dove@> > > > > > > > > > > > Thanks> > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > > Database version: 6.15890> > > http://www.pctools.com/en/spyware-doctor-antivirus/> > >> > > > > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > Database version: 6.15900> > http://www.pctools.com/spyware-doctor-antivirus/> > <http://www.pctools.com/en/spyware-doctor-antivirus/> > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > Database version: 6.15900> > http://www.pctools.com/en/spyware-doctor-antivirus/> >>

October 3, 2010

Again, what an extremely helpful post asfyso! Thank you! It does all of us good to revisit all of these aspects of Samters. JaneFrom: asfy <asfyso@...>Subject: Re: I hope this helps some of you.samters Date: Sunday, October 3, 2010, 8:07 AM

,Thank you for letting us know about Dr. Tucker in Florida. I have the greatest respect for doctors who take a global approach, feel concerned for their patients and take all the time required to discuss the case in detail. More often than not, most doctors dismiss their patients after 15 minutes or, in the best of cases, a half-hour or an hour. This happens either out of economic reasons (spending 30 minutes vs 15 minutes with a patient halves the doctor's daily income if the fee is not per hour) or out of ignorance of the condition, or boredom, or a combination of similar reasons.So, it's great to know that there are doctors out like Dr. Tucker who are willing to listen, and take some time to educate their patients. They really deserve top honors in doctors' rankings and in patients' esteem.However, even great doctors cannot be expected to know everything on

every possible condition, and this is true not only for general medecine practicioners but also even for specialists. Just in the ENT discipline, there are about several dozen possible pathological conditions, which means that it is practically impossible for even the most devoted ENT to stay informed of everything that is going on on every pathology. So, starting from the general ENT field, for example, some - not all, just some - branch more towards the ear, others more towards the larynx, others still more towards the sinuses. This allows to concentrate on just a few medical journals and stay on top of most of what is happening - but still only with regular, tedious reading.So, my point is that even if I have a few comments or disagreements with what Dr. Tuckers may think or say about Samter's, it does not mean at all that I do not believe that he's a great doctor, but it may be that one cannot expect even great doctors to

know everything on every condition.Regarding mold allergies, it is not true that most people with nasal polyps have allergies to mold and yeast. At least, it is not true stated that way. There have been major, still partly ongoing debates between ENTs as to the cause of nasal polyps and sinusitis. At one point, several years ago, a Mayo Clinic team thought they had discovered that molds and fungi were the root of all sinusitis and perhaps polyps. This was hyped in the media with great fanfare, as if they had found the definitive cause of all sinusitis in the world and that the cure to all forms of sinusitis could be had with a simple antifungal drug.Well, sinusitis and polyposis unfortunately are still here, and most people treated with antifungals are not definitvely cured, far from it. Why is that? Simply because there is not ONE cause of sinusitis but MANY, which means that there are several

"brands" of sinusitis around. The Mayo Clinic team saw molds in the sinuses of sinusitis patients and none in healthy patients, which made them believe everything was fungal in nature, but it turned out that they had not looked thoroughly enough and that even healthy patients do have fungi inside their sinuses too. A lot of things can cause sinusitis : viruses, bacteria, fungi, allergies, etc. Once you have sinusitis, as its name implies, you have a sinus inflammation. You also have an immune reaction going on, fighting whatever there is to fight, or fighting nothing worth fighting in the case of allergies. So, when you have sinusitis, whatever its origin, you DO have a greater sensitivity to fungi, lower allergy thresholds, poorer defences against molds, just as you have poorer defences against bacteria and viruses. But it does not mean at all that 1) the root cause of the sinusitis is fungi, nor 2) that you will be

cured with antifungals.This finding was confirmed in a recent Egyptian study, in which the authors were surprised to find exactly the same molds in healthy and diseased sinuses, the only difference being more inflammation in the diseased sinuses and also slightly more active fungal production (which is logical : fungi thrive better in diseased sinuses).This being said, it does not hurt to try antifungals at least once ; they might even improve your situation, but, in the majority of case, they will not definitively cure the sinusitis. If they do cure it, it will mean the sinusitis was indeed essentially fungal. It they don't, it does not mean there are absolutely no fungi inside, but that those fungi are not the driving force behind the sinusitis.Note that there ARE a number of sinusitis cases which are fungal in origin, because the individual lives in a highly infested

environment, or has been infested once and has not managed to clear it. Fungal sinusitis is a fully recognized "brand" of sinusitis, and must be treated as such, ie with comprehensive allergy tests, fungal desensitization when possible, decontamining or moving when the housing is involved, antifungal drugs or even surgery when necessary. A sub-brand of fungal sinusitis called "invasive fungal sinusitis" is even very dangerous because, as its name implies, the fungi are not contained and manage to invade the entire body until death ensues ; fortunately, it is not common. So fungal sinusitis is a bona fide entity that must be treated as far as possible, but it probably is not the most generic form of sinusitis.Right now, research points more convincingly towards bacteria, notably in the form of biofilms, as "a" major cause of chronic sinusitis and chronic polyposis (but not as "the" cause since there are, as we said, a variety of

causes). This is why I often post about biofilms here, and I believe research will keep going in that direction. Do note that bacterial biofilms often harbor fungi as roommates so, once again, it's not that bacterial sinusitis do not contain fungi, just that antifungals alone will not help even if they don't hurt.Also note that some antifungals, notably herbal mixes with Oregano, for instance, are marketed as antifungals - which they indeed are - but they also have great antibacterial activity - and this is also the case with oregano (especially oregano essential oil). So, feeling better after taking an "antifungal herbal mix" says nothing about the nature of the sinusitis unless more information about the mix is known.Regarding allergy testing, true, major allergies must be tested, identified, and addressed - by desensitization, avoidance, medication, etc. However, once someone has inflammation that

is advanced enough, the general allergy thresholds are lowered and they appear to be allergic to a vast lot of things that they had not thought of. If you have bad enough Samter's, you could put anything on the allergy testing set close to your nose, and your mucosa would react. Same thing with your skin if you have bad enough urticaria.Regarding inhalers and steroids, if you pump enough of the right kind of steroid inside your nose, the inflammation will diminish readily and you will likely regain good breathing, sense of smell, etc. But this is temporary, as it (usually) does not address the root cause of the inflammation, and the greater the dose, the greater the side effects. From that point on, the idea is to try the various corticosteroid molecules available in spray, inhalers or ampules and find the lowest possible dose that achieves a desirable level of efficiency.Xlear nasal spray contains

Xylitol (a natural sweetener) and a preservative in saline. Xylitol may help contain some pathogens (it is used in toothpastes to contain mouth bacteria). If it brings relief, fine, otherwise there is not much risk in trying.Regarding anti-allergy herbs, you might let us know what they are once you try them.Fish oils are recommended because they lower the leukotriene production in the body, leukotrienes being a compound that is over-produced in the Samter's nasal mucosa and also in the asthmatic lungs. When taking fish oils, also take some vitamin E to prevent the fish oils from oxydation.Whole food, mediterranean-style diets that are rich in vegetables, especially green ones, and fruits are recommended, but eating everything raw vs eating only the usual foods raw is not likely to bring spectacular advantages. Bad sugars and fats (cakes, pastries, high-glycemic-index foods,

processed foods, Omega-6-rich foods, meat-based deli etc) should be avoided or at least under-represented in the diet.Please let us know what comes out of your treatment, and if you feel better from it, that will be great.> > >> > > My apologies for not doing this in the correct section but I'm under so> > much> > > stress right now I just can't think straight and I'd really appreciate it> > if> > > someone could do the right thing for me.> > > > > > > > > > > > My partner of some 42 years who is aged 66 has decided I needed recycling> > > for a 32 year from the Philippines.> > >

> > > > > > > > > My new email will be celtic_dove@> > > > > > > > > > > > Thanks> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > > Database version: 6.15890> > > http://www.pctools.com/en/spyware-doctor-antivirus/> > >> > > > > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > Database version: 6.15900> > http://www.pctools.com/spyware-doctor-antivirus/> > <http://www.pctools.com/en/spyware-doctor-antivirus/> > > > > > > > > > >

> > E-mail message checked by Spyware Doctor (7.0.0.514)> > Database version: 6.15900> > http://www.pctools.com/en/spyware-doctor-antivirus/> >>

October 3, 2010

At any rate, testing for fungi is not a bad thing. Once one has chronic

sinusitis, getting rid of fungi in the environment can help, sometimes a lot.

Testing the gunk for high levels of fungal mucin may help spot real fungal

sinusitis.

> > >

> > > My apologies for not doing this in the correct section but I'm under so

> > much

> > > stress right now I just can't think straight and I'd really appreciate it

> > if

> > > someone could do the right thing for me.

> > >

> > > My partner of some 42 years who is aged 66 has decided I needed recycling

> > > for a 32 year from the Philippines.

> > >

> > > My new email will be celtic_dove@

> > >

> > > Thanks

> > >

> > > E-mail message checked by Spyware Doctor (7.0.0.514)

> > > Database version: 6.15890

> > > http://www.pctools.com/en/spyware-doctor-antivirus/

> > >

> >

> > E-mail message checked by Spyware Doctor (7.0.0.514)

> > Database version: 6.15900

> > http://www.pctools.com/spyware-doctor-antivirus/

> > <http://www.pctools.com/en/spyware-doctor-antivirus/>

> >

> > E-mail message checked by Spyware Doctor (7.0.0.514)

> > Database version: 6.15900

> > http://www.pctools.com/en/spyware-doctor-antivirus/

> >

>

October 3, 2010

Hello Beverly,

Thank you for sharing your experience. The return of your Sense of Smell

following anesthesia is really amazing. I hope it stays that way !

>

> My immunologist said it was very easy to recognise fungal sinusitis, and I

imagine a simple test would confirm it. If it is positive then a course of

anti-fungal medication should prove useful. Don't use them unless you are tested

and it is positive.

>

> I've had polyps since childhood (five polypectomies so far); my frontal and

ethnoid sinuses have been blocked since my teen years. I average 6 years between

surgeries. I use Rhinocort (Budesonide nasal spray twice a day.

>

> My asthma is being controlled by Seretide (Fluticasone propionate/Salmeterol

xinafoate) and Singluar (montelukast sodium).

>

> I was better when I was desensitised to aspirin but needed an operation and

had to stop taking it - the last desensitisation process failed.

>

> I haven't had a sense of smell for close on 30 years (lost it in my early

20s), though it would rarely break through for a day or so, and would come back

for up to three weeks after nasal surgery.

>

> My ENT is going to put a T-Tube in my ear as the eustachian tube doesn't drain

and wanted to remove the polyps again as I have 80% blockage. However, after

vomiting forcefully following anesthesia from an operation four weeks ago my

sense of smell has returned. I'll be interested to see what he has to say when I

see him next. :-)

>

> I've had a barrage of allergy tests done, skin and blood, and I'm not allergic

to anything except aspirin and NSAIDS.

>

> We live in a low allergy house - all natural timbers, leather furniture, low

allergy personal products, a couple of miles from the beach (cleaner air), in

the country. It's a pain living with this condition - the worse bit is losing

muscle strength and depression which are the most debilitating aspects of it for

me.

>

> Thanks for reading my story.

>

> Beverley

> Australia

>

October 3, 2010

Beverley,

You lose strength because your body is tired by your immune system working in a

dysfunctional way. We nearly all are.

> >

> > Thank you for your story Beverly. Your home and area you live in sound

> > wonderful!

> > Why have you lost muscle strength?

> > Becky x

> >

>

October 3, 2010

Hi Becky,

Is is that bad that it has returned to the same point than before the op?

> >> >

> >> > My apologies for not doing this in the correct section but I'm under so

> >> much

> >> > stress right now I just can't think straight and I'd really appreciate it

> >> if

> >> > someone could do the right thing for me.

> >> >

> >> > My partner of some 42 years who is aged 66 has decided I needed recycling

> >> > for a 32 year from the Philippines.

> >> >

> >> > My new email will be celtic_dove@

> >> >

> >> > Thanks

> >> >

> >> > E-mail message checked by Spyware Doctor (7.0.0.514)

> >> > Database version: 6.15890

> >> > http://www.pctools.com/en/spyware-doctor-antivirus/

> >> >

> >>

> >> E-mail message checked by Spyware Doctor (7.0.0.514)

> >> Database version: 6.15900

> >> http://www.pctools.com/spyware-doctor-antivirus/

> >> <http://www.pctools.com/en/spyware-doctor-antivirus/>

> >>

> >> E-mail message checked by Spyware Doctor (7.0.0.514)

> >> Database version: 6.15900

> >> http://www.pctools.com/en/spyware-doctor-antivirus/

> >>

> >Â

>

October 3, 2010

Thanks for your post asfy I appreciate it very much. In my original post I said Dr Tucker said many/most patients with nasal polyps also have allergies to mold. If people haven't really been tested the right ways for mold allergies they really should look into it. I have seen many allergy doctors over the years, and all my regular allergy skin tests were negative to mold allergies. There are many allergy tests and allergy responses people have Types 1 to 4 which many allergists don't bother looking into to. Dr Tucker also said that a lot of patients with nasal polyps are low in zinc, which I am also low with. These, including fungi sinusitis should really be looked into with Samters. Too many doctors are quick at give repeated antibiotics and prednisone which as we all know don't work a lot of the times. I am also a firm believer in diet. Meditation is the best way to go. Its very important to look at ingredients on food we buy. Most foods now have fillers, high fructose corn syrup, colors and dyes, Cotton Seed oil etc incl. Dairy. These are very bad for allergy and asthma suffers, as well as everyone in general. Sent on the Sprint® Now Network from my BlackBerry®From: "asfy" <asfyso@...>Sender: samters Date: Sun, 03 Oct 2010 14:07:55 -0000<samters >Reply samters Subject: Re: I hope this helps some of you. ,Thank you for letting us know about Dr. Tucker in Florida. I have the greatest respect for doctors who take a global approach, feel concerned for their patients and take all the time required to discuss the case in detail. More often than not, most doctors dismiss their patients after 15 minutes or, in the best of cases, a half-hour or an hour. This happens either out of economic reasons (spending 30 minutes vs 15 minutes with a patient halves the doctor's daily income if the fee is not per hour) or out of ignorance of the condition, or boredom, or a combination of similar reasons.So, it's great to know that there are doctors out like Dr. Tucker who are willing to listen, and take some time to educate their patients. They really deserve top honors in doctors' rankings and in patients' esteem.However, even great doctors cannot be expected to know everything on every possible condition, and this is true not only for general medecine practicioners but also even for specialists. Just in the ENT discipline, there are about several dozen possible pathological conditions, which means that it is practically impossible for even the most devoted ENT to stay informed of everything that is going on on every pathology. So, starting from the general ENT field, for example, some - not all, just some - branch more towards the ear, others more towards the larynx, others still more towards the sinuses. This allows to concentrate on just a few medical journals and stay on top of most of what is happening - but still only with regular, tedious reading.So, my point is that even if I have a few comments or disagreements with what Dr. Tuckers may think or say about Samter's, it does not mean at all that I do not believe that he's a great doctor, but it may be that one cannot expect even great doctors to know everything on every condition.Regarding mold allergies, it is not true that most people with nasal polyps have allergies to mold and yeast. At least, it is not true stated that way. There have been major, still partly ongoing debates between ENTs as to the cause of nasal polyps and sinusitis. At one point, several years ago, a Mayo Clinic team thought they had discovered that molds and fungi were the root of all sinusitis and perhaps polyps. This was hyped in the media with great fanfare, as if they had found the definitive cause of all sinusitis in the world and that the cure to all forms of sinusitis could be had with a simple antifungal drug.Well, sinusitis and polyposis unfortunately are still here, and most people treated with antifungals are not definitvely cured, far from it. Why is that? Simply because there is not ONE cause of sinusitis but MANY, which means that there are several "brands" of sinusitis around. The Mayo Clinic team saw molds in the sinuses of sinusitis patients and none in healthy patients, which made them believe everything was fungal in nature, but it turned out that they had not looked thoroughly enough and that even healthy patients do have fungi inside their sinuses too. A lot of things can cause sinusitis : viruses, bacteria, fungi, allergies, etc. Once you have sinusitis, as its name implies, you have a sinus inflammation. You also have an immune reaction going on, fighting whatever there is to fight, or fighting nothing worth fighting in the case of allergies. So, when you have sinusitis, whatever its origin, you DO have a greater sensitivity to fungi, lower allergy thresholds, poorer defences against molds, just as you have poorer defences against bacteria and viruses. But it does not mean at all that 1) the root cause of the sinusitis is fungi, nor 2) that you will be cured with antifungals.This finding was confirmed in a recent Egyptian study, in which the authors were surprised to find exactly the same molds in healthy and diseased sinuses, the only difference being more inflammation in the diseased sinuses and also slightly more active fungal production (which is logical : fungi thrive better in diseased sinuses).This being said, it does not hurt to try antifungals at least once ; they might even improve your situation, but, in the majority of case, they will not definitively cure the sinusitis. If they do cure it, it will mean the sinusitis was indeed essentially fungal. It they don't, it does not mean there are absolutely no fungi inside, but that those fungi are not the driving force behind the sinusitis.Note that there ARE a number of sinusitis cases which are fungal in origin, because the individual lives in a highly infested environment, or has been infested once and has not managed to clear it. Fungal sinusitis is a fully recognized "brand" of sinusitis, and must be treated as such, ie with comprehensive allergy tests, fungal desensitization when possible, decontamining or moving when the housing is involved, antifungal drugs or even surgery when necessary. A sub-brand of fungal sinusitis called "invasive fungal sinusitis" is even very dangerous because, as its name implies, the fungi are not contained and manage to invade the entire body until death ensues ; fortunately, it is not common. So fungal sinusitis is a bona fide entity that must be treated as far as possible, but it probably is not the most generic form of sinusitis.Right now, research points more convincingly towards bacteria, notably in the form of biofilms, as "a" major cause of chronic sinusitis and chronic polyposis (but not as "the" cause since there are, as we said, a variety of causes). This is why I often post about biofilms here, and I believe research will keep going in that direction. Do note that bacterial biofilms often harbor fungi as roommates so, once again, it's not that bacterial sinusitis do not contain fungi, just that antifungals alone will not help even if they don't hurt.Also note that some antifungals, notably herbal mixes with Oregano, for instance, are marketed as antifungals - which they indeed are - but they also have great antibacterial activity - and this is also the case with oregano (especially oregano essential oil). So, feeling better after taking an "antifungal herbal mix" says nothing about the nature of the sinusitis unless more information about the mix is known.Regarding allergy testing, true, major allergies must be tested, identified, and addressed - by desensitization, avoidance, medication, etc. However, once someone has inflammation that is advanced enough, the general allergy thresholds are lowered and they appear to be allergic to a vast lot of things that they had not thought of. If you have bad enough Samter's, you could put anything on the allergy testing set close to your nose, and your mucosa would react. Same thing with your skin if you have bad enough urticaria.Regarding inhalers and steroids, if you pump enough of the right kind of steroid inside your nose, the inflammation will diminish readily and you will likely regain good breathing, sense of smell, etc. But this is temporary, as it (usually) does not address the root cause of the inflammation, and the greater the dose, the greater the side effects. From that point on, the idea is to try the various corticosteroid molecules available in spray, inhalers or ampules and find the lowest possible dose that achieves a desirable level of efficiency.Xlear nasal spray contains Xylitol (a natural sweetener) and a preservative in saline. Xylitol may help contain some pathogens (it is used in toothpastes to contain mouth bacteria). If it brings relief, fine, otherwise there is not much risk in trying.Regarding anti-allergy herbs, you might let us know what they are once you try them.Fish oils are recommended because they lower the leukotriene production in the body, leukotrienes being a compound that is over-produced in the Samter's nasal mucosa and also in the asthmatic lungs. When taking fish oils, also take some vitamin E to prevent the fish oils from oxydation.Whole food, mediterranean-style diets that are rich in vegetables, especially green ones, and fruits are recommended, but eating everything raw vs eating only the usual foods raw is not likely to bring spectacular advantages. Bad sugars and fats (cakes, pastries, high-glycemic-index foods, processed foods, Omega-6-rich foods, meat-based deli etc) should be avoided or at least under-represented in the diet.Please let us know what comes out of your treatment, and if you feel better from it, that will be great.> > >> > > My apologies for not doing this in the correct section but I'm under so> > much> > > stress right now I just can't think straight and I'd really appreciate it> > if> > > someone could do the right thing for me.> > > > > > > > > > > > My partner of some 42 years who is aged 66 has decided I needed recycling> > > for a 32 year from the Philippines.> > > > > > > > > > > > My new email will be celtic_dove@> > > > > > > > > > > > Thanks> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > > Database version: 6.15890> > > http://www.pctools.com/en/spyware-doctor-antivirus/> > >> > > > > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > Database version: 6.15900> > http://www.pctools.com/spyware-doctor-antivirus/> > <http://www.pctools.com/en/spyware-doctor-antivirus/> > > > > > > > > > > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > Database version: 6.15900> > http://www.pctools.com/en/spyware-doctor-antivirus/> >>

October 3, 2010

I should add that :

- fungal sinusitis or not, all forms of molds should be eradicated from the

house and the working environment ; I once had wood-eating molds in my basement

and I am sure it did not help ; I had them removed and the area washed with

bleach and I now spray bleach whenever I see molds growing ;

- a CT scan will help spot any fungal balls (round shaped, they tend to fill the

sinuses) ;

- fungal sinusitis can be invasive or non-invasive ; most patients of invasive

fungal sinusitis are either diabetic or immunocompromised in some other way (eg

taking immune-suppressing drugs, AIDS patients, etc).

> > > >

> > > > My apologies for not doing this in the correct section but I'm under so

> > > much

> > > > stress right now I just can't think straight and I'd really appreciate

it

> > > if

> > > > someone could do the right thing for me.

> > > >

> > > > My partner of some 42 years who is aged 66 has decided I needed

recycling

> > > > for a 32 year from the Philippines.

> > > >

> > > > My new email will be celtic_dove@

> > > >

> > > > Thanks

> > > >

> > > > E-mail message checked by Spyware Doctor (7.0.0.514)

> > > > Database version: 6.15890

> > > > http://www.pctools.com/en/spyware-doctor-antivirus/

> > > >

> > >

> > > E-mail message checked by Spyware Doctor (7.0.0.514)

> > > Database version: 6.15900

> > > http://www.pctools.com/spyware-doctor-antivirus/

> > > <http://www.pctools.com/en/spyware-doctor-antivirus/>

> > >

> > > E-mail message checked by Spyware Doctor (7.0.0.514)

> > > Database version: 6.15900

> > > http://www.pctools.com/en/spyware-doctor-antivirus/

> > >

> >

>

October 3, 2010

As a general approach to chronic sinusitis, many things have to be tested to get

an idea of what the causes could be, and not all tests are easy/reliable. For

instance, in bacterial sinusitis, some germs don't grow well when taken out of

the nose ; also, the germs inside the sinuses are not always the same as the

ones inside the nose, which is a big misleader.

A recommended-daily-allowance-level Zinc supplement will not harm, but don't

overload in Zinc by taking megadoses.

Diet certainly is a big help, too.

> > > >

> > > > My apologies for not doing this in the correct section but I'm

> under so

> > > much

> > > > stress right now I just can't think straight and I'd really

> appreciate it

> > > if

> > > > someone could do the right thing for me.

> > > >

> > > > My partner of some 42 years who is aged 66 has decided I needed

> recycling

> > > > for a 32 year from the Philippines.

> > > >

> > > > My new email will be celtic_dove@

> > > >

> > > > Thanks

> > > >

> > > > E-mail message checked by Spyware Doctor (7.0.0.514)

> > > > Database version: 6.15890

> > > > http://www.pctools.com/en/spyware-doctor-antivirus/

> > > >

> > >

> > > E-mail message checked by Spyware Doctor (7.0.0.514)

> > > Database version: 6.15900

> > > http://www.pctools.com/spyware-doctor-antivirus/

> > > <http://www.pctools.com/en/spyware-doctor-antivirus/>

> > >

> > > E-mail message checked by Spyware Doctor (7.0.0.514)

> > > Database version: 6.15900

> > > http://www.pctools.com/en/spyware-doctor-antivirus/

> > >

> >

>

October 3, 2010

I totally agree asfy. Are you a doctor? You really know a lot of medical information. I also heard that the labs do not always tests the growths taken out of sinuses very well. A lot will say no growth on reports when it wasn't tested the right way. Sent on the Sprint® Now Network from my BlackBerry®From: "asfy" <asfyso@...>Sender: samters Date: Sun, 03 Oct 2010 17:07:56 -0000<samters >Reply samters Subject: Re: I hope this helps some of you. As a general approach to chronic sinusitis, many things have to be tested to get an idea of what the causes could be, and not all tests are easy/reliable. For instance, in bacterial sinusitis, some germs don't grow well when taken out of the nose ; also, the germs inside the sinuses are not always the same as the ones inside the nose, which is a big misleader.A recommended-daily-allowance-level Zinc supplement will not harm, but don't overload in Zinc by taking megadoses.Diet certainly is a big help, too.> > > >> > > > My apologies for not doing this in the correct section but I'm> under so> > > much> > > > stress right now I just can't think straight and I'd really> appreciate it> > > if> > > > someone could do the right thing for me.> > > >> > > >> > > >> > > > My partner of some 42 years who is aged 66 has decided I needed> recycling> > > > for a 32 year from the Philippines.> > > >> > > >> > > >> > > > My new email will be celtic_dove@> > > >> > > >> > > >> > > > Thanks> > > >> > > >> > > >> > > > > > > >> > > >> > > >> > > >> > > >> > > > E-mail message checked by Spyware Doctor (7.0.0.514)> > > > Database version: 6.15890> > > > http://www.pctools.com/en/spyware-doctor-antivirus/> > > >> > >> > >> > >> > >> > >> > >> > >> > > E-mail message checked by Spyware Doctor (7.0.0.514)> > > Database version: 6.15900> > > http://www.pctools.com/spyware-doctor-antivirus/> > > <http://www.pctools.com/en/spyware-doctor-antivirus/>> > >> > >> > >> > >> > >> > > E-mail message checked by Spyware Doctor (7.0.0.514)> > > Database version: 6.15900> > > http://www.pctools.com/en/spyware-doctor-antivirus/> > >> >>

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