Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Mo, vent any time you feel like it. There are many differences in the symptoms many of us experience with A, but one thing we all have in common is, we are all good listeners. We each understand just how frustrating this all can be. We care, Maggie AL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Hey Mo, I know it is hard at times to deal with A but there are a lot of people here that understand and will support you. Keep your head up okthings will get better. You seem to be on the right direction in getting better and that is good news. I hope everything else is going well. Smile it helps a lot....lol in Suffolk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Hello Maureen: People always try to tell you how to feel, but that is not something any of us have control over. I am fortunate to be a very upbeat person ... most of the time ... but this disease could make Pollyanna depressed! It is the not knowing, the loss of control, the constant overthinking about it, and the realization that this is possibly longgggggggggg term. That being said, I decided to start from message 1 and read what is going on so I feel a little more informed. So many of the messages are cries for help ... but when you read on, so many of those people struggled thru difficult decisions and posted positive results. Personally, I found that to be helpful. It sounds like you are stuck in that quagmire of indicision. It is not easy to get the help you need to make the right decision for you. You are taking the slow route to find out all you can before you jump in. I just know, once you find the info you are searching for, you will make the right decision. Thank God for Grandchildren. My boys (11 and 7) are the only thing that lets me not think about this disease. I had them this weekend and for the next 2 weekends. That keeps me sane??? Or at least I would like to think so. Maureen, if you do not mind, I will put your name in my " prayer vase " . I told so many people that I would remember them in my prayers, that I took a vase and drop their names in it. It sits on my desk, and every time I glance at it, I say a little prayer for everyone whos name is inside. It makes me feel better to keep the promise. YOU WILL MAKE THE RIGHT DECISION. Kathie (ZEKE) ... a grandmother too! > > Hi all you wonderful people, I've only posted a few times, but read > posts every day & the support you all have for each other is > awesome. I guess I don't have any questions, but just needed > to " dump " on someone. It's hard to with family members, because they > don't understand how I feel. I have a cry just about every day - > crying as I type this. I keep telling myself other people are much > worse off, but it doesn't seem to help. I'm very depressed - I'm > dealing with tinnitus as well as A. I've decided to have surgery > (myotomy), but haven't scheduled it - probably sometime this summer. > I scare myself sometime, because I feel like I can't go on - if it > wasn't for my 14 yr. old grandson who dotes on me, & my 2 new > grandbabies, I think I'd throw in the towel. I know there's nothing > any of you can do for me but listen, so thanks for that. Mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 -- Re: re depression If you don't mind add my name to your vase I need it from cold NJHello Maureen: Maureen, if you do not mind, I will put your name in my "prayer vase". I told so many people that I would remember them in my prayers, that I took a vase and drop their names in it. It sits on my desk, and every time I glance at it, I say a little prayer for everyone whos name is inside. It makes me feel better to keep the promise. YOU WILL MAKE THE RIGHT DECISION. Kathie (ZEKE) ... a grandmother too!> a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Hello ... You are in the vase! I was a bit worried that people might think this is silly ... however, I do not say things lightly. This makes me feel like I am keeping my promise. Kathie (ZEKE) > > a > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Hi Mo I really feel for you. I know what you are going through. I used to sit and read the posts on here and sob my heart out. My boyfriend even banned me from the site at one point! For me it was the realisation that A is a very real disease that has no permanent cure. Depression is a very expected outcome for anyone with A. After all, eating is BIG part of how we live. For me, not being able to eat properly, dine with friends and have people make fun of me has made me very miserable indeed. But I refuse to give up. I'd been taking strong antidepressants for 2 years, before I got A, for another reason altogether. Then achalasia came along and made everything so much worse. I've since come to terms with A and now realise that I will have it for life. But I cannot allow myself to have depression for life. I fought it and I've now been of my antidepressants for 2 weeks. For the first time in 2 years, even with A, I feel happy. You see, I know that you know that you are not alone. But I wanted to share my experience with you to let you know ther IS light at the end of that dark tunnel. I never though there was for a long time. Depression is a very serious illness and sadly so many people underestimate it. So many times I was told "it's all in your head", to which I realised, yes, it is all in my head. That's what kind of illness depression is. It's mental. In hindsight I can say that in the depths of depression I was blind to what was going on around me. My thoughts were not focused, my short term memory was awful. I lost myself and just allowed the world to close in around me. Iris, please seek professional help if you have not done so already. The tablets I was taking made such a difference to my life. Do not let depression get hold of you, get hold of it first. People used to give me all sorts of advice and most of the time I didn't listen. I didn't want to listen. That was part of the illness for me. I used to cry constantly. Many times I'd sit with tears rolling down my face, an emotional mess inside, but had no idea why. My boyfriend would ask me what the matter was. Most of my responses were, "I don't know". My body just wanted to cry. When one feels like you do right now, help seems a long way off. But it's not. It's right here. Everyone on this group I'm sure has been there one time or another. You can "dump" on us anytime you wish. I've certainly given my 2 cents many a time and no'one has ever complained! If you need to chat you can email me anytime. Hugs Charmaine xxxxxxzekenoahme <kgasior2@...> wrote: Hello Maureen: People always try to tell you how to feel, but that is not something any of us have control over. I am fortunate to be a very upbeat person ... most of the time ... but this disease could make Pollyanna depressed! It is the not knowing, the loss of control, the constant overthinking about it, and the realization that this is possibly longgggggggggg term. That being said, I decided to start from message 1 and read what is going on so I feel a little more informed. So many of the messages are cries for help ... but when you read on, so many of those people struggled thru difficult decisions and posted positive results. Personally, I found that to be helpful. It sounds like you are stuck in that quagmire of indicision. It is not easy to get the help you need to make the right decision for you. You are taking the slow route to find out all you can before you jump in. I just know, once you find the info you are searching for, you will make the right decision. Thank God for Grandchildren. My boys (11 and 7) are the only thing that lets me not think about this disease. I had them this weekend and for the next 2 weekends. That keeps me sane??? Or at least I would like to think so. Maureen, if you do not mind, I will put your name in my "prayer vase". I told so many people that I would remember them in my prayers, that I took a vase and drop their names in it. It sits on my desk, and every time I glance at it, I say a little prayer for everyone whos name is inside. It makes me feel better to keep the promise. YOU WILL MAKE THE RIGHT DECISION. Kathie (ZEKE) ... a grandmother too!> > Hi all you wonderful people, I've only posted a few times, but read > posts every day & the support you all have for each other is > awesome. I guess I don't have any questions, but just needed > to "dump" on someone. It's hard to with family members, because they > don't understand how I feel. I have a cry just about every day - > crying as I type this. I keep telling myself other people are much > worse off, but it doesn't seem to help. I'm very depressed - I'm > dealing with tinnitus as well as A. I've decided to have surgery > (myotomy), but haven't scheduled it - probably sometime this summer. > I scare myself sometime, because I feel like I can't go on - if it > wasn't for my 14 yr. old grandson who dotes on me, & my 2 new > grandbabies, I think I'd throw in the towel. I know there's nothing > any of you can do for me but listen, so thanks for that. Mo ALL-NEW Messenger - all new features - even more fun! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 I echo everything Charmaine said, (but maybe she got Mo confused w/ Iris?). I've fought depression since about 1989 when both my parents became ill with life threatening illnesses in their early 50's. Then I was laid off, then I got married, had a baby, post partum depression on top of the mild depression I had before. Finally in 1995 I got medication and the gray clouds lifted. Since then I've switched meds a few times for no good reason. Felt I was better, didn't need them, then in a few months after I stopped the feelings came back. By then all the publications started about how dangerous it is to go off and on. I got irritable w/ my kids for no good reason and hated the look of confusion and fear on their face so I went on and have stayed on for about 4 years. I take Lexapro, which is a newer med that prozac and paxil and the others. My pharmacist said it had fewer complications as prozac was triggering headaches in me. I've raised the dosage once and am able to face life. I used to look forward to giving my son a bath when he was under a year old because I could be in the bathroom with him and sob and my husband wouldn't notice or hear me. No real reason to cry, not sure why. Even with mild depression life is so much easier with treatment. I saw one grandmother stay miserable and unhappy always searching for better friends my whole life. It is worth a try if you have constant feelings of sadness. Many of my over 40 Mom friends take meds and they would never quit now. Having a chronic disease wears you out. It is not usually at a crisis level but just wears you down and achalasia can make you start isolating yourself because so many social functions center around food. Please to anyone who thinks there is a stigma, ask your doctor and see if medication and/or therapy would be helpful. With costs so high, therapy is not common... that is what this group is for it seems. Having been open about my issues with my friends and prying feelings out of them it seems like so many suffer with depression.... you may not have to suffer. About this site.... for me this is kind of group therapy. I don't really have any issues to deal with right now with the disease. Just feel badly for those struggling with it now. Also seems like this group kind of feel the meds help with the spasms. Maybe so. But please see your regular doctor about medication if there is any possibility it might help. I avoided that because I knew I'd break down and cry in the doctor's office. I did and it was belly crying, but I felt better after a couple of weeks. There are some online mini depression screens around. The way I could tell was that I avoided seeing people. I'd pretend to have a good time at groups but just really didn't want to go. Still have some issues with that but I know it and try to face it. In the old days, before medication I let me hair color grow out for almost a year, can you imagine that ladies? Finally saw a picture of myself in the sun and that was good motivation to take care of myself. My therapy session is over. Sandy in So Cal > > > > Hi all you wonderful people, I've only posted a few times, but > read > > posts every day & the support you all have for each other is > > awesome. I guess I don't have any questions, but just needed > > to " dump " on someone. It's hard to with family members, because > they > > don't understand how I feel. I have a cry just about every day - > > crying as I type this. I keep telling myself other people are much > > worse off, but it doesn't seem to help. I'm very depressed - I'm > > dealing with tinnitus as well as A. I've decided to have surgery > > (myotomy), but haven't scheduled it - probably sometime this > summer. > > I scare myself sometime, because I feel like I can't go on - if it > > wasn't for my 14 yr. old grandson who dotes on me, & my 2 new > > grandbabies, I think I'd throw in the towel. I know there's nothing > > any of you can do for me but listen, so thanks for that. Mo > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Sandi, Mo and Charmaine, What you are going through reminds me of what I went through some years back and therapy and medication helped so much. Now I have not hesitated to ask for something to tide me over and will continue post op because that is also a point where depression hits hard. I got claustrophobia so hated going out and being in crowds. Post op Heller I had to leave the light on in the bathroom because I could not bear the pitch dark. Depression is real and because it is not visible - like a rash - people tend to treat you like you are nuts. Been there and love you all! True - this is also my therapy session ! Joan Re: re depression > > > I echo everything Charmaine said, (but maybe she got Mo confused w/ > Iris?). I've fought depression since about 1989 when both my parents > became ill with life threatening illnesses in their early 50's. Then > I was laid off, then I got married, had a baby, post partum > depression on top of the mild depression I had before. Finally in > 1995 I got medication and the gray clouds lifted. Since then I've > switched meds a few times for no good reason. Felt I was better, > didn't need them, then in a few months after I stopped the feelings > came back. By then all the publications started about how dangerous > it is to go off and on. I got irritable w/ my kids for no good > reason and hated the look of confusion and fear on their face so I > went on and have stayed on for about 4 years. I take Lexapro, which > is a newer med that prozac and paxil and the others. My pharmacist > said it had fewer complications as prozac was triggering headaches in > me. I've raised the dosage once and am able to face life. > > I used to look forward to giving my son a bath when he was under a > year old because I could be in the bathroom with him and sob and my > husband wouldn't notice or hear me. No real reason to cry, not sure > why. > > Even with mild depression life is so much easier with treatment. I > saw one grandmother stay miserable and unhappy always searching for > better friends my whole life. It is worth a try if you have constant > feelings of sadness. Many of my over 40 Mom friends take meds and > they would never quit now. > > Having a chronic disease wears you out. It is not usually at a > crisis level but just wears you down and achalasia can make you start > isolating yourself because so many social functions center around > food. Please to anyone who thinks there is a stigma, ask your doctor > and see if medication and/or therapy would be helpful. With costs so > high, therapy is not common... that is what this group is for it > seems. > > Having been open about my issues with my friends and prying feelings > out of them it seems like so many suffer with depression.... you may > not have to suffer. > > About this site.... for me this is kind of group therapy. I don't > really have any issues to deal with right now with the disease. Just > feel badly for those struggling with it now. > > Also seems like this group kind of feel the meds help with the > spasms. Maybe so. But please see your regular doctor about > medication if there is any possibility it might help. I avoided that > because I knew I'd break down and cry in the doctor's office. I did > and it was belly crying, but I felt better after a couple of weeks. > > There are some online mini depression screens around. The way I > could tell was that I avoided seeing people. I'd pretend to have a > good time at groups but just really didn't want to go. Still have > some issues with that but I know it and try to face it. In the old > days, before medication I let me hair color grow out for almost a > year, can you imagine that ladies? Finally saw a picture of myself > in the sun and that was good motivation to take care of myself. > > My therapy session is over. > > Sandy in So Cal > > > >> > >> > Hi all you wonderful people, I've only posted a few times, but >> read >> > posts every day & the support you all have for each other is >> > awesome. I guess I don't have any questions, but just needed >> > to " dump " on someone. It's hard to with family members, because >> they >> > don't understand how I feel. I have a cry just about every day - >> > crying as I type this. I keep telling myself other people are > much >> > worse off, but it doesn't seem to help. I'm very depressed - I'm >> > dealing with tinnitus as well as A. I've decided to have surgery >> > (myotomy), but haven't scheduled it - probably sometime this >> summer. >> > I scare myself sometime, because I feel like I can't go on - if > it >> > wasn't for my 14 yr. old grandson who dotes on me, & my 2 new >> > grandbabies, I think I'd throw in the towel. I know there's > nothing >> > any of you can do for me but listen, so thanks for that. Mo >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 I was put on anti depressants early last year for six months because I was suffering depression, how severe I really don’t know but it was definitely depression, mood swings, crying for no reason, the usual things. Yes I’d contemplated suicide but because of my daughter, that held me back. I’d previously been on prednisone yet again beforehand and really had no idea until recently that it could cause depression, I doubt my doctor knew otherwise you think I’d have been told. After six months on anti depressants I decided to take myself off mainly due to the weight gain – and I thought Prednisone was bad for it, these were far worse. That was around 9 months ago and so far so good, I’m handling things, I needed to take control of it as best I could. I really believe this dreaded disease needs far more publicity than what it gets now – from what I’ve seen and heard, this is the only place I’ve read about it. Perhaps if more people were aware of Samters and the side effects of the various medications, then we may even get government funding to research into it plus of course friends and families would be more aware of it as well. I’m seriously considering contacting 60 minutes in my capital city to see if anything can be done about doing a program on it. I have nothing to lose but we all have everything to gain because I believe that if it makes it to a show like that, then this could be the start of something (hopefully) From: wayden72 [mailto:wayner-d@...] Sent: Tuesday, 31 March 2009 12:47 PM samters Subject: re depression Prednisone can produce some severe mood swings.Singulair might very well produce suicidal thoughts and a sense of helplessness .For me the worst is not getting treatment for symptoms of Samter's triad ,assuming everything necessary has been done medically or surgically.I'm the type that realizes some degree of control is essential.This disease does not go away and can easily affect your quality of life and success.The most depressing thing is this disease itself.The best we can do is educate ourselves and seek out those specialists who have some keen interest in us as patients.Those who have published in this area should come first to mind,also those who have done clinical studies.We need to be proactive and seek out the best care.I've thought about every way of commiting suicide and have researched most of them ,but I would not do this to my family.Maybe one day groups such as this might help us organize and evolve into something better so we can demand or facilitate better care. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.31/2029 - Release Date: 03/30/09 17:56:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 Does anyone know WHY singulair can cause suicidal thoughts? Or prednisolone mood swings? I am on both at the moment and feel just terrible. I dread taking this 'necessary' cocktail and I warn my family that i am on these drugs and that I might be horrible! But I feel so exhausted and mentally drained at the moment, yet my head is buzzing with the prednisolone buzz. I hate it, especially as I'm trying to study and I cannot think clearly at all. i also hate using my illness/medication as an excuse for my procrastination in life. As you say, this illness and all that it entails can certainly restrict us from reaching our full potential in life, and that in itself is very depressing. Sorry to rant, it must be my medication! Becky x From: wayden72 <wayner-d@...>samters Sent: Tuesday, 31 March, 2009 2:46:39Subject: re depression Prednisone can produce some severe mood swings.Singulair might very well produce suicidal thoughts and a sense of helplessness .For me the worst is not getting treatment for symptoms of Samter's triad ,assuming everything necessary has been done medically or surgically.I' m the type that realizes some degree of control is essential.This disease does not go away and can easily affect your quality of life and success.The most depressing thing is this disease itself.The best we can do is educate ourselves and seek out those specialists who have some keen interest in us as patients.Those who have published in this area should come first to mind,also those who have done clinical studies.We need to be proactive and seek out the best care.I've thought about every way of commiting suicide and have researched most of them ,but I would not do this to my family.Maybe one day groups such as this might help us organize and evolve into something better so we can demand or facilitate better care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 Maybe if we would all send a letter to even Oprah, we might be able to get something done on Samters. Things always happen in numbers. If anyones interested, I'll be glad to get the ball rolling. Tami RE: re depression I was put on anti depressants early last year for six months because I was suffering depression, how severe I really don’t know but it was definitely depression, mood swings, crying for no reason, the usual things. Yes I’d contemplated suicide but because of my daughter, that held me back. I’d previously been on prednisone yet again beforehand and really had no idea until recently that it could cause depression, I doubt my doctor knew otherwise you think I’d have been told. After six months on anti depressants I decided to take myself off mainly due to the weight gain – and I thought Prednisone was bad for it, these were far worse. That was around 9 months ago and so far so good, I’m handling things, I needed to take control of it as best I could. I really believe this dreaded disease needs far more publicity than what it gets now – from what I’ve seen and heard, this is the only place I’ve read about it. Perhaps if more people were aware of Samters and the side effects of the various medications, then we may even get government funding to research into it plus of course friends and families would be more aware of it as well. I’m seriously considering contacting 60 minutes in my capital city to see if anything can be done about doing a program on it. I have nothing to lose but we all have everything to gain because I believe that if it makes it to a show like that, then this could be the start of something (hopefully) From: wayden72 [mailto:wayner-dhotmail] Sent: Tuesday, 31 March 2009 12:47 PMsamters Subject: re depression Prednisone can produce some severe mood swings.Singulair might very well produce suicidal thoughts and a sense of helplessness .For me the worst is not getting treatment for symptoms of Samter's triad ,assuming everything necessary has been done medically or surgically.I'm the type that realizes some degree of control is essential.This disease does not go away and can easily affect your quality of life and success.The most depressing thing is this disease itself.The best we can do is educate ourselves and seek out those specialists who have some keen interest in us as patients.Those who have published in this area should come first to mind,also those who have done clinical studies.We need to be proactive and seek out the best care.I've thought about every way of commiting suicide and have researched most of them ,but I would not do this to my family.Maybe one day groups such as this might help us organize and evolve into something better so we can demand or facilitate better care. No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 8.0.238 / Virus Database: 270.11.31/2029 - Release Date: 03/30/09 17:56:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 I’ve contacted 60 Minutes in Sydney NSW and hopefully might get a response. I emailed them two days ago but because of severe storms here have had no internet for two days. Still keeping my fingers crossed. From: Tami Klumpyan [mailto:tami1961@...] Sent: Wednesday, 1 April 2009 4:48 AM samters Subject: Re: re depression Maybe if we would all send a letter to even Oprah, we might be able to get something done on Samters. Things always happen in numbers. If anyones interested, I'll be glad to get the ball rolling. Tami ----- Original Message ----- From: Robins samters Sent: Monday, March 30, 2009 9:34 PM Subject: RE: re depression I was put on anti depressants early last year for six months because I was suffering depression, how severe I really don’t know but it was definitely depression, mood swings, crying for no reason, the usual things. Yes I’d contemplated suicide but because of my daughter, that held me back. I’d previously been on prednisone yet again beforehand and really had no idea until recently that it could cause depression, I doubt my doctor knew otherwise you think I’d have been told. After six months on anti depressants I decided to take myself off mainly due to the weight gain – and I thought Prednisone was bad for it, these were far worse. That was around 9 months ago and so far so good, I’m handling things, I needed to take control of it as best I could. I really believe this dreaded disease needs far more publicity than what it gets now – from what I’ve seen and heard, this is the only place I’ve read about it. Perhaps if more people were aware of Samters and the side effects of the various medications, then we may even get government funding to research into it plus of course friends and families would be more aware of it as well. I’m seriously considering contacting 60 minutes in my capital city to see if anything can be done about doing a program on it. I have nothing to lose but we all have everything to gain because I believe that if it makes it to a show like that, then this could be the start of something (hopefully) From: wayden72 [mailto:wayner-d@...] Sent: Tuesday, 31 March 2009 12:47 PM samters Subject: re depression Prednisone can produce some severe mood swings.Singulair might very well produce suicidal thoughts and a sense of helplessness .For me the worst is not getting treatment for symptoms of Samter's triad ,assuming everything necessary has been done medically or surgically.I'm the type that realizes some degree of control is essential.This disease does not go away and can easily affect your quality of life and success.The most depressing thing is this disease itself.The best we can do is educate ourselves and seek out those specialists who have some keen interest in us as patients.Those who have published in this area should come first to mind,also those who have done clinical studies.We need to be proactive and seek out the best care.I've thought about every way of commiting suicide and have researched most of them ,but I would not do this to my family.Maybe one day groups such as this might help us organize and evolve into something better so we can demand or facilitate better care. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.31/2029 - Release Date: 03/30/09 17:56:00 No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.33/2031 - Release Date: 03/30/09 17:56:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 > > > I know that the FDA investigated a potential link between suicidal tendencies last year. In January they issued a report saying that no linkage exists. However I still have my doubts. > > http://www.webmd.com/asthma/news/20090113/fda-no-suicide-risk-from-singulair > > > > > > > > > > re depression > > > > > > Prednisone can produce some severe mood swings.Singulair might very well produce suicidal thoughts and a sense of helplessness .For me the worst is not getting treatment for symptoms of Samter's triad ,assuming everything necessary has been done medically or surgically.I' m the type that realizes some degree of control is essential.This disease does not go away and can easily affect your quality of life and success.The most depressing thing is this disease itself.The best we can do is educate ourselves and seek out those specialists who have some keen interest in us as patients.Those who have published in this area should come first to mind,also those who have done clinical studies.We need to be proactive and seek out the best care.I've thought about every way of commiting suicide and have researched most of them ,but I would not do this to my family.Maybe one day groups such as this might help us organize and evolve into something better so we can > demand or facilitate better care. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 Certainly there are many of us out there living with great hope because we have fantastic doctors who are very caring and research-oriented. I have two of the best doctors in the Denver area and they do keep me feeling hopeful always. I also had a fantastic doctor for many years in Orlando, Florida. Do we need to start a list of those top docs who really listen and truly care about their Samters patients? A referral list? I can't imagine anything that would cause one with this disease to feel more hopeless than having a doctor or doctors who just don't care or who are not up on the latest research with this disease that they share with their Samters patients. Jane From: wayden72 <wayner-d@...>Subject: re depressionsamters Date: Monday, March 30, 2009, 7:46 PM Prednisone can produce some severe mood swings.Singulair might very well produce suicidal thoughts and a sense of helplessness .For me the worst is not getting treatment for symptoms of Samter's triad ,assuming everything necessary has been done medically or surgically.I' m the type that realizes some degree of control is essential.This disease does not go away and can easily affect your quality of life and success.The most depressing thing is this disease itself.The best we can do is educate ourselves and seek out those specialists who have some keen interest in us as patients.Those who have published in this area should come first to mind,also those who have done clinical studies.We need to be proactive and seek out the best care.I've thought about every way of commiting suicide and have researched most of them ,but I would not do this to my family.Maybe one day groups such as this might help us organize and evolve into something better so we can demand or facilitate better care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 Do you mind sharing what medications you had been on prior to being put on the antidepressent? The reason I ask is out of curiosity as to whether the depression could have been caused by nonSamters-related medications. Jane From: Robins <soniarobins@...>Subject: RE: re depressionsamters Date: Monday, March 30, 2009, 8:34 PM I was put on anti depressants early last year for six months because I was suffering depression, how severe I really don’t know but it was definitely depression, mood swings, crying for no reason, the usual things. Yes I’d contemplated suicide but because of my daughter, that held me back. I’d previously been on prednisone yet again beforehand and really had no idea until recently that it could cause depression, I doubt my doctor knew otherwise you think I’d have been told. After six months on anti depressants I decided to take myself off mainly due to the weight gain – and I thought Prednisone was bad for it, these were far worse. That was around 9 months ago and so far so good, I’m handling things, I needed to take control of it as best I could. I really believe this dreaded disease needs far more publicity than what it gets now – from what I’ve seen and heard, this is the only place I’ve read about it. Perhaps if more people were aware of Samters and the side effects of the various medications, then we may even get government funding to research into it plus of course friends and families would be more aware of it as well. I’m seriously considering contacting 60 minutes in my capital city to see if anything can be done about doing a program on it. I have nothing to lose but we all have everything to gain because I believe that if it makes it to a show like that, then this could be the start of something (hopefully) From: wayden72 [mailto:wayner- dhotmail (DOT) com] Sent: Tuesday, 31 March 2009 12:47 PMsamters@groups .comSubject: re depression Prednisone can produce some severe mood swings.Singulair might very well produce suicidal thoughts and a sense of helplessness .For me the worst is not getting treatment for symptoms of Samter's triad ,assuming everything necessary has been done medically or surgically.I' m the type that realizes some degree of control is essential.This disease does not go away and can easily affect your quality of life and success.The most depressing thing is this disease itself.The best we can do is educate ourselves and seek out those specialists who have some keen interest in us as patients.Those who have published in this area should come first to mind,also those who have done clinical studies.We need to be proactive and seek out the best care.I've thought about every way of commiting suicide and have researched most of them ,but I would not do this to my family.Maybe one day groups such as this might help us organize and evolve into something better so we can demand or facilitate better care. No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 8.0.238 / Virus Database: 270.11.31/2029 - Release Date: 03/30/09 17:56:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 Hi Jane, I was on Singulair, Nasonex, Seritide, Ventolin and Prednisone all prior to being put on anti depressant – Pparoxetine 20 From: Jane Marino [mailto:janesmarino@...] Sent: Thursday, 2 April 2009 12:06 PM samters Subject: RE: re depression Do you mind sharing what medications you had been on prior to being put on the antidepressent? The reason I ask is out of curiosity as to whether the depression could have been caused by nonSamters-related medications. Jane From: Robins <soniarobins@...> Subject: RE: re depression samters Date: Monday, March 30, 2009, 8:34 PM I was put on anti depressants early last year for six months because I was suffering depression, how severe I really don’t know but it was definitely depression, mood swings, crying for no reason, the usual things. Yes I’d contemplated suicide but because of my daughter, that held me back. I’d previously been on prednisone yet again beforehand and really had no idea until recently that it could cause depression, I doubt my doctor knew otherwise you think I’d have been told. After six months on anti depressants I decided to take myself off mainly due to the weight gain – and I thought Prednisone was bad for it, these were far worse. That was around 9 months ago and so far so good, I’m handling things, I needed to take control of it as best I could. I really believe this dreaded disease needs far more publicity than what it gets now – from what I’ve seen and heard, this is the only place I’ve read about it. Perhaps if more people were aware of Samters and the side effects of the various medications, then we may even get government funding to research into it plus of course friends and families would be more aware of it as well. I’m seriously considering contacting 60 minutes in my capital city to see if anything can be done about doing a program on it. I have nothing to lose but we all have everything to gain because I believe that if it makes it to a show like that, then this could be the start of something (hopefully) From: wayden72 [mailto:wayner- dhotmail (DOT) com] Sent: Tuesday, 31 March 2009 12:47 PM samters@groups .com Subject: re depression Prednisone can produce some severe mood swings.Singulair might very well produce suicidal thoughts and a sense of helplessness .For me the worst is not getting treatment for symptoms of Samter's triad ,assuming everything necessary has been done medically or surgically.I' m the type that realizes some degree of control is essential.This disease does not go away and can easily affect your quality of life and success.The most depressing thing is this disease itself.The best we can do is educate ourselves and seek out those specialists who have some keen interest in us as patients.Those who have published in this area should come first to mind,also those who have done clinical studies.We need to be proactive and seek out the best care.I've thought about every way of commiting suicide and have researched most of them ,but I would not do this to my family.Maybe one day groups such as this might help us organize and evolve into something better so we can demand or facilitate better care. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.31/2029 - Release Date: 03/30/09 17:56:00 No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.35/2034 - Release Date: 04/01/09 06:06:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Please note that Predisone can cause depression also. I have noticed severe depression for a few days anytime I change my level of predisone (esp if I have been on long term dose) - it takes 3-4 days to recover...its hard to measure for sure... Good luck > > From: Jane Marino [mailto:janesmarino@...] > Sent: Thursday, 2 April 2009 12:06 PM > samters > Subject: RE: re depression > > > > > Do you mind sharing what medications you had been on prior to being put on the antidepressent? The reason I ask is out of curiosity as to whether the depression could have been caused by nonSamters-related medications. > > Jane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Hi Angel, I have found this post! I did read it, and believe me it gave me comfort!! But I didn't twig that you were writing to me as there are at least 3 Becky's /'s active on here now! Yes, I'm quite similar at the moment, and it absolutely goes in phases as most the time I just wouldn't react in this way to stress, but just occasionally...and it's always when I'm on the tail end of a steroid burst, I can scream and shout and feel out of control. I know to remove myslef to another room and lie down, but it is still horrible when it happens. Luckily my kids aren't frightened of me lol. But, still, I wish it wouldn't happen. I too am quite a spiritual person...and have had to dig deep into my inner strength to get through life in general, nevermind life WITH Samters and the cocktails of medication we are on. Anyway, it's good to talk, thank you! Becky x From: angel4mytull <angel.spargo@...>samters Sent: Wednesday, 1 April, 2009 18:00:17Subject: Re: re depression >> > I know that the FDA investigated a potential link between suicidal tendencies last year. In January they issued a report saying that no linkage exists. However I still have my doubts.> > http://www.webmd. com/asthma/ news/20090113/ fda-no-suicide- risk-from- singulair> > > > > > > > > > re depression> > > > > > Prednisone can produce some severe mood swings.Singulair might very well produce suicidal thoughts and a sense of helplessness .For me the worst is not getting treatment for symptoms of Samter's triad ,assuming everything necessary has been done medically or surgically.I' m the type that realizes some degree of control is essential.This disease does not go away and can easily affect your quality of life and success.The most depressing thing is this disease itself.The best we can do is educate ourselves and seek out those specialists who have some keen interest in us as patients.Those who have published in this area should come first to mind,also those who have done clinical studies.We need to be proactive and seek out the best care.I've thought about every way of commiting suicide and have researched most of them ,but I would not do this to my family.Maybe one day groups such as this might help us organize and evolve into something better so we can> demand or facilitate better care.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 -Becky, I'm glad it may have helped. I have been doing this gig for about 20 years!!! I have stated I have had 13 surgeries and many stays in the hospital. But I believe in my case I have learned by trial and error what works and that IS the key. I deal with life better now than ever before. I know the surgeries and changes in my surrondings were sooo important. But as I said you have to find what works for you personally. Don't give up the search ever!!! Thanks, Angel p.s. feel free to ask me anything you wish. -- In samters , Bannister <beckyb256@...> wrote: > > Hi Angel, I have found this post! I did read it, and believe me it gave me comfort!! But I didn't twig that you were writing to me as there are at least 3 Becky's /'s active on here now! > > Yes, I'm quite similar at the moment, and it absolutely goes in phases as most the time I just wouldn't react in this way to stress, but just occasionally...and it's always when I'm on the tail end of a steroid burst, I can scream and shout and feel out of control. I know to remove myslef to another room and lie down, but it is still horrible when it happens. Luckily my kids aren't frightened of me lol. But, still, I wish it wouldn't happen. I too am quite a spiritual person...and have had to dig deep into my inner strength to get through life in general, nevermind life WITH Samters and the cocktails of medication we are on. > > Anyway, it's good to talk, thank you! > Becky x > > > > > ________________________________ > From: angel4mytull <angel.spargo@...> > samters > Sent: Wednesday, 1 April, 2009 18:00:17 > Subject: Re: re depression > > > > > > > > > I know that the FDA investigated a potential link between suicidal tendencies last year. In January they issued a report saying that no linkage exists. However I still have my doubts. > > > > http://www.webmd. com/asthma/ news/20090113/ fda-no-suicide- risk-from- singulair > > > > > > > > > > > > > > > > > > > > re depression > > > > > > > > > > > > Prednisone can produce some severe mood swings.Singulair might very well produce suicidal thoughts and a sense of helplessness .For me the worst is not getting treatment for symptoms of Samter's triad ,assuming everything necessary has been done medically or surgically.I' m the type that realizes some degree of control is essential.This disease does not go away and can easily affect your quality of life and success.The most depressing thing is this disease itself.The best we can do is educate ourselves and seek out those specialists who have some keen interest in us as patients.Those who have published in this area should come first to mind,also those who have done clinical studies.We need to be proactive and seek out the best care.I've thought about every way of commiting suicide and have researched most of them ,but I would not do this to my family.Maybe one day groups such as this might help us organize and evolve into something better so we can > > demand or facilitate better care. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 My 13 year old son's doctor took him off Singulair after that report. Evie -- re depression Prednisone can produce some severe mood swings.Singulair might very well produce suicidal thoughts and a sense of helplessness .For me the worst is not getting treatment for symptoms of Samter's triad ,assuming everything necessary has been done medically or surgically.I' m the type that realizes some degree of control is essential.This disease does not go away and can easily affect your quality of life and success.The most depressing thing is this disease itself.The best we can do is educate ourselves and seek out those specialists who have some keen interest in us as patients.Those who have published in this area should come first to mind,also those who have done clinical studies.We need to be proactive and seek out the best care.I've thought about every way of commiting suicide and have researched most of them ,but I would not do this to my family.Maybe one day groups such as this might help us organize and evolve into something better so we can demand or facilitate better care. A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
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