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Are the med treatments migraine treatments for IH.

Tami

Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

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I know my pressure is going up or is up when I start to have that whooshing ringing sound in my ears, I get a headache, and sometimes I start to get a stiff neck. If I catch early enough the headache is not as severe as a migraine. I do think that they use some of the meds for migraines. Diamox has several uses but I think mostly it is a specific diuretic, I don't know if they use it for migraines. I know they give it to mountain climbers to combat altitude sickness. Topamax is the only med that has been offered to me for IH that I know is for migraines and it did not help. TianaFrom: Tami Klumpyan <tami1961@...>samters Sent: Friday, May 15, 2009 2:59:53 PMSubject: Re: Noise in ears



Are the med treatments migraine treatments for IH.

Tami

Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

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  • 3 months later...

Hi

Are there many of you suffering from this condition?

My ears have a rushing sound 24/7.

Have any of you been prescribed a treatment regime which reduces/eliminates the noise.

Regards

From: gwenrafter (DOT) com <gwenrafter (DOT) com>Subject: Noise in earssamters@groups .comDate: Sunday, May 10, 2009, 6:10 AM

I am having so problems with noise in my ears. I constantly hear my pulse in my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone but the noise continues. I hear it day and night. Does anyone else have this problem?

From: "gypsymouse@ rocketmail. com" <jratico@...>samters@groups .comSent: Saturday, May 9, 2009 8:20:18 PMSubject: Re: 1st surgery expectationsTC - I wish you the best of luck with your 1st surgery. I waited to be done nursing my second child to get my first surgery - so I know where you are coming from in having gone 5+ years without breathing through my nose.I was packed after my first surgery, but even with the packing it seemed like the recovery wasn't too bad - my first c-section was definately harder than the sinus surgery. There are some pretty painful moments when packing is removed and when the suction things out a few days after. My 1st was septum, polyps and

turbinates. I was able to breathe great after the surgery. It was so nice to breathe through my nose! But, I did not get my sense of smell back for almost two years (following a steroid shot). I think this may be because only my maxillary sinuses were addressed in the first surgery and the smell recepters may have continued to be impacted in the other cavities. Doctor's told me it could take a while for your sense of smell to return, so do be patient.I go in on Tuesday for my 2nd surgery (the "stealth" one - the other was plain endoscopic). I have unresolved circulation issues in the ephnoid sinuses that will be worked on as well as one turbinate full of fluid - this has caused a LOT of infections in the last year. I don't have visible polyps, but do have a huge overgrowth of tissue that will be addressed as well. I was told this procedure would be a better recovery than the last and that I shouldn't have much

pain. Like you, I will be doing desense sometime in June.I agree that you should have help with your kids. It can take a few days to feel up and running after anesthesia, and you don't really want to be lifting to reduce the chance of bleeding. Also, protect your face. I got a good whack in the nose a few days after surgery from my kids and it was really painful.Good Luck! I'll write next week to let you all know how I fare!Jennie>> Hello> > I have had samters for nearly 7 years and am going to have the polyps removed via surgery in about a week and a half. (I have written before - I am the one who put off surgery in order to have

children and breastfeed them without taking all of the medications that coincide with this illness). I am completely blocked (can't breathe) and every sinus cavity is filled with them.> > Anyway, I went and had the "GPS" catscan last month so that the doctor can do the surgery - from reading the previous posts it sounds like a stealth surgery? > > I was hoping that some of you could share with me what to expect after the surgery - I think because I am still adjusting to this illness sometimes my expectations are very high (like everything will be back to "normal" again, smell, my nose will stop running, etc - like before I had my samters) and sometimes they are low (like at least I'll be able to breathe for awhile again). > > If you could give me some idea of what to expect (will my nose stop running? will I be able to smell? is there more of a propensity for

infections?, etc) and if I should do anything special before or after to help in healing. Reading 's post (4th surgery) it sounds like recovery will be much harder than my doctor has presented it to be.> > I should tell you that I will be doing (hopefully successfully) ASA desens in June. From what I have read, it seems like one of the few things works for some to keep the polyps away for awhile. > > Thanks for your input.> TC>------------ --------- --------- ------

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,

I can't explain this, but I had been putting up with this noise in my ears for years. However, since being desensitized to aspirin 2 years ago, I only occasionally hear this noise now. It could be a fluke, but I'm thrilled the noise is mostly gone. I know how irritating this is.

Hope you find some answers soon.

Jane

From: gwenrafter (DOT) com <gwenrafter (DOT) com>Subject: Noise in earssamters@groups .comDate: Sunday, May 10, 2009, 6:10 AM

I am having so problems with noise in my ears. I constantly hear my pulse in my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone but the noise continues. I hear it day and night. Does anyone else have this problem?

From: "gypsymouse@ rocketmail. com" <jratico@...>samters@groups .comSent: Saturday, May 9, 2009 8:20:18 PMSubject: Re: 1st surgery expectationsTC - I wish you the best of luck with your 1st surgery. I waited to be done nursing my second child to get my first surgery - so I know where you are coming from in having gone 5+ years without breathing through my nose.I was packed after my first surgery, but even with the packing it seemed like the recovery wasn't too bad - my first c-section was definately harder than the sinus surgery. There are some pretty painful moments when packing is removed and when the suction things out a few days after. My 1st was septum, polyps and

turbinates. I was able to breathe great after the surgery. It was so nice to breathe through my nose! But, I did not get my sense of smell back for almost two years (following a steroid shot). I think this may be because only my maxillary sinuses were addressed in the first surgery and the smell recepters may have continued to be impacted in the other cavities. Doctor's told me it could take a while for your sense of smell to return, so do be patient.I go in on Tuesday for my 2nd surgery (the "stealth" one - the other was plain endoscopic). I have unresolved circulation issues in the ephnoid sinuses that will be worked on as well as one turbinate full of fluid - this has caused a LOT of infections in the last year. I don't have visible polyps, but do have a huge overgrowth of tissue that will be addressed as well. I was told this procedure would be a better recovery than the last and that I shouldn't have much

pain. Like you, I will be doing desense sometime in June.I agree that you should have help with your kids. It can take a few days to feel up and running after anesthesia, and you don't really want to be lifting to reduce the chance of bleeding. Also, protect your face. I got a good whack in the nose a few days after surgery from my kids and it was really painful.Good Luck! I'll write next week to let you all know how I fare!Jennie>> Hello> > I have had samters for nearly 7 years and am going to have the polyps removed via surgery in about a week and a half. (I have written before - I am the one who put off surgery in order to have children and breastfeed them without taking all

of the medications that coincide with this illness). I am completely blocked (can't breathe) and every sinus cavity is filled with them.> > Anyway, I went and had the "GPS" catscan last month so that the doctor can do the surgery - from reading the previous posts it sounds like a stealth surgery? > > I was hoping that some of you could share with me what to expect after the surgery - I think because I am still adjusting to this illness sometimes my expectations are very high (like everything will be back to "normal" again, smell, my nose will stop running, etc - like before I had my samters) and sometimes they are low (like at least I'll be able to breathe for awhile again). > > If you could give me some idea of what to expect (will my nose stop running? will I be able to smell? is there more of a propensity for infections?, etc) and if I should do

anything special before or after to help in healing. Reading 's post (4th surgery) it sounds like recovery will be much harder than my doctor has presented it to be.> > I should tell you that I will be doing (hopefully successfully) ASA desens in June. From what I have read, it seems like one of the few things works for some to keep the polyps away for awhile. > > Thanks for your input.> TC>------------ --------- --------- ------

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I don't have a " rushing " sound, but I am plagued with tinnitus, which for me is

like a high pitched buzzing/ringing. My ENT recently had me see the audiologist

because it didn't get any better with my surgery or aspirin desensitization.

Apparently I have some hearing loss in upper frequencies - beyond those made in

human conversation - the audiologist said the loss was in " electronic " tones.

She said my tinnitus is a result of the hearing loss. The best recommendations

they had were white noise (so you can tune into something other than the noise

inside your head). I use the radio at work and a fan and/or HEPA filter at

night. Other things that can help is cutting out caffiene and chocolate for at

least a month to notice a difference, and possible using melatonin or ginseng

(though ginseng is contra-indicated if you are on an aspirin regimen).

Others on this site have reported a " rushing " - basically hearing their pulse

and it was associated with inter-cranial hypertension, so you may want to

discuss it with your doctor.

Good luck.

Jennie

> >

> > Hello

> >  

> > I have had samters for nearly 7 years and am going to have the polyps

removed via surgery in about a week and a half.  (I have written before - I am

the one who put off surgery in order to have children and breastfeed them

without taking all of the medications that coincide with this illness).  I am

completely blocked (can't breathe) and every sinus cavity is filled with them.

> >  

> > Anyway, I went and had the " GPS " catscan last month so that the doctor can

do the surgery - from reading the previous posts it sounds like a stealth

surgery?

> >  

> > I was hoping that some of you could share with me what to expect after the

surgery - I think because I am still adjusting to this illness sometimes my

expectations are very high (like everything will be back to " normal " again,

smell, my nose will stop running, etc - like before I had my samters) and

sometimes they are low (like at least I'll be able to breathe for awhile

again). 

> >  

> > If you could give me some idea of what to expect (will my nose stop

running?  will I be able to smell?  is there more of a propensity for

infections?, etc)  and if I should do anything special before or after to help

in healing.  Reading 's post (4th surgery) it sounds like recovery will

be much harder than my doctor has presented it to be.

> >  

> > I should tell you that I will be doing (hopefully successfully) ASA desens

in June.  From what I have read, it seems like one of the few things works for

some to keep the polyps away for awhile.

> >  

> > Thanks for your input.

> > TC

> >

>

>

>

>

> ------------ --------- --------- ------

>

>

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Hi Jane

Thank you; I'm not sure if desensitization is available in NZ, but will persue with my Consulatant.

Regards

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