Re: Noise in ears

[Guest guest]

I don't hear my pulse, but I get a lot of high pitched ringing that comes and

goes in my ears. My father, who also has Samter's has ringing and buzzing

pretty much all the time.

> >

> > Hello

> >  

> > I have had samters for nearly 7 years and am going to have the polyps

removed via surgery in about a week and a half.  (I have written before - I am

the one who put off surgery in order to have children and breastfeed them

without taking all of the medications that coincide with this illness).  I am

completely blocked (can't breathe) and every sinus cavity is filled with them.

> >  

> > Anyway, I went and had the " GPS " catscan last month so that the doctor can

do the surgery - from reading the previous posts it sounds like a stealth

surgery?

> >  

> > I was hoping that some of you could share with me what to expect after the

surgery - I think because I am still adjusting to this illness sometimes my

expectations are very high (like everything will be back to " normal " again,

smell, my nose will stop running, etc - like before I had my samters) and

sometimes they are low (like at least I'll be able to breathe for awhile

again). 

> >  

> > If you could give me some idea of what to expect (will my nose stop

running?  will I be able to smell?  is there more of a propensity for

infections?, etc)  and if I should do anything special before or after to help

in healing.  Reading 's post (4th surgery) it sounds like recovery will

be much harder than my doctor has presented it to be.

> >  

> > I should tell you that I will be doing (hopefully successfully) ASA desens

in June.  From what I have read, it seems like one of the few things works for

some to keep the polyps away for awhile.

> >  

> > Thanks for your input.

> > TC

> >

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

I call it a helicopter sound. My specialist said it is a blood vessel. I thought he was high! Mine comes and goes. I think it has to do with the pressure in your ears but am not sure. I seem to get it when I am having extremely bad days.

Tami

Re: 1st surgery expectationsTC - I wish you the best of luck with your 1st surgery. I waited to be done nursing my second child to get my first surgery - so I know where you are coming from in having gone 5+ years without breathing through my nose.I was packed after my first surgery, but even with the packing it seemed like the recovery wasn't too bad - my first c-section was definately harder than the sinus surgery. There are some pretty painful moments when packing is removed and when the suction things out a few days after. My 1st was septum, polyps and turbinates. I was able to breathe great after the surgery. It was so nice to breathe through my nose! But, I did not get my sense of smell back for almost two years (following a steroid shot). I think this may be because only my maxillary sinuses were addressed in the first surgery and the smell recepters may have continued to be impacted in the other cavities. Doctor's told me it could take a while for your sense of smell to return, so do be patient.I go in on Tuesday for my 2nd surgery (the "stealth" one - the other was plain endoscopic). I have unresolved circulation issues in the ephnoid sinuses that will be worked on as well as one turbinate full of fluid - this has caused a LOT of infections in the last year. I don't have visible polyps, but do have a huge overgrowth of tissue that will be addressed as well. I was told this procedure would be a better recovery than the last and that I shouldn't have much pain. Like you, I will be doing desense sometime in June.I agree that you should have help with your kids. It can take a few days to feel up and running after anesthesia, and you don't really want to be lifting to reduce the chance of bleeding. Also, protect your face. I got a good whack in the nose a few days after surgery from my kids and it was really painful.Good Luck! I'll write next week to let you all know how I fare!Jennie>> Hello> > I have had samters for nearly 7 years and am going to have the polyps removed via surgery in about a week and a half. (I have written before - I am the one who put off surgery in order to have children and breastfeed them without taking all of the medications that coincide with this illness). I am completely blocked (can't breathe) and every sinus cavity is filled with them.> > Anyway, I went and had the "GPS" catscan last month so that the doctor can do the surgery - from reading the previous posts it sounds like a stealth surgery? > > I was hoping that some of you could share with me what to expect after the surgery - I think because I am still adjusting to this illness sometimes my expectations are very high (like everything will be back to "normal" again, smell, my nose will stop running, etc - like before I had my samters) and sometimes they are low (like at least I'll be able to breathe for awhile again). > > If you could give me some idea of what to expect (will my nose stop running? will I be able to smell? is there more of a propensity for infections?, etc) and if I should do anything special before or after to help in healing. Reading 's post (4th surgery) it sounds like recovery will be much harder than my doctor has presented it to be.> > I should tell you that I will be doing (hopefully successfully) ASA desens in June. From what I have read, it seems like one of the few things works for some to keep the polyps away for awhile. > > Thanks for your input.> TC>------------------------------------

[Guest guest]

Gwen,

It is unfortunately, not abnormal for those with Samters to have hearing loss and/or noise in the ears, pressure, etc. I didn't know there was this 4th component to the disease that some experience until about 5 years ago when I started experiencing many of the same symptoms. About 2 years ago I realized I just wasn't hearing as well. I went to my ENT and he did an audiology exam. What he found was that my ear drums are basically inside/out caused by years of ongoing pressure from polyps. He told me that hearing aids would not help me. The good news is that if I can get the polyps and infections under control, the ear drums may return to normal. So far, even though my polyps are gone due to desensitization, I still have hearing loss. However, the noise in your ears doesn't mean you will suffer hearing loss. You may have some pressure going on in your ears.

After this audiology exam, I posted here on this site and was quite surprised to learn that this is not an unusual component of this disease. Many of our Samters friends have hearing issues. There is a name for this condition which I tried to find in our archives before resonding to you. I will look for it and write back so I can refer you to some earlier posts that might be helpful to read.

Jane

From: gwenrafter@... <gwenrafter@...>Subject: Noise in earssamters Date: Sunday, May 10, 2009, 6:10 AM

I am having so problems with noise in my ears. I constantly hear my pulse in my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone but the noise continues. I hear it day and night. Does anyone else have this problem?

From: "gypsymouse@ rocketmail. com" <jratico@...>samters@groups .comSent: Saturday, May 9, 2009 8:20:18 PMSubject: Re: 1st surgery expectationsTC - I wish you the best of luck with your 1st surgery. I waited to be done nursing my second child to get my first surgery - so I know where you are coming from in having gone 5+ years without breathing through my nose.I was packed after my first surgery, but even with the packing it seemed like the recovery wasn't too bad - my first c-section was definately harder than the sinus surgery. There are some pretty painful moments when packing is removed and when the suction things out a few days after. My 1st was septum, polyps and

turbinates. I was able to breathe great after the surgery. It was so nice to breathe through my nose! But, I did not get my sense of smell back for almost two years (following a steroid shot). I think this may be because only my maxillary sinuses were addressed in the first surgery and the smell recepters may have continued to be impacted in the other cavities. Doctor's told me it could take a while for your sense of smell to return, so do be patient.I go in on Tuesday for my 2nd surgery (the "stealth" one - the other was plain endoscopic). I have unresolved circulation issues in the ephnoid sinuses that will be worked on as well as one turbinate full of fluid - this has caused a LOT of infections in the last year. I don't have visible polyps, but do have a huge overgrowth of tissue that will be addressed as well. I was told this procedure would be a better recovery than the last and that I shouldn't have much

pain. Like you, I will be doing desense sometime in June.I agree that you should have help with your kids. It can take a few days to feel up and running after anesthesia, and you don't really want to be lifting to reduce the chance of bleeding. Also, protect your face. I got a good whack in the nose a few days after surgery from my kids and it was really painful.Good Luck! I'll write next week to let you all know how I fare!Jennie>> Hello> > I have had samters for nearly 7 years and am going to have the polyps removed via surgery in about a week and a half. (I have written before - I am the one who put off surgery in order to have children and breastfeed them without taking all of the medications that coincide with

this illness). I am completely blocked (can't breathe) and every sinus cavity is filled with them.> > Anyway, I went and had the "GPS" catscan last month so that the doctor can do the surgery - from reading the previous posts it sounds like a stealth surgery? > > I was hoping that some of you could share with me what to expect after the surgery - I think because I am still adjusting to this illness sometimes my expectations are very high (like everything will be back to "normal" again, smell, my nose will stop running, etc - like before I had my samters) and sometimes they are low (like at least I'll be able to breathe for awhile again). > > If you could give me some idea of what to expect (will my nose stop running? will I be able to smell? is there more of a propensity for infections?, etc) and if I should do anything special before or after to help in

healing. Reading 's post (4th surgery) it sounds like recovery will be much harder than my doctor has presented it to be.> > I should tell you that I will be doing (hopefully successfully) ASA desens in June. From what I have read, it seems like one of the few things works for some to keep the polyps away for awhile. > > Thanks for your input.> TC>------------ --------- --------- ------

[Guest guest]

Thanks JaneSent via BlackBerry from T-MobileFrom: Jane Marino Date: Sun, 10 May 2009 08:36:11 -0700 (PDT)<samters >Subject: Re: Noise in ears Gwen,It is unfortunately, not abnormal for those with Samters to have hearing loss and/or noise in the ears, pressure, etc. I didn't know there was this 4th component to the disease that some experience until about 5 years ago when I started experiencing many of the same symptoms. About 2 years ago I realized I just wasn't hearing as well. I went to my ENT and he did an audiology exam. What he found was that my ear drums are basically inside/out caused by years of ongoing pressure from polyps. He told me that hearing aids would not help me. The good news is that if I can get the polyps and infections under control, the ear drums may return to normal. So far, even though my polyps are gone due to desensitization, I still have hearing loss. However, the noise in your ears doesn't mean you will suffer hearing loss. You may have some pressure going on in your ears. After this audiology exam, I posted here on this site and was quite surprised to learn that this is not an unusual component of this disease. Many of our Samters friends have hearing issues. There is a name for this condition which I tried to find in our archives before resonding to you. I will look for it and write back so I can refer you to some earlier posts that might be helpful to read. JaneFrom: gwenrafter@... <gwenrafter@...>Subject: Noise in earssamters Date: Sunday, May 10, 2009, 6:10 AMI am having so problems with noise in my ears. I constantly hear my pulse in my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone but the noise continues. I hear it day and night. Does anyone else have this problem?From: "gypsymouse@ rocketmail. com" <jratico@...>samters@groups .comSent: Saturday, May 9, 2009 8:20:18 PMSubject: Re: 1st surgery expectationsTC - I wish you the best of luck with your 1st surgery. I waited to be done nursing my second child to get my first surgery - so I know where you are coming from in having gone 5+ years without breathing through my nose.I was packed after my first surgery, but even with the packing it seemed like the recovery wasn't too bad - my first c-section was definately harder than the sinus surgery. There are some pretty painful moments when packing is removed and when the suction things out a few days after. My 1st was septum, polyps and turbinates. I was able to breathe great after the surgery. It was so nice to breathe through my nose! But, I did not get my sense of smell back for almost two years (following a steroid shot). I think this may be because only my maxillary sinuses were addressed in the first surgery and the smell recepters may have continued to be impacted in the other cavities. Doctor's told me it could take a while for your sense of smell to return, so do be patient.I go in on Tuesday for my 2nd surgery (the "stealth" one - the other was plain endoscopic). I have unresolved circulation issues in the ephnoid sinuses that will be worked on as well as one turbinate full of fluid - this has caused a LOT of infections in the last year. I don't have visible polyps, but do have a huge overgrowth of tissue that will be addressed as well. I was told this procedure would be a better recovery than the last and that I shouldn't have much pain. Like you, I will be doing desense sometime in June.I agree that you should have help with your kids. It can take a few days to feel up and running after anesthesia, and you don't really want to be lifting to reduce the chance of bleeding. Also, protect your face. I got a good whack in the nose a few days after surgery from my kids and it was really painful.Good Luck! I'll write next week to let you all know how I fare!Jennie>> Hello> > I have had samters for nearly 7 years and am going to have the polyps removed via surgery in about a week and a half. (I have written before - I am the one who put off surgery in order to have children and breastfeed them without taking all of the medications that coincide with this illness). I am completely blocked (can't breathe) and every sinus cavity is filled with them.> > Anyway, I went and had the "GPS" catscan last month so that the doctor can do the surgery - from reading the previous posts it sounds like a stealth surgery? > > I was hoping that some of you could share with me what to expect after the surgery - I think because I am still adjusting to this illness sometimes my expectations are very high (like everything will be back to "normal" again, smell, my nose will stop running, etc - like before I had my samters) and sometimes they are low (like at least I'll be able to breathe for awhile again). > > If you could give me some idea of what to expect (will my nose stop running? will I be able to smell? is there more of a propensity for infections?, etc) and if I should do anything special before or after to help in healing. Reading 's post (4th surgery) it sounds like recovery will be much harder than my doctor has presented it to be.> > I should tell you that I will be doing (hopefully successfully) ASA desens in June. From what I have read, it seems like one of the few things works for some to keep the polyps away for awhile. > > Thanks for your input.> TC>------------ --------- --------- ------

[Guest guest]

Jane

Is the condition called tinnitus? MY father had that for many years.

See www.tinnitus.org.uk/ for more information

Mike

samters From: janesmarino@...Date: Sun, 10 May 2009 08:36:11 -0700Subject: Re: Noise in ears

Gwen,

It is unfortunately, not abnormal for those with Samters to have hearing loss and/or noise in the ears, pressure, etc. I didn't know there was this 4th component to the disease that some experience until about 5 years ago when I started experiencing many of the same symptoms. About 2 years ago I realized I just wasn't hearing as well. I went to my ENT and he did an audiology exam. What he found was that my ear drums are basically inside/out caused by years of ongoing pressure from polyps. He told me that hearing aids would not help me. The good news is that if I can get the polyps and infections under control, the ear drums may return to normal. So far, even though my polyps are gone due to desensitization, I still have hearing loss. However, the noise in your ears doesn't mean you will suffer hearing loss. You may have some pressure going on in your ears.

After this audiology exam, I posted here on this site and was quite surprised to learn that this is not an unusual component of this disease. Many of our Samters friends have hearing issues. There is a name for this condition which I tried to find in our archives before resonding to you. I will look for it and write back so I can refer you to some earlier posts that might be helpful to read.

Jane

From: gwenrafter <gwenrafter >Subject: Noise in earssamters Date: Sunday, May 10, 2009, 6:10 AM

I am having so problems with noise in my ears. I constantly hear my pulse in my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone but the noise continues. I hear it day and night. Does anyone else have this problem?

From: "gypsymouse@ rocketmail. com" <jratico@...>samters@groups .comSent: Saturday, May 9, 2009 8:20:18 PMSubject: Re: 1st surgery expectationsTC - I wish you the best of luck with your 1st surgery. I waited to be done nursing my second child to get my first surgery - so I know where you are coming from in having gone 5+ years without breathing through my nose.I was packed after my first surgery, but even with the packing it seemed like the recovery wasn't too bad - my first c-section was definately harder than the sinus surgery. There are some pretty painful moments when packing is removed and when the suction things out a few days after. My 1st was septum, polyps and turbinates. I was able to breathe great after the surgery. It was so nice to breathe through my nose! But, I did not get my sense of smell back for almost two years (following a steroid shot). I think this may be because only my maxillary sinuses were addressed in the first surgery and the smell recepters may have continued to be impacted in the other cavities. Doctor's told me it could take a while for your sense of smell to return, so do be patient.I go in on Tuesday for my 2nd surgery (the "stealth" one - the other was plain endoscopic). I have unresolved circulation issues in the ephnoid sinuses that will be worked on as well as one turbinate full of fluid - this has caused a LOT of infections in the last year. I don't have visible polyps, but do have a huge overgrowth of tissue that will be addressed as well. I was told this procedure would be a better recovery than the last and that I shouldn't have much pain. Like you, I will be doing desense sometime in June.I agree that you should have help with your kids. It can take a few days to feel up and running after anesthesia, and you don't really want to be lifting to reduce the chance of bleeding. Also, protect your face. I got a good whack in the nose a few days after surgery from my kids and it was really painful.Good Luck! I'll write next week to let you all know how I fare!Jennie>> Hello> > I have had samters for nearly 7 years and am going to have the polyps removed via surgery in about a week and a half. (I have written before - I am the one who put off surgery in order to have children and breastfeed them without taking all of the medications that coincide with this illness). I am completely blocked (can't breathe) and every sinus cavity is filled with them.> > Anyway, I went and had the "GPS" catscan last month so that the doctor can do the surgery - from reading the previous posts it sounds like a stealth surgery? > > I was hoping that some of you could share with me what to expect after the surgery - I think because I am still adjusting to this illness sometimes my expectations are very high (like everything will be back to "normal" again, smell, my nose will stop running, etc - like before I had my samters) and sometimes they are low (like at least I'll be able to breathe for awhile again). > > If you could give me some idea of what to expect (will my nose stop running? will I be able to smell? is there more of a propensity for infections?, etc) and if I should do anything special before or after to help in healing. Reading 's post (4th surgery) it sounds like recovery will be much harder than my doctor has presented it to be.> > I should tell you that I will be doing (hopefully successfully) ASA desens in June. From what I have read, it seems like one of the few things works for some to keep the polyps away for awhile. > > Thanks for your input.> TC>------------ --------- --------- ------

[Guest guest]

Actually, the hearing component related to Samters as an actual 4th component to the "Triad" that sometimes occurs has another medical name. I'll keep searching for this. It is different than Tinnitus, although tinnitus may be involved.

Jane

From: gwenrafter (DOT) com <gwenrafter (DOT) com>Subject: Noise in earssamters@groups .comDate: Sunday, May 10, 2009, 6:10 AM

I am having so problems with noise in my ears. I constantly hear my pulse in my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone but the noise continues. I hear it day and night. Does anyone else have this problem?

From: "gypsymouse@ rocketmail. com" <jratico@...>samters@groups .comSent: Saturday, May 9, 2009 8:20:18 PMSubject: Re: 1st surgery expectationsTC - I wish you the best of luck with your 1st surgery. I waited to be done nursing my second child to get my first surgery - so I know where you are coming from in having gone 5+ years without breathing through my nose.I was packed after my first surgery, but even with the packing it seemed like the recovery wasn't too bad - my first c-section was definately harder than the sinus surgery. There are some pretty painful moments when packing is removed and when the suction things out a few days after. My 1st was septum, polyps and

turbinates. I was able to breathe great after the surgery. It was so nice to breathe through my nose! But, I did not get my sense of smell back for almost two years (following a steroid shot). I think this may be because only my maxillary sinuses were addressed in the first surgery and the smell recepters may have continued to be impacted in the other cavities. Doctor's told me it could take a while for your sense of smell to return, so do be patient.I go in on Tuesday for my 2nd surgery (the "stealth" one - the other was plain endoscopic). I have unresolved circulation issues in the ephnoid sinuses that will be worked on as well as one turbinate full of fluid - this has caused a LOT of infections in the last year. I don't have visible polyps, but do have a huge overgrowth of tissue that will be addressed as well. I was told this procedure would be a better recovery than the last and that I shouldn't have much

pain. Like you, I will be doing desense sometime in June.I agree that you should have help with your kids. It can take a few days to feel up and running after anesthesia, and you don't really want to be lifting to reduce the chance of bleeding. Also, protect your face. I got a good whack in the nose a few days after surgery from my kids and it was really painful.Good Luck! I'll write next week to let you all know how I fare!Jennie>> Hello> > I have had samters for nearly 7 years and am going to have the polyps removed via surgery in about a week and a half. (I have written before - I am the one who put off surgery in order to have children and breastfeed them without taking all of the medications that coincide with

this illness). I am completely blocked (can't breathe) and every sinus cavity is filled with them.> > Anyway, I went and had the "GPS" catscan last month so that the doctor can do the surgery - from reading the previous posts it sounds like a stealth surgery? > > I was hoping that some of you could share with me what to expect after the surgery - I think because I am still adjusting to this illness sometimes my expectations are very high (like everything will be back to "normal" again, smell, my nose will stop running, etc - like before I had my samters) and sometimes they are low (like at least I'll be able to breathe for awhile again). > > If you could give me some idea of what to expect (will my nose stop running? will I be able to smell? is there more of a propensity for infections?, etc) and if I should do anything special before or after to help in

healing. Reading 's post (4th surgery) it sounds like recovery will be much harder than my doctor has presented it to be.> > I should tell you that I will be doing (hopefully successfully) ASA desens in June. From what I have read, it seems like one of the few things works for some to keep the polyps away for awhile. > > Thanks for your input.> TC>------------ --------- --------- ------

[Guest guest]

Is there any medication that addresses the tinnitus?samters From: janesmarino@...Date: Sun, 10 May 2009 11:05:08 -0700Subject: RE: Noise in ears

Actually, the hearing component related to Samters as an actual 4th component to the "Triad" that sometimes occurs has another medical name. I'll keep searching for this. It is different than Tinnitus, although tinnitus may be involved.

Jane

From: gwenrafter (DOT) com <gwenrafter (DOT) com>Subject: Noise in earssamters@groups .comDate: Sunday, May 10, 2009, 6:10 AM

I am having so problems with noise in my ears. I constantly hear my pulse in my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone but the noise continues. I hear it day and night. Does anyone else have this problem?

From: "gypsymouse@ rocketmail. com" <jratico@...>samters@groups .comSent: Saturday, May 9, 2009 8:20:18 PMSubject: Re: 1st surgery expectationsTC - I wish you the best of luck with your 1st surgery. I waited to be done nursing my second child to get my first surgery - so I know where you are coming from in having gone 5+ years without breathing through my nose.I was packed after my first surgery, but even with the packing it seemed like the recovery wasn't too bad - my first c-section was definately harder than the sinus surgery. There are some pretty painful moments when packing is removed and when the suction things out a few days after. My 1st was septum, polyps and

turbinates. I was able to breathe great after the surgery. It was so nice to breathe through my nose! But, I did not get my sense of smell back for almost two years (following a steroid shot). I think this may be because only my maxillary sinuses were addressed in the first surgery and the smell recepters may have continued to be impacted in the other cavities. Doctor's told me it could take a while for your sense of smell to return, so do be patient.I go in on Tuesday for my 2nd surgery (the "stealth" one - the other was plain endoscopic). I have unresolved circulation issues in the ephnoid sinuses that will be worked on as well as one turbinate full of fluid - this has caused a LOT of infections in the last year. I don't have visible polyps, but do have a huge overgrowth of tissue that will be addressed as well. I was told this procedure would be a better recovery than the last and that I shouldn't have much

pain. Like you, I will be doing desense sometime in June.I agree that you should have help with your kids. It can take a few days to feel up and running after anesthesia, and you don't really want to be lifting to reduce the chance of bleeding. Also, protect your face. I got a good whack in the nose a few days after surgery from my kids and it was really painful.Good Luck! I'll write next week to let you all know how I fare!Jennie>> Hello> > I have had samters for nearly 7 years and am going to have the polyps removed via surgery in about a week and a half. (I have written before - I am the one who put off surgery in order to have children and breastfeed them without taking all of the medications that coincide with

this illness). I am completely blocked (can't breathe) and every sinus cavity is filled with them.> > Anyway, I went and had the "GPS" catscan last month so that the doctor can do the surgery - from reading the previous posts it sounds like a stealth surgery? > > I was hoping that some of you could share with me what to expect after the surgery - I think because I am still adjusting to this illness sometimes my expectations are very high (like everything will be back to "normal" again, smell, my nose will stop running, etc - like before I had my samters) and sometimes they are low (like at least I'll be able to breathe for awhile again). > > If you could give me some idea of what to expect (will my nose stop running? will I be able to smell? is there more of a propensity for infections?, etc) and if I should do anything special before or after to help in

healing. Reading 's post (4th surgery) it sounds like recovery will be much harder than my doctor has presented it to be.> > I should tell you that I will be doing (hopefully successfully) ASA desens in June. From what I have read, it seems like one of the few things works for some to keep the polyps away for awhile. > > Thanks for your input.> TC>------------ --------- --------- ------

[Guest guest]

> From: gwenrafter@...

>

> I am having so problems with noise in my ears. I constantly hear my pulse in

> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone

> but the noise continues. I hear it day and night. Does anyone else have this

> problem?

>

As it turns out, I also can hear my pulse in my ears, especially when the

ambient noise around me is low.

In my case, I know this is partly due to a " tight " aortic valve which will

need attention some day, but I must admit it seems exacerbated in recent

weeks in which I am more congested, and fighting polyps (with irrigation),

probably triggered by whatever spring allergens are going around.

Conversely, I perceive that my heart symptoms are exacerbated by the

breathing problems that come with the congestion and polyps.

All cases are different, but if you have any suspicions about your heart

(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

Just a "check this first" note. According to Dr. Manny (Alverez), the leading cause of Tinnitus (ringing in the ears) is wax build-up. Think there also is a link to Samters/Chronic allergies etc., but it's still a good idea to clean out your ears too, just in case.

(I cleaned my ears but still have Tinnitus, at varying noise levels).

In a message dated 5/13/2009 5:32:32 P.M. US Mountain Standard Time, jonzbyz3@... writes

I have issues with intercranial hypertension. Meaning the pressure of my cerebral spinal fluid gets high. One of the first symptoms is a loud swooshing noise in my ears. I cannot take steroids at all because it always causes the pressure to rise rapidly. I cannot help but think it causes somewhat of a rise in everyone. I always think it is interesting to hear how many people with samters also have tinnitus. I have posted about this before and I know that several of us have a diagnosis of Intercranial Hypertension (aka Psuedotumor Cerebri) but I wonder how many have both and just have not been diagnosed. Some of the other symptoms are headache and pressure in your head and neck. That makes it very hard to distinguish from Samter's. I notice that I never have one flair up without the other, for me they always run hand and hand. Tiana

From: Jane Marino <janesmarino@...>samters Sent: Wednesday, May 13, 2009 7:19:34 PMSubject: Re: Noise in ears

I too am on a short course of Prednisone. It never fails. As soon as I start the Prednisone, the noise starts again in my ears. This time it's hanging in the left ear. It's like a constant loud wooshing noise! I have hearing loss anyway from Samters, but the added noise is a nusance.

Jane

From: q2 <kenwest@echo- on.net>Subject: Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

Recession-proof vacation ideas. Find free things to do in the U.S.

[Guest guest]

I too am on a short course of Prednisone. It never fails. As soon as I start the Prednisone, the noise starts again in my ears. This time it's hanging in the left ear. It's like a constant loud wooshing noise! I have hearing loss anyway from Samters, but the added noise is a nusance.

Jane

From: q2 <kenwest@...>Subject: Re: Noise in earssamters Date: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by

thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

I have issues with intercranial hypertension. Meaning the pressure of my cerebral spinal fluid gets high. One of the first symptoms is a loud swooshing noise in my ears. I cannot take steroids at all because it always causes the pressure to rise rapidly. I cannot help but think it causes somewhat of a rise in everyone. I always think it is interesting to hear how many people with samters also have tinnitus. I have posted about this before and I know that several of us have a diagnosis of Intercranial Hypertension (aka Psuedotumor Cerebri) but I wonder how many have both and just have not been diagnosed. Some of the other symptoms are headache and pressure in your head and neck. That makes it very hard to distinguish from Samter's. I notice that I

never have one flair up without the other, for me they always run hand and hand. TianaFrom: Jane Marino <janesmarino@...>samters Sent: Wednesday, May 13, 2009 7:19:34 PMSubject: Re: Noise in ears

I too am on a short course of Prednisone. It never fails. As soon as I start the Prednisone, the noise starts again in my ears. This time it's hanging in the left ear. It's like a constant loud wooshing noise! I have hearing loss anyway from Samters, but the added noise is a nusance.

Jane

From: q2 <kenwest@echo- on.net>Subject: Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by

thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

Tiana,

This is interesting and after googling Intercraniel Hypertension, a little unerving considering I certainly have some of these symptoms. I have been a migraine sufferer all my life. Would my neurologist have necessarily checked me for this?

Jane

From: q2 <kenwest@echo- on.net>Subject: Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with

the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

I've had pressure headaches all day everyday for the last 12 years. It gets worse with activity. I think I need to check into this a little further.

I'm glad I read this post.

Tami

Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

No,I doubt your neurologist would just check for it. I did not get diagnosed until I had been on several rounds of steroids. ( One was a Medrol pack after I had my one and only anaphylactic reaction to aspirin.) It got so bad that I was losing my vision and could not stand to be in the light. I ended up in the hospital before I got a diagnosis. Now that I know how it feels and sounds I can tell my Doctor when I am having a problem before he can even find any of the diagnosable symptoms. They mostly are looking for Papelademia (bleeding) in the back of the eyes. My specialist who treats me for this is a Nueroopthamoligist, he can tell when my pressure is up by the pumping of the vessels around my optic nerve. This all sounds really horrible and scary but

the treatment for me was very simple. I take Diamox until the pressure comes down. It is a medication that has less side effects than anything they have ever sent me for Samters. I do my best to avoid steroids but if it is totally necessary I take Diamox with it. I am not sure but I think that Diamox is used for a migraine med sometimes. They tried another Med on me first that has the same mode of action and it is used for migraines I will try to look it up because I am not remembering it's name. I do think that the Samter's and Intercranial Hypertension are linked, my specialist says he cannot definitively say either way. This is why I find the symptoms that so many of us have in common so interesting. I would be curious to know what your neurologist thought about it. They probably would not make a diagnosis without some of the optic nerve issues because a spinal tap is the only for sure way to know

what your pressure is at ( yuck!!!) Keep me posted in what you find out. It would be interesting to know if the Diamox would help with your tinnitus. TianaFrom: Jane Marino <janesmarino@...>samters Sent: Wednesday, May 13, 2009 8:55:49 PMSubject: Re: Noise in ears Tiana, This is interesting and after googling Intercraniel Hypertension, a little unerving considering I certainly have some of these symptoms. I have been a migraine sufferer all my life. Would my neurologist have necessarily checked me for this? Jane From: q2 <kenwest@echo- on.net>Subject: Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM > From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with the congestion and polyps.All cases

are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

I am so glad that this maybe helpful. Keep us posted on what happens. Thanks TianaFrom: Tami Klumpyan <tami1961@...>samters Sent: Thursday, May 14, 2009 9:24:56 AMSubject: Re: Noise in ears

I've had pressure headaches all day everyday for the last 12 years. It gets worse with activity. I think I need to check into this a little further.

I'm glad I read this post.

Tami

Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

Hello

I also have intercranial hypertension. I always thought that it

is a result of Samters, using steroids and other medicine. I also have my pulse

sound in my ear and tinnitus, again I think as a result of Samters. I have had middle

ear infection numerous amount of times, specially when my children were young.

I have had Samters for 40 years. (I’m 50 years old) I think it is result

of long term Samters and using a lot of medicine. What do you think?

From: samters

[mailto:samters ] On Behalf Of Tiana

Sent: 14 May 2009 03:31

samters

Subject: Re: Noise in ears

I

have issues with intercranial hypertension. Meaning the pressure of my

cerebral spinal fluid gets high. One of the first symptoms is a loud

swooshing noise in my ears. I cannot take steroids at all because it

always causes the pressure to rise rapidly. I cannot help but think it

causes somewhat of a rise in everyone. I always think it is interesting

to hear how many people with samters also have tinnitus. I have posted

about this before and I know that several of us have a diagnosis of

Intercranial Hypertension (aka Psuedotumor Cerebri) but I wonder how many have

both and just have not been diagnosed. Some of the other symptoms are

headache and pressure in your head and neck. That makes it very hard to

distinguish from Samter's. I notice that I never have one flair up

without the other, for me they always run hand and hand.

Tiana

From: Jane Marino <janesmarino@...>

samters

Sent: Wednesday, May 13, 2009 7:19:34 PM

Subject: Re: Noise in ears

I too am on a

short course of Prednisone. It never fails. As soon as I start

the Prednisone, the noise starts again in my ears. This time it's

hanging in the left ear. It's like a constant loud wooshing

noise! I have hearing loss anyway from Samters, but the added noise is

a nusance.

Jane

From: q2 <kenwest@echo- on.net>

Subject: Re: Noise in ears

samters@groups .com

Date: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com

>

> I am having so problems with noise in my ears. I constantly hear my

pulse in

> my ears. It is driving me crazy. I am currently taking Levaquin and

Prednisone

> but the noise continues. I hear it day and night. Does anyone else have

this

> problem?

>

As it turns out, I also can hear my pulse in my ears, especially when the

ambient noise around me is low.

In my case, I know this is partly due to a " tight " aortic valve

which will

need attention some day, but I must admit it seems exacerbated in recent

weeks in which I am more congested, and fighting polyps (with irrigation),

probably triggered by whatever spring allergens are going around.

Conversely, I perceive that my heart symptoms are exacerbated by the

breathing problems that come with the congestion and polyps.

All cases are different, but if you have any suspicions about your heart

(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

I just looked up the symptoms for the IH and my symptoms match perfectly. I am going to check with a doctor for this. Can this be seen on a regular cat scan? I had a brain scan done a few years ago and the neurologist didn't notice anything.

Tami

Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

They can not see IH on a CAT scan or an MRI in fact a diagnosis is only made in the absense of an abnormal scan or MRI. It use to be called Psuedotumor Cerebri meaning fake tumor or no tumor. They have changed the name because they now know that it is a pressure change of the cerebral spinal fluid and tumor is misleading. I do not know how readily neurologist look into this. I know that is becoming more well known. It could not hurt to bring it up. Keep us all posted. Tiana From: Tami Klumpyan <tami1961@...>samters Sent: Thursday, May 14, 2009 1:26:36 PMSubject: Re: Noise in ears

I just looked up the symptoms for the IH and my symptoms match perfectly. I am going to check with a doctor for this. Can this be seen on a regular cat scan? I had a brain scan done a few years ago and the neurologist didn't notice anything.

Tami

Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

I totally think that they are related. I wish I had solid proof other than the fact that when one is bad they are both bad ( samters and IH). The IH came after I had an ENT who started slamming me with antibiotics and steroids after a very unsuccessful surgery. Steroids have been unquestionably been linked to IH. TianaFrom: Tiana <jonzbyz3@...>To:

samters Sent: Thursday, May 14, 2009 3:46:38 PMSubject: Re: Noise in ears

They can not see IH on a CAT scan or an MRI in fact a diagnosis is only made in the absense of an abnormal scan or MRI. It use to be called Psuedotumor Cerebri meaning fake tumor or no tumor. They have changed the name because they now know that it is a pressure change of the cerebral spinal fluid and tumor is misleading. I do not know how readily neurologist look into this. I know that is becoming more well known. It could not hurt to bring it up. Keep us all posted. Tiana From: Tami Klumpyan

<tami1961verizon (DOT) net>samters@groups .comSent: Thursday, May 14, 2009 1:26:36 PMSubject: Re: Noise in ears

I just looked up the symptoms for the IH and my symptoms match perfectly. I am going to check with a doctor for this. Can this be seen on a regular cat scan? I had a brain scan done a few years ago and the neurologist didn't notice anything.

Tami

Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]



Tiana,

This is uplifting news for me because I couldn't understand why there aren't lots of people with samters that have headaches every minute of every day. I felt very alone in this issue. I also can't take steroids because my retina detaches when I do. I'm going to investigate this very thoroughly and speak with my pain doctors too. maybe we could try a different approach just for the heck of it. I'm on high doses of tramadol every day. Sometimes 400 mg on a bad day.

Thanks Tami

Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

Tami Good luck and please keep me posted. If I can help with any other info let me know. TianaFrom: Tami Klumpyan <tami1961@...>samters Sent: Thursday, May 14, 2009 4:09:40 PMSubject: Re: Noise in ears



Tiana,

This is uplifting news for me because I couldn't understand why there aren't lots of people with samters that have headaches every minute of every day. I felt very alone in this issue. I also can't take steroids because my retina detaches when I do. I'm going to investigate this very thoroughly and speak with my pain doctors too. maybe we could try a different approach just for the heck of it. I'm on high doses of tramadol every day. Sometimes 400 mg on a bad day.

Thanks Tami

Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]



I printed out a bunch of info that I will read in bed tonight.

Thanks for everything Tiana.

I'll have questions tomorrow.

Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

I think it would pay for any of us who have Samters and also live with daily headaches to get this checked out. I have lived with daily headaches and persistent migraines since I was 12 years old. This all really has me wondering. I see my ENT June 9th and will definitely check this out. Thank you for sharing this with us Tiana.

From: q2 <kenwest@echo- on.net>Subject: Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms

are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

I was treated in 1985 for my pseudotumor and I thought it was all behind me. I was on Daimox for over a year but I have not had it since. I do take lasix for my hypertension and I hope that will help since Diamox is a diuretic. In today's culture Diamox is considered an old drug but I will ask about it on my next trip to the doctor. I was released by the neurologist in 1987 and I have not been seen by another one. I think I may need to be seen.by another dr.

From: Jane Marino <janesmarino@...>samters Sent: Thursday, May 14, 2009 8:57:08 PMSubject: Re: Noise in ears

I think it would pay for any of us who have Samters and also live with daily headaches to get this checked out. I have lived with daily headaches and persistent migraines since I was 12 years old. This all really has me wondering. I see my ENT June 9th and will definitely check this out. Thank you for sharing this with us Tiana.

From: q2 <kenwest@echo- on.net>Subject: Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart symptoms

are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.

[Guest guest]

My understanding is the psuedotumor or IH ( intercranial hypertension) is something that can reoccur at any time. If you have been symptom free since 85-87 then that is great. If you are still occasionally having symptoms then I would take another look at it. With the Samters ever present I cannot stand any additional pressure in my head. When they are both well controlled they are both very tolerable. I do not take Diamox all the time. I only take it when I am having a reoccurance no matter how slight. Different things can cause a rise in my intercranial pressure but taking steroids is a bet on it for sure kind of deal. I know Diamox is an old med but it is the only thing that works for me. We tried Topamax first and it did not go well.

Diamox is a quick and easy fix for me. Keep us posted on what your new Doctor says. I know we all see to many Doctors as is, but I have a NeuroOpthamologist who is my specialist for this maybe you could find one in your area. Thanks Tiana From: "gwenrafter@..." <gwenrafter@...>samters Sent: Friday, May 15, 2009 12:19:11 PMSubject: Re: Noise in ears

I was treated in 1985 for my pseudotumor and I thought it was all behind me. I was on Daimox for over a year but I have not had it since. I do take lasix for my hypertension and I hope that will help since Diamox is a diuretic. In today's culture Diamox is considered an old drug but I will ask about it on my next trip to the doctor. I was released by the neurologist in 1987 and I have not been seen by another one. I think I may need to be seen.by another dr.

From: Jane Marino <janesmarino>samters@groups .comSent: Thursday, May 14, 2009 8:57:08 PMSubject: Re: Noise in ears

I think it would pay for any of us who have Samters and also live with daily headaches to get this checked out. I have lived with daily headaches and persistent migraines since I was 12 years old. This all really has me wondering. I see my ENT June 9th and will definitely check this out. Thank you for sharing this with us Tiana.

From: q2 <kenwest@echo- on.net>Subject: Re: Noise in earssamters@groups .comDate: Wednesday, May 13, 2009, 1:50 PM

> From: gwenrafter (DOT) com> > I am having so problems with noise in my ears. I constantly hear my pulse in> my ears. It is driving me crazy. I am currently taking Levaquin and Prednisone> but the noise continues. I hear it day and night. Does anyone else have this> problem?> As it turns out, I also can hear my pulse in my ears, especially when theambient noise around me is low.In my case, I know this is partly due to a "tight" aortic valve which willneed attention some day, but I must admit it seems exacerbated in recentweeks in which I am more congested, and fighting polyps (with irrigation),probably triggered by whatever spring allergens are going around.Conversely, I perceive that my heart

symptoms

are exacerbated by thebreathing problems that come with the congestion and polyps.All cases are different, but if you have any suspicions about your heart(eg., untoward shortness of breath), you might want to check it out.