New to the group

[Guest guest]

I have had my Samters diagnosis for 13 years now and have had 6

surgeries. I recently moved from Texas to California and am finding

that it is hard to find a Dr. that is will to work with me. My

symptoms were under control for a while until I gave birth to my

third child and (I believe due to the hormones) now am in constant

pain and nothing is helping, not even the oral steroids. I know that

at this point the only way that I will get relief is through

surgery. My PCP sent me to an ENT last week who told me " that I am

not in pain since I have had so much of my sinuses reconstructed that

their is no way that they could be hurting me " I tried to explain to

him that not only do they hurt but I am to the point now that I can

no longer put on make-up in the mornings because it hurts so much to

touch my face. He looked at the CT that I had done, in which the

radiologist said that my sinus cavities are " completely filled with

polyps " and that " the only way that this patient will get relief is

by removing them surgically " , he said that " while I see what they are

seeing I do not agree with the report. " He said that he feels

that " I should have never allowed the Doctor in Texas to do any

surgery. " And that there is nothing that he can do for me except to

tell me that in his opinion " I truly cannot be in pain and that is

what he will send in his report to my PCP. "

With that said I am trying to do some research to find a Doctor out

here that knows about Samters and that can help me.

I have been enjoying reading all the post and have learned a lot more

than I thought that I would.

Thanks,

Marjory