Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Tami, that is what they told me at Scripps, as a matter of fact. Whether it is true or not, I do not know. Can't tell for sure with me -- I took an NSAID once in 1989 while on the tube in London -- got off at the next stop in severe respiratory distress and there must have been some angel at work because it was the stop for the National Lung and Heart Institute in London! Next time I took it I had a similar reaction but maybe a little worse -- the nose and eyes were much more involved. Then the times I took it at Scripps, which was two times desensitized, were pretty bad except they dosed me with meds pretty much right away so it never was allowed to get that horrible. Lori > > Lori, > Is it true that with each subsequent allergic reaction, that it gets worse? It seemed that way with me. > Tami > > Re: Aspirin Desensitization > > > I have said it many times before but I always have to say it > again: I do not recommend aspirin desensitization at home, > ESPECIALLY if you have had bad reactions and/or are afraid of doing > it. I am convinced I would die the next time I took aspirin on my > own. I almost did the first times I took it before I knew I was > allergic. Actually it wasn't even aspirin, it was ibuprofen. > > My reaction in the hospital desensitization both times I did it in > 1995 and 1998 was pretty severe but because I was at Scripps I felt > safe. > > Not everyone can do this safely. It really depends upon your own > knowledge of your reaction to aspirin from the past -- which CAN > change from one time to the next and is not completely predictable. > > I am glad we have the info in the library for those who do wish to > try it, but I always think it is a last resort and something I > personally would never, ever try. > > Lori in NY > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 tami i'm not an expert on this by any means, but here is what i understood when i went through desensitization. typical samters reaction is not anaphalysis (spelling?) but rather nasal, ocular, pharynx, and asthamtic (for some.) with this, each time the body is exposed to the same dosage of aspirin, the reaction will become less and less severe. with anaphalysis, the reaction will become MORE severe at the same dose. I think that's why some people aren't candidates for desensitization. I remember that Dr Bosso watched us like hawks during our second dose - to make sure that the reaction was indeed less, rather than more, severe. hope this helps, and someone please clarify if i'm wrong! jl > > Lori, > Is it true that with each subsequent allergic reaction, that it gets worse? It seemed that way with me. > Tami > > Re: Aspirin Desensitization > > > I have said it many times before but I always have to say it > again: I do not recommend aspirin desensitization at home, > ESPECIALLY if you have had bad reactions and/or are afraid of doing > it. I am convinced I would die the next time I took aspirin on my > own. I almost did the first times I took it before I knew I was > allergic. Actually it wasn't even aspirin, it was ibuprofen. > > My reaction in the hospital desensitization both times I did it in > 1995 and 1998 was pretty severe but because I was at Scripps I felt > safe. > > Not everyone can do this safely. It really depends upon your own > knowledge of your reaction to aspirin from the past -- which CAN > change from one time to the next and is not completely predictable. > > I am glad we have the info in the library for those who do wish to > try it, but I always think it is a last resort and something I > personally would never, ever try. > > Lori in NY > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 I think I could clarify here -- during desensitization you do take a second dose of the same amount and that is how you become desensitized, as said. But I thought what Tami was asking, and what I was referring to, was when you take aspirin but are NOT desensitized, and then take it again another time while not being desensitized, is your reaction worse that time. And at Scripps they told me, yes, it would be worse. Therefore each time I would get desensitized, the initial reaction could potentially be worse. Or if you accidentally took it or didn't realize (as in my case) after the first time that you were allergic/sensitive. I do get anaphylactic shock from aspirin, but, no, my reaction did not become worse on the second dosage from each level of the aspirin. The anaphylactic shock was at the very first dosage. I did have a more severe reaction than most people with Samters, or so they told me at Scripps. Anaphylactic shock or anaphylaxis has these symptoms: respiratory distress, hypotension (low blood pressure), fainting, unconsciousness, urticaria (hives), flushed appearance, angioedema (swelling of the face, neck and throat), tears (due to angioedema and stress), vomiting, itching, and anxiety, including a sense of impending doom I got the respiratory distress, hypotension, urticaria, flushed appearance, swelling of the face, neck and throat, tears, vomiting, itching and anxiety along with a lot of nasal symptoms and nausea, but I did not faint or become unconscious. I have never ever heard of some people not being candidates for desensitization. At Bosso's office they do not desensitize the most severe because it is not inpatient. That's what they told me when I was at Dr. Bosso's. I never got desensitized at Bosso's by choice, but they did receive my records from Scripps and I did not hear whether it was okay for me to be desensitized in the office or not. Hope this clarifies a bit more. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 ah! Dr Bosso told me the same thing. Each time the reaction would be worse. Also, if you discontinue with aspirin, and then decide to go through desensitization again, the reaction during the procedure could be worse. I completely agree with you about attempting desensitization alone - it seems like a very unsafe thing to do. especially if you live more than 5 minutes away from a hospital. You just never know how your body is going to react. jennifer > > I think I could clarify here -- during desensitization you do take a > second dose of the same amount and that is how you become > desensitized, as said. > > But I thought what Tami was asking, and what I was referring to, was > when you take aspirin but are NOT desensitized, and then take it > again another time while not being desensitized, is your reaction > worse that time. And at Scripps they told me, yes, it would be > worse. Therefore each time I would get desensitized, the initial > reaction could potentially be worse. Or if you accidentally took it > or didn't realize (as in my case) after the first time that you were > allergic/sensitive. > > I do get anaphylactic shock from aspirin, but, no, my reaction did > not become worse on the second dosage from each level of the > aspirin. The anaphylactic shock was at the very first dosage. I > did have a more severe reaction than most people with Samters, or so > they told me at Scripps. > > Anaphylactic shock or anaphylaxis has these symptoms: > > respiratory distress, > hypotension (low blood pressure), > fainting, > unconsciousness, > urticaria (hives), > flushed appearance, > angioedema (swelling of the face, neck and throat), > tears (due to angioedema and stress), > vomiting, > itching, and > anxiety, including a sense of impending doom > > I got the respiratory distress, hypotension, urticaria, flushed > appearance, swelling of the face, neck and throat, tears, vomiting, > itching and anxiety along with a lot of nasal symptoms and nausea, > but I did not faint or become unconscious. > > I have never ever heard of some people not being candidates for > desensitization. At Bosso's office they do not desensitize the most > severe because it is not inpatient. That's what they told me when I > was at Dr. Bosso's. I never got desensitized at Bosso's by choice, > but they did receive my records from Scripps and I did not hear > whether it was okay for me to be desensitized in the office or not. > > Hope this clarifies a bit more. > > Lori > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Hi, just wondering if anyone has been told that they were an unsuitable candidate for aspirin desensitization? I had a fairly severe allergic reaction to 30 mg of aspirin on day 1 of the protocol. If so, what did you do? I do not want to give up so quickly on this therapy. I would appreciate any advice. Thanks. Lori in St. Louis, MO Sent on the Sprint® Now Network from my BlackBerry® Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2011 Report Share Posted September 8, 2011 Oh yes, I forgot the polyps! How could I forget - 5 surgeries to date. samters From: darciecoe@...Date: Thu, 8 Sep 2011 12:01:26 -0700Subject: Re: Aspirin Desensitization Hi . Were you reacting to most foods(salicylate containing or related)? How were you diagnosed with Samter's? The reason I ask is because Samter's, by definition, includes asthma. Thanks, Rob. From: <skydancer1@...>samters Sent: Thursday, September 8, 2011 11:01 AMSubject: RE: Aspirin Desensitization I had aspirin desens recently and it has made a huge difference in my symptoms. No more runny noses, sneezing, itchy ears, which was a daily issue. I sleep much better. (asthma was never a problem). Started on 1300 mgs/day, after a month went down to 625/day. Feeling pretty good so far, other than a chronic sinus infection which was there before the desens. Being treated for that. Aspririn desens worked so far for me, will have to wait for the long term effects.There is a huge amount of info on this board re aspirin desens, you should search. > samters > From: annboucher@...> Date: Thu, 8 Sep 2011 16:44:56 +0000> Subject: Aspirin Desensitization> > Has anyone in the group gone through aspirin desensitization? If so, are> you taking aspirin to control the symptoms, currently? Is it working? > Do you notice a significant improvement?> > > > ------------------------------------> > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.