Guest guest Posted December 5, 2007 Report Share Posted December 5, 2007 Lori is correct. I followed the Scripps plan. I do not remember the specifics but it had me taper down to 325 mg starting about a week prior to surgery and then stop using aspirin a day or 2 prior, then slowly back to the normal dose. It did not have me go down to 81 mg. I reiterate follow the Scripps pre-surgery regimen in the files section. I works great and I did not lose my desens. Marcus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 Thanks for responding further. I am being reduced to 81 mg. for 2 weeks prior to surgery and then probably for 2 weeks post surgery. My doctors feel I will then have to go back up to 1300mg and stay there for some time in order to be fully sensitized again. Janetruelori <lori@...> wrote: I was specifically referring to the person who wanted to go down to 81 milligrams from 1300 for two weeks. It gets really difficult and frustrating around here sometimes when people respond to posts as if they are generalized and meant for everyone.There is no study showing 81 milligrams or 243 milligrams a day is an effective dose for symptom reduction in Samters. Doesn't mean it can't help some people. Maybe it depends on the severity.But there is a protocol specifically for surgery, and that is what I was responding to ... if Jane goes down to 81 milligrams for two weeks she probably won't be desensitized to the higher dose anymore, and then if she needs the higher dose for symptom relief it could be problematic.Outside of surgery aspirin reductions, Dr. son found that some people could go down to 650 milligrams a day and still get symptom relief, but some people (such as myself, and I was in the study) needed to stay on 1300 to get symptom relief. I don't know if they studied it at lower doses, but it is not proven to work in a large population at lower doses. Lori> > >> > > Hi Fellow Polyp People,> > > > > > I am now in my 5th month of aspirin desensitization and still take > > 1300 > > > mg a day. I am heading into surgery next month to correct a deviated > > > septum. My doctor is having me reduce my aspirin down to 81mg a day > > > for 2 weeks before surgery and then while in surgery. I am fearful > > of > > > bleeding badly but I think I am more fearful of going off of aspirin > > > completely and undoing what I have done so far. Has anyone had to > > wean > > > off of aspirin quickly or reduced aspirin quickly for surgery? Has > > > anyone had any serious complications from doing this?> > > > > > Thanks,> > > Jane> > >> >> Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 Thanks Lori. I will definitely check this out. Janetruelori <lori@...> wrote: The Scripps recommendation for surgery is what's in the archives as far as I recall. It's in the links section, under G, desensitizatoin.Lori> > > Hi Fellow Polyp People,> > > > I am now in my 5th month of aspirin desensitization and still take 1300> > mg a day. I am heading into surgery next month to correct a deviated> > septum. My doctor is having me reduce my aspirin down to 81mg a day> > for 2 weeks before surgery and then while in surgery. I am fearful of> > bleeding badly but I think I am more fearful of going off of aspirin> > completely and undoing what I have done so far. Has anyone had to wean> > off of aspirin quickly or reduced aspirin quickly for surgery? Has> > anyone had any serious complications from doing this?> > > > Thanks,> > Jane> > > > > > > > > > ---------------------------------> Get easy, one-click access to your favorites. Make your homepage.> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 I will read over this. My surgeon will not do this surgery unless I go down to 81mg. I need quite an extensive amount of work done on my septum. Its essentially been broken, pushed out of place for years by polyps and I have absolutely no breathing space on my right side. So, I am living on nasal sprays (addictive) and Prednisone so I can breather. My surgeon feels there is just too high a risk of overbleeding at a level of aspirin higher than 81mg. He's not happy about 81mg! The doctor who is desensitizing me is through National Jewish hospital here in Denver. He feels confident that he can keep me desensitized on 81mg for the month through surgery. Janetruelori <lori@...> wrote: The Scripps plan Marcus is referring to NEVER has anyone going down as low as 81 milligrams. The lowest dose I believe is 325 milligrams and maybe one day skipping aspirin. Read the protocol if you haven't already.Lori> That was me Pam/Jane. > I had no major problems following the pre surgical procedure for tapering down my ASA use. I followed the Scripps plan in the archives.> I think I had a little more blood than usual and maybe took a little longer to heal but it sure beat the heck out of having to desens all over again.> Marcus > > > > > ---------------------------------> Be a better sports nut! Let your teams follow you with Mobile. Try it now.> Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 Thanks so much everyone. I am going to read over the Scripps plan today and will talk it over with my doctor. I am definitely a "take charge" kind of girl and will let my doctors know how "I want" to do this. I am really grateful to all of you for sharing. I am lucky to have found this site! Janeuarisk1@... wrote: Lori is correct. I followed the Scripps plan. I do not remember the specifics but it had me taper down to 325 mg starting about a week prior to surgery and then stop using aspirin a day or 2 prior, then slowly back to the normal dose. It did not have me go down to 81 mg.I reiterate follow the Scripps pre-surgery regimen in the files section. I works great and I did not lose my desens.Marcus Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 Thanks Luke. It makes me feel better to hear from someone who did o.k. with surgery and didn't get resensitized from only being on 81mg. My doctors are very confident that this is appropriate. Did you have a lot of difficulty with bleeding being on 81mg? JaneLa Mere <ace3_us@...> wrote: I was down to 81 MG for my surgery I had at Mayo 2 years ago. That is what Dr. son had told me to do and that would only keep me desensatized and not relieve symptoms. I went that low with no problems later I just started back on my dose after surgery. They were worried about me bleeding too much so that is why I went to the very minimum dose possible to keep me from having to go through the des. procedure again. The procedure from Scripps for surgery is in the archives in fact I put it there. I also got it right from Scripps on being able to go down to 81 MG so you cant say nobody has done it I have and was directed to do so.. Luke Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 When I was desensitized I had only one reaction. I don't remember the dose that was the threshold, but it was many steps before the baby aspirin. On 12/8/07 3:48 PM, " truelori " <lori@...> wrote: > You are still desensitized, but are you desensitized to 650 or 1300 > milligrams? I doubt it, because during desensitization each > subsequent higher dose has a reaction. But I don't know. > > So if someone needs to be on 1300 milligrams a day and goes down to > 81 milligrams for a montb, will they be desenstized to 1300 > milligrams still? I guess Jane will let us know what happens. > > Lori > > >>> Lori is correct. I followed the Scripps plan. I do not > remember the specifics but it >> had me taper down to 325 mg starting about a week prior to surgery > and then stop using >> aspirin a day or 2 prior, then slowly back to the normal dose. It > did not have me go down >> to 81 mg. >>> I reiterate follow the Scripps pre-surgery regimen in the files > section. I works great and >> I did not lose my desens. >>> Marcus >>> >>> >>> >>> >>> >>> --------------------------------- >>> Never miss a thing. Make your homepage. >>> >> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2007 Report Share Posted December 9, 2007 Lots of needless worry. Here is a 5 year-old note . . . samters/message/795 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2007 Report Share Posted December 9, 2007 Hi all. I've been away from my computer for a few days. So, to respond, I am apparently desensitized at the 1300mg dosage. I was to begin tapering down in January to see if I would do o.k. at a lower dosage. The goal is not to take such a high dosage for the rest of my life. Once my docs knew that I needed surgery in January, they felt they needed to go down as low as possible to avoid bleeding. They told me that it is quite possible that I will become sensitive again once I am down at 81mg for a month but going to the lower dosage is just plain necessary for surgery. As soon as I can after surgery, my docs will put me right back up to 1300mg. We'll see if I react. We know that I might. I'll keep you posted. Janetruelori <lori@...> wrote: You are still desensitized, but are you desensitized to 650 or 1300 milligrams? I doubt it, because during desensitization each subsequent higher dose has a reaction. But I don't know.So if someone needs to be on 1300 milligrams a day and goes down to 81 milligrams for a montb, will they be desenstized to 1300 milligrams still? I guess Jane will let us know what happens.Lori> > Lori is correct. I followed the Scripps plan. I do not remember the specifics but it > had me taper down to 325 mg starting about a week prior to surgery and then stop using > aspirin a day or 2 prior, then slowly back to the normal dose. It did not have me go down > to 81 mg.> > I reiterate follow the Scripps pre-surgery regimen in the files section. I works great and > I did not lose my desens.> > Marcus > > > > > > > > > > > > ---------------------------------> > Never miss a thing. Make your homepage.> >> Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2007 Report Share Posted December 9, 2007 Thanks for the words of encouragement. I am hoping that I do as well at 81mg. I would love to stay at the lower dosage if it keeps me desensitized. I dont like the idea of living my life on such a high dosage of aspirin. I worry and wonder what would happen if I had an emergency and needed medical treatment and bled terribly because I am on so much aspirin daily. Not a thought that I hold on to for too long. Janeelliecub <elliecub@...> wrote: i know i wrote this before but i am down to 81mg and still desensitized. if i am sick i go up to about 750 and am fine plus i fell good being on 81mg. i still have hardly any polyps and all the other benefits of desenstization. we must remember that doctors still don't know much about this either and most things we will find out on our own. going down to 81mg might not desensitize you as it did not me. laura> >> > > > I was down to 81 MG for my surgery I had at Mayo 2 years ago. > That is what Dr. son had told me to do and that would only keep > me desensatized and not relieve symptoms. I went that low with no > problems later I just started back on my dose after surgery. They > were worried about me bleeding too much so that is why I went to the > very minimum dose possible to keep me from having to go through the > des. procedure again. The procedure from Scripps for surgery is in > the archives in fact I put it there. I also got it right from Scripps > on being able to go down to 81 MG so you cant say nobody has done it > I have and was directed to do so.. > > Luke> > > > > > ---------------------------------> > Looking for last minute shopping deals? Find them fast with > Search.> >> Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2007 Report Share Posted December 9, 2007 Thanks Luke. I appreciate you sharing this info with me. Janeace3_us <ace3_us@...> wrote: I was only on 81 for about 2 weeks. I was des. at 1300 mg but found that 650 would be as good so I take 650 now every day. I have taken 1300 just to see what would happen and I am still Des. to that much. I would have to agree that people are different so what works for me may not be ideal to others. People really need to just stick with the surgery guidelines in the files because that works best.(unless otherwise directed by a qualified Dr.) I only replied to this telling my story about going down to 81mg to show that it worked fine for me. I just wanted Jane to know that it has been done. However if I had to take 1300 everyday I would work my way up to it slowly after being on 81 mg for a month, just in case.Luke> >> > > > I was down to 81 MG for my surgery I had at Mayo 2 years ago. > That is what Dr. son had told me to do and that would only keep > me desensatized and not relieve symptoms. I went that low with no > problems later I just started back on my dose after surgery. They > were worried about me bleeding too much so that is why I went to the > very minimum dose possible to keep me from having to go through the > des. procedure again. The procedure from Scripps for surgery is in > the archives in fact I put it there. I also got it right from Scripps > on being able to go down to 81 MG so you cant say nobody has done it > I have and was directed to do so.. > > Luke> > > > > > ---------------------------------> > Looking for last minute shopping deals? Find them fast with > Search.> >> Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2007 Report Share Posted December 9, 2007 I am going to meet with my doctor to discuss the differences between the Scripps protocol and his protocol for me and my surgery. I'm curious as to why he is having me go all the way down to 81mg. I'll keep you posted. Janetruelori <lori@...> wrote: Yes, I hope everybody reads the link.There seems to be a heck of a lot of confusion out there about bleeding risk with surgery and aspirin. I think we have shown with experience in our group that the Scripps protocol for aspirin before surgery can be followed with great success.Lori>> Lots of needless worry.> Here is a 5 year-old note . . .> > samters/message/795> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2007 Report Share Posted December 9, 2007 That is exactly how they moved me up from dosage level to the next level. I was amazed when I reacted around 250mg. Suddenly I could feel my sinuses start swelling, my nose started running and I had a migraine that came on within about 3 minutes of that dosage. They gave me that same dosage again the next time and I did fine and the migraine started to subside. As they took me up to the 750mg, I did not react. That is where they had me stay, at 750 twice a day. Janetruelori <lori@...> wrote: Did they have you on meds after the first reaction? Just curious.I think I wasn't because I was in the study. Maybe that's not how they do it now that it's out of the study. I don't know. I had multple reactions to subsequent doses each time -- so they would give me whatever dose, say 81 milligrams, then the next time I had that dose I wouldn't react. They would bump me up to the next dose, and I would react to that dose. Then they would give me that dose again, and I wouldn't react. And bump me up, reaction, and so on, until I was at the full dosage taken twice.Lori> >>> Lori is correct. I followed the Scripps plan. I do not> > remember the specifics but it> >> had me taper down to 325 mg starting about a week prior to surgery> > and then stop using> >> aspirin a day or 2 prior, then slowly back to the normal dose. It> > did not have me go down> >> to 81 mg.> >>> I reiterate follow the Scripps pre-surgery regimen in the files> > section. I works great and> >> I did not lose my desens.> >>> Marcus > >>> > >>> > >>> > >>> > >>> > >>> ---------------------------------> >>> Never miss a thing. Make your homepage.> >>> > >> > > > > > > > > > > > > Links> > > > > > > >> Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2007 Report Share Posted December 10, 2007 You're right, they gave me a fast acting antihistamine and that may have stayed active the rest of the day. On 12/9/07 11:42 PM, " truelori " <lori@...> wrote: > Did they have you on meds after the first reaction? Just curious. > > I think I wasn't because I was in the study. Maybe that's not how > they do it now that it's out of the study. I don't know. I had > multple reactions to subsequent doses each time -- so they would give > me whatever dose, say 81 milligrams, then the next time I had that > dose I wouldn't react. They would bump me up to the next dose, and I > would react to that dose. Then they would give me that dose again, > and I wouldn't react. And bump me up, reaction, and so on, until I > was at the full dosage taken twice. > > Lori > > >>>>> Lori is correct. I followed the Scripps plan. I do not >>> remember the specifics but it >>>> had me taper down to 325 mg starting about a week prior to > surgery >>> and then stop using >>>> aspirin a day or 2 prior, then slowly back to the normal dose. It >>> did not have me go down >>>> to 81 mg. >>>>> I reiterate follow the Scripps pre-surgery regimen in the files >>> section. I works great and >>>> I did not lose my desens. >>>>> Marcus >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> --------------------------------- >>>>> Never miss a thing. Make your homepage. >>>>> >>>> >>> >>> >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Yes, we did it in one day. The allergist's office was connected to the hospital. He had three levels based on previous reactions. I was in the middle and was not allowed to leave the office but I could read in the waiting room. You would have been admitted to the hospital based on your history. He studied at Scripps but his methods were not as careful as theirs unless there was a suspected risk. I did not have the IV shunt like you have mentioned. My asthma at the time was bad, but my reaction to the aspirin was like rhinitis. By the end of the day, I was up to 162mg and had not had a reaction since before lunch. The doctor asked me to continue increasing my dose at home and he saw me the next day. My husband was an ENT, so we had access to emergency treatment at home. I didn't need it, but we weren't scared. Pam On 12/11/07 8:06 AM, " truelori " <lori@...> wrote: > Just curious, again, did you do it one day? Mine was over several > days, again, maybe because I was in the study. I don't really know > what kind of protocols people are getting out of the study now for > desensitization. > > Lori > > >>>>>>> Lori is correct. I followed the Scripps plan. I do > not >>>>> remember the specifics but it >>>>>> had me taper down to 325 mg starting about a week prior to >>> surgery >>>>> and then stop using >>>>>> aspirin a day or 2 prior, then slowly back to the normal dose. > It >>>>> did not have me go down >>>>>> to 81 mg. >>>>>>> I reiterate follow the Scripps pre-surgery regimen in the > files >>>>> section. I works great and >>>>>> I did not lose my desens. >>>>>>> Marcus >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>> --------------------------------- >>>>>>> Never miss a thing. Make your homepage. >>>>>>> >>>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 I was placed on increasing levels of aspirin over 2 days until I reached 1300mgs. Janetruelori <lori@...> wrote: Just curious, again, did you do it one day? Mine was over several days, again, maybe because I was in the study. I don't really know what kind of protocols people are getting out of the study now for desensitization.Lori> >>>>> Lori is correct. I followed the Scripps plan. I do not> >>> remember the specifics but it> >>>> had me taper down to 325 mg starting about a week prior to> > surgery> >>> and then stop using> >>>> aspirin a day or 2 prior, then slowly back to the normal dose. It> >>> did not have me go down> >>>> to 81 mg.> >>>>> I reiterate follow the Scripps pre-surgery regimen in the files> >>> section. I works great and> >>>> I did not lose my desens.> >>>>> Marcus > >>>>> > >>>>> > >>>>> > >>>>> > >>>>> > >>>>> ---------------------------------> >>>>> Never miss a thing. Make your homepage.> >>>>> > >>>> > >>> > >>> > >>> > >>> > >>> > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 when you say in the archives where's that as I want to read it. Re: Surgery while on aspirin? I did not have any bleeding problems luckily. It was a tough surgery though they done my frontals. That is my 8th surgery. Luke > > I was down to 81 MG for my surgery I had at Mayo 2 years ago. That is what Dr. son had told me to do and that would only keep me desensatized and not relieve symptoms. I went that low with no problems later I just started back on my dose after surgery. They were worried about me bleeding too much so that is why I went to the very minimum dose possible to keep me from having to go through the des. procedure again. The procedure from Scripps for surgery is in the archives in fact I put it there. I also got it right from Scripps on being able to go down to 81 MG so you cant say nobody has done it I have and was directed to do so.. > Luke > > ------------ --------- --------- --- > Looking for last minute shopping deals? Find them fast with Search. > > > > > ------------ --------- --------- --- > Never miss a thing. Make your homepage. > Answers - Get better answers from someone who knows. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 If you scroll down to the bottom of any page, you will see "Messages", "Links", "Database" etc. in blue. Click on any of those any you can pull up archived messages and info. Jane Stefano Henriko <skunkburner@...> wrote: when you say in the archives where's that as I want to read it. Re: Surgery while on aspirin? I did not have any bleeding problems luckily. It was a tough surgery though they done my frontals. That is my 8th surgery. Luke> > I was down to 81 MG for my surgery I had at Mayo 2 years ago. That is what Dr. son had told me to do and that would only keep me desensatized and not relieve symptoms. I went that low with no problems later I just started back on my dose after surgery. They were worried about me bleeding too much so that is why I went to the very minimum dose possible to keep me from having to go through the des. procedure again. The procedure from Scripps for surgery is in the archives in fact I put it there. I also got it right from Scripps on being able to go down to 81 MG so you cant say nobody has done it I have and was directed to do so.. > Luke> > ------------ --------- --------- ---> Looking for last minute shopping deals? Find them fast with Search. > > > > > ------------ --------- --------- ---> Never miss a thing. Make your homepage.> Answers - Get better answers from someone who knows. Try it now. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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