Re: Aspirin Desensitization

[Guest guest]

I haven't gone through it at National Jewish but I went through it

twice at Scripps when they were still running their study.

It is supposed to help slow teh growth of polyps. It's quite likely

you will have to have surgery again but maybe less often. The sooner

you have the desensitization done post-surgery the better, so if

you're interested you might want to get on it right away.

Lori

[Guest guest]

I went thru the desense in January at National Jewish. Unfortunately,

I had too many stomach problems to continue the course of treatment

and discontinued the aspirin after about 6 weeks.

They are a good resource, and do many of these each year. They are

ready for any reaction to the aspirin you may go through, and monitor y

you closely.

There has been a lot written by others about the effectiveness of

the procedure, and its ability to slow the growth of polyps. Wish I'd

been able to hang in there long enough to get the benefit.

If you want more info on NJH and their procedures from the patient

perspective, feel free to email me directly.

Alice

>

> Has anyone gone through the aspirin desenitization at Jewish

> Hospital? I'd like to know what they do and if it helps slow the

> growth of nasal polyps. I have just had my 4th major sinus surgery

> (not counting office procedures) and would prefer not to have to go

> through this again,if I don't have to! As you can imagine,

traditional

> treatments have not worked.

> Thanks!

> Diane

[Guest guest]

I think many people with aspirin sensitivity have severe reactions during desens

-- some at even lower doses than you -- but they are treated at the time of the

reaction -- with extra steroids, benadryl, inhalers, nebulizers -- so they get

through it. And once they have this reaction and it is calmed down they are

able to up the dose again until the desired level. I believe most (though not

all) people only have to go through the one serious reaction and after that it's

fairly smooth sailing. Does the place doing your desens have lots of

experience?

On Feb 18, 2010, at 3:07 PM, howardb@... wrote:

> Hi, just wondering if anyone has been told that they were an unsuitable

candidate for aspirin desensitization? I had a fairly severe allergic reaction

to 30 mg of aspirin on day 1 of the protocol. If so, what did you do? I do not

want to give up so quickly on this therapy. I would appreciate any advice.

Thanks. Lori in St. Louis, MO

> Sent on the Sprint® Now Network from my BlackBerry®

>

> ------------------------------------

>

>

[Guest guest]

Lori,

You could start with 5 mg. We have some here that were as reactive as

you and were desensitized. You are right not to give up so quickly.

Pam

howardb@... wrote:

> Hi, just wondering if anyone has been told that they were an unsuitable

candidate for aspirin desensitization? I had a fairly severe allergic reaction

to 30 mg of aspirin on day 1 of the protocol. If so, what did you do? I do not

want to give up so quickly on this therapy. I would appreciate any advice.

Thanks. Lori in St. Louis, MO

> Sent on the Sprint® Now Network from my BlackBerry®

>

> ------------------------------------

>

>

[Guest guest]

My doctor started at 10mg which I reacted to. It was repeated until I

stopped and then increased and repaeted....It was a long slow process but I

got through it it and it the strangest wonderful feeling when you get a dose

and no longer react.

michelle

Aspirin Desensitization

Hi, just wondering if anyone has been told that they were an unsuitable

candidate for aspirin desensitization? I had a fairly severe allergic

reaction to 30 mg of aspirin on day 1 of the protocol. If so, what did you

do? I do not want to give up so quickly on this therapy. I would appreciate

any advice. Thanks. Lori in St. Louis, MO Sent on the SprintR Now Network

from my BlackBerryR

------------------------------------

[Guest guest]

> Hi, just wondering if anyone has been told that they were an unsuitable

> candidate for aspirin desensitization?

There needs to be a reason for being declared " unsuitable " .

What reason was given?

> I had a fairly severe allergic reaction

Yes, desensitization INCLUDES HAVING A REACTION.

The trick is to do it gradually so that the reaction is miniimzed,

and also to know that you have the tools at hand to deal with that reaction,

which could be just an inhaler at home, or whatever a doctor has in their

office, or full hospital supervision, depending . . .

>to 30 mg of aspirin on day 1 of the protocol.

Was that the first dose? In which case it was too high.

If it was a subsequent dose, did 4 hour elapse between doses?

>If so, what did you do?

What you do with a reaction, which is what you want, is to wait until it

subsides, and then take the same dose again, and then go on from there.

That's what desensitization is.

What you do with a doctor who tells you that you are " unsuitable " is to ask

him what the hell he/she is talking about, and whether he/she knows more

than a pile of rabbit droppings about Samters.

>I do not want to give up so quickly on this therapy. I would appreciate

> any advice.

The advice is to not give up. Read the stuff in the files here, and drop

the doctor.