Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Hi, May I ask what ASP desensitization is? I have anosmia and at one time thought it could be samters but it is not. I also recently developed asthma and am in the process of finding out what my allergies are. I am hoping that my sense of taste and smell will return once the allergies are discovered and I begin the allergy shots. Do you folks think this is possible. I have had sinus surgery and removal of polyps and now they are back and I am not having the surgery again. I also respond to Prednisone but being a diabetic, the ENT will not give me it anymore. Thanks and look forward to all your replies Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Jim- I've had this condition for over 7 years and have had two sinus surgeries. I have been on oral steroids the entire time and like you, I am having complications due to their long term use. So I was told to attempt a desensitization. I had ASP desensitization performed five weeks ago at s Hopkins. So far, no improvement for me. It seems I have traded chronic rhinosinusitis symptoms for constant wheezing and coughing from the ingestion of the ASP. I have had to take 2 steroid pulses since the desensitization, and after a CT scan last week, I was told to resume a four week course of antibiotics since the radiologist saw pansinusitis. I will continue the ASP for a few more weeks before I declare the effort a failure. I am looking in the low-salicylate diet so many Samter's patients have mentioned on this message index. I found a web site that lists salicylate content of food. Look under http://users.bigpond.net.au/allergydietitian/fi/salicylates-list.html Anyone else out there have any success with the diet?? Good luck- Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Barb, I have been on the diet for about a year. I have had one relaspe to where I went back on the prednisone, and am just getting off it. But for the most part once I get on the diet, I think I do a lot better. Once I have been on the diet for a while I can tell when I have had something that my system won't tolerate cause I start a slight wheeze. Then there comes the "I have to cheat or else" mood and if I can keep it under control and only cheat on one meal and back on the diet I do better, but if I go with the theory that "just a bit more" won't hurt, I end up on in big trouble with the sinuses etc. Believe me, I know now with all the experimenting just how far I can go before I get in big trouble. I think that is just human nature though, to test it. All in all, I do feel I have less problems with my nose and can actually start to smell and taste if I am really strict with the diet. I think it is worth a try of about about a year. By then you should know whether it is going to work or not. Some may know sooner, but I am such a cheater and I switch back and forth between Atkins and this allergy diet. I really feel good on the Atkins diet, but sometimes I just need that pasta. Good luck -- ASP desensitization Jim-I've had this condition for over 7 years and have had two sinus surgeries. I have been on oral steroids the entire time and like you, I am having complications due to their long term use. So I was told to attempt a desensitization. I had ASP desensitization performed five weeks ago at s Hopkins. So far, no improvement for me. It seems I have traded chronic rhinosinusitis symptoms for constant wheezing and coughing from the ingestion of the ASP. I have had to take 2 steroid pulses since the desensitization, and after a CT scan last week, I was told to resume a four week course of antibiotics since the radiologist saw pansinusitis. I will continue the ASP for a few more weeks before I declare the effort a failure. I am looking in the low-salicylate diet so many Samter's patients have mentioned on this message index. I found a web site that lists salicylate content of food. Look underhttp://users.bigpond.net.au/allergydietitian/fi/salicylates-list.htmlAnyone else out there have any success with the diet?? Good luck-Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 If you are wheezing and coughing with the maintenance dose, then my bet is that the maintenance dose is too low. It should be at least 1000mg/day, maybe more, ie., 3 or 4 aspirins per day. regards, Ken West > From: " bmv1966 <bmv1966@...> " <bmv1966@...> > Reply-samters > Date: Tue, 25 Feb 2003 22:00:43 -0000 > samters > Subject: ASP desensitization > > Jim- > > I've had this condition for over 7 years and have had two sinus > surgeries. I have been on oral steroids the entire time and like > you, I am having complications due to their long term use. So I was > told to attempt a desensitization. > > I had ASP desensitization performed five weeks ago at s > Hopkins. So far, no improvement for me. It seems I have traded > chronic rhinosinusitis symptoms for constant wheezing and coughing > from the ingestion of the ASP. > > I have had to take 2 steroid pulses since the desensitization, and > after a CT scan last week, I was told to resume a four week course > of antibiotics since the radiologist saw pansinusitis. I will > continue the ASP for a few more weeks before I declare the effort a > failure. I am looking in the low-salicylate diet so many Samter's > patients have mentioned on this message index. > > Barb > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Do you have a reaction to aspirin or other NSAIDs? If yes, then you may have Samters, and you should review all the postings in this group that relate to that -- look for " desensitization " in the subject, or do a search on " desensitization " . If no, then you probably do not have Samters, and most of the stuff posted here will not be of use to you. regards, Ken West From: Flourish99@... Reply-samters Date: Tue, 25 Feb 2003 21:36:30 EST samters Subject: Re: ASP desensitization Hi, May I ask what ASP desensitization is? I have anosmia and at one time thought it could be samters but it is not. I also recently developed asthma and am in the process of finding out what my allergies are. I am hoping that my sense of taste and smell will return once the allergies are discovered and I begin the allergy shots. Do you folks think this is possible. I have had sinus surgery and removal of polyps and now they are back and I am not having the surgery again. I also respond to Prednisone but being a diabetic, the ENT will not give me it anymore. Thanks and look forward to all your replies Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Barb, Did you know that Dr. Samter denounced his low salicylate diet right before he died? I found this out a while back but the lists he was using were the ones from the early 1900's. With new technology, the lists that are out there today are very different from the lists Samter used. I wonder if he would have been so quick to denounce the diet if he had of been using these new lists. A low salicylate diet was the first line of defense back in the 70's when I was diagnosed. Now dr's don't even hardly mention it because Dr. Samter denounced the diet. I feel like the diet does help. At first it will make you even more sensitive to salicylates but as time goes on, you should be able to increase your salicylate tolerance level, just like with the aspirin desense. Unless you are one of a small subset of Samter patients who have an IgE response to aspirin/salicylates. I have the IgE response, that is why mine is so severe. Most Samter's patients are what they call intolerant to aspirin and can tolerate a certain amount in foods, skin care products, etc... The URL you list is a very good salicylate list. Be aware that the white potato in the states does have salicylates. On this list, peeled, white potatoes are listed as having no salicylates. The difference is in the variety they tested for. This list is taken from the Royal Prince Alfred Hospital of Australia and the variety tested was the Sebago. We have Russets over here that most of us eat and they do have a salicylate content. In fact, the russet has .50mg per 1/2 cup serving. I cannot eat potatoes at all. I am seeing some results with the diet. I have been following what they called low salicylate diets since being diagnosed back in the 70's but I wasn't seeing any results. In fact they changed the diet on me 3-4 times. Now I know the reason why I wasn't seeing any results was because the lists given to me obsolete and what we thought were low salicylate foods, were in fact not. I do have to say that with the Royal Prince Alfred Hospital lists, that my nose stays clearer, my skin isn't bright pink all the time, I am not itching like I was and I am not swelled up with reactions. I would say the diet does help but I will say it again....following the diet will make you more sensitive at first and just one mistake and you will notice problems right away. This sensitivity can last for years depending on how reactive you are. Given time though, you should be able to increase the salicylate foods. " bmv1966 <bmv1966@y...> " <bmv1966@y...> wrote: > I am looking in the low-salicylate diet so many Samter's > patients have mentioned on this message index. > > I found a web site that lists salicylate content of food. Look under > > http://users.bigpond.net.au/allergydietitian/fi/salicylates- list.html > > Anyone else out there have any success with the diet?? > > Good luck- > Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 - Thanks for the info on the white potatoes. I am taking 1300mg of aspirin a day so it doesn't matter now, but if discontinue the aspirin it will. I was assuming one of my favorite foods was on the safe list. Thanks- Barb > The URL you list is a very good salicylate list. Be aware that the > white potato in the states does have salicylates. On this list, > peeled, white potatoes are listed as having no salicylates. The > difference is in the variety they tested for. This list is taken from > the Royal Prince Alfred Hospital of Australia and the variety tested > was the Sebago. We have Russets over here that most of us eat and > they do have a salicylate content. In fact, the russet has .50mg per > 1/2 cup serving. I cannot eat potatoes at all. > Quote Link to comment Share on other sites More sharing options...
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