Positive news!! T3!!!

[Guest guest]

I have had my hospital appointment and believe it or not there is progress.

I am to drop to 75mcg Levothyroxine and have

20mcg T3!

Clearly he did take it on board that I only feel half-fixed with my symptoms and

stuck to his word.

All this went as well as could be expected, considering the lab did not test T3,

despite the consultant writing on the form " test T3 even if TSH and T4 are

normal " and me asking the phlebotomist to phone the lab to request it.

My results that were on 100mcg Levothyroxine, selenium were:

TSH 1.42 (0.35-5.5)

T4 20 (10-24)

T3 NOT DONE -

It was reasonable for him to recommend GP prescribe T3 (perhaps he knew there

would be trouble if he didn't).

The time before that, my T4 was as high as it could be without being out of

brackets, and the TSH was as low as it could have been and be in brackets). I

don't know why it has changed though.

I think this is a major hurdle getting the trial of T3.

(Even though we all know that strictly speaking as a former DR P patient, I have

taken Cytomel and Armour so I am not really new to T3)

One comment I would like to make is that I gave him a bullet-pointed list of

symptoms that I typed yesterday. He commented that he wasn't sure if a lot of it

is thyroid related but shows I am " generally unwell " . In my mind there has to be

a reason for poor functioning and being generally unwell. I didn't dare query

that too much, in case he would say it's to do with the CFS. Clearly you guys

will say you were bound to feel generally unwell on no T3 this year...

He is also very vague about what combination/dose I will end up on in the end

and how long it will take. He did say that once I get on a set dose, that will

be it for life, unless there is a specific reason to change it.

Therefore all the more reason to get me on a proper dose, so I am not

self-funding/adding to tablets for life then.

I tell you something else, he doesn't like giving me a prescription to take to

the hospital pharmacy so I could start there and then, but my request is at the

GP surgery.

Sheila mentioned about adrenals and showed me a link. I have been wondering if a

lack of T3 (no longer case from this week) has been stressing the adrenals

anyway.

He said to take the T3 in the mornings with the Levothyroxine. But if I find

that I still get the afternoon energy crashes, I can divide the dose of T3

between morning and lunch-time and use a tablet cutter.

Any thoughts about this side of thing? Because I know you don't get an accurate

dose when cutting tablets. If you still get the pm energy crashes, is that a

sign that you need 2 tablets of T3 a day and that perhaps dividing the dose will

tide you over, but not fix it?

I am concerned though that even at this hospital you cannot get T3 checked

though.

Any other thoughts about what to expect from now?

Fiona.